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Bohring Opitz Syndrome 

Special Books by Special Kids
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Hazel is one of 30 people in the world diagnosed with Bohring-Opitz syndrome.
Watching us meet for the first time will make you question how you perceive humans with differences.

Опубликовано:

 

21 янв 2017

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Комментарии : 77   
@MagnumDragon
@MagnumDragon 2 года назад
As the parent of a child who passed away from difficulties with Bohring Opitz Syndrome, I thank you. Not many people know about the ASXL 1 mutation and the special moments it bring.
@lavinaking9164
@lavinaking9164 Год назад
How old sorry to hear.❤
@MagnumDragon
@MagnumDragon Год назад
@@lavinaking9164 Was 6 months old. And he fought hard for all 6 of those months. I'm still extremely proud of him.
@lavinaking9164
@lavinaking9164 Год назад
@@MagnumDragon Amazing little boy my god bless you and your family, please continue to share his story, I have had news this week my son has BOS🥲 at first I cried but I'm trying to stay positive and take each day as they come❤
@MagnumDragon
@MagnumDragon Год назад
@@lavinaking9164 that's all you can do. Take 1 day at a time. I'll give you the same advice my primary nurses gave us. It'd like the cha cha. 2 steps forward, 1 step back. I will keep you and your family in my thoughts and prayers.
@lavinaking9164
@lavinaking9164 Год назад
@@MagnumDragon I appreciate you ❤️
@wisepugs9758
@wisepugs9758 2 года назад
It is heart warming to see all the affectionate comments about my little cousin. Thank you.
@MelissaBackwoods
@MelissaBackwoods 2 года назад
I love being able to re-watch these videos and how we can all leave supportive comments now that we can comment 💚
@brittbratt1103
@brittbratt1103 3 года назад
Hazel is adorable. Her glasses are so cute. This makes me happy to watch.
@aronlelenora9572
@aronlelenora9572 Год назад
❤❤❤❤
@cherylsutherland9464
@cherylsutherland9464 3 года назад
Hazel is absolutely beautiful. . Chris you are wonderful & soooo gifted in this area of your life 🇺🇸 Love from Perth Australia 🇦🇺 I watch these videos over & over again , my ❤ goes out to each & every one of them & There families , Chris i had a autism son who i lost 9 years ago & my heart continues to ache , , as my heart aches for each of these beautiful people , you are just wonderful !!
@clarkslip5155
@clarkslip5155 2 года назад
This is the most beautiful channel of youtube.
@christycritser2819
@christycritser2819 3 года назад
That was a spirit to spirit moment. It is illuminating.
@amandacotten1654
@amandacotten1654 2 года назад
Hazel, you are so adorable and really smart for finding ways to communicate. I hope you always get the best of everything in life.
@Iamonlyadoll
@Iamonlyadoll 2 года назад
If more people in the world had your kindness and compassion, the world would be a better place!! You have a beautiful soul sir!! Thank you for this channel and thank you for your example!! ❤🌻
@jazzjones00
@jazzjones00 2 года назад
"Positivity and Acceptance" That, alone, would make the world a completely better place for everyone.
@SUPERSPAZD
@SUPERSPAZD Год назад
YES!!!!!!! 🙌🏽❤️🙌🏽
@Tranquility32
@Tranquility32 2 года назад
It’s beautiful to see this special connection and communications. Sometimes we don’t need our language to understand each other. Lovely, lovely Hazel.
@GrizzlyO
@GrizzlyO 2 года назад
My grandpa is John Opitz, one of the men the syndrome was named after.
@WuHa105
@WuHa105 2 года назад
So cute. And her little aqua colored glasses 🥺
@Kai-eb1fv
@Kai-eb1fv 2 года назад
Brought tears to my eyes 😭
@hablin1
@hablin1 Год назад
You are always so respectful to these children ❤️❤️❤️❤️
@AmarMah
@AmarMah Год назад
It's special personality and love that you, and so many other people give, that makes children's days more bearable. And it is something that the world can not be without. This is a wonderful video as always.
@davidhutchison9556
@davidhutchison9556 Год назад
You are amazing Hazel. Thank you.
@sxhasra
@sxhasra Год назад
Chris ur acc so respectful to everyone such as sofia, adalia Hazel literally everyone! ur a good guy and now i know my brother with autism fits in with everyone else
@marleenninaka1303
@marleenninaka1303 3 года назад
Hi everyone: It's so nice to see you all again on RU-vid. I want to meet you all one day. Take care and stay safe.
@giuliamalaquias
@giuliamalaquias 3 года назад
Hazel is a beautiful little girl
@jenniferbalogh9487
@jenniferbalogh9487 2 года назад
This was the sweetest video. It made me tear up when she looked at you Chris and talked in her way. Wow! Thank you for all you do to let us see all these special people like Hazel. 💜 I have a question. I noticed that some of the special people you meet make that sound with their mouth. What is the sound? I have worked with people who have many different disabilities and some of the nonverbal people make this sound. I at first thought it was them grinding their teeth, then I thought maybe clicks. I just thought I'd ask so I can better understand.
@CharGC123
@CharGC123 Год назад
It is tooth grinding and very common.
@brendadickenson6743
@brendadickenson6743 Год назад
🙂🥰Hazel is really cute and lovingly special.
@johnjobin7694
@johnjobin7694 Год назад
Such a beautiful moment between you and Hazel❤️ Thank you for sharing❤️ Sending love❤️
@gwenverde7970
@gwenverde7970 11 месяцев назад
This is so sweet. Communication doesn’t always have to be speaking & interpreting language. An exchange of positive energy is enough as evidenced here. ❤
@jackie4350
@jackie4350 Год назад
I think she understood everything you said and appreciated it
@cindylunceford3626
@cindylunceford3626 Год назад
Hazel is a little angel 😇
@happybergner9832
@happybergner9832 2 года назад
I believe she does indeed read people's energy♥️
@jennifercochran6398
@jennifercochran6398 2 года назад
So sweet.
@andreleverettejr3747
@andreleverettejr3747 Год назад
She's absolutely adorable! God bless her
@inestorres6789
@inestorres6789 Год назад
🥰🥰🥰 Que niña tan dulce !!! Me hizo acordar a la protagonista de la película : "Gaby" , con Norma Aleandro. Que es basada en un hecho real !!! Saludos desde Uruguay 🇺🇾.
@helenwhite1748
@helenwhite1748 2 года назад
wow truly amazing
@emilypfleger4311
@emilypfleger4311 3 года назад
so cute. how does she make that sound?
@Katieluvsyou709
@Katieluvsyou709 2 года назад
Shes grinding her teeth!
@emilypfleger4311
@emilypfleger4311 2 года назад
@@Katieluvsyou709 oh! ty!
@kamranriaz4661
@kamranriaz4661 2 года назад
Bohring opit syndrom
@OldManLuffy
@OldManLuffy 2 года назад
@@kamranriaz4661 opitz
@JonathanHernandez-mm3nd
@JonathanHernandez-mm3nd Год назад
May god be with Hazel and god bless her family.
@BalboaBaggins
@BalboaBaggins 6 месяцев назад
She's constantly communicating in her own way. We as humans need to learn different ways to connect to people.
@natsdirksen9628
@natsdirksen9628 2 года назад
She is so adorable and so unique💕 I would love to meet her, I'm In Love 💖 God bless you all abundantly 🙏
@robiny.4395
@robiny.4395 2 года назад
Wow, so amazing
@bss280
@bss280 2 года назад
She’s so cute! :))
@alwaysbekindandhappy6874
@alwaysbekindandhappy6874 Год назад
Hazel is such a cutie 💕💕💕💞💞💞
@pauldow1648
@pauldow1648 Год назад
Empathy and understanding
@elizabethhutson9767
@elizabethhutson9767 2 года назад
What a beautiful little girl. What a beautiful creation from God. 💗
@vipersb1
@vipersb1 2 года назад
Ummm... I don't need to say it? Do I?
@VVSKO504
@VVSKO504 2 года назад
How do I register to be on your show?
@sadiautumn
@sadiautumn 6 месяцев назад
I don't care I love Hazel and who doesn't she's amazing. I love how she is holding your hand. Everyone communicates differently I hope others can understand that about her. I'm sure people are jealous that you get to meet her. 🥰
@alcoholikosnaftis
@alcoholikosnaftis 2 года назад
What these "clicks" she did ,were?
@Hellohihey670
@Hellohihey670 2 года назад
Hazel, you are so smart and beautiful. Thank you for sharing your story with us. You are wonderfully made by God, and Jesus loves and accepts you just like Chris does ❤️ have an amazing day
@jordanferrazza8700
@jordanferrazza8700 Год назад
What are the clicks by the way? Sounds like some sort of jaw grate or something
@notmarkeza7937
@notmarkeza7937 Год назад
Support from me!
@aronlelenora9572
@aronlelenora9572 2 года назад
❤❤❤
@irishunter1660
@irishunter1660 Год назад
That's priceless that money can't buy .
@Cetrifuga1945
@Cetrifuga1945 Год назад
Ciaoooo comunicatore divulgatore di sani principi benz
@Katieluvsyou709
@Katieluvsyou709 2 года назад
My baby sistsrr had it!!
@user-mq5dr1jh5t
@user-mq5dr1jh5t 11 месяцев назад
she sounds like a cute dolphin!
@arsalanabolfathi552
@arsalanabolfathi552 Год назад
❤❤❤❤❤❤❤❤❤❤❤❤
@utube0372
@utube0372 2 года назад
♥️💙♥️
@MSKIMISTRY6Z
@MSKIMISTRY6Z Месяц назад
I might be the only person in the world that truly wanted to watch this video, but the teeth grinding made me nausead.
@Cetrifuga1945
@Cetrifuga1945 10 месяцев назад
Poveracstella una bimba nn è giusto avrebbe diritto di giocare e diventare grande serenamente quante ingiustizie che ci sono al mondo le auguro di guarire ❤️‍🩹🐞🤩
@marivel7188
@marivel7188 Год назад
Translate español a su idioma atención lleva 20 años en los hospitales le enseñó a la gente y yo lo hago cuando los médicos dicen no hay alivio no hay remedio para usted se está muriendo se muere está agonizando se mira al cielo puede ser un primo un tío un amigo o el el mismo enfermo se dice espíritu santo con el mismo poder que hiciste el sol la luna las estrellas la tierra al ser humano los animales y las raíces con ese mismo poder sáname sáname ya regálame la salud completa que yo te juro que voy a hacer sacrificios te juro que toda mi vida de la obra de caridad sáname ya se sale de la vanidad el orgullo se aparta de la sociedad aquello que guardamos para ir a tomar trago para parrandear para bailar para gozar se lleva a cargarle hambre a unas personas bien pobres y empieza el milagro con rapidez a mí me han aparecido a las 6 horas 5 horas milagros grandes delante de toda la humanidad y delante de los médicos que dicen que no hay remedio y que estoy agonizando
@kyhwai
@kyhwai Год назад
Boring or bohring?
@dischorddynne
@dischorddynne Год назад
Bohring. It is most likely a European name. Probably German.
@rocknepoovey4381
@rocknepoovey4381 11 месяцев назад
Ancient German, it means 'to fight'. The Slavic version means pine tree. Ancient personal names.
@Cetrifuga1945
@Cetrifuga1945 Год назад
Buttate le armi e pensate ai vostri figli yes seno vi facciamo la stessa cosa che fate agli altri nn conviene pentitevi Dio forse ne terrà conto .
@jeremikenagy5365
@jeremikenagy5365 Год назад
You 2 are the best humans in the world.God has special things waiting for you both I'm sure
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