BLOG POST: www.savedamian...
As promised, here is our 1-MONTH REPORT!!!
As of May 22, Damian has been on the experimental treatment intended to stop his brain deterioration for 1 whole month! Is it working yet??? I think so - but just to be more scientific about it, I've designed an assessment of activities that Damian will do every month and hopefully the comparison of Damian's behavior month-to-month will show *indisputable progress*!!!
The blog post linked above correlates with this video, as there are some notes I've made that didn't really work in video format. THANK YOU ALL FOR BEING HERE, for cheering us on, and for continuing to help us raise the funds needed quickly for the FINAL TREATMENT we need!!! 💙
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💙ABOUT DAMIAN💙
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 LINKS 💙
GoFundMe: gofund.me/24dc...
Blog and More: www.SaveDamian...
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💙 AS SEEN IN THIS VIDEO 💙
Tinukim iFeed Self-Feeding Bottle: amzn.to/3ukTkCp
19 сен 2024
