Praying for you and all who suffer from this illness, my brother. I have someone in my life suffering from this and I have seen how much it had changed them and made them feel helpless. Hoping love comes to your life and heals.
Thank you for sharing your story I’m currently going through this and I find relief I’m not alone that others are experiencing the same thing with the same symptoms and I’m not crazy . It has been hell but hearing all this helps so thank you 😊
@@cherrybomb3713 If you search online for binocular vision dysfunction you should find a specialist who can diagnose it if you have it. There are not many specialists for this however there should be one at least close enough for you to get to! If you can't find anyone that way, let me know & I will try to find a link of specialists for you. Best of luck!
I came across your channel because I'm about to get surgery for strabismus. Scanning and target switching is an issue for me. I can keep it together A LOT of the time. I had a surgery for strabismus when I was 5. Now im 35 and im noticing I can't control my drifting eye as much. Last week i had to call a tow truck and i noticed i had to close one eye to even look that far down the street. I got headaches and just...damn dude. Tension. All day. Just reaching out and hope you're well.
My story… 18 years ago fell hit my head. Not hard just slightly and twisted my neck. Two weeks later terrible terrible pain behind left eye that I would almost collapse. Pain would last a second or two. MRI negative. Went to 7 neurologist doctors. First one said it was from my fall I disturbed something in my neck. Finally, 2 years later maybe went to famous doctor in famous hospital he said Trigeminal Neuralgia. I still don’t believe it because pain every spring and fall. With pain I felt off, unsteady, constant headaches in front especially behind left eye and behind left side of my head. I would shake, tremble and anxiety out of nowhere! Never had anxiety before. Went to psych doctor thinking anxiety but pills never helped and i stopped them. I searched and searched symptoms. I knew I wasn’t out of my mind with the symptoms since I had some medical knowledge. Finally, I found an ophthalmologist advertising my symptoms. Went through slew of tests doctor asked symptoms and watched the way I walked. Most eye tests I passed and I even had 20/20 vision. But then, doctor gave me tests with red and a white dot on black background. She asked me where the white dot was compared to the red dot. I asked her which white dot? What? What are you seeing? I told her I see the red dot but the white dot is laying halfway over the red dot and there are 3 more white dots laying over each of the white dots in front of them. What? Doctor said I was seeing double vision. What? I don’t see double vision I told the doctor. Then she said your brain is seeing double vision. Now, I have a low thyroid and I have to take Synthroid medication for it. My left eye is normally bigger than my right eye and prior to this they thought I had a tumor behind my eye but I was born with a larger eye. I think this with the thyroid issue caused my problems along with hitting my head because never had an issue before. I got prism glasses cost $875.00. Doctor said they won’t help me right away my brain needs to rework itself. I wore the glasses. Never noticed a difference that much. Then about the 5/6 month I felt better. Then I came home in front door tripped and fell into front door and hit my head on left side and whatever I gained I lost. This was fall of 2019. Spring of 2020 was yearly appt but with Covid all canceled. Went back in 2021. Doctor said eye number went from 40 to 41. Got new glasses. $875.00 again but I kept the old frame. I tried new glasses they were terrible. Supposed to be Varilux trifocals. I went back and they retested eyes. Now they said the 41 number went back to 40 so they sent me new lenses with 40. The new glasses were no good. I gave up! I stopped wearing the glasses. Now comes November 2021 and my plan comes up for glasses so I go to neighborhood eyeglass place and he tells me 20/20 vision. How can that be I wore glasses for 8 years? I asked for bifocals. I get them. These glasses make my good eyesight slightly sharper. But, every time I take the glasses off my left eye hurts! This eyeglass guy said my glaucoma number both eyes are 21/21 the cut off for glaucoma. I go to real eye doctor same one 8 years. I tell her thyroid issue. She checks. No TED. I tell her glaucoma number. They come up with 14/17 normal. (It could have been anxiety medication that can raise numbers). I asked them for eye script. They tell me I don’t need any because I see 20/20? I tell them I don’t understand what’s going on because I’ve been coming here for 8 years and u always gave me script for glasses and now you say I have 20/20 and don’t need them? They wouldn’t give me a script. I wanted their script to see if it was the same as eyeglass place. Went 4 months ago to fancy eye place because my left eye was throbbing behind it on and off. They gave me tons of tests. All normal. Doctor starts to talk to me about anxiety. Now I get mad and tell him I’m not imagining this. There is something wrong behind my left eye!!!!!! He tells me and I go as instructed go ENT, Dentist, Neurologist and someplace else I can’t remember. Oh, I had new MRi. All normal. I go next week back to this eye doctor because he wants to know what the other doctors said. So, I have gotten nowhere. Yet, I still get pain behind my left eye and behind my head. Constant pressure in my head. Feel out of it. Walk unsteady like standing in a boat etc etc. Yet, they tell me nothing is wrong. They are wrong!!!! It’s ruined the last years of my life! I know it’s something to do with my left eye! I wondered if i caused the problem because my tv is in corner of living room and sofa against wall. I have to turn my head and my left eye more to the right to see the tv. I wonder if i stretched the muscle in my left eye by always looking to the right. The right eye doesn’t need to turn as much.
I have this also. Today is the first day of prisms lenses for me. I’m seeing things close and middle fine. Distance is still slow to focus and then it splits into two still. I have had a rough year. My mental health is shot. I just go through motions of life and no one understands. Not even my husband. I’m hoping I adjust to this. But I’m the meantime I feel like I’m at a loss. I don’t even feel like I am in reality. It’s so hard for people to understand. But I completely get what your saying.
Yep, I get panic attacks like crazy. All day, low grade anxiety that can go full blown whenever it feels like it. Never paid attention to the pain in my eyes, although I've complained about them hurting for a long time now. Gonna try to get set up for testing this week. It's progressively getting worse every day. Thanks for the vids
I’m sorry you are going through this. I have had BVD both vertical and horizontal (VH and CI) since birth. I’m 50 now. I always had symptoms but early 30’s my symptoms became debilitating. Fortunately at age 48 I finally connected with a doctor after many years with no answers and have been wearing prisms ever since. So grateful and thankful for the awareness you are bringing. Blessings 🙏🏼
I have BVD but only came across this acronym in the last couple of months, my symptoms only got worse after a stroke snd TIAs (micro strokes) resulting a condition known as FND Learning every day how BVD impacts my life it’s a journey I have prism glasses but they have limited effects on my vision as my brain seams to adapt and I go backwards within a few weeks Thanks for sharing
So I have been out of work for the last 3 years, and what’s incredibly disabling is that my family, my girlfriend everybody doesn’t understand the true disabling symptoms and truth to BVD and they just think I’m making excuses, my father works at an empty factory building houses and I’m sitting out here in the car after he asked me to come in with him and meet his boss so that I can start making a fortune building houses with him, and right now I’m feeling hopefully sitting in the car wanting to just be in the safeness and closeness of my own house. Unable to afford the prescription micro-prism glasses to literally save my life. I feel utterly hopeless. I’ve lost every relationship I’ve been in, constantly bullied by people because they believe I’m just some failure.
Man I live in the UK and I get ALL of your symptoms. There aren't any BVD specialists here and the only relief I get everyday is from codine which numbs the eye pain and headaches everyday. I don't know what to do anymore and I'm just miserable.
Iv been undiagnosed and out of work for 3 years I started smoking at night and it turns it all off like a light swich just saying. You can order prism lenses online good luck.
You dont need any bvd specialists to get these glasses Go to a normal optician , get checked and get them to prescribe you prism glasses . It doesnt require a fancy tool to assess bvd , my local optician does it
@@JakesYan I figured out what was causing my symptoms and it was sleep apnea in the end, waiting on my cpap to hopefully fix the problem. I’m not over wait but have obstructions
Ive just found out about this and think I have Binocular Vision dysfunction too. I always get dizzy everytime in a passenger sit in car since forever and both my parents always say Im on computer too much bcs I like to play games and work in IT field. I got diagnosed with lazy eyes since teenager but I never heard of BVD before, and after some google searches I think thats the cause of my BVD. I feel relieved knowing this, I always thought something is wrong with my brain. maybe i should go see doctor to get checked too
Its the driving that gets me..and its not all the time. There are stretches of time that I feel like I can drive across country and other times when I hit the freeways or areas where there roads are highways with like panoramic views,not sure how to describe this, I will instantly get overwhelmed and , I am almost unable to keep my focus on the roadand I struggle to keepfocused and calm. Today I discovered Binocular Vision disturbance.. I am so thsnkful
Yes, I’m here because I’ve been experiencing these same symptoms for the last few months. Lights coming on or driving at night and the oncoming lights flashing from cars are starting to shock me and now it’s blinding me for a second or two….
FYI to anyone who has been treated with glasses. My symptoms came back after a year of having new glasses. My prescription changed significantly in that time, and now I need new ones. Im not trying to discourage anyone from getting glasses. Rather, I want people to know the symptoms can return. So if you have prism glasses but still feel sick, dizzy, have neck pain, and most importantly, feel anxious or panicked for no reason, return to your optometrist to recheck your prescription asap. Some glasses places have a warranty limited to within a certain time period, so you may be able to have them replaced at no charge if you are quick enough.
Eye Dr apt today and I got gaslit by him. I’ve got all the symptoms and earlier told I might need prisms, it’s all a matter of opinion. I am going to pt for vertigo and they even told me it’s my eyes not my ears. 😢
For a person that has not BVD but Visual Snow Syndrome with migraines, from what you are telling me, there might be few things that may help. First, if you are getting dizziness, vertigo, blurry vision,, etc. then C1-C2 might be misaligned, disk degeneration, etc. and it probably makes sense to see an upper cervical chiropractor. Upper Cervical Chiropractors methodology is completely different than traditional chiropractors and they did get rid of my vertigo/dizziness. The second thing to consider and when you speak with your neuro-optometrist is visual therapy. I do not know if that is a viable option with your condition. Third, another thing that maybe wrong is your inner ears with balance/vertigo issues if you have BPPV or similar inner ear dizzyness/vertigo issues.
I didn’t mention. I do have BPPV. It lasts 2 months then disappears. Sometimes Epley maneuver works, sometimes not. Actually, I’ve been suffering last 2 months. Only dizzy when I get off the bed. I actually think it’s my neck because when i turn a certain way in bed i feel the dizziness slightly. I’ve have had a mri of cervical area Results are bad with bulging discs My primary doctor read the report and didn’t seem concerned I have no pain I also have frozen shoulders for 15 years I can function fine but difficult to reach above my head Seems more my muscles are contracted Could be from type of work i did Made new appt with neuro doctor who sent me for mri after the New Year. Let’s see what he tells me I think there definitely is a connection with my neck and eye with the nerves Went back to neuro optometrist My eyesight got worse Now 20/30 and cataracts got worse but halfway to surgery since not bad enough I did get new prism glasses The pain and pressure in left eye is gone with new glasses Taking a bit to get used to Have them one week now Didn’t seem to help the anxiety issue Still afraid to live All this eye stuff caused me to stop my life because of the way I felt Then Covid hit. Came down with agoraphobia. Fighting through that now. Just a combination of things all set around the eye problem and the dizziness. Can’t take any dizziness meds. Allergic to them with side effects. Seems everything I try it’s no good. Very upsetting. Hopefully, some hope from neuro doctor after New Years.
@@moalf5088 - It sounds like you maybe able to get help from both upper cervical chiropractors and functional neurological chiropractors. I was blown away on how thorough the neurological testing was from the functional neurological chiropractors I went to. It was substantially more thorough than any MD/DO including and not limited to UCSF that is supposed to be ranked 2nd in the nation for neurology and neurosurgery. The functional neurological chiropractors put me on a modified keto/allergy diet and supplement regime as well. I have been on it for over a week and time will tell how well it will work.
@@americanbobtail1 When all this stuff started I went to a regular chiropractor. He was doing the head/neck cracking. He couldn’t do it on me. He said I had to relax. I was relaxed but every-time he tried he couldn’t crack my neck. I refused for him to do it anymore because afraid of possible stroke. At that point, he would put an airbag type apparatus around my neck and blow it up to stretch my neck. I went for a few months and didn’t see any improvement. I stopped going. I know I had arthritis in neck as well. So, I have arthritis in neck, bulging discs in neck and frozen shoulders along with BPPV and anxiety from all this stuff and getting nowhere. Will see what neuro doctor has to say and take it from there. He told me prior to mri since nerve test to my hand was negative that he believed my issues are coming from my neck. Time will tell.
@@moalf5088 - Upper Cervical Chiropractors approach is totally different than traditional chiropractors. First, they take panoramic neck X-Rays. Second, they measure the neck instability by vertebrae before adjustments. Third, their adjustments are strategic and centralized by vertebrae. You will not hear one vertebrae pop. That is my experience and so far the upper cervical chiropractor has helped.
Do you have "neurolens"? Was looking into that. My neuro ophthalmologist takes the eye exercise route more than lenses. I did get prisims from him also, and they can help. Looking into the next step with all this. My symptoms are a trainwreck.
Bro i did have a simelar situation. Ive had Prism glasses prescribed for BVD. Took me couple of months to adjust and feel "better" with them on. And I must say, id did help. But then after almost a year orso it became bad again, and i think its bacause my prims prescription changed. So now im trying lenses and go for BVD therapy instead. But this situatian ruined my life serverly. I miss my awsome years before BVD. Didnt knew I was blessed at that time..
@@TL-ch9hj Its not known by normal opticiens and not every eye doctor does therapy, but with light therapy and with a filter you can train your eye muscles. Second is a long tube with a red and green light and you must follow the 4 sides of the "tube" that you look into.
@@TL-ch9hj You can ask your eye doctor for eye therapy for BVD Binoculary Vision Dysfunction. Its caused by a bad trip that caused light traumatic brain injury. I Hate it and its almost 2 years i wish i had a time machine because it is/was sooooo unbearable bad. 😞
Thank you for sharing. I've been doing research on vision therapy & syntonic light therapy which sounds similar but so expensive & looking like my insurance may not cover it but I'm still hopeful & still researching. I hope it will help you out. It's been 4 years for me... & I thought it might be from having a job looking at the computer all day, every day but I'm really not sure... also I've been learning that a lot of these same symptoms can be ascension symptoms.
@@TL-ch9hj Thats the worst thing about being american. Im European so everything is covered. The thing is if its proven that its BVD that means it cant improve on its own, intervention IS needed. As glasses or therapy. I would advice therapy. But some Golden Tip i will give you for your general eye health. Light sensitivity, dry eyes blurry vision ect. Is all related to vitamin A. The active form is present in COD liver oil. Not carrots take COD liver oil its cheap and really works for eye health. Its super potent. dont exceed the recommended dosage but its really good for you
I have neurolenses for my bvd just got my 2nd lenses yesterday after my eyes relaxed from the first lenses after wearing them for a month and a half. Can only go up from here thanks for the video.
It all started off with one eye floater in my right eye about 7 years ago from there everything just got worse and worse floaters increased like crazy afterimages unable to focus constant migraines and anxiety man the symptoms are just crazy i cant study i try to avoid reading and i just want to sleep all day and now i also have double vision when using only one eye its crazy i hate it i really need help
I have very similar symptoms and the Binocular Vision Dysfunction treatment helps but when your eyes 👀 get strained your symptoms still get worse. Have you been tested?
Yeah i was tested almost a month ago and got my prisms 6 days ago my symptoms still seem the same but the optometrist said its not uncommon to not have a reduction in symptoms in the first couple of week because you have to get used to the symptoms i was told i have a mild convergence insufficiency and accommodative insufficiency, the afterimages i was told would go away but after a bery long time because it’s neurological
I’ve just been diagnosed by my ophthalmologist today. I assumed it was just my squint but turns out I have BVD! Relieved because it’s been causing so many issues and minor falls. Hugs x
I haven't been diagnosed but I started having these symptoms the same day I was released from ICU after having open heart surgery. It was so freaky having thought I had made it through an ordeal only to be having a stroke immediately after dischage. The nurse practitioner said it didn't sound like a stroke and set my mind at ease somewhat but I continued to have them about once a week, each lasting about 2-3 mins and then resolving on their own. It seems a 100% of the time it is triggered when my head is tilted sideways or I am laying on my side. This seemed to have stopped about a year ago but I just had one today. It seems like each eye is reporting the same image to my brain and its doubled up vertically. If I close one eye the image is normal but with both open it's two images overlapping to varying degrees. It is a little comforting knowing that it is almost definitely not something serious but it still produces anxiety.
When I’m driving or in a grocery store it’s so bad and I have to pull over and I feel like I’m violently spinning I’ve been on meclizine for years and it doesn’t seem to help and I’m a really intelligent guy but my reading has been off for years I can’t focus and when I’m going through an intersection it takes me what feels like forever to go through when I feel it’s safe I had these issues for at least 7-8 years
I just started read about this BVD and the symptoms sound alot like what I experience. I was always told I have Dyslexia, but I can read, I can spell I just have a hard time keeping track while I read, moving line to line is difficult so I can be slow at reading. When I drive I have noticed that I get head aches and anxiety, I also get pressure around my eyes. I'm 30 and in good health but it feels like I'm having a stroke but I know thats not the case. I don't have eye insurance but will get it 1/1 when our insurance rolls over. I'm worried about going to the eye Dr because I'm in Maine, I live in a small city but unlikely anyone here specializes in this. Do you know of a resource to connect me with a specialist? I'm near Boston so that's probably my only option.
I got this from covid 19 or maybe I had it for many years. I have asymmetrical face which is a huge factor. In 2020 like in May, I was in the passenger seat and felt weird when I looked through the car window. Days later I played a videogame and felt weird when the screen camera moved. I saw a movie too and also the movie made me uncomfortable and nauseous. Lasted for month then went away until a couple of weeks ago I got covid and again I am feeling like that again.
Hi, I hope your doing well. I want to ask did you have any dimness of vision problem for few days, like your in a dim light setting all day. Another one is, when you mentioned reading, did you feel that particular line is only in focus but like it is concaving or convexing a bit.
can’t do motorways,bridges😮,cliffs,hills,multi-storey car parks, escalators ,shopping malls,beaches if the tide is out and you’ve to walk more than 50meters to the water all these symptoms I get super dizzy and like off balance ,can’t focus ,crown pressure,like if my eyes can’t take it in it’s like your out off motion and the anxiety from this is terrible it’s hard to explain do you think I have bvd judging from the symptoms trying to tell my doc the last 10 year about these symptoms but he don’t understand do I need to see an optician to get tested
I’ve been having BVD since late 2017. Never got an official diagnosis until December of 2021. I got prescribed neurolenses and they were very expensive. When I wear them I feel some improvement, However, I almost never wear them for them to fully take effect so my brain has never fully adjusted to the neurolenses. The symptoms you described are spot on. I often feel disoriented. What you said about looking over your shoulder before switching lanes is 100% accurate as well. It takes me longer than average to realize what’s going on. The anxiety used to be really bad but by now I’ve gotten used to living like this to the point where I don’t really care anymore. I’ve just accepted that this is how I’m going to live the rest of my life. I really don’t want to wear my neurolenses. I absolutely hate how I look while wearing glasses. I’d much rather have confidence and look good than looking ugly with glasses and having comfortable vision. The only times I wear my neurolenses are when I do homework and use the computer. Whenever anxiety kicks in, I take some deep breathes and remind myself “nothing is going on. You just have bvd.” And then forget about it. My biggest symptom of all is that I struggle to read in a straight line. My eyes wander off when reading. This is when the glasses are helpful to me. But other than that, I just wear contacts throughout the day for myopia correction. If I wore them everyday, I’d probably have no bvd symptoms anymore
