Hypermobility Problems with Anesthesiologist Dr. Linda S. Bluestein 

Where are all the EDS folks at??

Mental health therapist - the misdiagnosis and casual dismissal of EDS is so prevalent. Not to mention the comorbidities with POTS, other autoimmune conditions, and PTSD/CPTSD. This discussion is needed!

As someone with EDS and Autism, a life full of "you're too young for that" when speaking of pain and physicians of all sorts just... Not accepting how I feel and looking at Xrays and no contrast CTs saying all is well when it's all soft tissue and things being off all over. Thanks for this.

As a second degree black belt with EDS, I do not recommend martial arts for those high on the mobility spectrum. There are lots of impacts, throws, falls, and grappling requiring hyperextentions until the student slowly taps out. Hypermobile students have tendency not to tap out causing more dislocations than necessary. As a disclaimer, my support system sucked. I was told it would never be an issue and to stop complaining. Getting diagnosed again in my 40s, I wish I knew these things earlier.

This is why it's so important to have diversity in medicine, particularly where disability is concerned. If only medical training could be more accessible, I think we'd have better care all around by injecting some first-hand experience into medical culture.

I also did gymnastics as a child, and at 15 had an injury which required physiotherapy. The therapist told me I was hyper mobile but nothing much else. After years of pain and weird symptoms especially with thermoregulation, I was diagnosed with EDS. The rheumatologist who diagnosed me told me it wouldn't change anything to have the diagnosis but it totally gave me legitimacy on how I was feeling. I've since had a doctor I work with tell me EDS isn't real. The ignorance is astounding! Many thanks for this episode.

So many health professionals know absolutely zilch about EDS. It is under diagnosed, and people go many years without a proper, or worse still, the correct diagnosis.

I am so grateful that I tuned in for today's video!! I think most EDS folks have similar stories of being misdiagnosed for years, yet deep down, knowing something is off. My physical therapist figured out I had EDS within 5 minutes, and for that, I'm grateful because now I have a reason for all my medical issues. Hopefully more physicians will learn how to treat EDS, before our insurance companies say, "No more PT for you!"

I have EDS. At 55, I had sudden onset of divergent strabismus. After seeing 14 ophthalmologists, I had surgery. It corrected the problem but failed after 1-1/2 years. I had surgery again in 2020 and it’s been effective so far although I sometimes lose depth perception. It’s is felt that this happened due to EDS changes in the connective tissue that supports my extraocular muscles. So, Dr. Glaucomflecken, Ophthalmologists do need to be familiar with EDS. I have a myriad of other issues as well. Lots related to EDS. But I also have 2 different cancers and a bunch of other health issues.

The Pentad Supersyndrome is outlined by world famous Dr. Pocinki. EDS includes Mast Cell Activation, Dysautonomia/POTS, GI Dysmotility, & Autoimmune. Please keep spreading the word. I feel like I know way more than my doctors. Integrative Functional Medicine has been so helpful. Thank you from another Zebra who has experienced gaslighting my entire life. 💙

I am a DO that specializes in osteopathic manipulation. I see a lot of hypermoble and EDS patients. I’ve even diagnosed a young lady whose mom was a doctor who had seen many specialists who couldn’t give them answers. We need to spread the word! Thank you for this video. I love learning more and applying that to my patients.

My late wife had EDS and every doctor we went to made us explain it to them because they didn’t remember what it involved aka everything. She worked as an ER tech therefore she had to push many patients up to the units on stretchers. She literally could dislocate and relocate her shoulders multiple times in a shift because of her hyper mobility. Ended up making it to where she couldn’t work for the last decade of her life and ended up passing at age 51. EDS needs much more attention brought to it and taught in a more pronounced way in med schools IMO. Great episode and good luck Mrs. Glaucomflecken!

Since I wasn't dxd with EDS until I was 45 AFTER my middle daughter was diagnosed (her neuro put the puzzle together and sent us to the geneticist), my other three kids (two adult and one now teen) have also been dxd with hEDS. I will always be thankful for Linda being willing to send documentation to Jenicee's doctor's here on Maryland. I am praying that because my youngest was dxd so much earlier than the rest of my family, that she will be on her own health trajectory. But finding physicians who are willing to take the time to try and find answers that take insurance is truly a problem! Very few EDS specialists will take insurance. So us poor still go without treatments even if we know what needs done.

HDS diagnosis in my early 30s. My two pregnancies were SO painful!!! And i absolutely can not and will not do it again 😞. Migraines, neck pain, GI issues, joint pain, in healing joint injuries...etc. list goes on. This was great to listen to, tjanks for the post!

Hypermobility is great in some instances and in some instances, I just want to curl up in a ball and cry.

I love to hear, "I don't know, but I'm going to do my best to find out"

My daughter played soccer through high school ending with osgood-schlatter, achieved a black belt in taekwondo in middle school, always hyper-mobile but never diagnosed as that. Fortunately her scoliosis work up in grade school identified her hip dysplasia as a problem with her flexibility. She has had both hips resurfaced to prevent needing a hip replacement.thank you for covering this. Good information

I was diagnosed with hEDS last year at the age of 22. I have ALWAYS been the most flexible out of everyone I know, and thankfully I had a knowledgeable rheum that was able to diagnose me after 14 years of pain and 'rolled ankles' as well as many many specialists. THANK YOU SO MUCH for raising awareness of hypermobility (and EDS)!!!!

I was at the end of med school when I went to an orthopedic doctor for a seemingly unrelated issue when he noticed I was hypermobile. Had never heard of it before - EDS yes, but only the „extreme“ cases that I couldn‘t relate to me. So interesting!!

I wasn’t diagnosed until my late 30s. I have so much medical trauma. I just stopped saying anything and stopped going to the doctor after a while. I started to think it really was all in my head. A geneticist saw my son and he then wanted to see me. We got diagnosed close together! It was such an amazing experience! I was crying at one point when I was looking at all the EDS symptoms and comorbidities.

HSD pt and both of your stories are so relatable! I was also a dancer through high school and things didnt start getting painful until I stopped when I started college. I count myself so lucky for having a team now that takes my pain seriously and are knowledgeable about hypermobility now as a grad student ❤

Swimming might be fine for hyper mobility but only if they don’t swim butterfly. That one wrecked me.

So I need to tell you Doc and Lady Glaucomflecken - this podcast has changed my life - specifically this episode. I am a primary care internal medicine PA and I stumbled across this episode literally just as I was about to see a patient I am sending for genetic testing for EDS. For years she has been told her chronic pain and symptoms are due to anxiety, and because of this and my subsequent introduction to Bendy Bodies with Dr. Bluestein I have changed the entire way I have diagnosed and managed chronic pain. I've learned more in the past month about hypermobility and chronic pain than I ever thought I would know, and this podcast is partially the reason why You both are amazing, and so are your guests 🩵💙💜

Good ol EDS. I always wonder how much this all makes sense. Local anesthesia doesn’t even work on me!! Couldn’t come out of general for 19 hours. Like COME ON!!! Thanks for addressing this doc!

Hey I have Ehlers Danlos, been diagnosed for about a decade. I'm a 9/9 on Beighton scale at least before my spinal fusion. I also have POTS and other comorbidities. I love your videos and you are hilarious. Thank you for making videos like this and for representing people like myself. I use a walker still but I have improved with some surgeries on my hips and back. I actually found EDS first via RU-vid after looking at POTS videos. It was the answer to everything.

Mom of an HSD and an EDS patient here. Thank you! RU-vid is how we got their diagnoses. Docs had no idea what was wrong with them as all tests returned normal and they had relatively stable joints, but lots and lots of comorbidities. Found a wonderful multidisciplinary clinic here in Pomona, CA and they are getting really great treatment there. Thank you so much for the public conversation and exposure. For anyone who is wondering where else to look for more HSD and EDS information, the Ehlers-Danlos Society has terrific content on youtube. For about 5 years they have been posting their conference talks here for free. It was life changing for us!!!!

I was about 8 years old when I learned what position would dislocate my shoulder. But unlike Linda, it REALLY hurts.

Edit: this is my reply to a comment asking who is to blame. Those individuals, anesthesiologists, nurses, ect, (though MAYBE the diagnosing doctors or LPNs IF they're committing medical malpractice by IGNORING the patient for years, which I have experience with) aren't to blame - even though I'm sure it FEELS like it at the time! I'd be upset! The *system* itself is to blame, for not having proper research or education available to medical professionals for the things that insurance companies don't like to pay for (such as chronic illness.) *FOR-PROFIT HEALTHCARE is to blame.* EDS is not rare; they just don't want to deal with it since it doesn't financially profit them to, so it's filed away as too "rare" to care/learn/think about and patients aren't diagnosed properly even after years of begging for help. (I had to buy my own xrays on Groupon at 30 years old, OUT OF POCKET, just to force the doctors to look at my permanently disfigured spine that would've been fine if they'd actually listened to me in time.) Recent studies show that 3.7% of the population has EDS now and it's only growing every single day. COVID19/SARS (the leading cause of death for young people, 1/3 survivors getting long covid) and even things like exposure to plastics and microplastics (which are unavoidable as it's now in the rain) can/will trigger EDS in people who wouldn't have had noticable issues with it otherwise. I say that as someone who has vinyl chloride poisoning (the liquid/gas form of PVC plastic) from a train derailment in Paulsboro NJ where tests show the world's highest recorded PFASs (forever chemicals, plastic) in the water and soil. I also have crude oil poisoning from the refinery and other chemicals from the neighboring plant, like sulfer dioxide. The difference was extreme. My lower left rib tore off and my spine twisted/curved and I started having syncopes that turn into seizures. I'm still not recieving any treatment - and I'm still being ignored, despite not only being hypermobile but extremely hyperlax. 9/9 on the beighton score. *EDS IS NOT RARE* and it never will be again at the rate things are going and how interconnected everything is, even with PTSD and CPTSD triggering it, and the world is very traumatic to live in with chronic illness so it snowballs out of control all the time. I now have autonomic nervous system dysfunction at 33. I will never be healthy again.

I'm only 20 minutes in and just getting constantly called out in this video, although it was only last year i learnt of the high comobidity with adhd and hyper flexibility

At 37, my neurosurgeon (Chiari Malformation) diagnosed me with hEDS. In school, I ran track and blew out each knee three times. I can dislocate a shoulder in my sleep. I am basically Elastagirl. After the sixth injury to my left knee (walking), my ortho told me I needed all four ligaments replaced with corpse donor material. He said the recovery would be hard and recommended I see another ortho who was an EDS specialist treating tendon/ligament damage with blood platelet therapy, not surgery. I met with the ortho and thought everything he said sounded too good to be true. Then I called the National Institute of Health Rare Disease department, asking if they had heard of this treatment and did they endorse it? They said they do for tendon/ligament damage but not muscle damage. They also sent me two links to research papers on the treatment (one was authored by the ortho I consulted). I decided to give it a try since I very much wanted to avoid traditional knee surgery. It wasn’t pain free but only involved about 20 injections around the knee. After three days the pain and swelling was gone. It’s been four years and the knee has been solid as a rock, allowing me to feel comfortable doing long hikes over uneven terrain. Previously, I couldn’t do a quarter mile steep down hill without fear of blowing it out. I did try it on a muscle tear in my forearm, and as the NIH predicted, it didn’t work at all and hurt 10x worse then the knee ligament injections. I am going to try it on the ganglion cysts in my knuckles next. Highly recommend even though my insurance wouldn’t cover the $1600 procedure … but would have paid for an inpatient knee surgery and weeks of PT.

One of my favourite RU-vidrs talking about hypermobility! This made my day!! 🦓

I love this video! It's so important to talk about these types of issues and get the information out there. There is one thing that I want to talk about tho when it comes to sports and hypermobility that I think not enough of the doctors that hear about hypermobility help us with. The experts are the only ones who are trying to get us to exercise more but there are people who literally Google it and don't know how important it is for us to exercise and then tell us to just bandage ourselves brace ourselves and sit in a wheelchair and wait for our lives to be over. This is absolutely unacceptable there are too many doctors who are too ignorant about hypermobility and I'm so glad that you guys are talking about how important it is to work out and exercise and have a sport but to be careful with it too. So long story short my husband carries a hypermobility type gene that is very similar to Marfan syndrome and I have an actual EDS gene. Are kids both got our genes one of each. With that being said there in gymnastics and they are building muscle. Ever since they were in it they have entered so much less. For me personally two years ago I started working out with weights not going above 5 lb and I've done so much better for it. There needs to be more information out here, more medical research paperwork being allowed out and published and doctors reading it and teaching their patients that they need to build their muscles. Some doctors allow you to go to physical therapy and some doctors tell you you need to do physical therapy for an injury when the reality is you have to do physical therapy and muscle building for the rest of your life because this is a lifelong condition for us we have to treat it for the rest of our lives by getting strong and staying strong. There's so many of us that end up in a wheelchair and stay there because we did not see the right doctors because too many doctors are being told the wrong information. I really appreciate this video because it is so incredibly necessary to know the things that you guys were talking about . You have to find the right sport for you and if you're like me and you're really disabled in the heads because I was born with severe hip dysplasia that was never fixed then you can't do sports but you can certainly do strength training workouts

Ive had several people hypothesise that i have eds. Went to a rheumatologist and they did one test... They bent my thumb back and as it wasnt as hypermobile as the rest of me (due to pain in my hands) they said no. Having done lots of extra reading i think they are wrong. It's so hard to get any sort of diagnosis to be honest.

Watching this episode gave me a true lightbulb moment with various health... oddities I experience. I'm now on course to start getting properly evaluated to find out if I have a hypermobility disorder such as EDS, HSD, MTCD, etc. Thank you for this episode.

Thank you so much for having subtitles

Found out I’m hypermobile at age 37 when I began PT for the 4th time last year. It’s been an eye-opener - I need to watch my posture in all positions, especially passive ones like how I sleep. My hip will go out of alignment if I sleep on my side and don’t put a pillow between my knees. My PT has told me that I’m going to be in PT on and off for the rest of my life. EDIT: Oh dang, swallowing issues, unexplained bruises, crashing into stuff, spinal disc issues, IBS-C, SIBO - that’s ALL hypermobility too?? 🤯

Interested to hear this. My epidural wore off approx 20mins into a Caesarian. I went into pain shock & anaesthetist had to knock me out. I’d had prep with anaesthesia pre date too, I had tolerance tests for local anaesthetic on my arm & that worked fine 🤷‍♀️

I never expected this. I'm so happy! Thank you for making this!

Hey Dr. G, I hear there's an ophthalmologist conference in Denver right now. If you're there, you oughta jump across the street to the MAPS Psychedelic Conference. Lots of docs here, probably ALL fans...

No EDS but hyper mobile (very clearly in many ways and confirmed by doctors), I really found an interest in the section around 28:00 when Dr. Bluestien was talking about connective tissue disorders, as I have many of the symptoms and random conditions caused by connective tissue disorders. I guess it’s time for another doctor’s appointment to find out for sure

Left handed paramedic here! Yes, we still hold the laryngoscope in our left hand 😊

Started ballet at 4, was in the Nutcracker on showtime at 10. . . age 16 I had my cancer scare that ended with a lumpectomy. Being a dude, I lost all my muscular flexibility (though my joints were still hypermobile. One of my favorite tricks was to stand with my feet facing straight back. . . rotated in opposite directions.) I'm lucky in that I don't have any INJURIES directly attributable to EDS, but my intestines have always been problematic.

My colorectal surgeon diagnosed me with hyper mobility in my late 60s.... explains the osteoarthritis through out the whole body.....and probably explains the fibromyalgia and chronic fatigue

Undiagnosed probably-EDS here and the number of times doctors just glaze over as soon as I say I'm hypermobile...and the dismissal when I tell them I'm resistant to local anesthetic is absolutely infuriating. As someone in their mid-30s in a lot of pain right now, I hope I too have a future of lower-pain 50s, because spending most of my day trying to manage my body-wide joint pain just plain sucks. I'm pretty sure my mom has it too, also undiagnosed - she had FIVE herniated discs in her back for YEARS and just kept being told to lose weight. That's insane, and quite frankly, it's a waste. We're both intelligent people; what might we have been able to do with ourselves if we weren't all eaten up by physical pain? "Your issues have issues," is extremely relatable.

Listening to this while I do my Physical therapy. Love to see a spotlight on hypermobility.

I think the biggest issue with getting the appropriate care is that the doctor you're gonna see most likely has no idea what you're experiencing, and if the standard tests don't produce anything interesting and you're not dying at least right now, you're just gonna be forgotten, told to go home and come back if you start dying. Like so so so many quality of life killing problems do have a specialist or someone who knows what to do about it, but your average doctor has no idea 1. what's going on 2. what to do 3. forward you to anyone. They'll just lift their hands saying it seems there's nothing wrong. Or they might imply that you have hypchondria. Just because they don't understand what's going on. I had a similar experience as lady Glaucomflecken with digestion and bowel issues, it got bad enough to just lie in the bed all day feeling nauseous, dizzy, hurting in abdomen, joints, chest, skin burning. It ruined my night's sleep, it ruined my university studies. The doctors kept shrugging and asking if I have tried FODMAP or melatonin or just telling me there was nothing in the results. I got 0 results and 0 help. Even when I filled a toilet bowl with blood, it wasn't until then that I even had colonoscopy (that was btw a fun experience, you know when they say the bowel doesn't feel anything so colonoscopy doesn't hurt, but you scream all the way through from pain for the first time of your life and yet there's nothing wrong with you) and apparently that should be among the first things to make sure it's not cancer (took 4 years to have that). Started to have acid reflux and airway infections as well when the bowel problems got easier. The biggest improvement I probably had was going to the gym and watching physiotherapy stuff from youtube that helped with posture. My spine was somewhat of an S, my foot was pointing to directions, my upper back was a mess, not to talk about hip or shoulder/arm. Not a single time I was sent to a nutritionist or physiotherapy (even though I had mentioned a couple of times the issues with posture and such balances). Turns out that if you're not breathing properly, you have slouched posture and twisted unbalanced body with ribcage all over the place, your whole digestion can get out of whack. And like I had had some heavy antibiotic prescriptions for molar operation and respiratory infections. It's not that it completely got rid of those problems, I still eat daily lactobacillus supplement which seems to help a lot too, but made the symptoms so unnoticeable they might just as well not exist anymore. Maybe not a surprise to some people, but the doctors couldn't put together 1 + 1 in this case. Also the high acidity turned quickly to low acidity and that caused the acid reflux for the longest time while popping the pills to reduce acidity, the doctors didn't even consider that even though apparently it's a very common thing to happen. Well, they just forgot to give me lab results too so I wouldn't put too much expectations on them. I also have a friend who complained for weeks and went to emergency reception because she was hurting so bad she'd just sit still not being able to do anything or sleep, hoping the pain goes away, and she was told it's nothing special. She was just told to consider stopping smoking. Some weeks later she had googled enough to reply to the nurse or doctor who suggested something completely different than what her problem was, and somehow she got through to someone who understood things and she went straight to operation and could finally live normally. And good luck trying to explain that you have some actual problems when you have an undiagnosed fibromyalgia. I feel like especially women get to regularly face with the "you're just imagining things because I didn't find anything when I first thought of it". Even things like depression that's extremely common here these days and there has been campaigns for a decade or two already and constant talk about it on media. And what's the response from nurses? "You're just trying to get attention. You're imagining things. Everyone has ups and downs in life". Some nurses/doctors can be extremely unfit to their job, in fact some of them should never be interacting with people at all. Which is kinda shocking in a job that is first and foremost about interacting with people. As you can see from the rant, it makes me so upset sometimes to see these things happen and it can alter a person's whole life in good and bad depending on if they happen to have the good medical person or bad medical person to deal with. Only now I understood how Dr. Glaucomflecken played the really long game. For years making silly short hospital doctor comedy to gain massive following. Then suddenly turning it into educational information spreading channel of doctors and specialists. You win this time mr. Glaucomflecken, you got us. But you didn't know I love learning.

Greetings from a fellow bendy person! I'm 52, chubby, and can stand with one for facing forward and the other facing backward

I LOVED this video. The dr was so engaging and very personable.

I have vEDS, Chiari Malformation, hyperkalemia periodic paralysis, hypothyroidism, gastroparesis, severe pancreatitis atrophy due to chronic pancreatitis. IIH, spontanious spinal csf leaks, sacreal tarlov cyst, TIAs, Strokes, early onset dementia (believed to possibly be Lewy Body). I think that's it. It is certianly enough. All three of my adult children have vEDS and siblings and neices and nephews. I'm so glad to see you share this video.

I, and other people in my family, are hypermobile but not enough for an hEDS diagnosis. At 56, I definitely have injuries and pain due to hypermobility. Opioids don't work on me, and I surgery as a teen basically without pain relief. The past 4 years, I've been dealing with a deteriorating whiplash injury that's left me pretty disabled. I know that geneticists are gatekeeping the hEDS diagnosis, but there are a ton of us out here who still need help!

Hey eyebro. I subscribed to help you get to a million subs.

Your 1 Mil subscriber plaque is coming soon!

I have hyper mobility in some spots and tightness in others from neropathy I was born with (cmt). I tore my sagittal bands as a result of constant over extension in my hands that I didn't even know I was doing. I can't even imagine how much damage one could do with universal hyper mobility without knowing it and not knowing what the correct rang to try to maintain is.

These doctors are my best friends ❤❤❤. They are nice and have great meds to help for pain/surgeries 😂😂😂.

From Texas. Can confirm, Oregon made me soft 😂 Thanks for your videos.

Warning: this is very long, I’m just giving context and asking for advice, you don’t have to read this it is a personal question surrounding my hypermobility. I was very flexible as a child. Party tricks the usual. My mother was also very flexible but I was more flexible than her. And I did swimming at the start, got bored because I was to fast, then I got into Synchronized swimming. And I could do a lot of stuff, but I couldn’t do a split, no matter how much I pushed myself. I also couldn’t do “frog” style (I don’t know how swimming styles are called in english, sorry) Because my feet just couldn’t get into the right angle, spent an entire class trying to fix it, my teacher gave up, my mom gave up, they got mad for not telling my teacher I had “bent feet” because my feet are looking at each other. So I went to a podologist, the podologist tried everything and even tough nothing was working she kept trying and giving me things. Eventually she “gave up” or “figured out” the actual problem all along wasn’t with my feet, but with my knees. Because my knees were bent inwards, not my feet. And I was then sent to a chiropractor. Which went poorly & was expensive. He couldn’t aliviate my pain and the exercises weren’t working. All I can remember from those sesions is being touched repeteadly in different spots and feeling uncomfortable. So then I went to a Orthopedic specialist (I believe they are called) And he would actually aleviate my pain (muscle pain) temporarily and give me exercises. But the pain would comeback with a vengeance and in 4 years it never got better (the bent knees or the pain). Eventually he went on a trip with a dance show as their private doctor? I think. And after that we stopped going to his appointments. During that time (14-16 years old) I left synchronized swimming because of team issues, competitive issues, feeling like I was dragging the team behind etc. And I went onto do Yoga. And things kept getting worse instead of better. more dislocations, more accidents. Mostly between 10-17 years old. I eventually left Yoga because I felt uncomfortable, my mom had been going with me, but later she couldn’t attend and I was surrounded by older people I didn’t have anything in common with. Along with the pain & duslocations persisting. So I abandoned everything. I mostly just walked everywhere and did some “soft dancing” If I danced to hard my knees would pop out. And slowly but surely the dislocations have been turning more into “scares” my knees almost popping out. Muscle pain persists but I’m mostly used to it. A lot of people kept telling my to bike as If it would solve everything. But everytime I try doing a higher mobility sport instead of gaining muscle I just dislocate more. Plus biking is just very uncomfortable in my back. (I had tried it previusly for years, just as a sport, but all it did was make me crash into things). Another thing is that I’m already underweight, losing more calories would just worsen that. I don’t want to be even more in risk of fainting. The weird thing is that I have always been very muscular, even now, with all of the weight loss and the lack of training, I still have big muscles, specially in the shoulder & knee area. I can run really fast, kick & punch fine (poor vending machines) And I can generally move heavy objects (at least of my weight) but when it comes to support, bends and other things my joinst are still very week. It doesn’t matter how much I flex my muscles, I always lose arms wrestling because my joint gives up and bends, even with a fully flexed arm. (it is kinda funny looking). I’m sorry for telling my whole life story (eh, I would like to think I have done more interesting things than my medical history, which isn’t even this, I’m a mess) But I was wondering If anyone has any advice, specially for the muscle pain, (at least other than painkillers), since even tough I have to be very careful, I have learned ti deal with the dislocation. (and have impecable balance due to so many falls). So any advice with said muscle pain? I would like to go back to my normal diet and regain my weight, but idk, anything to eat regularly to help maybe? I have done research and to be honest, my family is pretty tired of this issue, so I have not seen anyone since then, so anything that could help even if it is a suggestion is welcome. Sorry if this is inapropriate or If it is to “venting my emotions”. I just wanted to put it all on the plate to stop hearing the just swim or just bike advice and other similar stuff like “just gain muscle”. I don’t wanna turn into a floppy body builder. Thank you, even if you just read this.

I have an eye question, for you or anyone else here in the comments! I have an appointement with an ophtalmologist beginning of november and I also have a diagnosis of hEDS and POTS (neither of which are well known at all where I live.) My question is what should I be getting checked/discussing with them? What are the potential effects of hEDS and/or POTS on our eyes? Thanks in advance for any help that anyone can give!

This is about to be good

If Lady G has EDS, one of the kids might end up with POTS. My son, born in Arizona, raised in Florida, ended up missing 3 days of school due to heat exhaustion after a day at the playground. He was 11, just before puberty. He ended up with POTS/dysautonomia, which comes from overly stretchy blood vessels. He’s 18 now. We’re still in Florida but hoping he might grow out of this by his early 20s. If your kid seems faint a lot, take the Nephrologist’s advice and up their salt! We use Vitassium.

😂😂😂 „the party tricks“

Lol i remember the "My legs don't work anymore" years

Nice vid ❤❤❤❤

I think the "it's all in your head" part is partly because more patients are female than male.

Omg the sore throat stuff is me! Got laryngeal reflux

This is silly but I do think that just hearing “oh that’s weird” when I told a doctor about my symptoms did, in fact, make me feel weird as hell

Did you have GERD due to EDS where your throat gets sore and your vocal cords are affected?

If a patient has movement which is not an Anesthesia error, but it actually causes a proven averse event or adverse outcome, which nurse gets the blame?

Thank goodness I didn’t have to play that game 😂

Loved the guest but the game was painful to listen to.

Did you learn Dr Linda’s name or are you still calling her Anesthesia?

first?? 🎉 omg I am I'm also flexy

What’s the opposite of EDS? Sorry, just channel surfing and can’t focus long enough to watch the entire video.

Bro your wife should relax and let you talk