Interview with Yale's Akiko Iwasaki 

Thank you so much for addressing Long CoVid as NOT being a psychosomatic disorder. You are 100% correct that it is not - I've never had a panic attack in my life before getting CoVid back in January 2022 nor did I suffer from anxiety. Since getting CoVid both panic attacks and anxiety (that feel physical like a lion is chasing me) are sadly regular things I deal with now. My life was as close to perfect as it could be before getting infected with Covid. I've also developed Mast Cell Activation Syndrome from CoVid. I never had an allergy or a problem with histamine in my life until CoVid. Thank you Doctors for your dedication to finding answers for us who are still suffering from Long CoVid.

Great interview! Our community is lucky to have you both fighting for us!

BTW Even if more complicated immunological tests were made available to general practice physicians, without further training they would not have the knowledge to interpret the results properly and would likely discount the importance of any anomalous results.

Before I got sick with ME/CFS I worked as a programmer. I have often wondered whether getting ME/CFS is analogous to having a software bug triggered by a unique set of conditions. The human body is a very complex biochemical machine - probably many times more complex than a jumbo jet or a nuclear submarine. The field of medicine will probably need to change a lot to properly diagnose and treat different ME/CFS subgroups. Unfortunately ME/CFS does not fit well into any existing specializations of medicine.

Great to see work done on our diseases. Thanks to both.

What is the treatment? I was diagnosed with ME/CFS in 2012. My health has deteriorated and I have not been able to find any effective help. I was active, healthy and worked as an Occupational Therapist. Infectious disease said its post viral and nothing we can do or deal with.

Unfortunately long covid has been a gift to people that have been suffering with chronic lyme and ME/CFS. Now we are being somewhat believed that something is just not right with our body.

Smart of her to be working with patient groups respectfully, to learn from the real experts. Scientists’ tracking success depends upon starting with patient reports and patient evidence.

What are the immunological profiles or makers that she speaks of that allows for 94% accuracy in predicting LC? Does she say this anywhere? On twitter etc

what biomarkers for ME/CFS???????????????????????????????????????????????????????????????

If cryoglobuline occur after SARS COV2 infection ,perifereal microcirculation can be damaged (?)

Did we know at what tissue temperature did SARS COV2 better replicate Why ? Because at TWiV Nr 659 at min29 virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature.

May be high body temperature protect against SARS COV2 replication ?

My EBV and CMV were not reactivated when I got ME/CFS in 1992. So, it can not be anything to do with these viruses.

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