IT MAY NOT BE ADHD // PANDAS // LYME // CIRS // MOM ON A MISSION 

You did such a good job explaining things Jana. I cried with you. We learn by other peoples experiences so thanks for sharing. You always keep a brave front for your channel. You are helping someone who has a child going through similar issues. Thanks

Thank you for sharing your story with us, I can't believe what your son has been through and still going through it. I think your an amazing mama. I'm definitely pray for you all. Xxx

Wow! That story is heartbreaking! You are really strong!!!

I suffer from autism, ADHD, and bi-polar disorder, so when I get angry, I listen to Tchaikovsky to help with the pain I go through every day.

I totally understood everything you tried to explain. Mamma Bears fight to the death for our babies. That’s how we are wired. No child deserves to suffer at the hands of ignorant professionals who think they know your child more than you do. You’ve got this Quinn hang in there buddy!

Jana, you are the best mom! Don’t ever give up! He’s your baby always!

So sorry to hear all this. Sending you all the best from England. Your a lovely family. I have three kiddies and I can't imagine what you go through. Your a great mum

Bir anne olarak sizi çok iyi anlıyorum farklı ülkelerde olsakta dinimizde farklı olsa çok üzüldüm inanın sizinle ağladım şu fani dünyadan baki dünyaya göçene kadar Allah ımızın bize verdiği çocuklarımıza elimizden gelen her şeyi yapacağız inşaallah çocuğunuza acil şifalar diliyorum

He's a brave and lively boy god protect him and by the way Quin you're a wonderful little man god bless you

I'll be keeping you and your son in my prayers. Keep up the fantastic work. God bless you.

You are the most brave woman I ever know in my life.I wish you courage,joy,happiness,love,health for you your family and specially for Quin your little big brave man.Wish you all the best from now on in the new year.

This is heartbreaking I almost cry at some parts of the video hope he is feeling amazing and you are an real superwoman

My daughter was diagnosed with a rare autoimmune disease at 16. Vasculitis, which is prevalent in middle age men. Hers is MPA, her immune system attacks her vascular system of her brain, lungs and kidneys. She has kidney disease now and she’s only 22. She’s had 2 rounds of chemo, oral chemo and steroids. Thank God WE had insurance.....She must take immune suppressing meds chill her immune system, BP medicine to protect her kidneys and meds for her intestinal system because she has pelvic wall issues and gastric problems. She recently got her medical weed card and seriously, her bloodwork has never been better!! Her nerves and gastric issues are better and she can actually eat and poop normal. It’s been a journey, I can totally relate. Faith and prayers and continually pressing her doctors got us where we are today! She has 3 specialist she sees twice a year. It’s still a continuous fight but she is hanging strong❤️🙏

Thank you for sharing your story. I'm so sorry for all he and all your family have been through all these years. You are an amazing mamma.

Just wanted to say good for you standing up to those doctors who laughed as you say we mothers know our children i am so pleased that Quin now is on the right track to some normality and that is down to you i admire you so much you are amazing 🤩🤩🥰🥰

Jana, Thank you,because you didn't have too. Thank you for teaching us parent's dealing with similar issues something new,and for making us feel like we are not crazy. In regards to RU-vid videos.. Dont even waste a second of your life thinking about it. Our kids ate forever ours. RU-vid is just a thing,that we can all leave without,when we have more important things to care for. God bless you,and your family. Keep moving forward ,and don't let anyone make u think your crazy.

You're so strong, and you are really a good mother. We are near to you and your child♥️

Thank you for Russian subtitles! I cry with you, cause l have 12-years old son too and he had a problem with his heart when he was 6. You are very kind woman and I wish you be happy every day of your life! 💞

Jana, I'm at the minute 13 of this video and I had to stop. Take a break... Never in a million years I ever thought you and your family have such a big issue in your lives. You are always so fun and goofy as you say... I'm so sorry❤️ I am following for ever now... I never noticed anything. Can't even imagine eating my son telling he wants to die... And I'm crying now... Good luck to you all. (Love from a Portuguese mum fighting covid right now)❤️❤️❤️

You are one strong Mama! Keep it up. Prayers for you and Quinn.

Thank you so much for sharing your story. We are about to look into PANDAS so I’m happy I came upon your video.

I have the greatest respect and admiration for you and the entire family for dealing so well with all of this and not just giving up or giving in to anything. I'm getting really emotional watching this and wishing you'd been my mum when I was a struggling kid (even though we're the same age). I won't go into details, but my mum literally couldn't care less about me or what I was going through - made clear by herself in both actions and words. That's why it makes me so so happy to see others getting all the love and help they need ❤️❤️

Hi Jana, thank you for sharing Quinn’s medical nightmare. My heart goes out to you and him, the pain in his voice is heartbreaking. Hopefully things are getting better. Please keep us informed with any upcoming treatments.

Such a strong boy to have gone thru what he has.... you guys will be in my prayers... prayin his body gets stronger and starts working for him i stead of against him!!!!

Wow , thank you for shared your experience. You are such amazing mom doing the best for your kid.

What an interesting yet heartbreaking story. You’ve done a fantastic job explaining things. Thank you for sharing with us all. My son suffers from a neurological speech disorder, CAS. And now as he’s getting older (9) we are seeing signs of some learning difficulties. It’s a huge undertaking to be your child’s advocate. It’s a journey I never thought I’d be on. May I share my advice? Trust your gut and find your tribe/support system. And know you are not alone. We are all here to listen and give support ♥️

i wanted to put myself in the screen and give you a big bear hug your such a fantastic mom and awesome family i have 3 special boys myself and i have suspicions my oldest has ADHD ( all 3 of my sons have Autism and days are a real struggle xxx i have days when i cry and feel low as low but we have to stay strong for our babies no matter how hard it gets one of the things i do to try and wind down is actually watch your videos among others ( laurdry buddie 😘) i get kicked headbut scratched and squeezed but i know the boys cannot help it 2 of them are non verble (only a few random words) but my oldest who turns 10 this saturday says quiet a bit of words now xxx

Thank you for sharing your story.

You are an amazing Mom. Most docs I’ve seen are CLUELESS about the dangers of chronic tick-borne diseases. I recall experiencing the rage when my brain was inflamed. IV rocephron helped so much. Along with other antibiotics, diet changes, vitamins/supplements too numerous to list. Treatment for bartonella, babesia, and reactivated Epstein Barr - all things my primary care doc missed and called “anxiety and depression”. Hell, I had that too, but because my brain was being attacked and doctors dismissed my concerns. Your son is very lucky to have you as his Mama.❤️

Thank you for being so vulnerable! Amazing story

Bless his heart. I have dyslexia so I understand that school life is hard. I used to just sit and cry when everyone else was doing their work because I couldn't keep up. One on one school time is definitely the best thing.

Thank you for sharing your amazing story. You're so patient! Send a copy of this to the doctors who wouldn't listen.

Super mamma,non ho potuto seguire lultima parte,sono andati via i sottotitoli, ma io già sapevo che quin è speciale,tanta salute e un buon sereno e felice anno😘💖💖

Your a great mum ❤ everything turns out in the end take care from the 🇬🇧

I wish your family happiness! smart and qualified doctors who will really help your boy. May God bless you all! You are a super mom!

You are an amazing mother to a beautiful family. You’re so blessed to have such a wonderful child like Quinn. I’m sending you all the love and luck for the year ahead. You got this, mama ❤️

You are not crazy! You are a mother.. And when you become a mother.. a very sharp instinct is born! Doctors need to listen!! Parents are the specialists when it comes to their children. Thank you for sharing Quins story. It is.. very moving.. but also very intresting. 🥰

I admire your strength and your courage for coming out with that story it reminded me a little of my oldest grandson who is now 30 who has been diagnosed with a few of those things mostly mental health issues but a lot of the stories and situations sounded just like him it brings tears to my eyes but you and Quin are strong people and you two together with a support of your family are going to get through this Quin is a good kid I can see it you are a great mom and I know it I will pray for the strength that will get you through each day by day sending loads of love and hugs to you and your family love you guys 🙏🥰🙏🥰🙏🥰. I would have never have known all the things that you grow through on a daily basis and still put out three videos a week with a smile kudos to you 🥰🥰

Sending love to you and Quinn. He is such a lovely lad and so kind and caring towards his sister.

OMG you are sooooo brave and so courage!!! All I can do is to sending all my love and good vibe!!!! 💪🏻💪🏻💪🏻💪🏻💪🏻❤️❤️❤️❤️❤️❤️

Your AMAZING thank you for sharing your sons and families story❤️

Hi jana you are such a strong person Poor quin yous have gone through a very hard time for such a long time but chin up my heart is breaking watching this video but such lovely words im sending you s great big hug and quin also xxx

Thank you for telling your story god bless you and your family

Wow! Thank you for sharing...absolutely question everything! You did an amazing job describing very complex medical issues in a way non medical people can understand...well done and thank you. God bless you and your family.

Awww... everyone.has their own struggle... Do it ur best and take one step at time... 💪💪💪

Thank you so much for sharing, it has me thinking about my grandson and his behaviours ❤️👍🏼🙏🏽

You are an amazing advocate for your children. I too have several autoimmune diseases. MS PCOS HS autonomic dysreflexia and fibromyalgia. I have been to multiple doctors since I was 14 and I'm 34. I know what yall are going through. Tests procedures and medications and changes. We have to keep going keep pushing for whats right for our health. You keep being that advocate. Prayers and love for yalls continued journey.

Son increíblemente fuerte... Eres una madre impresionante.. y tienes a una familia amorosa y fuerte ...

Omg first off prayers to you and quin and family. Second I cried for him and also because alot of the symptoms I genuinely thought you were talking bout my son. But thank you for this I'm questioning alot now. Good luck with everything. Thank you for this video I will still watch even if you miss some uploads it's okay.

Your perseverance to find ways to help your child’s struggles is soooo inspiring...no matter what it takes!❤️! Prayers for ALL involved🙏 You have blessed many with hope!

Gracias por compartir tu historia de vida Jana ,eres una luchadora por tu hijo por tu familia ,mi admiración y absoluta empatía.Continúa por ese camino ,Quinn es un dulce niño que tiene la suerte de tenerte como su madre .😍❤️ Abrazos from Chile 😘🇨🇱

Ciao Jenna, posso solo immaginare come si possa vivere con questo .... Sei forte e ci vuole un coraggio pazzesco per parlare di questo. Ti mando un grosso abbraccio a te e alla tua famiglia dall'Italia ❤️

I am a laboratory technician and I understand your ordeal very well. Strong and courageous mother, my prayers are for you. God bless you and your family ❤

Thank you for sharing your tough story. My heart hurts for you as a Mom and as a human being. I'm not religious, but I believe in the power of positivity. Sending all my positive thoughts for your boy. ❤

First YOU ARE A GREAT MOM!!!!!!!! I applaud you and your husband for never stopping to look for the right answers! Sounds like homeschooling is best for him and we can wait for your videos whenever family first and always. Keep strong you and your family especially Quin! Love and good vibes, Flora

Wow thats a lot and then some on top i know that you Jana have just made someone realise that this could be what their child is actually experiencing . I cried when you said "they stopped my boys heart" omg as a mother i felt that so strongly 😥 thank you for having the strength to put all this into words and film it to help as many as you can , you are all strong , Quinn is so so brave ,and i know you all love him to the moon and back , the biggest of hugs from me , i know how much health issues affect the person with them and those around them, i have them and i see the ones around me, its tough ! . the biggest hugs and much much love to you Jana and Quinn and dad and sis god bless xx🥰🥰🥰🥰🥰xx

Dearest Jana....First let me say....you are one of the strongest women ever & the most loving mother ever....Period!!!! Stick to what you believe and always listen to your heart. I will add you & Quinn to my prayers every night. I’m sending you real big mama bear hugs. You’re an Angel Jana, I can see it in your eyes and in your heart. Just keep being that GREAT loving mother that you are and that love will guide you through. My 2 year old granddaughter use to have so many colds and runny noses. One day with her lil angelic voice she said....Mimi my voice hurts and was holding her throat. I looked inside her mouth and I saw her tonsils were so swollen, the hole in the back of her throat was covered. I panicked and called my daughter in law at work and told her. Long story short, she had her tonsils removed and since then, she’s never had a cold or any kind of sinuses. She’s now 3 -1/2 yrs old. She had surgery that morning and was playing with her baby dolls that nite. So I do agree, I believe it helps to have them removed, well in most cases that is. Good luck with homeschooling, I homeschooled my granddaughter and she is now 24 and it was a wonderful experience, she benefited from that one on one and working at her own pace. Sending you.... Love, Hugs & Prayers 🙏🏻♥️🙏🏻♥️

Jana you are such a great mom. Glad you seen through the bad doctors. My grandson was so sick a lot and his ENT done a tonsillectomy and removed his adenoids. He's doing good where sickness is involved. He has other issues I won't go into. I know what you mean about doctors. There are some that are good and really care and then there are those who are in it for money only. I hope Quint can get better and he'll be in my prayers. No one wants their child or anyone else's going through illness of any kind and especially having a creep of a doctor laugh at you. Here there are so many ticks that Lyme disease is taken very seriously. Stay safe and God bless you all.

Oh my goodness!! What a rollercoaster you and your family have been on!! You have indeed been his warrior mother and it’s paying off. Progress might be slow but there is improvement so keep going!! My husband does IVIG infusions weekly and they’ve made a big difference. Sending you a virtual hug and lots of well wishes!!

We are praying for your son

Y'all have been through so much, my prayers are with you all. If I could I'd hug you so I'm hugging you in my heart. Love you sweetie 💙

I'm your mom's generation and maybe a tad older, and I've never made the connection between tonsils and allergies, but as a child I was allergic to just about everything: food, cats, pollen, seasonal changes, bug bites, etc. Then somewhere around third grade I had my tonsils removed and slowly all my allergies started to disappear, by the time I was in high school I think the only allergy I had was hay fever and that was minimal. Your video is heart wrenching, thanks for being such a great mom.

Great video. Doctors just want you to take a pill and be done with it.great job mom🥰

Jana I just love you. I’ve been watching you for a while now and the moment I could see you get teary eyed and it made me so sad so I’m sitting here crying with you. I’m only 4 minutes into the video but you, Quinn, and your family are all in my prayers. ❤️

Sending special prayers for your whole family. Quin is a special little guy that God gave you to take care of and you all are doing a great job. God Bless you all.

Oh wow you guys are dealing with so much lots of love and prayers to your fams Jana, especially to Quinn 💕 all the way from nz.

God bless you momma! I'm so thankful you shared. Inpraybyou both find the answers for you all.

Just be strong sister..Like him ❤️ the brave son..coming from the brave Mommy ❤️ So much love - Indonesia ❤️

You are super mumma , Quin is a brave young man and I wish him all the best in the future and to your family , my brother has a similar story and 2 years ago he got tested positive for Autism after years and years of tests and medication

YOU ARE A HEROOOOO!! SUPER MOM YOU ARE!! GOD BLESS YOU AND YOUR FAMILY

I pray for you and your family every day. May God provide you with strength and comfort. My arms are wrapped around you. Quinton is such a wonderful young man. Take care and God bless you and your family. Love you

Grazie per aver condiviso la tua storia con noi, mi sono commossa e ho pianto con te❤️

Hiya Jana. Just wanted to send you all massive hugs and love. It must have been so difficult for you all as a family, especially Quin. He is a very courageous boy now turning into a courageous man. Hope things continue to improve for you guys. Much love xxxx

I hope he will be better in the future, stay strong and positive and never give up hope. He is very lucky to have you as parents. 🙏😘

Amazing family!!!

I used to get strep, colds and the flu all the time. Like minimum of 6 times a year. I got my tonsils out at 18 & yes it hurt like a bitch for about 2 weeks but ever since then I get sick maybe twice a year. Maybe it is worth a try.... I love how strong you are. Our mom instincts are crazy on point! ❤ I hope Quinn gets better and you guys figure things out and he can live an undisruptive, amazing life. Thank you for sharing your story

First, Jana, I want to compliment you on your willingness to do battle for Quinn!! It sounds like you left *no stone unturned* ! Well done! Now, I'll tell you abt. my 3rd son, Casey, who was diagnosed with ADHD, Asperger's & social anxiety (at the end of 4th grade). Starting 5th grade, he was taking an Rx for the ADHD (I don't remember the name, but it wasn't Ritalin). If I accidentally forgot a dose in the morning, the teacher would write a note telling me that he wasn't paying attention & being disruptive in the classroom. EVERY SINGLE TIME! So, I knew the Rx was working, but I *HATED* the possible side effects! (Whenever I read those "explanation" sheets - it would freak me out!) I was also watching a lot of documentaries abt. ADHD - and the bottom line was that there were a TON of negative effects to children who took ADHD meds over an extended period. That's when I knew I had to make a choice. After all, I was use to him bouncing off the walls. Didn't faze me - that was "just Casey". (Or, the "Casinator", as I affectionately dubbed him. lol) So, I decided to homeschool & get him off of his Rx. (Initially, they also gave an Rx for social anxiety - but those warnings *SUPER* freaked me out & I didn't refill it after the first month. Mom's intuition.) He's now in 11th grade (started in 6th). I'm not going to lie - there was a *DEFINITE* learning curve - so be prepared! You need to figure out what works for Quinn. In the beginning, I set a specific time for him to go to sleep (he's NEVER tired!) & a specific time to wake up... What an epic struggle!! He was forced to take Melatonin every night (that barely worked!) & then waking him up was a nightmare. That's when I decided to let *HIS BODY* tell me when he was ready to sleep & wake up. It's worked LIKE A CHARM!! To an outsider, having unusual "school hours" might seem weird - but it works for us. He would still argue with me a lot (like Quinn did with you) in the beginning. It was frustrating for BOTH of us! That's when I came up with the brilliant idea of working for 1-hour increments at a time. (First, I asked if he liked that idea. He did.) Before then, we would work for 2-3 hours at a time (mainly until I got too frustrated! lol) Working for 1 hour at a time sets an "end time" that he can wrap his brain around & it's *SOOO* much easier now!! Sure, it makes our school "day/night" longer (because of the breaks in between for him to destress), but it made such a difference! I was willing to do it - if it helped HIM! I hope some of these ideas will work for Quinn (you can ask if anything sounds good to him). Ultimately, you'll both have to figure it out together. You also have the bonus of spending more time with him... and *SOOO* many sweet moments are created that way! You'll be amazed. (But, it's still work! He can't pay attention to videos, so I have to make the curriculum & teach it to him. And administer the tests - that I have to make. I'm basically back in high school again. HELP! lol But, he's 1000% worth it!) Take care! Have a wonderful week! Hugglez!

You are an amazing Mom, I’m very proud of you ❤️ keep the wholistic approach to his treatments. Big pharma will keep him sick with more problems. New technologies are in the near future there is good things coming 👍🏼

Prayers for you and your family.

GOD bless u and your lovely son

So sorry 😨😥😥😥 you went with this!!!!! Everything is going to be ok. Praying for your family 💕. No one this perfect. You are a Good MOTHER ❤️❤️❤️❤️!!!!!

Jana you should be so proud of your self, you explained it so well ,I wish you and Quinn and you're family all the best ,I wish you happiness and joy and I hope everything goes well for you .from karen in Manchester United kingdom.

You are a great mother God never forsake us, trust, have faith and take good care of me, I leave my mouth open with all your story, I am speechless and those of us with a simple flu complain, my God, greetings

Hi Dr Jana I can relate to all your going through keep going it will come right eventually be strong only you know you child best

Hola siento lo de tu hijo yo también tengo una hija con epilepsia y se pasa muy mal pero estaremos hay para eyos amarlos mucho un abrazo atu niño

My daughter has ADHD and high functioning autism, and I'm no paediatrician, but this doesn't look like ADHD to me. However, MAYBE a lower dose might help ??? My daughter is 16, and she is only on 40mg of "Ritalin LA" once a day. She keeps her spark, I hated how Rubifen made her a zombie, concerta was great when she was little, but the low dose of ritalin is working well for her now. But I definitely agree with your theory that Quin MAY not have ADHD. It's a tough trip, this parenting journey, nobody ever promised it would be easy. My eldest son and I have Asperger's Syndrome, and my little guy has global developmental delays, that broke my heart, but we are given these kids because nobody else could ever love them the way we do! We have what it takes! You're an amazing Supermum, and you are so blessed with these kids, they teach us patience, humility, and real empathy, amongst everything else, and they force us to be better people. That aside, all children are perfect, just different, and there's nothing wrong with being different. Also, "weird" = one of a kind, and there is no higher compliment one can aspire to ❤

God bless you and your Quin, you certainly have been through the mill xx Yes i agree trust your gut you know your children the best, my grandson is Autistic and has been such an eyeopener for me, there is something causing all these things and we need to find out. Hopefully Quin will keep improving Love to you all xxx

God love him! He’s a trooper and a hero! He has angels helping him and guiding you! Always go by your gut feelings, we know our own flesh and blood better! They grew in us! Continued ❤️🙏

God bless you guys

Jana you are doing such a great job you are so wise.Quinsy is an amazing kid full of life.I believe in miracles God is amazing his always there when you need it most.He has an amazing mother!!❤

Jo que llorera mientras iba viendo el video, deseo de todo corazón que tu hijo se cure y que un día puedas decir todo paso,mucho ánimo familia 😘😘❤❤

Hi jana thank u for sharing quinn story i have a 6 yr old that has adhd and odd it is really hard me

Amazing son cause have amazing mommy jana u love u family😘😘😘😘

.oh Jana you so strong women 💖 you made me cray how u carrying all this felling it so hard but I'm sure everything will be OK soon. .and learn at home great decision.. .keep going girl we all with you xoxo 😘😘😘💖💖💖💖💖

God bless you janna and your mama so mama knows her baby. I say thank the lord for mama’s because you get it all done no matter what when it comes to your kidos.❤️ God bless Quin and all his body is putting him through. I pray for healing for him 🙏

Love u .... and ur a great mother ... be strong and Gad is with u sweetheart❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

Un abbraccio tesoro un augurio a tuo figlio 😘😘

❤

That's why GOD made women strong!I pray to God to give you and your child enough strength to overcome all this!Best wishes for your son ,tell him to be strong and to believe to his mom who would do anything for her child!ANYTHING!Hang on tight!Happy new year to your family !

Sometimes I wonder if Rainbow Babies & Childrens Hospital over at the University Hospitals of Cleveland and also The Cleveland Clinic would be helpful to your son Quin for his treatments. Those two places are near where I reside.