Jessica Haywood is not only a super-involved Sanfilippo aunt, but she's also on the board of CureSFF 

Jessica Haywood's niece Sadie has Sanfilippo Syndrome, and she's been highly involved in her life since day 1. She's also became a big advocate in the Sanfilippo awareness space, including joining the board of the Cure Sanfilippo Foundation a couple years ago. Jessica explains how that opportunity came about.