JME | What you SHOULD know about Juvenile Myoclonic Epilepsy

Epilepsy Explained - Gil Solano R. EEG T.

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Juvenile myoclonic epilepsy (JME) is the most common generalized epilepsy syndrome. It is also called Juvenile Myoclonic Epilepsy of Janz. It typically begins in adolescence. Teens with JME do not have other developmental problems. Myoclonic seizures (brief shock-like muscle jerks) are the most common type of seizure.
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-------------- Chapters -----------------------------------------------------------------------------------
00:00 - Intro
00:11 - What is Juvenile Myoclonic Epilepsy?
00:22 - Ages
00:25 - When do JME symptoms happen?
00:36 - Causes of JME
0:47 - Medications
1:13 - History of patient with JME
1:30 - EEG sample
1:48 - Want more?
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Опубликовано:

9 июл 2024

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Комментарии : 49

@GilSolanoREEGT 2 года назад

🔥 Do you or anyone you know have JME? If so, I'd love to hear about your/their experiences in the comments below. How are you managing them? What are your symptoms?

@amandaburger3312 2 года назад

Thanks

@alabamaguns3684 Год назад

I was diagnosed in 2018. At 31 years old. No one really noticed the myoclonic jerks. Probably just thought I was clumsy. I had a tonic clonic seizure at ages 2, 12, and 22. I even had an absence seizure in 2017. I take Zonisamide, 400mg. Seems to help, but I have moments of brain fog especially if I get too hot.

@markr.3577 Год назад

I have JME and had my first generalized seizure at age 16 and subsequent one a year later at 17. Initially my left arm would jerk shortly before seizure would generalize to tonic-clinic. Later generalized seizures I had would happen so fast that I wasn’t aware of any myoclonic jerks if in fact they occurred. Seizures mostly occurred in the morning upon waking up and sleep deprived. I occasionally experienced nocturnal seizures. My JME was only correctly diagnosed after years of being misdiagnosed by every neurologist I saw, including one at the UCSF medical center as “partial seizures with secondary generalization” I am now on the correct anticonvulsants (Lamictal/Depakote) and my seizures are well controlled. However my life was severely compromised by those neurologists who misdiagnosed my JME as seizure control could have been achieved so many years earlier had I been on the right anticonvulsants.

@braydendomanick1102 Год назад

I was diagnosed in 2019 at 14, I had to give up football which sucked, my grades took a hit for a while, but I pulled through. I went seizure free until March of 2023 when I had a Grand Mal. It hasn’t been very fun since then lol, but i’ve been seizure free for a month now and I’m living life basically as normal.

@girijasingh789 Год назад

@@braydendomanick1102 which medicine u prefer....plz help me....

@karentrammell2751 4 месяца назад

My daughter was diagnosed with JME last Feb at the age of 17. Since then she has not been able to drive because she may go 4 or 5 months without a seizure and then it happens out of no where. She is currently taking 4000mg of Keppra daily and I feel that it isn't working since we can never get to the 6 month mark of being seizure free. She's 18 now, her senior year in high school and feels like she has lost her freedom. When she does have a seizure, its either she has a grand mal or she passes out.

@itsproplay6695 Месяц назад

Same happens to me, every 4-5 months I have a grand mal seizure after waking up, usually around 30 minutes after, after having it I cry and cannot stand, I lose balance and feel I am dying

@live2travel301 22 дня назад

I have it. The jerks and twitches can be annoying especially when I’m very tired. They also love to wake me in my sleep causing even more poor sleep. But at age 41 I’m so thankful they finally found what is wrong with me. That took a 3-5 min full seizure with no memory to finally get answers. But I’m thankful for a very good ER doc and neurologist. Thank you, and thank you the vlog. Very very helpful.

@GilSolanoREEGT 21 день назад

I'm sorry you're living with epilepsy. I'm thankful you have a good care team around you! Please keep us posted if you don't mind. Best of luck and it's my pleasure to post these videos.

@brendavega6676 14 дней назад

What was causing your seizures?

@astrowolvez Год назад

I think I had this, because in high school when I basically didn’t sleep a few hours into the day I would twitch during class, basically my arm flailing, I had no idea what it was but I was so embarrassed, it would be on and off for like thirty minutes. Years later when I was about 20 I had my first tonic clonic seizure

@cececulp9286 8 месяцев назад

My daughter has seen 6 different specialists. All of them say her epilepsy is just hard to treat, rare and doesn’t respond well to meds. They have never mentioned myoclonic or Jeavons. I just learned about this last night.

@GilSolanoREEGT 8 месяцев назад

I’m sorry to hear that! I hope she gets the treatment she needs. Will you keep us posted?

@cececulp9286 7 месяцев назад

Will do. I’m trying to get an appointment with her epileptologist and discuss it with him.

@riham2121 7 месяцев назад

this channel is a gem

@loganhillmedia 2 года назад

Thanks for this video!

@namitalunkad4632 Год назад

Oh my gosh! This is an exact description of what I have, and the order in which everything happened. I am also on one of the meds that was in the video...

@alabamaguns3684 Год назад

I'm glad I watched this, it explained so much. When they told me i had juvenile myoclonic epilepsy, I looked up myoclonic seizures. I was wondering if maybe they didn't believe me about my other seizures I had. (When I learned what a myoclonic seizure was I recognized it.) I realized I was having them all the time. They're so quick no one noticed it. My mother noticed once because I had just had a really tonic clonic seizure and they were watching me like a hawk. I spilled some coffee one morning. She noticed me jerk. My wife however is the one who pushed me to get checked out and finally get a diagnosis.

@Havemercy1964 2 месяца назад

Since your diagnosis how has your everyday life been? I was recently diagnosed with myoclonus.

@alabamaguns3684 2 месяца назад

@@Havemercy1964 i have good days a bad days. My seizures are better. The medicine does a good job of controlling them. (Even the bad ones.) I've had to learn that my body will give me false alarms. (Probably from the medicine itself.) My wife is such a blessing she makes sure I'm ok and that I'm taking my meds. She has Spina Bifida so we have to kinda take care of each other. It's definitely easier when you have support.

@springnicole 10 месяцев назад

I had absence and tonic clonic seizures as a child, but I don’t recall having jerks. I asked my mom and she said she didn’t know either. I did have sudden leg weakness, though. I have been having the myoclonic jerks for over two years now. For me, Keppra does not help, currently.

@GilSolanoREEGT 8 месяцев назад

Thanks for sharing. I hate that you're going through this. Have you tried other medications? Have they worked?

@Coolscarykid Год назад

I take Keppra, lamotragine and Topiramate. I have JME but found that out later when I was 30 because I was diagnosed with absence seizures when I was 7

@amandaburger3312 2 года назад

Thanks

@GilSolanoREEGT 2 года назад

Always my pleasure!!

@sumitshetty5582 Год назад

I have JME, using Tegritol and currently i’m not having any episodes since last 6 years, also regular Liver and Kidney profile test is suggested to monitor any side effects.

@GilSolanoREEGT Год назад

Thanks for your review, Sumit!

@girijasingh789 Год назад

From where u get ur treatment..plz reply...

@rsa3245 Год назад

Any gene for jme

@swig5301 Год назад

Hello I recently got diagnosed with JME. I was curious if a trigger can specifically be photosensitive? I had a seizure after I was playing video games and on my phone reading at the same time ( I know bad idea) which was over a year ago. Sometimes I will twitch in my Face if I read for to long and can have jerks if I play video games without eating or drinking water. Other than that I drink alcohol and have had plenty of nights where I barely get sleep. I was prescribed lanotrigine but haven’t taken it and have only had one seizure and it was a year ago.

@GilSolanoREEGT Год назад

Swig, yes. Photic stimulation can bring out a seizure. You can ask your doctor to perform an EEG and they will do a photic stim test.

@astrowolvez Год назад

Though weirdly after I had a seizure and got an eeg done the doctors said nothing was there. They don’t even know what kind of seizure I really have.

@girijasingh789 Год назад

Same happened with me