Kidney Disease: 5 Things I wish others understood about living with Kidney Failure 

Boy you hit the nail right on the head. I can only hope all my family will understand the physical and mental problems I have. I'm sure they will. Every time I see some one running down the street I wish I was them. Thanks again for all you do. Chuck.

i am 17 and i am gonna start dialysis tomorrow i am so scared and rn i am watching yt videos to gain some information on it and stumbled upon your video and I wish my family would understand that I am not being lazy. They get so angry and force me to get out of bed even if when I am just sitting on bed they yell at me. I just have no energy to move my body and my muscles and bones hurt so much

My husband just recently diagnosed with stage 5 kidney failure. We were all shocked that this happened. Thank you for your video! It has helped all of us to know and respect and understand to be good to our bodies. We will all be praying for you!

Thank God I found your channel. You've been very helpful to your viewers. You explain CKD in a simple but understandable way. Great job

ALL of your points are right on point! This is a great video to share with friends and family if you feel you don't have the right words to explain everything yourself. Thank you for making this video! ❣

excellent and well spoken video

You hit the nail all .am just speechless. Thank you ,and keep on doing the good work

You are so right! That's the best description I have ever heard. Thank you so much for doing this. There is literally no real kidney patient is talking about this. Thank you for sharing your personal stories and your very real life situation with us 💕

You certainly summed it up nicely. Those around us dont understand how to process or the depth it changes or adjusts life while presenting all's well. Such a complicated dynamic to grasp if never experienced a life changing condition. Education is the key and true engagement.

great and very informative. thankyou for doing this 👏

I am angry as hell!!!! The doctor knew and said nothing! This needs to stop there need to be laws.

Thank you so much I can share this video with my fam my husband have Kidney failure and is on peritoneal dyalisis this video can explain to them what we can't coz like you said we don't want pity just understanding and support ❤ thanks again

Thank you for your continued education on kidney disease.

Yes to ALL THE ABOVE.. I love the Spider analogy.. :)

Thank you so much my Husband will find out tomorrow if dialysis will start. He’s so scared and I’m so overbearing and driving him crazy. I’m trying to help but tend to overlook that maybe it’s overwhelming by me being so overprotective of him. I will for sure show him these videos. ❤

I am living with CKD and your video hit home for me. I liked it so much that I'm going to share it with family, and the folks in my CKD support group. in a little over 6 minutes you accurately described what I wish those around me understood. Great job!

Oh how I wish everyone could hear this. Thank you! ❤️

This is very informative. I knew someone a few years ago who was on haemodialysis. 3 times a week from memory. I realised the time that was consumed but your video has made the sheer mental as well as physical exhaustion which kidney failure patients have to deal with. Diabetes T2 with diet, exercise and low Metformin only is a breeze in contrast to kidney failure. Thanks for this.

I have been watching your videos for many months now since I was diagnosed with kidney failure. I am going on dialysis within the next few months, hopefully peritoneal. Your videos have been of tremendous help, and well done for sharing your life with others. Ken Collins, Somerset, England.

You are so Kind, I felt and sense your kindness. Thank you

Thank you for sharing your knowledge. This is a very helpful video.

❤ thank you for all the information you share. You are so honest and straightforward with the information. God bless you!

Thank you for the videos you have taken the time to make. They have helped me realise what I can and can't do and take advantage of good days while I can.

Thank you for this. I wish more people could open up about their reality. If you could do a video on coming to terms with kidney disease accepting the reality I'd appreciate it. This opened up my mind and heart. Healthy blessings your way💞

Excellent overview.

I been very lucky I have been able to live on one kidney for 55 years, I had a scare a few weeks ago when my blood work came back less then it should. It look like it was my blood pressure meds but it was scary. I been trying to get myself knowable about this cause am only 1 kidney from where you are, my heart go out to anyone having to deal with this. I have worked in a dietary department in a care center and dealt with many residents on kidney d. The worst diet I ever had to deal with was the renal diet. Please take care of yourself and I will be following your vedio.

Thank you!

I just found out I have kidney failure and my family is really supportive and we pray a lot but their days I feel sick nd other days I feel better but at times it overwhelms me and I cry a lot but it helps for me

👍 Thank you , ♥️

you are my hero !!!. 😍

I am so inspired by your truths. My husband is on dialysis and I'm going to get myself checked.

Thank you❤

Thanx for d jnformatiob maam .❤ Philippines

I have family who may have some damage and i want to understand should it get bad enough for dialysis or transplant so i subscribed. Thank you for sharing.❤

I have watched the first few videos of the broadcaster, and they all have English-Chinese automatic translation software, which is very good!! But this episode does not have automatic translation software and subtitles, so I basically cannot understand the content of your program , I wonder if the broadcaster can re-upload RU-vid with translation software?

What are the treatments or ways of slowing of progression of kidney disease (and possible reversal of kidney disease), other than dialysis and transplant? I hear people say get diagnosed early so one can get “treatment” early. I’ve never heard what this treatment is. I can do my own research on pub-med (USA) eg, but I imagine I’m not the only person with this question. I know someone whose doctor hid from her that she had a GFR in the 50s; this GP had given the patient antibiotics she’d said she was allergic to, but the doctor didn’t take this seriously until a bit late. There likely were other causes too but this seems to have been the tipping point into symptoms showing rather obviously. Other MDs were critical of their colleague; any such approach is not intended by me in this request or suggestion for you to consider doing a video on treatment for people who’ve just learned often by surprise they have some kidney disease. What do they do next. And if MDs maybe feel they failed a patient, please address how to find specialists or discuss openly (eg “ I’m not going to try to sue you- right now I need my energy and ALLIES not blame games”). When we learn all is NOT well, what next? GREAT VIDEO SERIES. SUPER PUBLIC SERVICE BY YOU, making so much good come from your own negative experiences. THANK YOU, ALL BEST.

I have been on Dialysis for 18 months now , it's not too bad and better than death ! When we are over weight we do not realise that this condition increases our blood pressure which then leads to kidney failure as we age . Keep your weight down and eat a healthy diet .

Thank you for the important information. Where would I find your videos... Maybe on u-tube?

Hey mam! Did you feel back pain "flank pain" before you diagnose a kidney failure??

My husband is on pd dialysis and this morning we went to the gym and my husband, after 1hour had blood on the white of his eye. Is this something he should be worried about? I am worried.

Pretty sad news...

😊 Is your channel on RU-vid?

you are right ! I watch this videos again , there has been a subtitles on videos . thanks this video give me more Confidence, Experience and Encouragement .