Hello everyone suffering from MBC stage 4. I too, have it. Mine's in my lung, lymph, humerus, ribs and spine. I've been on Verzenio since fall of '21 along with Letrazole. My two complaints about Verzenio are "diarrhea" and fatigue. I thought the diarrhea was only temporary but no...it basically comes and goes. I eat high fiber and drink a lot of water and thin soups, can't have anything spicy. I eat a yogurt daily to try to keep the diarrhea at bay but nothing really works. I take my Imodium and just deal with it. It has physically wiped me out, though. SO TIRED all the time. I take mine at 8am and 8pm. 12 hours apart keeps the level up to therapeutic. I'm also on 100mg twice a day and tolerating it all pretty well. Two things: it does shrink some tumors and it can slow the spread of met cancer, thus extending our life. My scans are all unchanged, I don't have any new symptoms, and my labs are all normal including tumor marker way down. The only thing different is that the last time I had labs, the marker was the same. It had been dropping every time. I don't think I have any brain involvement yet (tumors) as I don't have any neuro symptoms. My brain scan was clear and normal. My advice to Verzenio patients: live your life. Don't let anything stop you from having fun and enjoying yourself. Eat well. Surround yourself with positive people and tell those you love how you feel about them. Don't eat a lot of excess sugar (sugar feeds cancer). Hard to do when you get a terminal diagnosis! Take care, stay strong.
Hello Leslie. My name is Marta and I am also a breast cancer patient. I actually started using Verzenio about three weeks ago and the side effects are actually horrible. That's why I was researching on RU-vid some patient experience with the use of Verzenio. Let me tell you that I congratulate you, you are a strong woman, who has battled cancer for so long. I'm sorry for everything you've been going through. Like you, I have experienced many of these sensations, although in my case there is no metastasis that has affected my other organs. Even so, I confess that it is an extremely difficult process. Thank you for sharing your experience and I can only tell you that in the church you attend there must be a group of people who will keep you in prayer and that helps you in your process. You can help yourself a lot by complementing your treatment with natural food, eliminating some foods of animal origin. You can visit on RU-vid Back to the garden. There are healthy food recipes and testimonials from people healed through vegan food. Although I do not know your faith, I can only tell you that I profess the Christian faith and I wish that God bless you.
Hi Marta. I, too, would like to know your side effects. I am having more frequent headaches. All my life, I’ve never had headaches. I started having heartburn, and it’s continued to get worse. I drink at least 60 ounces of water a day because the Verenzio is dehydrating. I also started getting neuropathy in my feet, and it is getting worse. I’m trying to walk a lot, and that seems to help. Now I have neuropathy in my hands and fingers. I’m not getting much sleep at night because I feel so sick, the tightness in my legs below my knees and feet is unbearable, and the heartburn is bad. I am still having my blood work done once a month because they come back showing that damage is being done to my kidneys and liver. I go again in two weeks to have my blood drawn and then see my oncologist to go over my results. If my results haven’t improved, my oncologist will probably stop the Verenzio. My cancer started with a lump in my left breast. I was diagnosed with Invasive Ductal Carcinoma, ER+, PR+, HER2-. I had a lumpectomy and two lymph nodes removed. Then they followed up with radiation.
Hi Thank you for sharing your experiences with Verzenio. I am currently taking Verzenio and concerned about the side effects. I think you look great/healthy. I'm hoping I can keep my hair and stay healthy.
had to remove someone from this channel for posting that I had died. They said " they had heard, that I had passed" But it was worded that I had past. There was no photo identifying them and they acted as though they know me personally. IF I die, My spouse MO will post on all my social media letting people know that I have died. Not passed, but died. Thank you.
This drug is a tough choice. I feel like staying in bed ALL THE TIME. I've interest in hobbies. I have days with extreme diarrhea where I cannot leave the house even with meds. I see why it's for those that have no other options. Because it sucks!
I'm in the same boat. I could stay in bed forever. Immodium helps with the diarrhea and I try to eat two yogurts a day to help, too. My biggest problem with Verzenio is the fatigue. I'm literally wiped out. I am not hungry at all and weak as a kitten. My doc told me the Verzenio can be changed to Ibrance so I'm hoping I can do that next.
Hi Leslie, I just started taking Verzenio two weeks ago. My oncologist said that my diarrhea would stop around 7 weeks. Do you find this to be true? Does the absolute fatigue ever stop. Thank you for putting your experience on you tube.
The diaharea is different in each patient. I take diaharea med. Each time I take verzenio. It keeps it controlled the fatigue may improve over time. For time being take ever opportunity to rest and be gentle with your self
Hello, did you originally have breast cancer? Did you follow the usual treatment? Can you elaborate on what you did then. Thank you and God bless. I pray that you will heal from this disease.
Betty, I have a youtube channel called Leslie's cancer confessions that can answer your q's. Iad breast cancer in 2001, became metastatic ( when breast cancer spreads beyond the breast to organs and bones) in 2011. I am on the fourth type of chemo I've had in the past 8 yrs. When it stops working you move on the next treatment available. I'm currently taking verzenio. Thanks for your prayers. God revealed to a log time ago that his plan was for to share my cancer journey and I will live with this for the rest of my life. So if youu pray, pray for comfort!
@@m1ssd1tz Sorry to hear that, but God is never make mistakes, He is Almighty, He can heal you completely. And Jesus said in His wounds we are healed, God Bless you!
