Life with ME/CFS | Professor Warren Tate [Chronic Fatigue | ME] 

This man’s daughter is fortunate to have so much support and a WITNESS to her illness. Too many of us are alone with CFS , with little or no support and no one to see and validate our daily struggles. Thus we are believed even less, diagnosed with depression due to our “single status”.

I just hate when someone tells me I can work. They don't even see me day after day,when i can't even do the most simple of household tasks, if any.

Indeed! Where's the curiosity? I was setting the world on fire before this shut me down.

LDN never helped me. CFS does not get more attention and research funding, because direct death does not result. ME/CFS is a living death. A nightmare.

Its 2018 and I'm watching this video. Sadly nothing has changed, and Ive been told a number of times that I should see a psychiatrist. There is nothing more I want than to be able to be active again. I still manage to work, albeit mostly from home (bed), so I can't understand why I would fake an illness - there is no advantage to me whatsoever. I'm isolated, lonely and can't even go for walks any more, let alone go to competitions with my horses any more.

I developed ME/CFS last year due to COVID. It makes me sad that people have known this for so many years and still refused to listen. I genuinely thought I was listening to a video made very recently.

What a fantastic father

If parents in the medical profession trying to help their daughter are also climbing this uphill battle. The rest of us are most certainly at a major disadvantage. I simply do not understand the politics of the medical system and the funding of disease research. How can this disease persist over decades and yet nobody has taken enough interest to even funds the research on such a debilitating disease?

CFS ME feels like God has turned away from me

This condition is far worse than a life long jail sentence.

I just stumbled upon your speech. Thank you for validating this disease. Something you said at the end made me remember that my mother always said that I never bounced back easily from viruses that I had during childhood. I had mono in high school that nearly put me out of commission. One other interesting fact is that when I fight a virus now, my regular pain gets better. It seems the whatever that is working on fighting the virus leaves my regular pain alone. Thank you for your hard work.

I have all of the symptoms and the diagnosis. I am so sad this is happening to so many young people. Isolation is real. The book you read shows this illness effects every organ of the body. The doctor I have is rare. However, I could have a brain tumor and he will tell me the symptoms are Fibro/CHF. A real problem in my care.

Praying for a cure!!!

The story of his daughter is so much like me! Even the food allergies. Thank you so much.

Watching this in 2024. Nothing ever changes. They don't care about us.

So nice to hear your validation and support for your daughter and survivors in general.

Excellent......from the adversity of ME coming to his family's door,it gave Prof Tate the resolve which would be wonderful in every medic facing an ME patient.Speaking from the Dark Ages of the UK where the ludicrous psychiatric notion still persists,as in those days people were put in the stocks,sufferers I suspect could think of several medics they'd like to see in the stocks....a case of,if you inherit the world of the Dark Ages in medicine,you should suffer the comeuppance of that time.Good luck Prof Tate and better health for your daughter.X

Thank you!

Dear Dr Tate, this is me also, I have had a lifetime of experiencing the same things that you all have. I know now that I had a predisposition, but my switch was flicked in with Glandular Fever, then continued to catch “viruses” for 2 decades and lived with much exhaustion and nervous breakdowns. Then later in a workplace back injury, spinal fusion, the other surgeries like hysterectomy etc, then discover I have thoracic outlet syndrome and was completely debilitated, had 4 decompression surgeries to come out of it in the most hypersensitive state it was hell….now have had 2 moderna vaccines and are back in a ME flare again……I can’t keep having vaccines for covid, I can’t fall any further down than I am now…

I was dx'd FM 1995. I was involved in patient advocacy in the ACT ME/CFS & FM society for quite a few years and ran the Canberra website. I remember the name Roz Vallings ... I got back to work eventually but at a lower grade and as "a third of a person" ... Thank goodness I'm retired now and can stay in bed (which is where my body wants to be, despite what I'm missing). I'm not any better. And now I am getting arthritis ...

Great Presentation. Please update us.

God bless you.

I can so relate to your daughters story

I wonder whether in some people it’s an infection. I had something like this for 3 years and was continually declining in ability to the point where I became bedridden. My doctor put me on antidepressants and just continually increased them until I had serotonin syndrome. He didn’t believe me, nor listen to what was happening. I felt like a mental case, but also knew there was something really wrong. The symptoms were non-specific, every part of me was affected. Fortunately I developed early stage cervical cancer and had an infection in the uterus, that was life changing, because a gyno put me on 3 different forms of antibiotic for 7 weeks prior to surgeries. I had also told the gyno what I had been experiencing and he said he had a theory on this himself, and called it fibromyalgia, so I wonder whether the extensive and long course of antibiotics were maybe him experimenting with his theory. At week 4 on antibiotics I noticed I was able to get up and around again and do more day to day tasks, more energy and less pain. At week 5 a black, and puss blood stained discharge began to be released from the top of my sinuses and the dizziness went away. By week 6 my constant migraine had ceased. By week 7 on those antibiotics I had normal energy levels, which felt like super human energy because it had been so long since I had been able to even function. Once I had the hysterectomy to remove the cancer I then weaned myself off those terrible antidepressants under the supervision of a better gp, and then I got fit and started growing all of my own food organically to get the maximum nutrient content possible, I’ve never looked back.

Do you think there is a link between Fibromyalga and CFE to MS?

It's hard to understand what's happening to me. I'm 39 and it's gonna be hard to get on disability

Chronic pain anonymous-very helpful

I would like to help with the research

A connection between Prof. Tate & colleagues and the Open Medicine Foundation/Dr. Ron Davis/Gordon Medical Research/Dr. Robert Naviaux Metabolomics study could be good.

I'm just like your daughter started at 19. In the military. I'm 34 now

The number 1 thing doctors are missing for M.E/CFS recovery! on youtube think of emdr, fishoil, magnesium, melatonine, vetgetables and fruits on a daily base, take care

21:00 anyone know what this book is titled and the author? Tried to look it up online but no luck finding it

How familiar are you of the outbreak at Lake Tahoe in the 1980's? If you aren't...please check out Exposing Mold & Erik Johnson who was the prototype for CFS in Lake Tahoe. I have this illness. What he teaches is the only thing that actually truly helped me. I would never wish this illness on anyone it's awful. I have no one. Your daughter is lucky she has you two.

Graded exercise made me MUCH worse for a few weeks I felt like death...then i noticed i could do a little more and a little more. I started to have stamina I hadnt had in years i could even drink coffee and work part time in small amounts and feel OK the next morning it was amazing. As soon as I stopped the daily exercise for a few weeks I went back to extreme exhaustion. Brain retraining is also working for me...but my body has been stuck in fight or flight mode for years. Im doing something called a stella ganglion block soon many have said this resets this nervous system feedback loop and can allow you to heal.

you dont have to use the oven. When the microgolf-oven is there he sends waves day and nigt also when not in use

Does anyone know the book he mentioned at 13-ish minutes?

Was lyme disease ruled out by western blot to identify antibodies specific for borrellia burgdorferi or other tick borne illnesses?

Shame about the funding issue. Good idea. Mitochondria don’t utilise oxygen as efficiently to produce atp in neurones of stroke patients, causing neurofatigue.

Is daily diarrhea for years a symptom for this? Just curious if its common among sufferers of cfs.

If 50 more dr,s kids would get Cfs they were outdoors be working none stop on this.

Sad

Right after epstein barr I have all the papers

Please distinguish between ME (G93.3) and CFS (R53.82) since they're not the same thing.

Test Me lol

Dear, now the cause of Chronic Fatigue Syndrome is found: radiation of microwave-oven(magnetron).To stop you have to eliminate the oven out of the house.The plug out of electricity net because the oven has also radiation when it is not in use.And out of the house because the oven has a high voltage capacitor.The distance between an oven and a person is very important.After a 2 weeks without microwaves health becomes better.(total recovery=2months).The victims are more sensible and also the distance between victim and oven is important.(Also possible: nightmares, change of character)Most people with a microwave arent chronically ill because some people are more sensitive for microwaves, also the distance person/microwave is very important. The oven in another place is more safe. The radiation become less when the oven gets older.Some ovens give less radiation then others. In Russia the less radiation is allowed by law.BEANTWOORDEN

Thank you!

Thank you!