My Esophageal Cancer 

Hi I'm 73 now, back in 2009 I was diagnosed with oesophageal cancer and I went through most of what Jon has been through. After many tests and lots of chemo my oesophagus was removed in early 2010. It has slowed me down somewhat but I still do most of that I want to do. So if you think you have a problem swallowing then DO NOT WASTE TIME, get it checked out. I wish you all the very best.

I'm so glad I found this. My husband was just diagnosed. He just turned 60. This gives us hope.

I had stage 3 esophogeal cancer in 2011, I did chemo and radiation and esophogus removal. I am cancer free and healthy and I workout 5 times a week. I thank MDAnderson and Dr. Walsh for saving my life. The first year was a struggle but I did it and so can you, never lose hope.

I hope you are well, John. Thank you so much for posting this!! Sending you, your family, friends and health care workers love.

I had chemo, radiation, and surgery for esophageal cancer last year. It was stage T2b. So far the scans do not show cancer anywhere else. Getting over esophgectomy surgery is hard and I am still having trouble eating but i am still alive. Anyone being diagnosed now with esophageal cancer i want to say DONT give up. You can do this!😀

I had esophageal cancer in 2000. The first surgery failed and I ended up with multiple pneunomia and had several operations to save my life. I lost my stomach and what was left of the esophagus. I could not eat, drink, talk and move. I was airlifted to St. Louis U hospital. They restored me to health and eventually made me a new esophagus with my own body parts. I spent 8 months in the hospital. I did not need chemo nor radiation nor any meds. Now it is almost 2020. I had no symptons and cancer was found by routine exam. If you have any problems or suspicions get help. Wonders happen every day.

I'm 27 and mother of two children. just found out I have throat cancer. I been having swallowing problems since I was in 6th grade. But I'm my early 20's I started losing weight and couldn't eat. I worry about my children if something was to happen to me. I pray you get better.

Jon I pray that you are continuing to do well with your recovery and thank you for taking the time to share your story on this video. A young man in my community has just been diagnosed with esophageal cancer at age 36. Your story offers people like him hope and encouragement. Thank you again and God bless you.

Wow, what great news! So happy for u and your family!

Thank you for the video, really hope you're okay and feeling better.

Thank you for sharing your story, it has been a really great help to me.

Thank you for this important and moving video❤️

thank you so much for sharing, I pray you are now cancer free.

Thanks Jon for sharing your brave story and I am sure it will help many to wage a fight. God bless you and your family.

Thank you for the wonderful video, many hugs.

Hey everybody, this is Jon. I am SO very sorry I haven’t provided any kind of update since I posted this video. So here’s the kinda short version. :) I have regular treatments still (see treatment update below). My life is almost back to normal, but I am not officially cancer free (explanation below). But I’m still working a normal schedule, still playing with the band, and still have my hair. ;) My family is doing well and have adjusted to my ongoing treatment schedule. I am pretty thankful for where we are now. ABOUT SURGERY I did not opt for the surgery to remove the cancer from my esophagus (esophagectomy) and effected lymph nodes because it was too dangerous to get to the lymph node in my collar bone AND because I couldn’t bring myself to do it because of the stories and videos of the struggles. MY CONTINUING TREATMENT Because I chose not to ** Every 3 weeks I go to the treatment center for an infusion of Herceptin (30 minute drip). I arrive, the medical staff takes me back, gets my vitals, accesses my port, and draws blood. Then the lab runs a series of tests and then I see my Oncologist after they review my blood test results. ** After my infusion of Herceptin, I pick up a prescription of 35 pills called Capecitabine (Xeloda). And for the next 7 days I take 5 pills a day (3 in the morning, 2 in the evening. The treatment never makes me sick (I feel very normal and no lack of energy).

I'm just in the first part of figuring out what is needed for my esophageal cancer, and this really helped me and surgery may be in my immediate future so I will be checking back and thank you for sharing your experience, and wishing you only the best outcome.

My father passed away from this less than two months ago. In the time he was diagnosed, and how fast everything progressed, I never really understood, and mostly focused on the awful stories. Listening to you talk, I heard and saw a little bit of my father. Thank you for that. I hope you're doing well.

Thank you so much for sharing your story. Our family are going though a very similar situation. Hope you're well xxx

I've just been diagnosed, and I thank you for this video. We're waiting for the final path report to know how advanced it is.

Thank you so much for this video.

I hope you are still ok John.

Hope your doing alright. Stay strong.

I am in this fight at 43 years old. Thank you for this .

God bless you. I am having one more round of chemo. Then a PET SCAN. Thank you for this.

my dad was diagnosed recently, we are so worried and really confused still. thanks for your video.

My 36 year old son just had an esophagectomy done in May. It was an 8 hour surgery where they also removed 28 lymph nodes. He is having a really hard time emotionally, physically and psychologically. I am heartbroken for him. He is so young as you were when diagnosed and didn't meet any of the criteria of the usual patient with esophageal cancer, with the exception that he has been suffering with acid reflux for years. He has never been overweight, doesn't drink and doesn't smoke and lives a very healthy and active lifestyle. Now he is continually fatigued and breaks down easily. He has a girlfriend but has never been married and does not have children. He is my youngest child of 5 children and his siblings have been very supportive. Your story is encouraging and your spirit is comforting. Thank you for sharing!

I have had gerd fot 14 years. recently I started passing blood in stool and vomiting occurred with blood a couple of times. upper GI stated he couldn't see anything cancerous but has severe red inflamed esophagus, stomach and small intestines with bleeding. long story short I am still having issues with passing blood and sensitive stomach. acid has been getting lungs, throat and sinuses and causes constant clearing of throat and some hoarseness. I am a veteran so I requested a second opinion. first dr seen a few months ago was a private medicare doctor. Thank you for sharing your story. god bless you and your loved ones. prayers that you beat this. ❤

God bless you just going to find out what my next step is always going strong thank you so much for sharing god be with you and your family 🙏🏻💚

I don't typically respond to youtube posts but my father was diagnosed with esophageal cancer on November 25, 2015 (two days before my birthday). Surgery is not an option. They have decided to commence chemo and radiation therapy. If there is a silver lining here we were advised it is stage 2 (b) and localized. Initial reports suggest lymph nodes have not been affected and no signs of spreading. Has a heart attack patient 8 years ago (double by-pass) they are taking all factors in to consideration. I appreciate your candid sharing of your experience. Thank you.

Thankyou for your information on this and my husband on stage 4.

God bless you. I was diagnosed with Stage 2 Esophageal cancer in August of 2014. I had a thumb sized tumor where my esophagus connects to my stomach. I had chemo and radiation until December of 2014. Then in March of 2015 I went through an 8 hour surgery to repair my esophagus and stomach, which were worn out from all the years of trying to work. I had been diagnosed with a hiatal hernia back in 1980 when I was 12 years old. We chose at that time not to have surgery because of having to go back every once in a while to have my stomach dilated. My stomach is about the size of a half dollar or alittle bigger. I had the chest port and a feeding tube for months. I am happy to report that I have been cancer free since March of 2015. But, I still suffer from fatigue. On top of the cancer I started going through Menopause. I take potassium for the fatigue and various medications for anxiety and depression. I still follow up with my family doctor and my oncologist. My family doctor tells his student doctors that I’m his walking miracle. The only thing that truly bothers me is that I have to watch how much and when I eat because I suffer from my food backing up and going into my lungs.

Is he still alive?

My mom passed away because of this cancer,she couldn't eat more than one year not even drink water.last year 2june she' passed away..I'm praying u will be all right

My wife's sister was diagnosed with this about three months ago. She was put on a strict modified keto diet with no dairy, no sugar etc. She has lost close to 70 pounds and her swollen lymph nodes have shrunk. She recently added ozone treatment to her protocol. No chemo. No radiation. No surgery.

thank you for sharing. My mom is diagnosed esophagus cancer. We lose our dad 6 months a goes and we worry that my mom can not handle chemo due to her age 61.

God bless you. Take my hat off to you!

John, are you oK?? is been 2 years since this video and no news from you, please let us know :(

Hi Jon. Can you let us know how things are going?

Thanks John my wife was just diagnosed stage 4 thanks for vid

My husband was diagnosed in June 2016 with stage 4 Adenocarcinoma of the esophagus along with lymph node infected. Surgery was not on the agenda however after chemo and radiation the tumor has shrunk from 15.6 to 1.4 and now surgery is going to take place. Your story is exactly how my husbands went down like looking in a mirror.

God bless with great health ahead

My mom has been having trouble swallowing and has had hoarseness for 6 months. The doctors kept telling her she had allergies but they did nothing for her. Recently I took her for a swallow test and the doctor said she was aspirating her food and drink but they don’t know why so I have to take her for more test. Were you also hoarse or just having trouble swallowing?

I developed barrotts esophagus and had the Nissan Procedure yrs ago. There were pre cancerous cells in the esophagus.

i get regular check ups as i have bad reflux and gerd i keep on top of it

pray for me. l have hiatus hernia with gerd and gastroduodenitis

I have Barrett’s esophagus I just had a biopsy 3 months ago the dr seen a suspicious area but the test came back inconclusive so now I’m scheduled for my second biopsy in a couple weeks fingers crossed 🤞. Thank u for ur video.

Thank you for posting this, that give me hope...i was diagnosed with same in novembre 2021 my fist symptoms hars swollen food... now i juste finish chemotherapy and radiation 10 days ago il feel very sick this week waiting for my surgery with doctor attorki at prespertarian hospital hope everything be good....hope you good.

I was diagnosed w Barretts 2 years ago. thankfully no changes as of yet. I know that can change. it's all pretty scary.

I love you man

Did you also cut out sugar from your diet?

My grandfather passed away in 2020 from esophageal cancer. By the time he got things figured out he couldnt eat from thanks giving to march the next year. And i do have permanent gerd. I just was found barrets esophagus as well as a node in my colon. Im also iron deficiency anemia. Hopefully this comes back clean.

You have any updates?

Hope you are doing well now sir !

My youngest brother was just diagnosed with stage IV esophagus cancer. It’s been a blow to the family. I pray that everyone is getting better. I would like to know what happened to John since his video. I’m thankful you all are sharing your stories.

What was the outcome?

How is he going to make this video and don’t give any updates 😢

Thank you for this video. Would you please give us an update about how are you doing? God bless your heart for putting this video out. My fiancé has esophageal cancer and I’m trying to find out more about it. Even with in weeks of chemo and radiation he still not able to eat and I’m very concerned.

RIP john

Im scared my boyfriend may have this because today he felt food stuck in his throat last night he choked on meat 😔 in felt like sense yesterday 😔 feeling scared 😢 feeling worried and scared

Are you still with us Ghost Town?

my husband is now going through exactly the same thing...how did the surgery go?

How are you right now... God bless you.

Did you have diverticulitis?

2:33 May 4 2023 interesting and helpful

❤️❤️❤️🙏🙏🙏

😪

Sure the hell is a bomb.

I have no one...