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My journey with Myasthenia Gravis  

Pdro Hrtdo
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Two weeks ago I was diagnosed with #myastheniagravis and this is my story.
The videos I’ve watched had been very helpful to me, to learn about myasthenia gravis and not to feel alone in this new journey. I hope this video helps you to learn about it too.
We CAN do this!
(Sorry for slurring some words, I had to stop and rest a few times)

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17 июн 2022

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Комментарии : 17   
@johnnguyen2782
@johnnguyen2782 Месяц назад
Thank you for your presentation
@paulinechong9716
@paulinechong9716 День назад
You did very well. Keep going 💪💪
@germainealexis2748
@germainealexis2748 2 месяца назад
Thanks for Sharing your journey .
@EmeliaGalangue
@EmeliaGalangue 17 дней назад
Thank you for sharing your story because my son his diagnose mg
@EmeliaGalangue
@EmeliaGalangue 17 дней назад
Thank you for sharing your story because my son his diagnose mg. Also
@cherylcarlson3315
@cherylcarlson3315 Месяц назад
So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people
@vladislavfeldman6562
@vladislavfeldman6562 4 месяца назад
Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.
@rachael1801
@rachael1801 Год назад
Love you Pedro. You’re so inspiring. ❤️
@user-mn1nt5tl1z
@user-mn1nt5tl1z 11 месяцев назад
This is a well thought out, detailed and clear video. Thank you so very much.
@starcorpvncj
@starcorpvncj 24 дня назад
You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.
@jamestammy
@jamestammy Год назад
Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.
@pdrohrtdo9756
@pdrohrtdo9756 Год назад
I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too
@live1030
@live1030 5 месяцев назад
This was helpful. I hope you have found improvement.
@upgradeaerialphotos
@upgradeaerialphotos 2 месяца назад
Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?
@richarddivia2831
@richarddivia2831 Год назад
❤️ you Pedro; keep getting better.
@gunjangunjanpant
@gunjangunjanpant 10 месяцев назад
Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg
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