Come and spend a work day packaging your preorders for this Christmas season! We are so grateful to you all who keep Owen within your home or given away as gifts and sharing his story. It means the world!
Thank you for being here and Happy Holidays to you and your family!
[ AWARENESS + DIAGNOSIS ]
Sanfilippo Syndrome, also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen's brain will be permanently damaged by the bad cells that his body can clear out over time and he will eventually lose all skills - such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here on our channel with us to help support Owen and help spread awareness.
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♡ SOCIAL LINKS:
Follow us on Instagram! @lifeinthelyonsden
Our shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: owensmpsstory
28 дек 2023
