Finally catching up with uploading!
It's a deja vu this year on Halloween as last year was also Owen's first day of school! It was too cold to trick or treat this year but we had fun passing out candy, doing all the Halloween things and had some fun baking together! We are so grateful that our boy is back to his baseline after a long period of sickness + a hospital stay! Thanks for spending the day with us!
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[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
♡ Please SUBSCRIBE to our channel.
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♡ REALTED VIDEOS TO WATCH:
HALLOWEEN VLOG 2022:
• OWEN'S 1ST DAY OF SCHO...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Our online shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: owensmpsstory
20 дек 2023
