Here in the US, cancer doctors tend to avoid terms like 'cancer free' for patients. (I have colon cancer). We use terms like 'No Evidence of Disease (NED)'. I've been NED for 1.5 years now, but every 6 months, more scans, more tests, and more waiting to see what's next on my journey. I love your content, keep it up. Know that you are in our hearts.
Have you hard the positve anti cancer ability of bolied water 💧 mixed with grapefruit skins n 🍋 skins .I strain and take a tablespoon first thing in the A.M. look it up
You’re the strongest girl!! WE GOT THIS💙 I was diagnosed in September and I’ve been following your journey! Thank you for being so strong and for being so open and honest with us. I’m vlogging my journey too so I hope I can help others and my youtube family is getting me through this tough time. Lots of love xxx if you ever need to chat, I’m here for you 💙 we got this 💙
Colon cancer survivor here. That numb feeling is normal. I was so tired of tests being told to wait till you could get appointment for results. My chemo was halted due to side effects, chemo was doing more harm then good. This may just be me but after the first 5 years of tests, I stopped doing the tests. I will have a tumor level blood test, but I have refused all others. I decided if I couldn’t do chemo again I was just going to live a normal life. I am 10 years cancer free, and I don’t have the stress and anxiety after I stopped letting it rule my life.
The power of your thoughts! You have to believe you are healthy! That you are cancer free! The power of manifestation. Think positively is so important!
I’m glad they are being EXTRA careful and suspicious about your scan. It’s better than the docs thinking you’re cancer free and then months down the line having to go into treatment again!
Or worse, as a close friend of mine was diagnosed as extensive stage 4 in spring 2020 during pandemic lockdown. After being told in November and December 2019 everything was fine and within normal limits.
sounds like their being extra cautious with you, because of how you've been delt with so far and the problems in comunications you have had. instead of telling you that you're cancer free "maybe" he's double checking. WHICH IS A GOOD THING. this limits the possibility of a false negative. i know it's more time and stress for you but be strong Romee, it's better this way. xox
I understand what you are saying but that's absolutely not acceptable. This is a person's life. Yes, being told you are cancer free then them saying they got it wrong is a horrible experience, but these are professionals paid good money. They shouldn't be making mistakes and that's not a good enough excuse.
@@zaixai9441 but they DO make mistakes just like everybody else and in every single other profession, they are people too and not robots. It is extremely unfortunate if mistakes do happen but it's inevitable. I would rather have them check it again to be sure than to be happy l'm cancer free and then get told I'm not. How can you say this is "unacceptable" when he literally just can't say if she is cancer free because the pet scan just doesn not indicate that and they need to test it further? It's none of the doctors fault that there is more activeness on the scans than before and thus they need to further look into it
@@Sabrina-sx9fl yeah mistakes happen, doesn't mean it's acceptable. How can 2 or 3 doctors make the same "mistake"? That's not an accident that's just incompetents.
@@Sabrina-sx9fl also, the whole procedure for scans is weird. Why go for a scan then wait for weeks to then get told its not a clear scan? They should have a doctor present when the scans are performed so they can check on them and if they aren't happy with the scan then they go straight back to get another one.
@@zaixai9441 sounds like you have this idealistic notion of how you think doctors and hospitals should be. Doctors…hell, anyone for that matter, are only capable of doing so many things at the same time. I find it amazing that folks like you don’t pause for a single moment to even consider why things happen the way they do or what another person (in this case, a doctor) could possibly doing else while she gets her scans. I’m not remotely associated with oncology but I would imagine that her doctor has to TAKE TIME to thoroughly analyze the scans, compare them to previous ones, re examine her medical History, possibly confer with any number of her other doctors, then write up his analysis on her file. All this to ensure that out of the hundreds of patients he likely sees in a month, he doesn’t do her a disservice and make a major mistake. It sounds like you’d rather the doctor be there when the scans are done so he can rush a verdict he has not adequately examined. What you’re suggesting simply does not and cannot exists for the way the medical system must operate. It is far more efficient for a person do a scan and return when the doctor has thoroughly reviewed them. Mistakes can and do happen. But it’s rather arrogant to assume that any unsatisfactory outcome must be the result of incompetence.
I am so sorry that you are having to endure this. My husband is currently undergoing treatment for stage 4 prostate cancer. Although he's been in remission for a few months, his oncologists at the Mayo Clinic are careful to never say he's "free of cancer". They simply cannot know at this point. What they do say is that ongoing cancer research and trials are unfolding quickly and holding more promise than ever for patients with all types of cancer. I know they've changed his treatment plan a couple of times because of new information. Our fight lies in keeping the cancer at bay and manageable, while preserving quality of life, until we come to the point where there is a cure. Hold on to that! I do empathize about waiting for scans and blood work results, it's excruciating! God bless you!
Romee I've only started watching you a few months ago but have come to care for you very much dear. I had brain cancer at 16 and almost died, it's not about me but I have been in remission for 36 years and am praying the same for you Dear. 🙏. Let me know if you need someone to talk to and I'll give you my contact information give you a shoulder to lean on. God bless you my friend. my heart is with you.🇨🇦
Another young cancer and autoimmune survivor YOU ARE NOT ALONE. sometimes you need to hear it from someone else who isn't getting great news and is having a shite time with self advocacy and trying to have my voice heard. You are a strong woman. Virtual hugs. We're rooting for you and supporting you. Xx
I am a breast cancer survivor and oh girl do I feel your pain waiting for those damn test results -- it's cruel to make you wait. Sending you tons of hugs and subscribing to get you to 100k!!!! Good things are coming!
I am very lucky to go to a breast cancer center whose policy it is to have a Dr look at the mamogram and or ultrasound and give you the results before you leave the building that day. I am 5 years out now and finally just do yearly and see my oncologist yearly. Leaving that building knowing one way or the other is a wonderful thing. I know with your PET scan it is not that simple. My husband had colon cancer surgery this year. He had a spot on his lung and a biopsy inconclusive so PET scan was done and it found his colon cancer luckily at a stage 2. The spot on his lung shrunk and is now not believed to have been cancer. He still will see oncology every 6 months and CTs of his lung and abdomen. He also may have another PET coming up too. It is a waiting game. I hope everyone affected by cancer could have more answers. Bless you all as you go through this journey.
Romee. You have encouraged others and fight advocacy of patients with Cancer. It is daunting and scary. You have all rights to be so. Be encouraged and positive. My prayers are with you.
Your body and brain is functioning perfectly to protect you. It is difficult… I can only understand from my own cancer experience. I do not have cancer now.. I am very grateful. Some measure of concern never goes away, especially at appointments. And landmark time frames. I’m cancer free 12 years…. That seems like eternity…. You can get there too! 💕💕💕
I feel like you will get good news from this . My cancer doctor told me to never say that I am cancer free , just say that I am in remission. Been 13 years and I still say remission. I am hoping and praying for healing for you. Love and hugs .💖💖🤗🤗
How do you deal with that ‘never cancer free’ does it not freak you out or make you depressed? Sorry if insensitive question just suffer badly with health anxiety and it’s really interesting and inspiring to me that it’s possible to live a happy life post cancer
I am wondering, if those regular pre scan anxieties will ease up with time. I had my cancer diagnosis July 2020 and had 3 scans in the meantime. Every time the scan date comes up, I am just a complete mess, can not think of anything else than what the scan will reveal, will the contrast blow up my veins again, and land in the tissue. Will the nurse be able to find a good spot right away, or will I be a human pincushion with 4 or more attemts atfinding a proper IV spot. And then, when the scan is done the days until I hear, what the tumor board had to say about it are not better. Those few months inbetween scans are way too short, and when I finally get "back to normal", it is about time for another round on the scanxiety wheel.
I am so sorry for you at present. Anxiety leading up to scans and then waiting for the results really can't be described for anyone who hasn't been through what you are going through. My thoughts and prayers are with you.
Romee, I know it is frustrating but, I would rather the doctor know for sure before saying whether the spot is cancer or scar tissue. He is actually doing the right thing by you. Thanks to others here posting they or someone they know have had a similar situation and it turned out to be scar tissue, I feel a lot better and I hope them sharing that helps you to feel better about it too. One day at a time, one hour, or even one minute at a time, you will get through this.
Heel sterk van je dat je dit allemaal deelt! Het zal heel erg behulpzaam zijn voor mensen die hier ook doorheen gaan. Ik wens je echt alle geluk en gezonheid toe!
Hold in there dear... I know what you are going through... I have been through 4 major ops in the last year... And I had hoped that the last was the last and I swore I will never go to hospital ever again... And here I am going to the Dr to schedule another op. I have my down moments but with support both you and I will get there
As you describe your journey, Romee, it sounds like you are a medical teacher for the medical community. Their processes should improve as a result of your roller coaster. Just know that you have support worldwide. We love you and think you are so very funny, kind, diligent, patient, and a normal person going through a very stressful ordeal. 💖
Hi Romee, Cancer is like the toy yo yo. It's like no evidence seen and the something is seen. I have met many fortunate people who had cancer and then were free of the disease. I have breast cancer, stage 1. No spread but....I expect sometime in my last years it will come back. I think we all have it. It comes to many people and others are lucky. Even sweet dogs and cats get cancer. I feel so bad when I see your sadness. I understand. I hope you get great results. You've been through so much. Sending virtual hugs and positive thoughts. 💞
I'm with you there. Ive had stage 3c OC for 2 years now. I thought I was NED, but I have a biopsy on a new tiny spot to see if its cancer in two weeks... I have a sneaky suspicion it is. I just have to not think about it or I would go crazy!
you are so loved Romee. My son was 7 when he was diagnosed with cancer. He is currently 15 months off of chemo and has no evidence of disease (NED). Just wanted to tell you that it seems like there is ALWAYS something on the scans that is inconclusive... to this point it has been nothing major but the not knowing for sure is so so hard! You are doing a wonderful job with an awful situation.
I'm sorry that you have to go through all of this tension. Please know that you have a lot of people who care about you. May I add that your nails, your knit top and your hat coordinated perfectly together. That is a great color for you. You are simply lovely.
You sharing this will help so many others. Your open and honest sharing is so valuable and appreciated. You show strength in sharing your vulnerability and the reality of what you are experiencing. You are a precious soul. Sending positive thoughts and appreciation for you.
Window advice. Clean them inside and out with shaving cream. Sounds crazy but they won't fog up anymore. Check your antifreeze level in the car. Hang in there sweetheart. Praying for strength and healing for you!
Make sure you have the air vents bringing outside in and if that doesn’t work then you need to close the outside vents and use only inside air. This always works for me. Just finding out which air works best for that particular day.
Romee, I’m so sorry you are going through this. I had endometrial carcinocarcinoma. After I had my hysterectomy, the surgeon said all looked good, but she wasn’t sure if one lymph node showed cancer or if it was a fat cell. It turned out to be a fat cell. I had a CAT scan after chemo, and that scan showed a small spot and it wasn’t clear if it was cancer or scar tissue from radiation. It was too small to biopsy. My doctor felt certain it was scar tissue, but I had to wait three more months for another scan to know for sure. It was determined to be scar tissue in the next scan in April. I finally had my chemo port removed two weeks ago. Stay strong. In hindsight I am glad that my doctor paid such close attention to everything. I am hoping you get good news with your biopsy.
So glad you are doing well. My s-i-l just found out she has endometrial carcinocarcinoma. She has had symptoms for over a year and is now waiting to receive hysterectomy.
@@carolinagurl22 I am so sorry to hear that! It’s a very scary diagnosis. Does she know how advanced it is? I was very lucky that mine was stage 1b and I had chemo and radiation and am currently disease free. I hope to stay that way! I made a video about what happened to me if you want to watch and share it with her. I wish her the best of luck and I will keep her in my prayers.
I feel he's being cautious and doing the other tests to know for sure. Last time you saw him he looked the fool didn't even know you had radaition he does not want to mess this up. I think you will get good news I feel it.
Hi Romee, I understand what you're going through. I'm a cancer survivor. I was diagnosed with stage 2 nasopharyngeal carcinoma 6 years ago. I was very fortunate because the cancer I had is one of the most treatable cancers out there, so treatable that you could be diagnosed with stage 4 and you would still survive. The treatments that I had to go through were very harsh but doable. I went through 35 sessions of radiation in conjunction with chemotherapy within a month. In addition, I had to have a peg tube put in my stomach so that I could at least have some sort of nourishment while going through the treatments. Because I could not eat I went from 180lbs to 126lbs within a month. I tell you I felt like a zombie the whole time. I even had a blood transfusion because my platelets we're so low. To make long story short I survived and I guess what really got me through was my own strength and my determination to live. It has been 6 years since my last treatment and last year my doctor officially declared me cured from cancer. Now I am living my life as if nothing happened. It's all a distant memory now. If my close friends and family didn't know any better, they would never believe I had cancer. Girl you got this. Just hang in there and never give up. I hope my story will give you plenty of hope. I wish you all the best and always stay safe.
I LOVE your hair!!!!!!! Like, YOUR hair! You look darling with short hair. And I am so sorry about the results. You’ll get there girl, you will! Prayers continue🙏🏻❤️🙏🏻❤️ for a quickly scheduled biopsy and results. Also, invest in a weighted blanket. It will help you sleep.
Romee, I'm sending prayers and light and hope to you! You are such a light and you encourage me in my own depression and recent loss of my mom who had parkinsons disease to keep moving forward! Thankyou! I'm thinking about all the people that you are helping right now who maybe are going through the same thing. Here's a verse that I pray will give you comfort." I will never leave you nor forsake you" Hebrews 13:5. He's with you every step of the way.
I can't imagine how frustrating and emotionally exhausting this all must be :( Thank you for being so vulnerable and open with us ❤ I'm so sorry that you didn't get any clear answers, especially after all you went through with these scans. I know we don't see all your worst moments but the strength and positivity you show is genuinely inspiring ❤ Hopefully they get you booked in for that biopsy asap and you can get the clear answers that you deserve. Here's to mission remission!!
Wishing you well, sending healings thoughts your way. After 3 years, and surgery, I finally have a clear scan. Still have a year to wait until the end and port removal. Hang in there. Each time I go for a scan, I get nervous. It is natural.
Hi Romee, There is nothing I can do but sending you support behind screens. But please hang in there, sometimes it's not the diseases that beat you, but the mentality. I hope you can stay strong and I will pray for you!
Oh no Romee ,hang in there I don't know whats going on with all the miscommunication and all this running around, I continue to keep praying for the best news ever for you ! You got this and your strength is amazing 💜💜💜💜💜💜💜💜💜💜💜
Aw Romee , I’m sorry you didn’t get the news you wanted 😔, sending you strength and love , from another cancer warrior 💪🏼❤️(sadly terminal) . Hopefully you’ll get the good news you deserve very soon 🤞🏼xx
I'm so sorry you're stuck in waiting mode again, Romee. Waiting is the worst! I'm praying for you that all will be clear, and that what has shown up on your latest PET scan is artifact. You are incredibly brave sharing your journey with honest, raw emotion. I'll be watching out for your progress, and hoping for a clear answer for you. You are a beautiful and intelligent woman, Romee. Thanks for sharing. By the way, I'm a retired Oncology RN, so I can relate. Hugs and love to you, dear lady.
Romee it could be scare tissue,my husbands scan was,nt clear so he had to have a biopsy It was clear and proved to be scar tissue xx fingers crossed for you Barbara xxxx
One step at the time Romee, keep strong, God will listen my prayers for you and for everyone who is in the same situation including me, hugs from Guatemala 🙏🏻🙏🏻🙏🏻
Hi Romee 👋 my first visit to your page. I'm hoping for all things good with future testing & results. I'm a 2x cancer survivor however, I now have incurables diseases. When I was hearing you talk, I couldn't help but smile because you sound a lot like me except I'm much older. All my teams of doctors call me the anomaly. What's supposed to happen in my body doesn't & what's not does. I laugh & say it's just me. I'm a hard poke as well. I completely understand, I was labeled a Sisu & you beautiful warrior are most definitely one as well! You're strong, inspirational & courageous ✌🌟💐😊
Ik hoopte zo op goed nieuws voor jou maar geef niet op. Diep respect voor jou, ook voor het delen. Alle goede wensen die ik kan bedenken wens ik jou.♥️
Any time your car windows won’t defog just roll one down a bit & it will clear right away. Sending lots of love & luck! You’re wonderful & so strong!! You’ve got this!!🤗
The waiting is the worst! It just eats @ you! Im not dealing with cancer, but I am chronically ill & have issues with medications not working. I also just had a 6 month follow up CT that did not bring the good news we all expected. So I get to start the waiting game for the tests & biopsies again. So I do get your frustration. Even though mines not cancer, there is a life expectancy slapped on it depending on how well you respond to treatment. So this last CT was devastating! My prayers are with you daily Romee. Something that helps me is trying to be as positive as possible. Yes I have my moments, but I let them happen & then I make it a better day. We've got this girl! Hang in there my friend! 💗Lots of love from Las Vegas!💗
Just a little bit longer, but the end is near!! You hang in there my dear as I can’t wait until I can sing from the California rooftops that you got the news you are looking for!
I'm sorry that you are going through this nasty disease. So many people especially young people getting diagnosed. I found out this year that I have breast cancer. I hope your news is okay. Sending hugs and good wishes to you Romee. 💞
soooo sorry sweetie! I hate to see you get surgery.....I'm not an advocate of surgery ONLY because I've had 3 friends who had their cancer metastasize after surgery. It only takes 1 bad cancer cell to migrate away from the initial site. Youve been thru so much! You are beautiful and strong and special. Youve been a teacher here on utube in so many areas. Big hugs!
Hi Romee, I hate that you have all this stress and worry to go through. It was horrid you couldn't have had a clearer update of your cancer. The constant waiting for results must be so hard. I send you prayers and love Romee xxx🙏❤️❤️❤️
I just want you to know that altho you’re younger than me, you inspire me and gave me strength to deal w my own cancer diagnosis. I’m in awe of your strength since the beginning as I’m struggling to find the will to even carry on. Currently dealing w the treatments side effects right now. You deserve to be cancer free and leave this all behind you. I know you will be soon. Please don’t lose faith, I’m praying for both of our healing. Lots of love and We will get there. xx
Just subscribe I thought I did but didn’t. Your will get your butter and your going to be cancer free. Your story is heartfelt and helping others. Be very very proud of yourself girl and how strong you are to tell your story dealing with Cancer sooo many people cannot do. ❤️❤️❤️❤️❤️❤️❤️❤️
Romee I'm sorry because I know these weren't the results you wanted to hear. I can't even imagine how much frustration you feel but know we are all with you and hoping for the best. I think it will be good to get the biopsy. It is good the doctor wants to be extra cautious and find out what that spot is. You are so strong and I am sending you all the good vibes. A big hug from Texas.
Romee, I'm so sorry that it wasn't better news and that the news wasn't more precise. Cancer journeys are pretty much like roller coasters (at least that has been my experience with breast cancer). I think you are doing great and I love to see that you have good support. If you get to the point where you may want to seek treatment in another country, that is an option. There are some terrific doctors in the US (MD Anderson, Sloane Kettering, Cleveland Clinic, Cancer Centers of America) that can provide an online consult and that may provide some other treatment options. I think you just email your records and they can take a look. Please understand, I don't want to imply that you aren't already getting top notch care where you are....just that second or third opinions can sometimes give a fresh perspective. Thank you for sharing your journey with all of us. You are loved!
I really feel for you Romee. You are going through a very , very hard time. The uncertainty of your future must and I know does bring you down. But stay focused on your future. You are an amazing women.☘️
I understand how you feel and I’m praying for you. I have breast cancer in both breast. It’s stage 1, none the less, it’s scary. Like I’m telling myself…don’t give up.