We were having quite a scare recently but got back on the right track!
Come along for 2 recent Chicago appointments, neurology + ophthalmology. We finally got a new neuro! I love her!
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
♡ Please SUBSCRIBE to our channel.
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♡ REALTED VIDEOS TO WATCH:
GET TO KNOW HIM: AN INTERVIEW WITH OWEN!!
• AN INTERVIEW WITH OWEN...
MPS AWARENESS WEEKEND VLOG 2022:
• MPS AWARENESS WEEKEND ...
MEDICAL UPDATE | WHEN WE CHANGED HOSPITALS:
• A Recent Medical Updat...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Our shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: / owensmpsstory
25 ноя 2022
