A work with me vlog that happened before Christmas. Come + see some new apparel being added to our shop, a little editing, chats + talks about adding onto our home for Owen's future needs. We are going to plan for a LAUNCH sometime in the Spring, please watch for some exciting things coming + thank you for sharing Owen's Story with us!
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
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♡ SOCIAL LINKS
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Our online shop: www.thehouseoncollegeavenue.com/theshop
Owen’s Story on Facebook: / owensmpsstory
20 дек 2022
