Dont forget that supporting the channel helps a lot! I want to keep sharing about takayasus to help people understand it more. Like comment subscribe watch and share 💖
You cried. I cried - a small miracle because I'm chronically dehydrated. I find it amazing how much I resonate with your experiences. Thanks for your vulnerability in sharing. It's invaluable. Sending lots of hope and courage to you from across the pond!
I'm so glad you had a good medical experience I feel you on the fibro front. I was dx'd with fibro in '96 and then dx'd with EDS in about '08. I cannot escape the fibro dx and it is so frustrating because, in the US at least, fibro is seen as primary and is seen as predominately a mental health issue. (I freely admit to having mental health issues at this point.)
Ahahaha yeah theres no denying im mentally ill but we can tick most of this shit off now as something else 😭 in the uk fibro is seen as wonky brain signals to your nerves but they literally wont do anything except pills and ive tried them all now
Glad you had a grood experience, are being looked after and will hopefully get some answers you have been waiting for. I'm sorry it took this long to get here.
Thank you! Yeah they were very sorry how long it took too i think there was issues my drs end tbh i wouldnt be surprised but im there now and we can speak to different people about these other things that have come up and work out what the deal is 🫠🫠
Thank you for posting!!! I got diagnosed with takayasu 4 months after i turned 18 , don't feel to well even after taking the medication as the flares are sometimes really bad . I've felt ver alone ever since i got diagosed with this, i just don't want to be a burden to anyone feels so frustrating thinking about carrying the adlabumin (whatever that injection is) Hearing you makes me feel i can also go through this Thanks i hope everyone who gets this disease goes into remission
Thank you for sharing. I have a whole playlist on my experiences with Takayasu’s that might help you including on the adalimumab injections! Highly recommend you check those out too. I try to both talk about my experiences as well as talk about medical research in a way that makes more sense to normal people (i.e. the patients!) :) Hopefully these can help you out and if you arent already, i recommend checking out the facebook groups for takayasus too it was really helpful early on in my diagnosis. 💕
