Surviving Gleason 8 Ductal Prostate Cancer | Ben Nathanson & Alex Scholz

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In this inspiring video, we delve into the incredible journey of Ben Nathanson, a prostate cancer survivor who transformed his battle into a beacon of hope for others. Despite facing a challenging diagnosis and enduring lifelong side effects from his treatment, Ben chose to share his story through a heartfelt and informative blog (Progressions: A deep look at prostate cancer: bennathanson.substack.com).
His writings offer a unique perspective on living with prostate cancer, providing support, encouragement, and valuable insights to fellow patients and their loved ones. Join us as we explore Ben's unwavering positivity, resilience, and his impact on the prostate cancer community.
Ben's blog: Progressions: A deep look at prostate cancer: bennathanson.substack.com
Learn more about Ben: Ancan: ancan.org/team/ben_nathanson
Join a support group: ancan.org/groups/
Donate and support the incredible work of AnCan: ancan.org/donate/
Donate to PCRI: pcri.org/donate/
For more information, visit pcri.org
Don't know your stage? Take the quiz: visit www.prostatecancerstaging.org
To learn more about prostate cancer, visit www.pcri.org
Sign up for our newsletter here to receive the latest updates on prostate cancer and the PCRI: pcri.org/join
Who we are:
The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better individualized care. Feel free to explore our website at pcri.org or contact our free helpline with any questions that you have at pcri.org/helpline. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.

Опубликовано:

18 июн 2024

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Комментарии : 46

@gil-youngchae5856 5 дней назад

Thank you so much for your experience. Thanks, Alex for helping patients and families!

@stevemarriott2788 9 дней назад

I love you guys. What a wonderful world to know there are people like you out there. Thinking of you with love.

@user-eq6zg8kw7k 7 дней назад

This was great. I hope to see more patient conversations. So many docs mention side effects almost in passing, but living with them is a different story. I have a very supportive wife, which helps immensely. I am 53 and had prostatectomy in 2022 at 51 and salvage radiation in 2023 at 52. I have been on ADT (Lupron and Aberatiron) for a year with a year left, maybe life for lupron. When I went on this journey, I knew a lot about the side effects, but actually experiencing them was more difficult. Someone mentioned earlier that interviewing a urologist who has been through PC would be good. I agree. I'd also like to hear from a caregiver on how their life changed with their spouse. We can't forget about caregivers because they are the hidden support and make life better when dealing with PC.

@TERRY-cb2ku 9 дней назад

I go for my biopsy on the 26th. I pray that huge advancements are made, very soon, in the treatments for prostate cancer that won't be so destructive to men's lives.

@Lola.1952 9 дней назад

Many new advancements lately. Stay confident 👍

@charlesgair8608 9 дней назад

I Just Beat Gleason 8 Prostate Cancer If It Hasn't Spread It's Not That Difficult.And I Refused To Go On ADT Hormone Therapy .The Key Will Be If Its Still Confined To The Gland .

@stadtcowboy3684 9 дней назад

Wish you good luck. I go for biopsy on July 15. My pi-rads score is 5. I'm scared.

@simondumoulin2254 9 дней назад

@@stadtcowboy3684 Godspeed brother! Good luck and take care

@eddiegardner8232 9 дней назад

Ben had a harder time than many of us. I was Gleason 4+5 adenocarcinoma 3 years ago. My RARP was bilateral nerve sparing, bladder neck sparing, no extraprostatic-extensions, but I did have one hot pelvic node on ePLND, so I did nodal radiation also, then 20 months of ADT. Now I have been on TRT for 11 months, PSA=0.04 or less, and feeling fine. IDK what the future holds long term, but I feel as well as before diagnosis and surgery. No incontinence, fat gained on ADT all gone, muscle strength returned. Don't talk yourself into thinking about the worst possibilities, when they aren't that likely. Good luck!

@ricknowak4582 9 дней назад

I thoroughly enjoy these videos! The lady is such a great narrator. This was a very good video . I listen to all of them but this was a good one.

@robwells230 9 дней назад

PCRI needs to hear more from patients. We hear from doctors who really know nothing about what patients really have to deal with except what drug companies and the NARCO MEDICO CARTEL wants them to know. I want to have a doctor who has personally been on two years of ADT CASTRATION, then I might believe what he tells me.

@simondumoulin2254 9 дней назад

I completely understand you brother. I have been on ADT for over a year now. I have every possible side-effect, except having a stroke. I lost my hair everywhere on my body, except for some facial hair and on my head. I gained 60 pounds and lost muscle mass. I wake up 3 times a night to urinate. I am unable to have relations with my wife. Mood swings, extreme fatigue, sleepiness, backaches, violent headaches, depression, melancholia, joint aches and osteoporosis. But that is not the worst part..

@mperloe 7 дней назад

Alex, You might consider changing the graphic or title for this video. It implies it would just benefit those with advanced disease. This video would be helpful to anyone who receives a prostate cancer diagnosis.

@ThePCRI 4 дня назад

Great suggestion, Mark! Will do!

@ancanfoundation 8 дней назад

Thank you Alex and Ben - AnCan loves you both!!!

@Rockinrn 9 дней назад

Thank you Ben!!

@peterhaye2004 9 дней назад

Really helpful. Appreciate what you do.

@wongsiang1133 9 дней назад

Thank you👍👌 so much for Ben and Alex for these valuable informations because I am also suffering from prostrate cancer at moment.

@jarettcron8894 9 дней назад

Great interview, Thank You

@doughumble4700 9 дней назад

Please, please address this issue in a future episode. I had a Radical Prostatectomy after I got divorced. I do not have that "great wife" to give me support. How do I approach the subject to a potential mate? I really don't seriously pursue women because of my ED & mild leakage. I use a P pump regularly, and I confidently think I could have an intimate relationship. But I don't pursue anyone seriously because I have no idea how to approach the subject without scaring them away with the conversation. Many of the channels I follow always discuss the importance of a current relationship but never the single guy looking for a new relationship. Please consider this.

@carladerenzy3674 5 дней назад

I met someone new, and a month after meeting them, I was diagnosed: 525 PSA, metastatic, went immediately on Orgovyx and Nubeqa plus Lutetium trial soon after. She was my first phone call. I'm 61, she's quite a bit younger. Fortunately, she read as much literature as possible plus watched dozens of videos, and she fully accepted what the road ahead would be. For me, the most common side effect (erectile dysfunction and loss of libido) hasn't been my experience, although erection is not as robust. Still, the fatigue and amplification of emotions that the ADT's cause (low T, low seratonin) has been a killer. I didn't have prostate removed and have been on a super-strict virtually carb-free, vegetable-based diet except for fish (salmon and sardines), so the exercise and diet is helping a lot. I agree with the speaker here that the drugs work to change your appearance, so rigid exercise is essential if you want to maintain muscle and bone density. I'm into my 15th month of the ADT's and anticipate a possible "hormonal holiday" in 3-6 months. No new cancers since April, '23, and PSA now .1. Still, the mental impact is strong. I temper it some days with one Lorazapan, and at night I take 10mg of Melatonin, which has other benefits in addition to sleep. My new partner has been true to her word, and having her experience the therapy and hospital visits vicariously has been a big help.

@duggartaiwan786 9 дней назад

❤

@jeff6899 9 дней назад

Glad for this video ! Though still do not have complete answers. I had prostatectomy surgery. My cancer was growing predominantly on one side, wedged between urethra & edge on that side. My pathology report did confirm I had the suspected 4 + 3 = 7 Gleason score off a prior Targeted biopsy (post MRI w/ contrast)...but apparently I had the intraductal (I don't believe ductal) feature....on the surgery pathology report. No doctor to date has given me a "clear" indication as to what this meant ! Still somewhat in the dark...I had a CT scan, Bone scan, cystoscopy just prior to surgery---all were ruled negative for any cancer spread. The very top of my bladder neck was also removed druing surgery. I I did have a recurrence after early salvage radiation to the prostate bed...my 1st 2 PET scans (6/2/22; 3/24)--were negative...but the 3rd one (5/24) did show a small spot in the nearby pelvic bone. Extrapolating--My PSA was at a level (by latter recent test time date) where I should have had a roughly 55% or greater chance of showing up somewhere--which it finally did...to this nearby spot. They went back to the 2nd PET scan then to compare...and though readily inconclusive---they could see where maybe something was just starting to appear. A quick Biopsy confirmed cancer. I did go back on low dose Casodex; then got a lupron shot for the first time 2 wks later. The low dose casodex by itself did appear to be readily lowering my PSA (something was)...Fyi--I was on the low dose casodex for nearly 9 mo's b4 (after which my experienced radiologist initially thought I had no presence of cancer left--7+ mo's after salvage radiation---though I also supplemented w/ lots of homeotherapy, which may have had a positive effect & fooled him. So whatever type I have,--is "apparently" responsive (to date) to both ADT & PSMA PET scans... I just went thru 5 daily radiation treatments to eliminate that spot. Virtually no side effects; so far, nothing unmanageable on ADT either. ...Fyi, I was fortunate to get over incontinence fairly quickly--though I bike & exercise a lot--which I believe was helpful. A recent genetic test has shown I have no known genetic link to prostate cancer...virtually no family cancer history any known relatives

@simondumoulin2254 9 дней назад

By what you are describing, it seems like you suffer from the same condition as myself. However, my cancer is more advanced than yours. My diagnosis: Prostatic intraductal adenocarcinoma high-grade. Gleason 9(4+5), PSA 29, stage 4, metastatic The cancer has spread to my lower back and lymph nodes. This form of cancer is the most aggressive type and the most resistant to treatment. The outlook: 40% of men live 3 years after the diagnosis, 25% reach 5 years and less than 10% make it to year 10. It took me a few weeks to get all of this information and I had to pry most of it from my uro-oncologist. You are your best advocate. Only you know how you really feel. I have been on Casodex, Zoladex and Erleada. I also underwent 25 highest possible intensity beam radiation therapy sessions. As an example, I suffered terribly from the hot flashes and couldn't sleep well. My psychiatrist prescribed 100mg of Pristiq (venlafaxine) in the morning and 50mg in the afternoon. This alleviated 90% of the problem and I am mow getting sufficient REM sleep. My oncologist offered me nothing. My GP has also been a great help in keeping me comfortable and managing pain. Don't be afraid to ask questions or get a second opinion. Godspeed brother

@ricknowak4582 9 дней назад

I have four Gleason seven cores. I haven't started treatment yet. Because I am terrified that when I start either treatments that I will become a full-time customer of the medical profession. I'll be on medications giving blood tests the whole gambit. Which terrifies me. Listening to stories like this gentleman what he went through and what he's going through.

@carladerenzy3674 5 дней назад

I've been on ADT's for 15 months. I do visit the hospital every few weeks. I can't possibly know what you are going through, but I was initially quite anxious and frightened after getting a metastatic diagnosis and a PSA of 525. It's now .1. The acts of taking the ADT's (I take two) and also participating in a Lutetium trial actually demystified the process for me. My biggest side effect was/is the psychological impact of having my testosterone reduced and the fatigue, amplification of emotions, feelings of hopelessness that creates. It's difficult to avoid becoming at least a temporary customer of the medical profession. I hope you make a decsion that sits well with your demeanor.

@garygalarza-fg3bj 8 дней назад

What do they mean when they say prostate intact no broad contact no focal bulge very low likelihood of ece grade on mri 0 put pirad4

@williammack571 3 дня назад

So far I choose to die

@ricknowak4582 9 дней назад

I just don't trust the pharmaceutical companies.

@ricknowak4582 9 дней назад

Dr Schultz talked about hormone treatments for prostate cancer and he says that studies recently have said that LOWERING testosterone has NO benefit combating cancer. That in fact lowering the testosterone might be worse!

@Mr406Galaxie 9 дней назад

PCRI has a video on this very subject. I encourage others to watch that video.

@Lola.1952 9 дней назад

Where that video? I'd like to watch it as my hub has just gone over 2 years HT You mean Dr. Scholz said lowering testosterone is no good🤔

@Lola.1952 9 дней назад

@@Mr406Galaxie Schultz* (sorry)

@ricknowak4582 8 дней назад

@@Lola.1952 Yes he said that. He didn't actually say it's NO good but he says it needs to be questioned. It was a recent one. Like within a month or two! And I've seen other studies concerning that. He was saying for.. favorable intermittent cancer you don't NEED to take ADT.

@Lola.1952 8 дней назад

@@ricknowak4582Sometimes, the more you learn about this issue the more confused you become. Different medical opinions or streams make you hesitate and you are never certain of having chosen the right decision. In any case I guess age, stage, personal priorities etc etc are factors to take into account when it comes to treatments. My hub had recurrence four years after RP, at 73 year age. He had RT to two spots and to the pelvic area as a prevention. Two years hormone deprivation and his current PSA is 0.01. Not too bad therapy side effects.

@ricknowak4582 9 дней назад

Sorry but you mumbled when talking about the urethra problem you have urinating. Can you repeat what you were trying to say about what cancer will get you urinary problems?