One door must close in a chapter for another to open! I finally got this vlog finished and my heart sank a little reliving this day again.
I'm so thankful for this space and and all of the people that were a part of this chapter and allowing my vision come to life to help spread awareness through our story. We love you all and blessings in your journey!! xx
OUR PURPOSE
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
♡ Please SUBSCRIBE to our channel.
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♡ REALTED VIDEOS TO WATCH:
THE ANNOUNCEMENT OF THE CLOSING:
• WE ARE CLOSING OUR BOO...
GET TO KNOW HIM: AN INTERVIEW WITH OWEN!!
• AN INTERVIEW WITH OWEN...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Owen’s Story on Facebook: / owensmpsstory
5 окт 2022
