Thyroid Update - 7 Months Post Radioactive Iodine (for Graves' Disease)

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In May 2022 I had radioactive iodine treatment for my overactive thyroid (Graves' Disease) and now 7 months later I talk about my experience and how I'm feeling now! Sorry this update has taken so long! Not a medical professional - this is just my own personal experience and I'd ALWAYS tell you to go and seek professional advice.
5 WEEKS POST IODINE UPDATE VLOG: • Thyroid Update - 5 Wee...
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6 сен 2024

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Комментарии : 106

@ItsNishaLaurenWest 11 месяцев назад

I watched ur first video was on my way to get radioactive iodine I have had Graves’ disease since I was 20 & I’m now 26 sadly I was not approved & my doctor said my only option is surgery because I’ve been on meds for to long. in the ending of 2021 I started natural journey. Fast forward to 2023 I now feel 10x better den when I was taking meds. The meds made me worse.

@isishallett3519 10 месяцев назад

What natural remedies did u use?

@poulomimajumdar3437 2 месяца назад

Yesterday my Doctor suggested Radioactive iodine, Can I go for this treatment? I have hyperthyroidism

@DDsworld5 Месяц назад

@@poulomimajumdar3437 did you do it?

@DDsworld5 Месяц назад

@itsNishaLaurenWest Did you do the radiation

@poulomimajumdar3437 Месяц назад

@@DDsworld5 no no

@sbmenard7374 Год назад

It's helpful to hear from people who have been through it. I had an overactive thyroid/Graves for many years. I had radioactive iodine in 2020, started taking levothyrox, and have been feeling great until recently. I now have swelling in my neck, a visible lump - perhaps a cyst like you've got? - and blood test yesterday revealed high thyroid antibodies. I meet with my endocrinologist at the end of the month. I'm perplexed as to what's going on. Enjoy your recipes. Glad you're feeling better.

@DDsworld5 Месяц назад

How are you feeling now?

@kaziahmangulabnan6094 26 дней назад

Any update

@DDsworld5 24 дня назад

@@sbmenard7374 any updates, I did rai , they found a cyst too

@brittneyb4475 Год назад

I had RAI in 2011 when I was 22 years old. I was supposed to destroy my thyroid but it only did so partially. Now my thyroid levels are normal but borderline high. The only down fall for me was that I gain about 60lbs and can’t seem to get some of the weight off. What’s weird is that I never became hypo and still gained a ton of weight. I’m so happy that RAI worked for you!!! Keep us updated!!

@erikasolgos2066 9 месяцев назад

I tend to gain when my thyroid is high too! so annoying.

@wor4314 6 месяцев назад

And you don’t have any cancer afterward right? I’m scare to take radioactive iodine and it would cause cancer.

@brittneyb4475 6 месяцев назад

@@wor4314 No, no cancer. I was scared as well but it was the only option. Since my goiter was so large, they didn’t want to do the surgery.

@wor4314 4 месяца назад

@@brittneyb4475thank you so much for the reply :)

@DDsworld5 Месяц назад

@@brittneyb4475how are you feeling now?

@christinalogan311 Год назад

I had radio iodine too. I went onto thyroxine very soon after that. They told me I.d be on thyroxine around 6 months after radio iodine but I felt so ill that blood tests showed I needed it far sooner. I know exactly how you felt, it’s a bit of a journey getting it all sorted and feeling much better. My eyes are much better now as well. I didn’t know till I had swollen eyes that there was such a thing as thyroid eye disease. So thyroid eye specialist for 12 months but thankfully it’s all better now. I also am coeliac and enjoy your recipes. 👍💕

@SVETIK_NICOLE 8 месяцев назад

How long it took you to become hypo?

@christinalogan311 8 месяцев назад

@@SVETIK_NICOLE After radio iodine about 6 weeks but I.m told this was unusual, I was initially told it apparently takes around 6 months for most patients.

@SVETIK_NICOLE 8 месяцев назад

@@christinalogan311 My Endo told me it's going to take 4-6 weeks. I'm 4 weeks now still hyper. Hopefully next week I will be hypo) I know couple of people they said around 6-8 weeks. What symptoms did you had when you become hypo?

@DDsworld5 Месяц назад

Got mine today am scared @@SVETIK_NICOLE

@DDsworld5 Месяц назад

@christinalogan311 what was your experience please 😢

@jaynesellers7794 Год назад

Well done Sarah, I'm so glad you are feeling better. My daughter had the Iodine treatment in July, and it's taking a long time to work, but her levels seem to be coming down now. She's hopeful of success since she can repeat the treatment rather than have the surgery. It has been quite a journey so I understand where you are coming from. Enjoy life and Happy New Year to you. 💐🥳😀

@lindsayforrest9133 Год назад

Oh goodness what a long trek. I'm glad it's under control now. The only plus with taking levothyroxin is free prescriptions!

@cathyspencer7071 Год назад

Thank you so much for sharing your journey. I have been living with Graves’ disease since 2012 and had the RAI treatment last week, it’s tough to find out what to expect afterwards so I was reassured by your video. Take care and thanks again x

@SVETLANOCHKA_NICOLE 8 месяцев назад

How fast you became hypo?

@BJ-pd2tb 7 месяцев назад

How r u now ? After RAI hows ur health

@wor4314 6 месяцев назад

@DDsworld5 Месяц назад

How's your health now?

@lolainma3218 25 дней назад

I had RIT back in 1978 for Graves. My metabolism has been less than optimal ever since. Losing this weight an impossibility no matter what I don’t eat or how much I walk. But at 74; those are my only complaints after 46 years.

@LeeLeesAdventures Год назад

Bless you i cant imagine what you have been through but its great news you are finally getting somewhere and you look fantastic stay strong and get back to what you love the gluten free cooking videos. Hope to meet you again soon love best wishes. Michael & Kim xx

@jmcsms Год назад

Well done for making this, hope all goes well with your consultation and for the future

@afshasaleemxx Год назад

I just stumbled across your video and this has given me some hope😊 I am due to have my radioactive iodine treatment in a few days. Wishing you all the best x

@raipatiashok4416 Год назад

Natural herbal treatment from Dr. Okouromi on youTube, his treatment stopped seizures within 21 day’s and my cousin is epilepsy free 💐💐;;;;;;;;

@keynamaynard7164 Год назад

I'm so glad it worked well for you. It's been 10 years since I did it. My life still a mess.

@JJ_913 Год назад

Why is that? How are you feeling?

@SparkyOne549 10 месяцев назад

That’s what I’ve heard from many people. I’ve heard from younger people that it works great. But for older people the symptoms are worse after RAI.

@Helenwyatt7 Год назад

Wow this is so strange, I found you looking for a recipe just now then saw this video too which is so helpful! My husband has only just been diagnosed with Graves Disease and has been offered the iodine treatment! I e been going to read up on it and here I am. I hope you are doing well x

@autumn.melody1715 4 месяца назад

I’m not sure if I should have this or surgery. Thank you for update.

@erikasolgos2066 9 месяцев назад

Thanks for sharing your experience! I've been struggling with hyperthyroid for 4 years. I've been reluctant to do the iodine, but you have me thinking about it. I do have celiac as well.

@celinakorin Год назад

Thanks so much for sharing your story! My endocrinologist is recommending that I do the radioactive iodine I’m not sure what to expect but Im thankful you shared this. Gonna check out your gluten free recipes now lol.

@DDsworld5 Месяц назад

Did you do it?

@Angie-qi8pt Год назад

I appreciate you for making this video. I am curious about your cyst, only because I have some extra things maybe going on for me as well. Will you be posting a video on the some more of your journey?

@fear_not 11 месяцев назад

OMG you kind of scared me. I have a Grave’s disease for 12 years and after recent relapse number 3 I’m considering iodine treatment but I was hoping it’s gonna be smooth and easy process.

@SVETIK_NICOLE 8 месяцев назад

I did RAI after first relapse. 1 month ago. I'm very happy I did it. Wish I did it before.

@DDsworld5 Месяц назад

@@SVETIK_NICOLEi had radiation recently, what was your experience?

@SVETIK_NICOLE 20 дней назад

@@DDsworld5 Good. I have normal blood test now. I don't have to take any thyroid medication. I'm not hyper or hypo. I'm normal. I feel better. The only thing I still have is heart palpitations. I checked my heart with cardiologist and it's normal. So I think its from my thyroid. But they are normal to. So Endocrinologist doesn't know why it's still high. But I have more energy and feel better than before RAI.How do you feel? Did you become hypo?

@DDsworld5 19 дней назад

@@SVETIK_NICOLE I still get palpitations too I don't know why

@SVETIK_NICOLE 19 дней назад

@@DDsworld5 Are you hypothyroid? And take Thyirod medication? Do you take beta blockers?

@noz8509 Год назад

I am am so happy for you.. thanks for sharing your story.. I just had my RAI 2mths ago.. fingers crossed evtg will be ok. I am very hopeful after seeing your video. My main concern post RAI is the weight gain.. Anybody got experience with managing it, i do hope u can share it

@DDsworld5 Месяц назад

How do you feel now?

@1114ej Год назад

Thank you for your information. It was really helpful.

@svetlanaivnitskaya3504 11 месяцев назад

I was first diagnosed in 2008 but have managed to avoid RAI!Today I need the RAI because I depend on Zolpidem to sleep and have vomiting and losing weight slowly!But my dr didn’t mention this treatment and is not an Endo!I do need help!I am 51 now!

@sophia_gb_03 8 дней назад

Hi im 21 and was diagnosed with graves at 17, i went into remission 18 months ago but recently my leaves spiked back up, i was recommended the radioactive iodine or operation and I am leaning towards the iodine as I dont want the op. How did you find the isolation? Im a nanny so I would need to be off work for the month I have it because of the children

@tessap5280 9 месяцев назад

Makes me so sad that you had to go through all that !!! Just not right at all .

@shannonjacobson2447 8 месяцев назад

I have a very hyper thyroid - not Graves. Had RAI 5 weeks ago and bloodwork last week showed very very hyper. I’m super anxious, exhausted,etc. Seeing my endo this week and kind of hoping he will put me back on methimazole. How long did it take for your thyroid to go hypo after RAI? Hoping you are feeling much better 😊😊

@SVETLANOCHKA_NICOLE 8 месяцев назад

How do you feel now? I had my RAI 6 weeks ago. Still hyper. Taking Metoprolol and Methimazole. Hopefully this week I become hypo.

@shannonjacobson2447 6 месяцев назад

I am now very hypo per bloodwork 8 weeks after RAI. I started Synthroid 2 weeks ago and feel awful. Brain fog, very wiped out exhausted. Hoping the Synthroid kicks in soon.

@SVETOCHKA_NICOLE 6 месяцев назад

How do you feel now? Is it better?@@shannonjacobson2447

@tratcol 6 месяцев назад

I had RAI mid December. Was very hyper til last week, in three weeks went from tsh 0.01 to 30. So I immediately stopped tapezole and started eutirox. Now a week on eutirox. I have not felt really bad through any of this so far.... Just one day of feeling dizzy and mega cold hands, but 2 days after eutirox I'm not dizzy any more. Freezing hands one week later are getting better...

@SVETOCHKA_NICOLE 6 месяцев назад

@@tratcol Had mine in November. Still hyper..

@jillparsons9567 Год назад

Has your heart rate returned to normal? How is your exercise going? Do you feel back to normal?

@DDsworld5 Месяц назад

Hey, did you had a radiation?

@KrstnaSchroeder 3 месяца назад

had rai for graves the end of april, i go back for a followup with endo end of june.

@hopegolilao2489 10 месяцев назад

Good day mam,, may i ask how month exactly after your RAI works? Thank you and God bless Looking forward for.your reply♥️

@SVETOCHKA_NICOLE 8 месяцев назад

My doctor said 4-6 weeks. I'm on week 5. Still hyper.

@Iwatcccchhhhonly 8 месяцев назад

@@SVETOCHKA_NICOLEso you feel any pain or worst after the RAI?

@SVETOCHKA_NICOLE 6 месяцев назад

No pain at all. My thyroid went more hyper after RAI first month. And second month it went down to almost normal. I'm still talking heart medication for heart rate. I had low energy before RAI. Now I have more energy after 2.5 month. My heart rate going down. So I'm so Happy that I did RAI. I wish I did it couple years ago when they find out I have Graves disease. @@Iwatcccchhhhonly

@SVETLANOCHKA_NICOLE 26 дней назад

No pain. I feel worse for 3 months and then I feel better.@@Iwatcccchhhhonly

@Nabizadah19 Месяц назад

Hi dear, how do feel when you take the tablets for the first 3 days any problems or you was fine I'm very thinking about that I will have my radioactive iodine next month

@DDsworld5 Месяц назад

Did you get it?

@23paige23 Год назад

sorry did the radioiodine cause the cyst?? I've had graves for 14 years and finally having this done next month

@DDsworld5 Месяц назад

Yes it causes cyst, i got cyst... what was your experience with rai please?

@user-qg5fe8pm5n Год назад

It's not a easy task* right? 🦋

@SVETLANOCHKA_NICOLE 8 месяцев назад

How fast you became hypo after RAI?

@DDsworld5 Месяц назад

Mine 1 week my tsh levels are high

@SVETLANOCHKA_NICOLE 20 дней назад

@@DDsworld5 What was your dose of RAI?

@DDsworld5 19 дней назад

@@SVETLANOCHKA_NICOLE 50mg of thyrioxine

@SVETLANOCHKA_NICOLE 16 дней назад

@@DDsworld5 It took me 9 months to become hypothyroid. Finally.

@DDsworld5 14 дней назад

@@SVETLANOCHKA_NICOLE how do you feel overall

@janicesalazar4908 Год назад

I am scare rather to get that treatment or surgery so did you fell better?

@pamelamays9036 Год назад

Hey did u have the radioiodine (l-31)therapy

@pamelamays9036 Год назад

How did u feel after.how many days was it.i am scare and worry about it.

@DDsworld5 Месяц назад

@@pamelamays9036i had mine recently, what was your experience please?

@DDsworld5 Месяц назад

@@pamelamays9036did you get your done?

@TheBabyjode Год назад

How come you had to have this if you had a thyroidectomy? Sorry I'm a bit confused

@GFBlogger Год назад

I had a partial thyroidectomy, so not all my thyroid was taken out

@TheBabyjode Год назад

@@GFBlogger oh that makes sense, so may I ask why you didn't opt for a total thyroidectomy?

@GFBlogger Год назад

@@TheBabyjode it was supposed to be total but they couldn’t locate a nerve so had to leave some in

@mtio2807 10 месяцев назад

Not helpful at all

@janeevans4758 10 месяцев назад

Rude!! The lady was sharing her update of her illness.. you didn't have to watch it,the title wasn't confusing! Very clear in what it was about...always 1 knob!