@@jamesfranklin8825 It really has been! I used to pass out from walking up the stairs now i feel like I can see the world for the first time and i’ve only been off it two- three months
@@LP-lk1yp I didn’t want to give up my fav foods but it’s so worth it, the bloating and stomach pain is gone which is amazing and I dropped 5 pounds in the first week I stopped.
@@skinnyqueen5914 i ask do u feel like u have urge to fart?and pain around the navel cause i think i have celiac disease because if i dont eat gluten it does not hurt
My husband got diagnosed yesterday, at 43, because I begged him to get tested, I suspected he had CD because he had dermatitis herpetiformis, beau lines, mental fog and fatigue. Also he was anemic and had a vitamin d deficiency. His doctor didn't want to order the test because that cluster of symptoms wasnt enough for her. So he had to go to a private consultation.
I was 4 when I was diagnosed and as an adult I was extremely surprised to realize most people were not diagnosed at my age Though I was diagnosed at such an early age, I still struggle with mental health and hope the best for anyone reading this! Though you can’t eat everything you can live life which is an eternal blessing
You’re blessed you we’re diagnosed young and didn’t do as much damage to yourself by eating gluten. Also you probably should look into gut health and how it’s linked to mental health. Diet is really everything. Check out Keto diet or low carb diet and try eating a more clean diet. Will work wonders on your mental health. God bless
I wish I had been diagnosed earlier... was sick my entire life and found out I was coeliac at 22 after being rushed multiple times to the ER for being malnourished and severely dehydrated. It took for me to get severely sick to get diagnosed and I have so many complications from it.
comment section feels like home lmao, been diagnosed since the age of 5, I came to this video because I have relapsed very badly at the age of 20. Mostly because of work and having to eat out more, cross contamination is a real thing… i never knew exactly what was going on until this video. Good video, thanks!
I'm pretty sure I've had CD my entire life but was not diagnosed until I was 50. Now I have bones of a 90 yr old and many other diseases. It was not until I was nearly on my death bed did a doctor test me for CD. At a young age, I had chronic low iron, learning disabilities, low attention span, like I was lazy and didn't care, I slept in class and had trouble exercising. As I got older, it manifested itself as depression and anxiety. I did have to laugh when you said it is "easy to treat, just stay off gluten". It's not that simple and dr's really need to educate themselves more so they can help the patient better. Gluten is in everything. It's in cutting boards, knife blocks, it sticks to anything scratched or permeable, like plastic and cast-iron pans. Getting gluten out of your life is a lot of work and very expensive. It is also the most common autoimmune disease in the US and UK and everyone should be tested at early age.
I thought the same of that part of the vid, really stuck with me. Though I didn't have that unfortunate experience like you did which is really heartbreaking but thank you for sharing your story! It does put things in perspective. I've been on gluten-free diet for a year so far but didn't start to feel better nor gain any weight whatsoever so that's a bit disencouraging since it takes so much energy to stay 100% gluten-free...
i have celiac disease and i don’t pay attention my diet like i should. it hurts so bad and i’m trying to change my eating habits and take it more seriously before something bad happens , i’m in so much pain right now ☹️
I have being sick the last 3 years, bloated like crazy and not stop belching. Went all the doctors in my country and even went India for it. Finally I found celiac disease on the internet and did the blood test . It just came out positive and I’ve never being happy about a disease. It’s really good to have answers
Something he left out, some people get weight gain and not weight loss. And some develop IBS from the damage to bowls making it harder to diagnose. That was case with me, I was reverse diagnosed. First I got told i had IBS, which lead to divertictulist, which lead to more issues, then after a CT scan showed fat and swelling in my ileum was I diagnose with celiac but my blood test are always negative. Its not straight shot diagnoses, requires doctor to work with patient and get to bottom of the puzzle instead of taking the first answer that comes up.
Most doctors don't want to do that. I've also always been fobbed off with "it's just IBS", "you are just imagining it", "you are just getting old" (apparently I've been "getting old" since earliest childhood!), fobbed off with tablets, more tablets and then some. No doctor has ever done any proper tests, all they did was a blood test (which often show a false negative) while I was on a glutenfree diet - which means it would definitely show a false negative. Well, the test result was borderline, so doctors straightaway dismissed me as "crazy". Yup, I must have been imagining the severe pain and bowel issues, the osteoporosis, the severe deficiencies, the total lack of a period, the fatigue, the unexplained weight gain, the loss of my hair and my teeth... I must have set a new world record merely "imagining" all this and yet for my body to show all these symptoms...
I was 155 and swollen and inflamed UNTIL I followed Dr. Steven Gundry and his diet plan. He has a Yes and no list of what is safe to eat and what to avoid. I am now 118 lbs. and my setbacks are less. LECTINS are bad for your gut. Gluten is only one type of lectin.
I've been diagnosed since early 2021 and even though I knew the basics of eating gluten = hurting my small intestine I didn't know why it actually occurred or what it was an autoimmune issue. This video really helped me understand that! Thank you! Side note: another issue that can be triggered by CD is Chronic Fatigue or fibromyalgia. I've been diagnosed with CFS and two people I know have Fibro thanks to CD 🙃
I was diagnosed 15 years ago and have been eating gf ever since. I’m happy I found this video to explain in grown-up terms how my disease works when people ask 😂 instead of just saying “oh it’s an allergy”
Very helpful video! But I would just like to add that most celiacs don't feel fully better even after a gf diet. It is not a "simple" treatment. It is almost impossible to avoid cross-contamination forever. I think it is important that doctors do not underestimate the difficulty of this diet and leave their patient in the dark. When I was diagnosed, my doctor diagnosed me and left it at that. Said it was as simple as cutting out gluten. It flipped my entire life upside, a struggle no one will ever fully understand until they have lived it. He did not have much to say, and I will always feel like he has no idea what it is actually like, just going by the book.
Ikr? I got diagnosed recently , before that i was just having abdominal pain and vomiting but now when i've started having a gluten free diet. I got diagnosed with Anemia and Type - 1 diabetes. I'm so sick of it.
I have celiac disease and had to learn that gluten is a LECTIN. Many things contain lectins which cause problems. Look into a lectin free diet if you can. Dr. Gundry has a "Yes" list of what you can eat and a NO list of what to avoid. This helped me a lot!
Yes, I am also same like your case.I have been sick for 4 years, bloated like crazy and not stop belching and loosing weight for 10 kgs in 4 years. Went all the doctors in my country India for it. Finally one Dr found celiac disease b4 2 years by biopsy of small intestine. my Dr simply advice cut down gluten. i was following for the past 2 years GF diet. but still i m suffering bloating and belching.only weight loss was controlled but still no weight gain.
Been gluten free for 11 years here - I don’t get cross contaminated anymore. House is 100% gluten free and I only eat out if I can confirm the food is handled in a completely gluten free area (and at that it doesn’t happen often)
I've been diagnosed nearly two years and I find it almost impossible to avoid cross-contamination. I go for months at a time feeling good and then out of nowhere I get glutened (what I call nuked) even in my controlled home environment. It's highly frustrating and actually infuriating when dilligently attempting to stick to this damned diet.
i have this symptoms since 16 (i’m 23 now) and went back and forth to the hospitals but they never gave me a clear answer. I think I should get tested now
I've been anemic (also had osteoporosis, low iron, loss of hair etc.) for about 2 years since the doctors at my place had no idea what was happening to me. I was about 8 years old when my parents brought me to a place where they could do an endoscopy. Then they were sure that it's coeliac. I've been living gluten free ever since. Sure, it's hard to travel anywhere for longer than a day since most places don't make gluten free food, but you'll get used to it eventually.
@@solitude.5283 yess, I live in a place where people and most restaurants are not informed enough about this gluten free diet :( . It’s so frustrating.. Anyway may I ask how old were you when you found out you have osteoporosis?
I'm 31 and have been struggling with gluten related symptoms which have worsened over time, my doctor after a few tests found that I have coeliac disease. I love pasta, and sandwiches, I'm finding it really hard to adjust and its been playing havoc with my social life for many years because of toilet habits.
I have found GF (gluten free) pasta, bread crumbs for chicken, GF hot dog & hamburger buns at local supermarket... if not, at Whole Foods. They deliver to ur front door. They also have deelish gluten free Oreos. PIZZA: I make deelish mini pizzas.... with GF pizza sauce, GF mozzarella, on GF English muffins (toast them). But again Whole Foods at Amazon is the best.
I’m starting the process of getting tested. I thought it was a food intolerance to dairy I cut that out but still had problems I then started writing down what I ate and how I felt after etc and found a common problem Gluten. When I looked at symptoms I noticed I had a lot of them some things I wouldn’t have thought would be due to gluten. Thanks for this informative video
I’m Narcoleptic and have celiac and hypothyroidism. Diagnosis Narcoleptic age 23, hypothyroidism age 29, Celiac disease age 41. We believe my father had celiac disease. He died from non hodgeskins lymphoma
I got tested but I had gone gf before and didn’t eat gluten for 30 days before my test so it came back negative. I’m convinced I have celiac disease or gluten intolerance
Same thing happened to me. They ran the gene panel to see if I could have it and that came back positive so now we redo testing and do a gluten challenge.
For 11 years I've wondered if there was 1 section of my small intestine bc the pain and cramping is always in the exact same spot. Now i know; the Jejunum.
been a coeliac for nearly 8 yrs now. not sure about you but im really sensitive to gluten , and i eat mc donalds chips, where i live they are fried on there own , ask ur local mc donalds if there fried seprate, u can also eat the burger meat, not the bun but u can alwaya bring ur own bun
some countries (spain and czech republic for example) have gluten free burgers in their menu! they’re safe and really good, try them if you ever travel there!!
Don't despair. Not the best news... ...but local supermarkets have GF (gluten free) pasta noodles, GF pasta sauce, GF breadcrumbs for chicken cutlets (meats, rice, potatos are gluten free). And I make mini pizzas with GF english muffins, GF mozzarella cheese, GF pizza sauce. If you cant find it at your supermarket, Amazon's Whole Foods has these things. Even deelish GF double stuffed Oreos. Good luck in your health journey!
I’m seeing more and more that this is not a spectrum but a yes/no diagnosis. Cancers & death are real prognosis for the real thing. This is not a trendy indigestion issue.
My mother got Celiac in her 40s, almost 3 years ago now when I was 25 I started getting very very bad stomach / lower stomach pains, went to the hospital twice the pain was that bad and they basically said both times that I was just constipated or something along the lines. After dealing with the pain I remembered that my mother ended up with celiac, and said frig it no more gluten. My pains went away over time. Don't know if im celiac or some other form of gluten intolerance, all I know is that if i consume gluten i get very sick and have the most anxiety panic inducing pains. Been almost 3 years now gluten free with some hiccups of accidently having it. it sucks, i miss my favourite foods but atleast ive found some gluten free things i enjoy a lot.
Listening to all those big words reminds me of the story of when a Doctor had the unfortunate task of informing a lady that he husband had died on the operation table. Calling her aside while the rest of the family was sitting in the waiting area he informed her that her husband had died of a massive myocardial infarction or heart attack. The Doctor said he couldn't contain his laugher during such a somber time when he overheard the wife explaining to the rest of the anxious awaiting family members who were enquiring the status of their father when the wife attempted to explain in her best medical terms that their father had died of a massive internal fart.
dw, it’s still better than a lot of other conditions, and the hardest part is getting yourself and others to get used to it! there’s many gluten free things in stores and big cities usually have a couple of gluten free restaurants :DD i worried a lot about partying and going out, but you can always just bring your own food and after some time you and your friends will get used to it, and for example, now whenever i’m invited to my friend’s place they always buy some gluten free things for me! all you gotta do is explain what has and doesn’t have gluten and how to avoid cross contamination
I have LADA (Adult diagnosed T1 Diabetes) and the HLA-DQ2 gene but fortunately haven’t symptoms of Coeliac disease. I assume I inherited this predisposition from my mum that has Multiple Sclerosis.
Did you get diagnosed? Did you ask them to try diagnosing you with blood test or test with endoscopy?! Even blood tests could be negative while you could have gluten issues. They say endoscopy will see damage if your Henry celiac. I ordered a blood test from my doctor showing that I am allergic to wheat rye and barley, even though I am not diagnosed as celiac. I know for sure I can't do gluten.
Might need a slight update. The autoantibodies can give rise to the cutaneous symptoms (DH w/ anti-tTg), but don't drive the intestinal inflammation. That's a CD4+ mediated response.
I think I’ve had coeliac disease since childhood but I was diagnosed by my Dr with Irritation Bowel Syndrome. Yet I take medication for IBS 3 times a day, everyday but it doesn’t stop the problems caused! Now I’m nearly 40 and am COMPLETELY fed up, sick of this condition which has ruined my entire life every single day for far too long! So I’ll have to speak to my Dr about this to be diagnosed correctly. But I know Dr’s don’t like patients doing their jobs for them so any advice would be much appreciated people. 🙏🏾
@AZ10644 Ask the Dr for a test, its not hard and they wont mind. With the volume of people they see these days there really is no 1 on 1 patient/family doctor that knows everything about everyone. The Drs themselves struggle immensely with detecting CD because they have a lack of understanding. Good luck with ya tests and hope it gives you some clarity, it did me and i was diagnosed at 47
I’m sorry to hear that. My doctor told me to stop eating anything with gluten in it to see if I start to feel better. I’m coming back for a check-up in 6 weeks and re-testing antibodies in 3 months. He said since I have all the inflammation in my stomach, to try the F.O.D.M.A.P. diet. No beans, or broccoli or things that are too difficult for you to digest until you start getting better. I still need to learn more about it. Hope that helps!
I was diagnosed when I was 18 years old. I suffered from horrible headaches, some vomiting, bathroom trip, stomach aches that made me buckle over in pain and extremely low iron and vitamin D. I've been on a gluten free diet ever sense. I felt great for many many years. I was diagnosed by blood- not upper endoscopy. When I went to GI Doctor in Boston (started having headaches and joint/body aches) he was unsure if I had Celiac or a different auto immune disorder. I ate gluten for 3 months. I never would gain weight always was extremely petite. When I had to retest for celiac with the upper endoscopy I had to eat gluten. I was EXTREMELY scared and slowly reintroduced it into my diet. What is odd is that I felt BETTER than ever, for the first time I had energy, I was gaining weight overall mood was up. When I had the endoscopy I told the Doctor he would not find Celiac. He did, he explained my intensities looking like a dry mosaic desert. I have since gone back on my gluten free diet. I lost all the weight I gained and I am back to having body aches here and there and fatigue. I tested negative for everything else. My nutritionist recently told me there is a small % of celiac who do not show symptoms... IDK how I can go from showing symptoms to showing none. Has anyone else struggled with this?! Or anyone not get sick or feel ill if they eat gluten?!
@@pinkellowable I will ask my PCP, that's a great idea. I know the last time I had blood drawn a few months back all my bloodwork was normal and healthy but I am unsure if we tested for vitamin B. Thanks!
Beautiful ❤️ Althought, Pathoma-2021 says damage is most prominent in the duodenum... And the jejenum and ileum are less involved. Kindly recheck 😅 Thanks again ❤️
Right They don't say they are more common .. It is almost always in duodenum because it's its first way to pass Jejunum and ilium involved as a complication ❤️
Untreated Celiac can also cause Chronic Pancreatitis, which if untreated causes Exocrine Pancreatic Insufficiency (EPI), &/or GERD, which untreated causes Barrett's Esophagus.
I was diagnosed when I was 3 years old and I was in gf diet for 5 years . But according to my doctor i don't have it anymore and I stopped my diet long time ago and I'm doing just fine So the life lasting diet part confused me
@@bingusbongus3916 As I have put my doctor through investigation he told me that he was sure I had celiac as we even did endoscopy(English not my first language so the test were the put the tub). The way he explain it is genetic thing but not everyone with it develop celiac and the ppl who do usually consume a lot of gluten as children(not sue that's what I understood). And since I was diagnosed really early on i was in strict diet and didn't consume gluten at all growing up my mom made me everything I ate herself starting with gf flour as the one u get from stores is not 100% gluten free . I'm in panic mode trying to learn about celiac because I think I have it again so if I'm right then it just gave me a pause i guess .nothing make sense anymore
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@@LVH100 constant belly aches. Had been tested year before and nothing, the next year they did another colonoscopy and went down my throat and they saw it and blood work came back positive for it. But its the constant belly aches
I was diagnosed about 5 months ago & have followed strict gluten free diet since but I'm still having lots of problems & very frustrated every morning when I awake I'm either sick to stomach or having bathroom problems I still notice lots of mucus when I wipe but no blood I had colonoscopy & endoscopy done which showed celiac along with gastritis & 2 ulcers....anybody have any ideas why I still have so much mucus in my stool ?? Please help much appreciated
Maybe over the years your small intestine got so damaged that your body needs time to recover, I think you should continue with the strict diet until you see results.
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