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What Are The Misconceptions of Palliative Care? | Dr. Jared Rubenstein | Knock Knock Hi! 

The Glaucomfleckens
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Pediatric Palliative Care Physician Dr. Jared Rubenstein joins the Glaucomfleckens to brainstorm how Will can create a Palliative Care character, before Jared talks about how he got into this field, the importance of talking through your emotions with not only the patient but the parent or partner of the patient, and what the differences are when engaging with young kids, preteens, and teens.
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Want to Learn About Dr. Jared Rubenstein?
Twitter / Instagram / Threads: @DrJRubenstein
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A friendly reminder from the G’s and Tarsus: If you want to learn more about Demodex Blepharitis, making an appointment with your eye doctor for an eyelid exam can help you know for sure. Visit EyelidCheck.com for more information.
Today's episode is brought to you by the Nuance Dragon Ambient Experience (DAX). It's like having a virtual Jonathan in your pocket. If you would like to learn more about DAX, check out nuance.com/discoverDAX and ask your provider for the DAX experience.
Produced by Human Content

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12 июл 2024

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Комментарии : 36   
@StevePetrica
@StevePetrica 6 месяцев назад
As a priest, and before that a psychotherapist, I've had so many of those discussions where giving the other person "permission" to talk about deep and scary subjects like suffering and death was itself liberating and therapeutic. They had the sugar-coating -- and probably grew up participating in sugar-coating -- and they are really grateful for the opportunity to speak candidly. The teenage boy who wanted to put the hot sauce aside but continue talking about serious questions brought a tear to my eye. It really is a privilege to be with people in those moments.
@jimyeats
@jimyeats 6 месяцев назад
I’ve seen a lot of EM and acute care colleague’s move to palliative care and really start enjoying medicine again on the opposite side of the spectrum.
@JacquesGarofalo
@JacquesGarofalo 6 месяцев назад
These providers that deal with death on a daily basis, have such an empathy, are so calm and modest, that I’m in awe. Gave the same vibe of the anaesthesiologist.
@nicolestanforth5660
@nicolestanforth5660 6 месяцев назад
When we were told that our Mom was going to be put on palliative care and they were just going to focus on pain management, I told the Dr "That's great! She's been in pain way too long!" The poor Dr. probably thought I wanted my Mom to die. It totally went over my head that it meant there was nothing else they could do to help her get better and we were just on a waiting game until she died. They didn't mention hospice because they had no idea how long she would last, but had we had realized it, we would have brought her home to die. Thankfully when it was time for my Aunt to pass it was explained much better!
@anitacartagena
@anitacartagena 6 месяцев назад
Quick comment on the interpretation issue. I am a night shift floor nurse. We have one of those video systems, but some of the rarer languages have very few interpreters, some audio only, and some languages are not available at all. I have learned about the existence of at least 3 languages in the past couple of years that I had never heard of. (2 Micronesian languages and one African.) It is truly a challenge! I am very appreciative of everyone who strives to help with communication!
@jennh2096
@jennh2096 5 месяцев назад
Im a hospice nurse and hes right, everyone always assumes we must be depressed all the time because we deal so much with death. Hospice care is about living the best life you can, for whatever time you have left, and palliative care is much the same without the requirement of being terminal. Everyone is going to check out one day, but there is such a thing as a good death, just as there are bad deaths. When its your time, which would you prefer? Thanks for bringing awareness to these highly misunderstood areas of medicine. All hospice care is palliative care, but not all palliative care is hospice. But they are both focused on quality of life
@lendalcat
@lendalcat 6 месяцев назад
It's so interesting to hear about palliative care. I'm a retired RN who did a lot of work in hospitals and supported many people and their families as their loved ones were near the end of life. I never really understood palliative care so I'm excited to learn more.
@mindhackz
@mindhackz 5 месяцев назад
Amazingly well spoken doctor. Honestly a great insight into palliative care. I learned a lot. Thanks guys.
@HalfBananaWoman
@HalfBananaWoman 3 месяца назад
I absolutely loved this episode. Thank you for talking about these things with these wonderful guests and sharing your experiences and expertise
@lauragarber9544
@lauragarber9544 6 месяцев назад
One of your best yet. I learned so much. I like the idea of adult life specialists
@adventure_hannah3841
@adventure_hannah3841 5 месяцев назад
This was such an amazing episode. Thank you.
@Amandaaa2244
@Amandaaa2244 6 месяцев назад
I was an interpreter and MA for a free clinic and one time we had somebody come in with a cough, but the front desk people did not think to get an interpreter for the patient’s triage so they told us the patient had chest pain. We immediately brought the patient back and put an EKG on him and I started asking him questions about his chest pain… only to find out that he was perfectly fine and just had a cough 😅 this is why if you THINK you speak another language, you really should still get the interpreter 😘
@x321swimgirl123x
@x321swimgirl123x 6 месяцев назад
So crazy that you just put out this video, I had an intro lecture on palliative care today
@DrEsky914
@DrEsky914 6 месяцев назад
Way to go Lady G! I teach communication to our IM residents rotating through Palliative Medicine for the past 10 years! Many of them do benefit and are able to practice primary palliative care afterwards (which all MDs should be able to do but a lot resist for whatever reason). Our "surgery" or procedure is the Difficult Discussion which follows a structure which is extremely effective! We have helped thousands of patients and families on the PC service where I work over the past 10 years.
@DrEsky914
@DrEsky914 6 месяцев назад
Unfortunately there is no federal legal standard regarding Palliative Care evaluation. In NYS since 2010 we have had the PC Access Act and the PC Information Act. They state that PC Information should be available to any patient with a chronic illness and PC Access Act states that anyone with a short prognosis (usually meaning hospice eligible which is a federal standard) is entitled to Palliative Care evaluation. This is problematic because the law preceded the capacity of Pall Care to meet those needs! We were able to grandfather into Pall Care by using experience and exposure to a palliative Care team until 2012 but then that access went away. We have started a Pall Care fellowship now at my hospital and have matched both slots for the past 3 years and just matched two more for next year so we are doing our part to build capacity!
@kjmav10135
@kjmav10135 Месяц назад
Peds Palliative Care is SUPER HARD because kids’ bodies change so fast and add serious illness on top of that and yikes! ! Hats off to this physician.
@funfoodwithlisaandpampered987
@funfoodwithlisaandpampered987 6 месяцев назад
Love to hear our Palliative team here at Children’s in Winnipeg! They are an amazing group of people. And Child Life Specialists are the most underrated but most important parts of our medical team (and we have great ones here in Winnipeg too!). Great convo today!
@scrumptious9673
@scrumptious9673 6 месяцев назад
Great episode. Love your guest and the conversation.
@gracemiller3861
@gracemiller3861 4 месяца назад
I always wondered why colored band-aids, warm gel for ultrasounds, or brightly decorated rooms for cancer patients, stopped once you become an adult. Kids need those things, but I could also use a sparkly band-aid.
@gruel_summer
@gruel_summer 6 месяцев назад
Oooh this episode is perfect for me! I'm studying medical humanities so I can work in peds pal as a bioethicist.
@geocachingwomble
@geocachingwomble 6 месяцев назад
Can we have more obgyn for the skits
@robertoortegaflores9844
@robertoortegaflores9844 6 месяцев назад
You should do an episode with an anatomic pathologist 😊
@juliabinford6500
@juliabinford6500 6 месяцев назад
Very interesting episode. I learned a lot. I had a mixed experience with hospice. I think it had to do with everyone taking off at Christmas , which was the time when we needed help the most. I still admire those individuals who go into this type of work.
@heidi1651
@heidi1651 6 месяцев назад
Great talk! I ❤ palliative care! Would love a talk on facial phenotypes detecting genetic syndromes w DeepGestalt! 😊
@KxNOxUTA
@KxNOxUTA 6 месяцев назад
It was a lovely show and also look at how at the end you were all just comfy! :D Also heavens yes, medicine needs a ton more kindness. like, forget about us patients for a second. Are ppl in medicine not aware that room design is crucial even just to help medical staff be better? I mean it starts from known stuff like blue and green scrubs in OP cause surgeons see the "all red" surgical field and need to see other colours for their vision not to start to mess up and make it hard to discern between the many reds of tissues and co. But also: light quality affect how tired or awake you are in a room Colouring of the room affects mood and if sth. is relaxing or helping you with activity Materials affect not just practical things like what you know from radiology, but it also affect if the room sound lie a hall making you feel lost, or sound deaf, like you're in a tiny claustrophobic box. It's impacting communication, especially for ppl with sensory issues. Having things like plants around or animals (like a fish tank or even just nesting birds outside) can encourage and ease the minds of medical staffs and patients. We have an old but really pretty hospital with 3 roof terraces all with gardens and art designs and actually sensory arts with instructions, like in sensory museums. I felt all in all pretty calm before surgery. Know what happened then? I was OK in the room in front of the OR. It was light and they gave me shoes and helped me onto the stretcher(?). Then they start rolling and suddenly I look at a concrete ceiling, with visible pipes of a mix that looked like basement and parking house. And I went from feeling like myself, to feeling like a blasted slab of meat within seconds. It was noisy and busy. They rolled me into a metal cabin aka one of the ORs in that basement. And although it was nice and bright, the open door to that concrete basement area with high ceiling and reverb and staff passing by, really got to me. I was not OK, especially with several anaesthesiologists and otherwise stuff coming in and out. It was not until they half shut that blasted door n it was one person who stayed and started procedures, that I could calm down. I also learned most of the actual process around surgery AFTER my surgery. I sure as heck would have needed that specialist who (before 3rd surgery) could've told me the "peeing your pants feeling with contrast" before the scan. They told me it'd get hot, but not THAT! :'D A lot goes unsaid cause it's so normal for the professionals. (x_X)
@paddleduck5328
@paddleduck5328 5 месяцев назад
53:18 yeah
@howtotrainyourdoctor
@howtotrainyourdoctor 6 месяцев назад
Great episode! Thank you for bringing Dr Rubenstein on the show to set the record straight about palliative care! Check out the fire department skit referenced in this episode here: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-BbNi_-wYXJE.htmlsi=CcGbINzpRtYqwUZ4
@KuroiXHF
@KuroiXHF 6 месяцев назад
The issue with palliative care is that most specialties can be gauged by how well they can accurately diagnose or treat an illness. That doesn't apply here.
@paddleduck5328
@paddleduck5328 5 месяцев назад
7:33 palliative care
@kjmav10135
@kjmav10135 Месяц назад
The PR problem is with other medical providers. You all need to do a couple’s therapy sketch with oncology and palliative care.
@jimfeaster4837
@jimfeaster4837 6 месяцев назад
United health care no good Screws seniors😢
@jimfeaster4837
@jimfeaster4837 6 месяцев назад
Let's talk about Ripoff at united health care don't Bend over....
@jimfeaster4837
@jimfeaster4837 6 месяцев назад
Never sign up for united health care...regrets no one likes getting Screwed.
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