What Do Absence Seizures Look Like?

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1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How old are you?
‣ 17
3. What is FND?
‣ fndhope.org/fnd-guide/
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‣ www.cdc.gov/ncbddd/tourette/f...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, RU-vid and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!

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29 июн 2023

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Комментарии : 277

@sofiavelilla5283 Год назад

You’re so brave, showing us what you go through everyday. You are the strongest person I know.❤❤

@riceboy3446 Год назад

Seriously I can't watch this it makes me terrified 😂

@HussyBerg 11 месяцев назад

The meat riding is insane

@milkz101 10 месяцев назад

@@HussyBerghonestly, but with all the people faking conditions for clout this is the least of our concern. at least this one is a real one

@spacecraft926 8 месяцев назад

Strongest person you know? Lolol

@GalaticHunter 6 месяцев назад

you exaggerated but ok

@boopboop3416 Год назад

I suffer with absence seizures since around 6 years of age I’m now 23 and haven’t met another person with them it’s nice that your showing people because if I mention it I feel like someone’s going to think I’m either faking or not listening or spacing out and I get scared like people think I’m using it as a excuse 😂 nice to see it being put out there not all epileptics are up the floor having convolutions (although I do have grand malls too)

@Eyedontjudge Год назад

My 9 year old daughter has many types of epilepsy, but the absences are the ones we see the most. Can u explain how you feel when it happens so we can understand her better? (She has ASD &finds it difficult to explain) x

@zacharyhightower9062 Год назад

⁠@@EyedontjudgeI have generalized idiopathic absence epilepsy with seizures and have had them for about a decade. They’re really wide-ranging in how they feel, and everyone feels things differently (so take this with a grain of salt) but here are MY most common types (these aren’t medical terms, just things I tell family and friends to help explain): Full Seizure-you’re fully unconscious, it doesn’t rly feel like anything. (Think a record skipping) Full Myoclonic seizure (seizure with small jerks)- same deal but with soreness from the repeated movement Half seizure or discharge-you can’t control your body but you’re still semiconscious. Sounds and feelings filter in, but they’re hard to put together. Cluster- a bunch of seizures put together. Can be really debilitating. Dizziness, fatigue, and sometimes even losing the ability to read are common for me. I like to describe my brain like a sequined pillow. W/o meds t the world feels disjointed and hard to focus on (the sequins standing on end) but when I eventually take them my thoughts smooth out again.

@sherreesecoleman5241 Год назад

I suffer from them too but I actually pass out for little bit when I have mine

@Eyedontjudge Год назад

@zacharyhightower9062 this is a fantastic description and the most detailed I have ever had explained to me. Thankyou SO much for sharing something so personal - I really appreciate it and will also share this with her teachers

@Eyedontjudge Год назад

@@sherreesecoleman5241 do you pass out from absences?

@bingolinging 11 месяцев назад

I remember that one girl in the background noise on your channel saying you were faking it for attention or smth like that. It's very brave of you to go out in media and raise awareness of what sezuires can actually look like.

@littlefox2222 6 месяцев назад

I never knew there were kinds of seizures. I just thought it was the one kind that is shown on tv shows. You learn something new everyday!!

@tinarundle1365 11 месяцев назад

I got kicked in the head by my horse. Since then i have seizures. Some are absent seizures. Others are full body seizures to where i just freeze. Basically tonic colonic or grand mal. Thank you for showing what you go through so that the rest of us dont feel like we are the only ones going through this

@rayjenkins9669 Месяц назад

Same here but probably years of wrestling and me doing *“stupid boy”* stuff😂

@denielf.7169 Год назад

when i was in 3-5th grade i had absence seizures and i kept gettin in trouble at school and at home until a school nurse noticed i would zone out. my mom said she cried when the neurologist confirmed my seizures after an eeg and she watched them as they put me in a seizure manually by blowing on a fan. i hope these dont happen very often and that your meds help as mine helped me.

@MsJocelynC Год назад

Kind of scary that these can be so subtle…Thank you for sharing so that I can be aware for others ❤️

@alexbrucker2555 8 месяцев назад

Thanks for your braveness to share your struggle in this lovely way. You are teaching and encouraging me in my Bubble.

@tamsims1968 11 месяцев назад

What I find interesting about absence seizures is the broad spectrum of how they look. Mine look very different to this and I know others who all have different types of absence seizures for different lengths of time with different post ictal. I think visibility is key

@_taexjia_ Год назад

Literally, you're such a blessing :) trust me.... going through this much and still trying your best to work and be happy :(( ... keep going girl !...and never feel alone cuz we all are with youu!!! Sending lotsssssss of love

@MaknaeChuOffical Год назад

Your so pretty 🩷 Hope your okay after these

@StupiidLuciid Год назад

I never knew there were different types of seizures until I found your channel, thank you for educating and raising awareness! ❤

@jasons4645 Год назад

It just looks like your thinking critically on what you just heard/read. Im sorry you have to go through with this. Your doing an amazing job dealing with everything!!

@Fugazi2988 7 месяцев назад

Sounds like a 70s Hub flick, so i have been told 😅

@standardnerd9840 Год назад

People that have this: When it happens do you “dream” for that brief period? Does it feel like you’re very tired while it’s happening and then you’re ok right after?

@kylee426 Год назад

hope your okay

@MayKnight-bc2om Год назад

Girl ur so brave if that happened to me I would have all kind of questions and I would be crying anyway hope u have a good day stay strong love ya girly

@BigBlue-xt9ss Месяц назад

It must be rough living with your condition and I have so much empathy and compassion in your life and everyday I am so proud to see how far you’ve come over the years! I AM PROUD OF YOU ZARA! ❤❤❤ (happy pride 🌈🏳️‍🌈)

@RTN2084 Год назад

You are amazing and strong woman.

@estebencampos146 Месяц назад

Having epilepsy honestly irritates tf outta me cuz I can’t even go to a concert without having to step away from the stupid lights. I will be getting prescribed glasses for it soon🤷🏽‍♂️

@lauraeltringham5940 9 месяцев назад

Have you ever injured yourself badly from a tic. You're so strong! I love that your content shows awareness.

@nouralabase6302 8 месяцев назад

Thank you!! It takes courage to show the world what it’s like being in your shoes! ❤

@Porter5habazz 7 месяцев назад

Aww 😢😢🙏🏿🙏🏿I’m So sorry you have to go through this. So proud of you for continuing to push through. I know it’s not easy sometimes.

@XxxxNyxiaxxX Год назад

Your so pretty😮

@joys2363 Год назад

Did you never hurt yourself with falling down on your face with your glasses? I think you are really brave to show the world how it is to live with all the things you have to deal with and bring awareness ❤️ 💕

@karu4115 Год назад

if you don't mind, could you explain what happens from your perspective when you have a seizure? are you conscious?

@lajoyous1568 Год назад

I was curious as well.

@zrytix 8 месяцев назад

for absence seizures you are unconscious, and most of the time you won't really realise that its happened. im not sure about others since i only struggle with absence ones, but i would think some are the same or youll have gaps in your memory

@Lace_Face_ Год назад

Youre so strong its ok don't get embarrassed I'm anyone bully's you we've got you GIRL POWER!!!!!!

@delilahtrevino3519 8 месяцев назад

You are so strong and brave I respect you and your illness. You are so brave to show us what you are going through❤💕

@kgsterling 2 месяца назад

she is so pretty omgoshhhh

@SuziAAAAAAAAAA 8 месяцев назад

OMGGGG it's looks really horrible, LIKE seeing this from outside makes me feel so sad! You are so strong!❤

@Jose-lk8or 11 месяцев назад

I had them growing up. Found a bread doctor and we started with keppra. Thru a 10 yr we were reducing the dozes. Now have been seizure free for a year. 😊 So happy. There's hope ppl never give up God bless everyone

@Skriel 10 месяцев назад

You are just amazing. You'd be surprised at how many hate comments there are on this

@keithhuber6739 7 месяцев назад

Hey it's gonna be okay, I know how it feels, you are so brave .❤

@Joelamgengineering 9 месяцев назад

Thank you for sharing this!!

@tourettesteen222 6 месяцев назад

I love your Chanel so much it’s probably my favorite channel I never feel alone because of you!❤

@1TZ_D3V1LZ Год назад

You’re so incredibly brave for showing what you go through ❤ I do have a question though, do you ever get hurt with drop seizures?

@bluethebunnylord9274 6 месяцев назад

Thank you for showing this! I now have a good visual of what my character’s seizures might look like

@Kennyateyourdogs Год назад

Wow honestly your so brave i love your videos they inspire me to keep going, also your so pretty!

@rrwoods05 11 месяцев назад

This must really take its toll on you. I see it. But i also see determination and strength. ❤️

@Crazymum34 Год назад

You are so brave and strong you really are ❤ going through what you do daily and your still going and giving everything your best. Your an amazing, strong, inspiring person you really are i mean everything I've said from the bottom of my heart ❤️ it couldn't of been easy to go through what you do and you are still standing tall and strong truly amazing ❤ From the UK

@ebunoluwaodubekuuhdexbo6650 6 месяцев назад

you are soooooo brave

@whimseyOFC 2 месяца назад

It must be so much extra work to keep up with all these classes. I have no clue how often this happens to you during a class, but it seems like you have to possibly study a lot harder than the rest because you miss out on what the teacher is teaching

@random-demon 8 месяцев назад

I used to have seizures, and to this day people still bully me about it (even though I haven’t had one in years because of my amazing meds). Thank you so much for normalising it and spreading awareness ❤ Love ya

@MrGoldMan 8 месяцев назад

❤ I wish the best for you.

@someonecool88 Год назад

zara seems like the best person to be friends with even if she has tics/tourettes,absence seizures i still want to be her friend

@DINO37874 Год назад

ok so a small comment, uh so saying like “even if” can be kind of hurtful, but i see what you’re saying and yes, i would love to be her friend too.

@someonecool88 Год назад

@@DINO37874 oh,i didnt really know it was rude,but ty for letting me know

@DINO37874 Год назад

@@someonecool88 of course! 🫶

@nataliefreed4224 Год назад

Is the chin jerk, and looking up a tic, or a seizure? Just found your page so I don't want to ask anything wrong. I just have had that kinda thing for a bit, and I don't know why, even when I am asleep my boyfriend notices my sudden movements. Anyway, thank you for sharing your story and hope you are doing well, I appreciate the awareness. Also you're gorgeous! 😊

@Joy-qz7hi Год назад

I have a question if that’s ok; do you ever pretend to faint in class when you are really tired and just want to sleep?! Lol I love your videos

@PoppySeverns Год назад

Usually when u faint it onlg lasts minutes so if u pretend and fall asleep you would notice

@doseitlooklikeik Год назад

my friend has these all the time

@kaleidoscopingme 3 месяца назад

Omg thats literally me. Thanks now i know whats pausibly going on.😌

@Tinycelebi 7 месяцев назад

Its not only not fully coming out of the seizure they also come in clusters

@LEEC55555 3 месяца назад

There are other ways too… maybe scary but we get though them in the end

@kaitkat3034 Год назад

Maybe you can use a plane neck pillow for your neck tics?

@hollydennison159 Год назад

How hard is it to catch up on your studies when this happens? I mean, it's obviously during your lessons, and it looks like you might miss quite a bit, but does it actually interfere with how you learn?? It looks like you're doing really well!!!❤

@Zara_Beth Год назад

the first year, it was near impossible... i almost dropped out! 🙈 but i've managed myself and my conditions so much better this year so i've finished and done okay!

@IloveSituandbob 9 месяцев назад

Thank you 😊

@arielalvarado22 8 месяцев назад

You are so beautiful 😍❤ I am a new follower , I really admire you

@rafaelguzman9998 7 месяцев назад

I feel you, I get same thing..

@ADHDTeenager 26 дней назад

I knew someone who brought a bracelet with something on it and chewed it in class and had seizures she had about 4 a day before they figured out what was causing it

@sage5530 Год назад

i cant tell if im having small seizures or dissociative episodes :(

@Rene-is-confused Год назад

neither can i

@sage5530 Год назад

@@Rene-is-confused i think its best for both of us to seek the help of a neurologist just to rule that out, because my tic attacks often appear similar to seizures and my tics were caused my medication, not tourrettes, i think it could be a possibility but im hoping not.

@Rene-is-confused Год назад

@@sage5530 yeah definitely trying to get an appointment with mine to figure this out. i just had Tourette's beore my heath spiral so i know its not medications it just got worse with more stress and i have no idea about the seizure vs tic vs dissosation vs a handful of my other problems that can look similar lol. definitely should reach out to your doctor.

@Oceansteve 11 месяцев назад

I hope you get course work support.

@user-jv2pf6zp7v 11 месяцев назад

❤

@Nozal 10 месяцев назад

Used to do that a lot when I was like 11, everytime I wanted to open a door I would just stand there and not move for like 20 seconds or more until someone shakes me or something and it’s really awkward. when these happens all i could remember is seeing a white void. and don’t get me started on school.

@EliseCarolineexx 2 месяца назад

i just turned 30 on the fifth of may and had my first horrible seizure that sent me to ICU for 4 days last week....I was suffering small dream like episodes before but I had no idea they were seizures....

@sallycreber7108 5 месяцев назад

Gosh the atonic sezirue looks scary😮

@Duckie2683 9 месяцев назад

Have you ever had like a proper seizure like shaking?

@emmynother1164 8 месяцев назад

Saying things like "proper seizure" can make it look like her absence seizures aren't significant. All seizures, whether focal or generalized are important and "proper".

@Adventures_With_Rain Год назад

This might be weird to say, but you are absolutely gorgeous.

@moxxgh2293 Год назад

You are so pretty. You are like my dream girl.

@Flower-qk1ev 8 месяцев назад

I hate my epilepsy seizures. It feels like just dying and coming back to life with no memory of the seizure.

@Sameq6798 Год назад

Aww I feel so bad for you❤ I’ve had a seizure before and it sucks I was feeling nauseous then when it went away I got in the car then I felt dizzy then I layed down and was fine after that I just don’t eat stuff that’s very flavorful anymore in the morning bc I will feel sick so I eat very bland stuff or don’t eat at all

@Seceilia09 10 месяцев назад

Question???? When you have absent seizures do you see anything or can you still see what’s infront of you another question??? Can you still here Whaterver is going on around you??

@Kdannyst Год назад

I am almost 30 and today I found out there are different types of seizures.

@candiedblxxd Год назад

How do you know the difference between a tic and a seizure? I feel like some of my 'tic attacks' have actually been seizures, especially since I usually feel dissociated/spacey when they happen

@Rene-is-confused Год назад

i have the same question

@lonniemason3084 6 месяцев назад

How do you manage at school/college when you're have absent seizures and fainting so often? You must lose track of what's being said. Thank you for sharing your story, i really enjoy watching your videos. 😊

@sethjarvie3510 9 месяцев назад

Super pretty

@LilyDupreez-iu7rb 10 месяцев назад

I have this quite severely and i literally just stare at a random object my eyes drift to for atleast a minute

@charlenes5 11 месяцев назад

I am so sorry for asking but what were your first signs when you were diagnosed with it because l have a daughter whom has tics but we don't know whether or not they get worse over time thank you for sharing from concerned parents in New Zealand

@SydneyRoseCo. Год назад

Is it possible to ever dream when you faint?

@SystemError1466 Год назад

I think she’s said that she personally hasn’t, but it’s definitely possible to dream during a seizure/fainting episode. You can also hallucinate, although from what I’ve heard they aren’t usually super detailed hallucinations.

@luciousquinctiuscincinnatu8131 6 месяцев назад

Question well, maybe more than one. When someone has a condition like this, would you like someone to do something? Should they be doing something? Whats the best way to accommodate someone without hindering their ability to participate or make them feel uncomfortable by standing out uncomfortably.

@insertsmthcoolpls 5 месяцев назад

i don’t remember the technical name for these types of seizures but do you get the shaky seizures where you fall to the floor shaking? i get them a lot like at least twice a day and it’s really hard as a small con tent creator to film stuff while having a seizing episode

@scarlet_happy123l 4 месяца назад

I have small seizure and scared 😅

@aw3s0me_sauce Год назад

I feel like this might be an obvious question; But when you have an absent seizure does it feel like your zoning out?

@rayjenkins9669 Месяц назад

*⚠️WARNING⚠️* This is long ash but… I have seizures as well but I have grand maul seizures, which is the same as a clonic seizure. Basically your body, arms, and legs will contract, extend, shake-a *clonic* period (contraction and relaxation of the muscles), followed by the postictal period. During the postictal period, which results in being sleepy, having problems with vision or speech, and may experience a migraine, fatigue, or body aches. From my knowledge (because I never remember anything a little before or after I have them). I have them and then wake up idk how long later, once was about 2-3 days when I had my first ones since I was around 3 due to high fever. A few times I believe I was only out about an hour or so. The first time I had a seizure since then was I think in March last year. It happened when I was driving home after a little argument with my then girlfriend at the time and was on the road below my house right up a hill to the left. I crashed into someone’s parked car and totaled theirs and mine. I woke up in the hospital in a *DIAPER* around 2-3 days later (I don’t remember😅) and I didn’t have a single scratch or bruise on me thank God🙏🏽☝🏽❤️‍🔥. However they said when I woke up in the ambulance that I was confused and started fighting them, it took about 3 of them to hold me down and strap me in😭💀 I guess I thought I was getting kidnapped or something and was *NOT* having it😂 later found out in the hospital about everything, and also that they had to take my license away for 8 months and said I couldn’t join the military for 8 years😭 some bs if you ask me. And what would trigger your tics if you don’t mind me asking?

@georginafg3626 Год назад

My sibling has FND and Absence seizures, is there anything I can do to help them while it happens? I want to be there for them in the best way possible ❤

@ventaliq Год назад

true i want to know too

@therianweeb 16 дней назад

does it work if I'm just staring, but my head doesn't drop? it happens to me more than I feel it should.

@ronnrequintosa6664 7 месяцев назад

I think I'm in love....

@NefeliBatzakas824 7 месяцев назад

Im sry, ik this is off topic but ur so pretty

@Wild_croissant. Год назад

Can someone please comfort me im worried :(

@amystoner7437 2 месяца назад

I know the feeling seziures are horrible I get Absence seziures and grand mal seziures

@Bordi88 11 месяцев назад

I have focal aware seizures (FAS) also called "aura" seizures and I just started college this week! They aren't to this extent, they are just a little... weird. Thank you for educating people on this unfiltered reality and for being so brave to do so!

@asl2mckays 11 месяцев назад

If you find your focal seizures are interfering with your learning (and you are in the US) you can request reasonable accommodations such as a note taker or record lectures under the Americans with Disabilities Act. That way, you can go back later and fill in any gaps in your own notes during the periods you were having a seizure. Best wishes to you 🥰

@Bordi88 11 месяцев назад

@@asl2mckays I still need to get around to doing this! Thank you for the reminder!!

@emmynother1164 8 месяцев назад

FINALLY! Someone else with focal seizures!

@Gabby_SoGabby Год назад

Has anyone ever snitched on you for being “asleep” in class when really it’s just a seizure? (Meaning like they didn’t know that you had seizures or something along those line) Btw I love watching your channel so I can be more educated on stuff that I didn’t know about.❤❤

@tonyaboggs5367 10 месяцев назад

Just curious when did the seizures start and when did the fainting start what did you get diagnosed. Please do the other q&a or storytime

@peggycarter6460 8 месяцев назад

I wonder when it's over do you remember it happening or do you feel like you lost a bit of time and does the antiepileptic treatment really help?appreciate the video so much btw

@Xorri_Star 11 месяцев назад

I have a question, have you ever had a dangerous seizure in class, as in like one that could hurt you, physically or mentally? (Only answer if you are comfortable I don’t want to push u)

@myemail2005 Год назад

Zara, When I see this my mind starts thinking!!! I don't have anywhere near the same problems, but when back in school I would feel like I was in a tunnel and zone out. I think you do the same, but to a greater magnitude! My idea is something that may pull you out when you think you are drifting. Make a card with 10 numbered dots. When you feel an episode coming on, pull a dot card out and draw a line connecting those dots in order. See if focusing your mind on something else for a short time SNAPS you out of it? Kind of realigning your mind. You could make 10 different cards so you don't know what to expect on the dots. You could also change it up by connect the even numbered dots and then do the odds or just one or the other. The main thing is doing different things so your mind isn't doing something repedative!!! Just throwing out ideas! -Jim

@staroflight2982 Год назад

I suffer same but my whole body begins shake while body jerks

@Ava.766 9 месяцев назад

When you are having a seizure can you still hear everything that’s going around on you?

@DarkAngel-wy4mp1po5c 11 месяцев назад

hey I go through the same thing

@user-dr3cm4pi3p Год назад

Ты прекрасна

@michaelschrammel8800 Год назад

u are strong and beautiful :) just want u to know.

@littlemsherb4887 2 месяца назад

What do you do or do the people around you do when you’re in a dental office having some sort of treatment?

@RockNRolla1212 7 месяцев назад

What happens to you during that seizure? Does your mind go blank, something like that?

@user-wb8vg9eb6d 7 месяцев назад

I could deal with a woman tht has seizures...lol just lay ur arm to keep her forhead from touching anything gross like food...but when in not there id worry.