What to Expect When Going Blind 

What a wonderful video, positive yet realistic about challenges. And what a great smile you have 😊 I see you put this out a couple of years ago, so I hope you’re okay now. From a 73 year old in the UK, just diagnosed with AMD and trying to get through these stages. Well done and all the best to you xx

Be strong you got this!

I can TOTALLY relate to the frustration of “but I could do that yesterday!”. I appreciate knowing that this may be ‘normal’ / something that may come up consistently. 😁 (smiling face emoji)

Spot on! I have RP so I can relate to all of this. I think you make a VERY good point that sometimes accepting the vision loss feels like giving up. Thank you, this perspective really did help me :) Oh and something I started doing was referring to my RP as a eye condition not a disease. It makes a massive difference mentally. Accept that you cannot drive anymore or stuff like that. Yes it sucks asking for help, especially if it's something really "small" and quick. Keep safe out ther

one, the red looks awesome! I love that shade! I wish more people would use it. anyways, thank you so much for sharing! you really help me feel like I was normal. I am the only chronically ill person I know in my life and a lot of people don't understand why I have the emotions that I do and these are primarily the things that I go through plus a bit more obviously but, this is the best list I've seen of what goes on when you're losing your vision or for me it's vision loss and also my muscles and a few other things but, I thought this video was going to be in a different direction but I am super happy I clicked on it because it was definitely a video I needed to hear.

Great video Alisha as always. I'm so with you about the denial stage, I went straight there after my RP diagnosis. The loss of what could/should have been was and is overwhelming some days. I need to work on Gratitude, it's a journey. Loving the content ❣

You have a beautiful smile. Love your positivity

Loving the consistency ❤️

I'm 67 suffered glaucoma in 2021.. I don't feel any symptoms I thought ageing just blur visions.. then one day I got a flu after 2 days I suddenly felt severe pain in my right eye.. due to pandemic which make visiting to doctors not that easy accessible anymore.. I've waited for days before I had my eye check up.. I was diagnosed with glaucoma .. eye drops were prescribed but days go by I noticed that Im beginning to lost my eyesight .. just a matter of months my right eye go completely blind

So cute how you explained it❤

I have sarcoidosis-uveitis also a blinding disease. Thanks for the video!

I just want to hug you 😞 i really need someone positive like you around me lord 🙏

Love your attitude to this Somedays everything feels fine Then other day get so Angry It’s like Ya I’ve now got to keep going People don’t know your struggles With day to day living ….. I’m doing it Long text …SORRY Take Care x

You have an amazing attitude and lovely personality. 💖

love how much I relate to you!!! even though we don't have the same vision

My girlfriend has Stargardts! I have sent this video to her 😊

Thanks for this. 🧡 I was diagnosed with Glaucoma this year at the age of 24. Taking it day by day but it sucks.

You're amazing :)

Thanks for the info. How did you feel at stage 5 & 6 again please? I'm trying to understand feelings of blind people.

I'm feeling more than you said I mean I mean I'm always depressed I'm always feel sick I don't know what causes this but I just feels like there's a problem with my eyes and I'm finding not to go that stage being I just can't believe the life I want if I go blind😢 I don't know how can I achieve my dreams I'm trying to do all of things that can stop me from losing my eyesight😢

Ive been on steroids for 3 years for my eyes just saw an opthalmologist outta pocket now i am going to a huge opthalmologist in seattle soon no one can figure out whats going on..red blurry eyes, they hurt , They ruled out lupus..i went from regular glasses to bi focals in less than a year..

I do feel for you going blind I just could not cope going blind I could not live

Yep, it matches entirely, only the timing is different, cause I decided to choose a slowly creeping variant of Stargardt’s. Finally I reached stage 7, but what percentage of acceptance is hard to estimate, 100% definitely is a myth…

Thank you!

I related so much to this . Expect I suffer from keratoconus

If my eyesight is -5 and getting -1 worse every year am I going blind?

I hope you are fine and happy , I have glaucoma in my both eyes and I am 34 healthy man , I have to alter my whole life to prepare myself for what is unknown .

Confident lady

I’ve been told I have macular degeneration (but not how long until my central vision will be gone). I think I hopped straight to shock and I’m still there 😅. Ok I’m gonna go blind but when? will I actually? what will change? will my life goals have to die? etc

All that. Especially the acceptance. It's like there's no closure with Stargardt. No "new normal" b/c there's always a "new normal". Frustrating.

❤thank you for sharing 🙏 am sorry 😞 your beutyful n i pray 🙏 for you for us for all in the name of Jesus for healing 🙏 ❤️

is it me, or does it sound similar to the stages they developed to help big trauma in life?

How did u cure it