I love that you "geek out" on information too 😂 great video, interesting about the male mice, when actually MS affects woman more than men?! 🤔. Great to hear that more woman are going onto clinical trials - surprisingly mine was all woman and no men! Well done in putting this out there it's so important to be able to have a say and possibly change the way research is carried out 🧡🤟
Hi! I just started following you because of my suspicion of ms. I'm still so confused though. I have all these symptoms getting worse over the years. But my doctor said my mri didn't indicate ms because the shape of the white spots don't match. I've got full body itching like bugs are biting me in random places. Out of nowhere. Drives me mad. I get prickly numbness my fingers randomly. Usually in the morning but won't go away for hours but I just assume from a sleeping position, could be idk. The most recent was a 3 to 4 month episode where I was falling up to 3 times a day and confused most of the time. I wasn't dizzy... it was just like I comletely lost my equilibrium. I couldn't work my way through it. I was also scared whenever I was driving because it felt like too many things were happening at once all around me. Almost got into quite a few accidents. I assumed it was my glasses or something. Now that I'm back to normal I can see how bad off I really was. I thought that it was from getting older and permanent. I blamed my balance on my meds and we started getting ready to go through them one by one. It was worst at night. I even went through months of physical therapy to try and strengthen my core. It was frustrating because I wasn't improving and I got even worse at one time. They were baffled as was I. I blamed myself like I wasn't working hard enough. Most of my life I had this baffling minor balance issue. Like when I would walk through a parking lot and at times id just start tipping over. In store isles too. And if looked behind me it was bad when turning back. Holding cart handles was my coping. I blamed it on everything you can thnk of. Meds, muscle tone, clumsiness that I've always had, the way the aisles past me as I was walking. Everything. I've suffered for years with the heat. I get weak and confused and get tremors and balance issues. I just told people that I get "heat sick" because of how bad off I was. Even heat in the shower will startle me because my heart woukd start skipping so fast it almost hurt. Overwhelming aversion. Whew. I have no idea if there is a relation to migraines. I suffered with constant debilitating migrains for years in gradeschool. Puking, light sensitivity, the whole kitten caboodle. So many random things happening. Recently I went through horrible bouts of tremors. I figured it was my blood sugar but it was constant. My hands stopped now but I have the head nodding still. I noticed the head nodding getting progressivly worse over time. I blamed this on my meds cause lots could have those side effects. I blamed the falling on healing from a broken ankle. Idk why I thought that a foot injury would cause complete loss of equilibrium. At that same time, if I did fall, I couldnt get off the floor. Its like my brain was sending signals to my knees but they weren't responding. So many more things that come and go so fast I always explain it away. I couldn't ignore the falling though. That was when I asked them to screen me for ms. They did a 1 hour mri and found "white matter disease" scattered around but they said the spots do not look like typical ms. But because my symptoms are overwhelming they are sending me to a neurologist... a million years from now. My question for you is does the white spots not looking like ms make unlikely i had ms. That's what they said. I mean what could that mean. That one is the one thing that's driving me mad. I can't find anything online specific nough to address this. I was hoping to find answers. Not needing to be diagnosed but feeling really confused about my mri results and what could that mean? "Scattered non-specific chronic white matter disease".
Thanks so much Sara! I appreciate you watching and the feedback. Please feel free to share my channel and videos with others that you think may benefit from them. 🙂
Hello and thank you for the videos you put out. I have a question and that is do my symptoms sound like MS? I'll try to make it short. 19-21yrs I started with hand tremors( I used to drink too). 21-25yrs was more hand tremors, muscle twitching and jerks and I developed terrible anxiety and panic attacks( still drinking a little heavier). 25-28yrs was hand and head tremors, full body jerks and muscle twitching all over with new areas, mind Fog/slowness, vibrations in body when still, creepy crawling feelings,slight headaches, heavy feeling in chest for months on and off. 28-30yrs( I'm 30 now and haven't drank for over a year) and still muscle twitching, no extreme anxiety or panic attacks, weird vision at time(shuttering,floating objects, quick blackness at if someone turned the lights on and off quickly), headaches everyday and feel like explosion that expand,mind fog,bad memory, still mind slowness or fog,jerks, muscle feel rigid when i move at times. These symptoms come and go and I have days/ weeks when I feel normal and then they come back. The muscle twitching is always there but it is worse in my face. For almost 2 months I had an eye twitch with pain and painful to move eye and then a lip touch for about a month. I have hard at times regulating body temp. I had an MRI 3yrs ago with dye and nothing. oh and painful urination on and off but more on...lol. Oh i wanted to add weakness but in and off but tired all the time
Oh and I forgot to add weakness too. Tired all the time but weakness comes and goes. Sometimes I skip showers or have to sit down. Or when out and about I would have to tell my mom we have to go soon for my legs felt like they were about to give out. They would be wobbly or felt like they were bending backwards.
@@melaniebrown2621 thanks for watching. Congratulations on a year sober! That is so awesome! I can’t give medical advice but some of your symptoms are consistent with MS or some kind of autoimmune disease. I encourage you to seek a second opinion or another consultation with your doctor. Autoimmune diseases can be very challenging to diagnose. Keep advocating for yourself and seeking answers. If you don’t get a diagnosis or answers ask for referrals or seek second opinions. Keep me posted!
@@melaniebrown2621I have this symptoms since I was a little girl and yes not drinking… I was diagnosed in ‘98 but not from a neurologist (he said I am okay) but from neurosurgery dr!!!So I have to avocation your self!!!
@@gabikynigou2523 I took a few years off from worrying about it to just dealing with it and life was hectic but now that I'm in a better place I made an appt. Hopefully answers will be on the way for me. Thanks for responding!
Hello, I am sick. MS. I want you to help me. I have a problem with walking. What should I do to improve walking? I do home exercises at home, but to no avail. Please answer. I want to improve walking. Sorry, I am weak in English.
Thanks for watching. I can’t give medical advice but many have improved their walking with physical therapy. Check out Dr. Gretchen Hawley. She is a physical therapist that specializes in MS and gives tips on exercises specifically to improve walking. www.youtube.com/@DoctorGretchenHawley
