A channel focused on helping fellow paraplegics dealing with the complications of spinal cord injuries, from spasms to mental health. Documenting my life since my accident, the highs and the lows, with honesty
I dont have an injury but have started listening to individuals because it helps open my world - and i thought that the Tibetan medicine one can access would be helpful to individuals with spinal injuries.
I get this using ♿ toilets and lately going shopping I went towards the wheelchair ♿ accessible self check out in store ... other tills open for able standing ppl ... this woman was at the accessible til I said excuse me love but I'm in a wheelchair ♿ this til is for users and other tils are open I can't reach the other till they too high ... she had trolley full ... basket on my lap .. she replied with its a free country if I want to use this till I will , no consideration.... and staff just ignore it too
Wow she sounds like a character! Hopefully she won’t end up in a wheelchair one day. I am ashamed to admit, but many years ago in my younger days, I used the disabled bays and toilets 😔 And look what happened to me! 🤣
Re nerve pain control, I think Richard described using mental power techniques to deal with his pain, for obvious reasons he does not take medication unless he cannot really cannot cope.
I wish I could walk My dreams show me striding out But I wake in pain and sadness This world is not designed for me I wish I could walk What would you do When life leaves you so broken I cannot find a positive way Each day a reminder Of what is lost and cannot renew I wish I could walk Over hills and Glens With a dog or a friend Finding joy in my humanity But instead I dwell alone Society offers pity and shame I dwell alone in a bleak trap Incapable of the simplest step Restricted from the easiest path Lost in the most profound way I wish I could walk What more can I say It is so simple in every way Impossible to find any meaning In living today
I'm sorry you feel that way, but the truth is, walking does not equal happiness, the sooner you internalise that, the quicker you can move on with a full life. I would like to redirect you to a video I made about this, and I truly hope it helps ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-bRh30nf2Zf8.html
So interesting to listen to your conversations, thanks for sharing. I have progressive MS, but the way you describe your spasticity and spasms is sooo relatable. I do not wreste a big baby, though, I am actually dealing with a cranky Arnold Schwarzenegger who has taken over control of my legs - almost not possible to bend one leg, and not possible to straighten the other 🙄 Testing out for the pump in 5 days 🙏
I thought I'd see one video from Freddo's channel and the other from Brittney's channel, but these videos appear to be on the same channel. 4:34 Oh, wait! This *is* different.
Whats your thoughts on Transgender people using the Disabled toilet? i waited 20 mins to use the wheelchair toilet and the transgender admitted to doing his make up , i said being transgender is not a disability he said it is he said multiple times being trans is a disability, long story short he threatend to punch me in my face for not acknowledging trans as a disability
Wow, that's outrageously narcissistic if nothing else, pretty sure the trans community don't want it called a disability. Of course you don't see how much anger is directed at trans people on a daily basis, just for going about their business. It seems to personally offend some people, still no excuse for abusing someone waiting for a bathroom. A simple apology isn't that hard surely.
Almost all public restrooms are wheelchair accessible. Do you mean an accessible stall? Those are definitely reserved for wheelchair users. Cancer patients are NOT entitled to bigger stalls as they can use normal sized ones just fine.
YOU ARE MISTAKEN. A WHEELCHAIR ACCESSIBLE STALL IS NOT STRICTLY FOR A WHEELCHAIR USER. IT IS FOR ANY PERSON WHO REQUIRES EXTRA ROOM FOR TOILETING. EG PERSONS WITH AN OSTOMY, A PERSON WHO REQUIRES TOILETING ASSISTANCE FROM ANOTHER PERSON/S . . .
@@debs2026 You make yourself look absolutely ridiculous with the caps my friend. The poster didn’t say anything about the people you are talking about. The point is - if you don’t need the extra space, you’re taking the space away from someone who does. So calm down please.
I’m not sure you can say that almost all public restrooms are accessible. Have you experienced almost all public restrooms in order to verify this fact? Or perhaps just those local to you.
@@cfalkner1012 I live in America. I can't speak for any other country. I've used plenty of public restrooms in various places such as parks, malls, theaters, restaurants, etc. I've travelled outside my state and have had the same experience. Never had trouble entering public restrooms. Never had problems reaching the sink. Some are smaller than others but there was always enough space to accomodate my wheelchair. Now when we talk about stalls, that's a different ballgame. Not all public restrooms have wheelchair accessible stalls.
@@debs2026 I don't have to list EVERY disability that requires extra space for toileting. If I did that I'd be sitting here all day. Reason why I mentioned wheelchair users only is because I wanted to keep it short and simple but still get my point across. But sure, if you're morbidly obese, for example, you're entitled to a bigger stall. You can stop crying now.
just to be devils advocate changing a colostomy bag is quite involved and if it explodes the smell and mess is really something else ....saying that I also believe completely lie when caught using disabled toilets ....
Likely! One time there was a lady who was in there and told me she had a stoma. Two days later I saw her in a bikini at the pool and it was obvious she lied. 🤥
As a paraplegic wheelchair user, able bodied people using the lifts absolutely grinds my gears. Before my accident, I always took the stairs and would give anything to be able to walk down/ upstairs again. Lazy peole fuck me off
Hey everyone, here is the link to the interview I did with Wheelchair Ric : ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-5zDZPRzeqCg.html He has a great playlist of conversations, you should check them out.
I think your outlook is amazing! I have had a disability all my life, and you would think after I mastered that it would be enough. However, it keeps changing for the worse, so I am constantly reinventing
If you want to join us live, we record every Tuesday at 6pm (gmt +1) that’s my time in France. For Brittney it’s 10am in Alberta, Canada, so you can use that to find your time zone. Hope to see you later!
I lived with a friend who was paraplegic. We went to Craig Hospital several times and I learned so much about paralysis and complications. She is no longer here on earth; when I dream about her, she is walking. I miss her so much.
Hey there Fred. What a brave guy you are. Just watched your video and you have inspired me. I had a car crash back in May 2021. At the time of the accident i had my own business, was very successful and had a wife and kids but was going through a divorce as i was struggling with my sexuality, i was a very fit guy, 3rd dan black belt chief instructor and had it all. Then, BANG……i was T-Boned at a junction by an ambulance. Dead at the scene but they got me going again, spent 7 weeks in a coma and 4mths in hospital. I had a smashed pelvis, liver lacerations, my spleen had to be removed, 3 smashed ribs on my right side and 10 smashed ribs on my left side. I am more metal now than bone. I had a massive head injury and my right ear was ripped off and also had brain damage too. My urethra was ripped to shreds by my pelvis and i cant pee or anything else in that department and now have a catheter in my bladder through my tummy and have had 2 failed surgeries since to repair it and still no luck. I also have gone through massive stages of depression, i am in constant chronic pain, still on the morphine 7 times a day and cannot walk without my crutches or get around in my wheelchair. Tried to take my life on 2 occasions as id had enough. I have had no one to talk to about my difficulties and to see your video tonight made me smile, someone talking about their own experiences and to be so brave as to do a video. You made me smile Fred. You keep strong my friend and im going to watch your other videos. Take good care of yourself. Richard xxx
I don't think what your girlfriend went trough is more traumatizing. But the fact that you think that just proves how much of a saint you are. Also it shows that you are a sensitive person and an angel that you still cared what a neighbor had to say after such a horrific accident. Too bad you decided to keep this video short because I could listen to you all day.
Thanks, that’s kind. There are plenty more videos on my channel if you enjoy listening to me talk. I’ve documented my whole journey. I dare you to go down the rabbit hole
Could you not tie in your process of trying to give some value back (with freebies etc) with a course you could both design for a fee but rather than charging a fortune for it as you say some courses do, make it more accessible to a larger number of people by offering a lower cost? Either as a one off course cost covering all things you feel would be beneficial to people who have recently suffered an SCI or a course over a set number of weeks/months with different content in each one, perhaps even extending the service you provide to being mentors where you can chat to people who are going through things that you’ve been through yourself already? You guys are so eloquent and informative and I can see a lot of people would benefit from having your knowledge and experience to call upon and I’m sure would be more than happy to pay a reasonable fee to be able to utilise that kind of service. If you got sponsors from firms offering things which would be of benefit to the people who sign up to the course (like a catheter company as you mentioned) then you could give people who sign up a ‘welcome pack’ or a monthly/bi-monthly package which contain things that could provide them with goods which will bring added benefit to being a ‘subscriber’. Yes there is a lot of free content out there - I know Fred covers a lot of it on his RU-vid but this course would gather all of those great resources into one place which saves having to sift through a lot of different videos in a lot of different places. Just an idea but I don’t think you should feel guilty about monetising your services, so long as it provides value to the users and is not excessive in terms of costs like some of the courses you mentioned then I think you’d get a lot of appreciation for that. Either way, keep up the good work you both do, I love watching your videos!
Trying to be honest with myself,I think I could adapt to living in a wheelchair i.e.not being able to walk.However the loss of bowel control is the thing that makes me think I would take a trip to Switzerland.If you have a minute,could you comment.
Yeah I had the same thoughts early on, but with struggle comes strength and with others in the same boat, the sense of community really helps. Saying that, I don’t suffer from fecal incontinence, so I’m one of the lucky ones
We have been looking for a wheelchair with that sort of footrest configuration but have not been able to find one. Can you tell us what brand of wheelchair you use? And perhaps, what that footrest configuration is called? My cousin's current wheelchair has the normal footrests and he ends up bumping them into the walls of his apartment when he makes a turn.
It’s very common, it’s called a universal foot rest, compatible with freewheel, you can buy them from invictus active in the UK. www.invictusactive.com/footrest-for-freewheel-attachment/ Hope this helps 😊
You should try to get in touch with a guy named Jason Saenz. He is a comedian who was paralyzed in 2018. I happened to see him on a TV show here in the states called Inside Edition. He does a one man show called "The Wheel World," which is a take-off on the MTV show, "The Real World." He has a interesting story.
Further to that question on when the disability occurs, my wife and I discussed it at length this afternoon. We, because of our experience, also wonder how this compares to someone who has been disabled from birth, like my wife. She’s never been able to do certain things. And, because of our age, the opportunities to try some of these things in an adapted way, just weren’t available 40 or 50 years ago. I think this is starting to bother her more now.
As an able bodied person i would rather the disability was later because i would at least have had the experiences ....I guess you get to see life from both sides ...that is a great question
I am completely thrown off course after you spoke about Lucy ....I am listening on my way to work and couldn't watch live and i was thinking this conversation is resonating with me so much about the isolating and being guilty for enjoying the time doing nothing and then you spoke about Lucy ...tonight i am ringing my close friend to book a trip to Tasmania to see another friend ....RIP Lucy and your child ❤❤
@@FreddotheWheelchairGuy I would ..i will definitely look it up after work ...I love your conversations with Brittany ..you guys touch on sooo many subjects that everyone can relate to and i am guilty of laughing at the faces Brittany has when the computer froze 😬🤭
I totally understand and honor your story. I was enjoying my favorite activity, cycling, when I became a quad. Keep your spirits high and you’ll make it.
God bless mate from New York. Thanks for sharing your story with us on this journey.I have had nerve injuries in both arms and neck that has caused me to have 14 surgeries two of them were neck surgery,but here we are still fighting the fight . Your bless to have the strength and wife that you have god bless.
And carried him uphill.... She is really either used to doing this or her legs were burning like crazy climbing that slope... And your shoes match also...
She’s been training hard for it! 8 months now in the gym, three times a week, she’s a legend 😊 There’s another vid about her piggybacking me for the first time, if you’re interested in more back story
What a strong and sturdy girlfriend! Good for you! I also know a girl who does that for me for fun, but she charges $$$$! Some people don't ride for free!
Hello, I really like your videos. I'm also a cadet. Your videos are motivating and help me practice my English. I watch them from the south of Brazil, in the city of Porto Alegre. My name is Elton Azambuja.
She is an amazing partner ..i am so happy for you guys ❤ also i am just curious but how do you take care of your bowel routine when camping ? i know its a bit personal to ask but I use your experiences at work to educate pts
@@FreddotheWheelchairGuy ok ..sorry so intrusive to ask i sometimes forget your level of sci and the fact u have it pretty under control ....shes not only a great partner but super attractive ..high five Fred xx
Ainda é dos meus piores pesadelos! As histórias sempre se tornam engraçadas e motivo de boas risadas entre os mais íntimos mas, sinceramente, não consigo ser grata. Bem, a não ser quando estou em casa mas ainda assim se torna muito problemático a depender da situação e do contexto. Deveríamos usar dessas experiências para conscientizar a sociedade como um todo e negociar políticas públicas que "beneficiem" situações como essa (ex: exigir um banheiro com trocador adulto em altura compatível com a altura da cadeira de rodas. E obrigada por compartilharem a experiência de vocês (Rodrigo, toda minha solidariedade 😂).
