Thank you for discussing that there isn’t much information on those of us with CP as an adult. It is extremely frustrating!!!! Like how does it effect us as we age?
Not to mention pediatric surgeons out the ears for children with cp BUT NOT ADULTS. Not many options for surgeons for ADULTS that specialize in C.P. anyone tried botox in the legs? Let me know how it worked for you if so? Thanks!
@@nicolee2649(I also have cerebral palsy, mid-30s.) I’ve had Botox in my legs years ago, and it worked very well from what I remember. It really loosened my muscles. Hopefully you have a similar experience!
One of my dad's good friend. His son had cp. He used to shoot on trap shooting league together. The way you move is just like how he did. It makes me see him in your movement. I don't know what his full diagnosis was. He was only a couple years older then me ( 46). But he passed a couple years ago. He had a big issue with alcohol. I wish you well and stay strong and thank you for sharing.
So happy to find another adult with CP 💚 The amount of times I’ve had people completely change how they speak to me (ie. Speak super slowly, speaking loudly etc.) once I say I have CP or they see me walking has always surprised me. I may do my own “5 things I wish people knew about CP”, if that’s okay (I’ll pick different ones and link to this video). Thanks for sharing!
hi evie!! yes please please feel free to make your own video, the more awareness the better!! it was hard narrowing it down to 5 for me so maybe I'll do a part 2 in the future hahah thank you for sharing with me though! the same things have happened to me too unfortunately, but I'm glad we can talk about it!
I have Cerebral Palsy and while my case isn’t too bad, I’ve struggled with my balance and speech for years, I have practiced my balance and speech for several months and it did help but after that it gradually improved overtime, was a pretty slow transition in the beginning but then it was better…. Even to current day whenever I walk places, I do occasionally wobble when I walk, and whenever I meet somebody new (mainly at work) They ask where I’m from and say that I have a really cool accent (even though I don’t) I used to get pretty annoyed when people kept on asking me if I have an accent, but now I’m just more used to it, I tell them that I don’t have an accent and that I have a speech impairment from my disability, a majority of people know exactly and immediately humbled after I tell them
My favorite is when I am with my husband and talk about me like I am not there. I always speak up and quickly answer or my husband tells them to ask me.
The same has happened / happens to me. Strangers have turned to whoever I’m with to ask them questions about me instead of directly asking me. The people who do this are just misinformed, unfortunately. Great job with this video, Chelsea!!
I just found your channel! You are wonderful! Thank you for taking the time educate people about C.P. shocking how many people have no clue what that is. The worst one is "did your mom did drugs"? Thank you for pointing out over compensate your worth VERY TRUE! I loved how you pointed out that once you are an adult lack of services, surgeons specializing in C.P., P.T specializing in C.P. are a dime a dozen not to mention health insurance conflicts to go along with it! THANK YOU for bringing to light that more health options and services are needed not just children since they will one day be adults with a condition with NO CURE that throughout the years will need tunes ups and treatment throughout time! Thank you for saying it for so many to hear because it is the truth!
You are spot on as to resources & medical professionals who understand adults with CP! Hope this improves for the next generations, especially for individuals with higher mobility. As a 56 YO, I have also educated caregivers for the last 38 years on my condition & needs. This was a challenge when I was pregnant with twins 👯♀️. Thankfully my OB was willing to do his research! Definitely room for improvement from the medical community, particularly as our bodies age “faster” than our peers. (You’ll understand what I mean in another 20 years 😂).
Chelsea, I am extreme grateful that one of your videos came as a recommended video to me. I have Spastic Hemiplegic Cerebral Palsy. My left arm and leg are affected. I have limped my entire life due to my left leg being shorter than my right. Thank you for your kindness, your insight, and your generosity to others in the CP community! I subscribed and will catch up on your previous videos. Fun fact: My nickname is Bear!
Yep... had to explain once to a CP Specialist what mimicked/mirrored motion was. I'm a hemi (CP in my right side), and when I do any kind of fine motor skill articulation with my CP affected right side, my good side wants to do the same thing. You would think a "specialist" would know the jargon as this concept was explained to me by a CP Specialist from my childhood. Maybe "childhood" is key here and basically proves your point. Truth be told, I haven't found a good one yet... specializing in adults. Anyway, because I'm active, the constant "torque" on my good side muscles and joints have taken it's toll. It's the ole "between a rock and a hard place" cliche'. Got to keep active to keep the CP loose and agile, but the activity is wearing me out... literally. So yeah... adult expertise would be a great resource.
I've spent my whole life working alongside people with both physical and mental disabilities. I have an older brother who has downsyndrom. I love watching your videos and how you want people to understand CP. One thing I've realized is that people who don't understand and really want too but are unsure how to ask for fear of offending someone. I always tell people, I will talk to anyone for as long as needed if it will help them understand. As you said though, if you wouldn't as someone without a disability something personal, please don't ask someone with a disability that question.
I have a similar type of CP as you. Honestly, no one has helped me understand it as much as you have. You’ve made me see myself more clearly. Thank you so much.
It's so nice to find someone who's advocating for the CP community. You are absolutely right about CP having a spectrum. I'm glad to have found your channel.
Although my case of cerebral palsy is mild (right side hemiplegia), I still have people ask me questions that I thought was none of their business. For years, I had people ask me "what's wrong with your leg" or "why do you walk like that?". I got so tired of answering questions like that, that now I say, "there's nothing wrong with my leg", simply because this is the way that I always have been. The only way that I knew that i walked differently (a noticeable limp), is because people always pointed it out. A lot of people with CP do have higher IQs (even those who have more serious cases of CP) and are well educated. I have a Doctor of Chiropractic degree as well as a Master of Public Health degree.
You're a lovely young woman Chelsea, you show a lot of inner strength that many "able" people cannot. I met and had an online relationship with someone who had CP, and honestly I would never have known if she hadn't told me. It made more difference to her through her frustrations with daily life than it did to me, but I tried to be empathetic. Basically I ignored it other than asking how PT went and how she was feeling, some days were better than others. Regardless, whether it was an online relationship or personal face-to-face, it would have made no difference. There are a lot of people out there who ask inappropriate things as you indicate (about more than CP, too!), but there are also a lot who take it in stride; it's part of who you are and it's what's inside that counts most. As an intelligent, literate, attractive young woman, I would think there should be someone out there that would be your soulmate and I hope you can find them. Take care.
Don’t worry when you go down the child bearing path… don’t worry I have Cp and I was able to have 2 beautiful healthy children. Their ages are 25 and 31. I agree with you that there is not a lot of info on Cp and Aging. I wish there were programs out there. It’s much needed.
I can relate to what you're saying Chelsea. Nothing burns my feathers like entering a room and because they see that I have CP on my left side they start to talk very loud and slow. Now that I'm older and have a little more spunk, I will say why are you talking loud I'm not deaf . You are so right ,don't judge a book by its cover . Thank you for being able to inform more of the public about what CP really is
Let’s be honest, when the representative is as cute as you, there are several reasons that motivate to learn! Thanks for sharing!!! I’ve learned a lot through your instagram and now here 🙂
I just recently came across your videos and I would like to praise you on what your doing. You are a very brave woman to trust that the people that watch your videos are fair. May God bless you I would be proud to know you.your great
I own a business called Colorado wheelchair and I've been in the industry for decades and work with wonderful people like yourself for years. Here is one thing that most people with no knowledge don't identify. And I don't think there's really any medical reason behind it but it has been the case with every one of my clients I've worked with that has your condition. People with cerebral palsy on their worst day are having emotionally a better day than anyone else. Who knows why?
Hey thanks for sharing your experience with people. I have CP and I just want to add that we can do everything but it might take us longer than normal people
I have a closed head injury and it has one thing in common with what you have it will never go away. No matter how fatal the task on the boats I worked on, in a pinch I volunteered every time, because I have a head injury and the rest of these people don't and there's no way they can stand in and fill my shoes. This took me a long ways until I met an engineering professor and she told me that if you can't fix it feature it.
You are awesome! I love all of our your videos. I also am a woman with CP and appreciate you educating others about the disability. I especially enjoyed your humorous video on accessible restroom stalls.
Thank you Chelsea. You've explained CP very well. I have muscle pains / tension. That's a subject that people don't know about. I have pains in my back (especially the lower back). I've listened to other people with CP and they have issues with muscle pain too. When the person reaches their 20's, they'll experience pains. That's what happened to me, and I still have pains to this day. We tend to age quicker than others. I hope this helps. You're doing great with your videos. 😊
Its not unlike having MS. I know 4 people with MS and they all present differently. Very educational regarding CP and CP awareness, you are a very confident and impressive women.
Hi Chelsea, first your an inspiration to all, with or without disabilities. My daughter has CP. spastic hemiplegia. She is very motivated in life. A lot like you. I enjoy watching your content. As a father of a
As a father of a young girl with CP, I just want to give you a comment for the sake of the algorithm, and improve your YT stats. I also must be watching a lot of videos with teens commenting cause I halfway expected to see comments like this down here: "This content is fire!!! fr fr 🙏🔥🔥🔥"
my daughter met with aspiring medical students during their rotation to share her story and experience. Her disability and medical issues were not apparent but the same "please listen...my body works this way " experience was there. It also surprises me that autism spectrum is not #1 based on the attention that diagnosis gets. The events my wife organized for families of folks with all disabilities were inclusive and I helped as did my daughter with meal prep and fishing activities. It was awesome to see everyone having fun without stares or stigma. Keep it up.
I just came across your channel, my brother had a stroke when he was a baby and he has cerebral palsy. Physically, he is 16 years old but mentally, his brain is that of a 5 year old. He requires around the clock care. He’s the best tho. I love my little bro!!
I have never commented on a video before. However my wife Leslie told me about your video's and I have been watching them. It is good to be able to relate to people. I have CP as well I am 43 now the picture you see is a old one my Daughter is 13 now. I have a lot of gray hair now and even less then is in this picture. I am a Life and Health Insurance agent in Strasburg, Va. I also lost my mind in November and ran for Town Council and won. I am used to the private sector, Government is new to me. I watched your dating video and related to it very much it took me till I was 29 to meet my wife we have been married 14 years now. My CP only effects my legs as well. You will find your person. Thank you once again for sharing your video's. Last thing I do not want you to think of me as a politician because I am not. I am just trying to serve my hometown. I am a Christian first and foremost. My life Verses are Proverbs 3:5-6 Trust in the Lord with all your heart, lean not on your own understanding: in all your ways acknowledge him and He Shall direct your Paths. Have a Blessed Day!!! Brad Stover Strasburg, Va.
Chelsea 1st off we all love you and we are very proud of you by bringing the C P to a modern platform of light. For all to see,You are the BOMB gurl ❤. Please stay strong and i already love you and would be your man ,i would be there just to be with you if you would be there with me and my disabilities.may god keep blessing you .muah!!!❤
I love your content , you're so open and certainly opened my eyes about people living with CP and their daily challenges and you answered questions that never ever popped into my head . i have learned so much keep up with the great videos .
Just a suggestion as I read through the comments… would you be willing to host a zoom get together? It might help us all in this Cp community to discuss with one another the different things that go along with Cp and aging . As you have said there isn’t much as far as resources for adults.
Chelsea I know alot about Cerebral Palsey because I had a few friends in school that had your type of Cerebral Palsey and I read up on it and know alot about Cerebral Palsey and and I am always like watching you talk about it and I would never be afraid of you if I met you in person I would treat you for who you are. I will say this as a complement to those who see your pretty won't see your disability right now I am having trouble getting girls to notice me it stinks I am lonely but not depressed sometimes discouraged but that it . Have a good day beautiful ❤❤❤❤oxoxoxoxo
You know, I'm glad to hear when people don't reduce themselves to the level of unironically telling people "I'm not responsible for educating you on *_!_* " That mindset has always puzzled me. Mainly because of the implications. You're almost guaranteed to be more well-informed on an issue that affects you, and doesn't affect the person being scolded. So, abdicating the role of educator (or rather "self-advocate") means that person will: A.) Not pursue any further becoming knowledgeable on their own; B.) Follow the *wrong rabbit hole* to some alarming conclusions. Also, when you inform someone enough that the ailment impacting you is no longer an abstract concept and becomes tangible, by and large they are now more empathetic of your struggles It's fascinating just how ubiquitous many behavioral traits are among medical professionals, irrespective of their chosen discipline. In much the same vein, there's so much problematic "knowledge" floating around the zeitgeist, grossly misinforming the public at large about any number of clinical conditions... 1) There doesn't even appear to be a consensus online whether Cerebral Palsy only happens during embryonic development, or could result from a TBI or something... 2) I would say, one of *the most common sources of ignorance* in society at large, is that *_"No group is a monolith."_* However, understanding nuance requires at least a rudimentary of the subject being nuanced. Quite literally, EVERYTHING which can be measured actually falls somewhere along a spectrum. Absolutely everything. 3) It's frankly absurd just how many conditions have been systemically labeled as "adolescent", effectively locking any of us that survive into adulthood into some kind of diagnostic greyspace... My own experience with this is with Autism and ADHD. But I mean, experts in a field of medicine are just as brown too their own biases as any other human. Just look at all the medical conditions that present differently in women than they do in men. The majority of women aren't even aware that the warning signs of a heart attack *_ARE NOT THE SAME_* as with men, and since "Man" appears to be considered the default state according to clinical academia, a surprising amount of cardiologists are oblivious to this... 🫣 4) I've gotta say, that's pretty damn presumptuous if these guys too casually inquire about that. "Can you *_"do it"_* ?" is such a comedically immature method for them to frame that question... 😂🤣 5) The average American's relation to health care (or lack thereof), and what might affect that health care, is so tangential... Things only matter to them or are worth their knowing once they're directly impacted... I forget which number you mentioned having to do research for your doctor, so I'll just put it here. As sad as it probably sounds, I feel like, for those of us who are disabled, "being disabled" has become shorthand for being forced to be the only person we can trust will advocate for us... In the back of my mind, I wonder this: *_"If you don't regularly hit your doctor/therapist with your doctoral thesis listing all your symptoms, comorbidities, contraindications, potential misdiagnoses, etc. Are you really receiving the best care..."_*
Hey, here's the deal. Your a person just like the rest of us and we all have disabilities. they may just not be as outwardly apparent at somebody with cerebral palsy. 1 I love the work you do and how you do it. I wish I was as good as what I do as you are at what you do.
My Husband has mild right sided Cp and he was born in 1971 and he says he understands that the struggle is real. Everyone in life Cp or not we all have our own issues he has a brother that has cp and is wheelchair bound his best friend ( I call his best friend his boy friend lol ) has cp from the waist down and walks with 2 canes he wanted you to know that he found your videos yesterday keep up the good work and keep those videos oh and he wants you to know that he can drive without hand controls
awesome channel! read your blog entry on your website about your birthright trip. would you mind making a video on how you can managed the hikes? my dad has Parkinsons (different from CP, but he primarily has difficulties with gait and balance) and uses a walker and totally wish I could go hiking with him!
I came here after seeing the short of You parking to the Rihanna song. You have the most beautiful smile I think I’ve ever seen Insanely beautiful God Bless
AMEN! 90% of the people that encounter me assume i have an intellectual disability because of my speech issues. SHOULD I wear my wear my transcripts on my forehead showing i took 4 semesters of calculus? Yeah beyond fustrating
I have CP, right sided hemiplegia. I'm married, in my late 30's with two teenagers. I had uncomplicated vaginal births both times without epidurals (just because they're not very common in my country, and due to my limited mobility on my right side I wanted full control of what mobility I had). Baby care was easy when they were tiny and once they were old enough to understand my limitations but the bit between that wasn't easy!
I cerebral pasly in my legs , my doctor find it when was 16, I can't run good,but I do can every else, but I was born 24 weeks so I a lot of problems away, and I'm fixing to 39 soon, so okay it,
Such an eloquent speaker! My apologies for overstepping the bounds of being a YT observer. You might want to consult a reproductive endocrinologist about freezing your eggs. I can tell you would be a fantastic mother!
I just have a boyfriend. We have been dating for almost 2 years. Hopefully we will get married one day. My boyfriend and I already have tons of nieces and nephews that we can play with and help them out.
Hey Chelsea how are you doing love your channel and the awareness about cerebral palsy we can do things to make it manageable and I need to lose some weight but exercise can be hard to some times I have the same diagnosis as you both my legs are crippled. Do you have muscle spasms because I do sometimes and it sucks when it happens. It's like a bad Charlie hores that won't let go and it can get rough. I know I would like doctors specifically for cerebral palsy and how to handle our disability amen sister I feel ya .
great information and love to see you on camera, BUT whoever added the transition music should have left that off. it's adds nothing to the video but instead is loud and annoying. in fact you just saying each topic would have been better. :)
You unfortunately are getting yourself boxed in a corner and you don't realize how. You start out with cerebral palsy is an individualized case which it is there's four different kinds and several different levels and nobody but a professional in the field would see more than five or six of some kinds of some levels in five or six years. If you saw yourself as a human being and you went to be treated by a person who saw you as a human being and he treated you a little and saw how it went, that's the best life has for any individual.
Please don’t do that. I have a lot of faith but CP isn’t just something that gets prayed away nor does everyone share your beliefs. I was born this way and I will continue to be disabled for the rest of my life what would be helpful is perhaps educating yourself about the disabled community and allowing yourself to learn from it because there’s a lot to be gained
My wife and I have dear friend we've grown up with who has ataxic CP that affects her speech. I cannot even guess the number of times we have all been out doing X or Y when others react to her as if she is a child, mentally disabled, or not even there. One of the more common ones is when the person will ask us something instead of asking her... "What would she like to eat?"... "What can I do for her?"... And so forth. Pretty annoying and often rude, but sometimes we make a game of it to try and show them how ignorant they are being.
Chelsea hello, My name is Travis. I also have Cerebral Palsy on the right side of my body and im also a full time RU-vidr that travels the country looking for new adventures. I love your content and your openness about Cerebral Palsy and how you embrace it. Thank you. Keep doing what you do, you are an inspiration and you're making a difference. Your Awesome my friend.
THE LAST ONE! Sometimes it's really awkward because people won't talk to me they will ask the person next to me. It's really annoying because people jump to conclusions and think that the 2 always go together.
