Autoimmunity in POTS: How does it work?

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Functional autoantibodies against G-Protein Coupled Receptors seem to be common in ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) and Long Covid and contribute to the symptoms of both conditions. But are these same autoantibodies also common patients with Postural Orthostatic Tachycardia Syndrome (POTS)? The answer seems to be ‘yes’ and in this video we’ll talk about a paper that found this.
Affiliates:
Normalyte (most helpful supplement I've ever found for ME/CFS) - affiliate link: normalyte.com/?ref=ftveadx3
DNRS Brain retraining (helped me recover from my first round of illness and still very much recommended) affiliate link - retrainingthebrain.com/?wpam_...
Timestamps:
0:50 introduction
1:54 Grubb paper findings
5:56 ANS link to autoimmunity?
8:06 Controversies….
My name is Patrick Ussher and I am an ME/CFS patient. I have written a book on POTS and also about thirst in ME/CFS, POTS and Long Covid.
Personal website (including details about consultations service): www.patrickussher.com
My (free) book on thirst in ME/CFS, POTS, LC: www.themythofprimarypolydipsia.com
NB: This video is for educational purposes only - please always consult a doctor about any health issues or changes.
Links mentioned in this video:
www.celltrend.de
paper discussed - pubmed.ncbi.nlm.nih.gov/31495...

Опубликовано:

24 май 2024

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Комментарии : 14

@lisakaylanemorris Месяц назад

I can't wait to hear your idea on the research saying these functional antibodies don't amount to much in pots

@imed Месяц назад

From personal experience I can say that when the auto antibodies disappeared with the help of therapeutic apheresis the POTS disappeared, but only many months after the auto antibodies disappeared. So, I conclude that the auto antibodies were either not the cause (just correlation) or at least not the only cause of POTS. Luckily the auto antibodies and POTS disappeared without the need of immunoabsorption or DNRS.

@angelbryan98 27 дней назад

Hello Patrick. Could you watch the "Thinking Muscle" guy disease model?

@me-cfs-strategiesforhealing 26 дней назад

Hi Angel - I don't have time at the moment, sorry.

@davidkohl8962 Месяц назад

Do functional autoantibodies continue to develop? I cant seem to find a straight answer. I’d like to know if my symptoms may get worse with time (if these autoantibodies continue to build up)?. I’ve got long covid 2.5years and have all the classic CFS symptoms PEM etc.. I’m almost convinced the research of Berlin Cures BC007 is the answer.

@me-cfs-strategiesforhealing Месяц назад

My best guess is that whether they increase or diminish will depend on a range of factors. AABS have a natural life cycle of four months. It is feasible that someone who does everything right over that time (not crashing, good diet, meditation, appropriate supplements/medications) might have a reduction in AABS, while someone whose illness is continuously flaring-up might have the AABS increase. That is just speculation. Watch out for a video on 2nd June when I'll talk more about that.

@davidkohl8962 Месяц назад

@@me-cfs-strategiesforhealing thanks Patrick, I’m glad to have stumbled across your videos. I also posted a link to a video I found about BC007 on your video about Berlin cures 👍🏻 your viewers may find it interesting and helpful

@me-cfs-strategiesforhealing Месяц назад

Thank you David. Not sure if the video you posted is showing, RU-vid often doesn’t allow links in comments

@alias701 Месяц назад

What functioning does the M2 AAB impair?

@me-cfs-strategiesforhealing Месяц назад

M2 AABS will prevent smooth muscle constriction in the lungs and inhibit the lowering of heart rate as part of parasympathetic response.

@lisakaylanemorris Месяц назад

I ve never had my functional aabs tested but air hunger and a heavy tight chest ..lower chest ..is my most long standing symptom of many ..

@me-cfs-strategiesforhealing Месяц назад

That could also be anti-ETAR AABS which impact gas exchange and hypoxia. But then so much of the illness is creating those kinds of problems. I had a heavy chest Lisa before my HELP Apheresis treatment for microclots. My chest is okay now. You might want to check out those videos

@lessons9745 Месяц назад

In the USA the anti ETAR aabs are associated with pulmonary hypertension and sclerosis of the lungs ..I ve been looked at several times for both those conditions and Drs cannot find any evidence of either ... but it sure is horrendous feeling ! I am definitely hoping this Berlin cures is a huge success !@@me-cfs-strategiesforhealing

@me-cfs-strategiesforhealing Месяц назад

Interesting! Good to learn. These aabs pop up in a lot of other diseases too