First saw your 4 year ago video and hoped that you were still with us , clicked onto your channel and thank God you’re still here .Good luck strong lady , wishing for you and yours many decades of happiness together.
Thank you, @Teresa. My life is definitely a miracle! I'm glad you can get some inspiration, hope, and courage for navigating the challenges of life!! Stay tuned for more inspiration! God bless. Jodi
I survived my second brain tumor operation last Nov. and I understand all the side affects. I thank God everyday I open my eyes. My energy level is constantly low, sleep heavily but try to do some laundry and flowerpots .
So glad you survived your second craniotomy!! You are a warrior. Yes, the side effects and complications are brutal, but I am so glad WE are alive! God bless you! So glad you found me. Stay tuned for more hope and inspiration!!!
I have watched all your interviews. You are an absolute inspiration. I am feeling dizzy and about to get an mri as well. Hopefully it is clear but I submit to the lord in his plan either way. I must say the interviewer in all the videos is excellent.
Thank you, @kmcclarney. It has been a long and hard road, but I am a better and stronger person because of it! God bless. Please take care of yourself and get an MRI if you need it! Keep me posted. I hope you'll stay tuned for more! Jodi
OMG. Everything here hits home so hard. 5 years ago I had an 11 1/2 hour craniotomy. I had been going to the dr for months with headaches, tremors, incontinence, falling, wide stance gait, neck issues, worsening vision. The long term recovery with shut down that I still get...now makes sense! Thanks to your videos.
Thank you @Milalein! I am trying to THRIVE and get better everyday, despite the ongoing challenges. I believe we can all live our best lives, when we rely on God and lean on each other for help. So glad you found me. Stay tuned for more hope, inspiration, and courage for navigating life. God bless! Jodi
You are amazing. A real inspiration. Your facial paralysis must be so hard to deal with. But you have faced that huge challenge, one that would have defeated most people. Namaste. Be safe.
Thank you so much! I'm honored by your kind words. So glad you found me here. I hope you stay tuned for more encouragement, hope, and inspiration. God bless. Jodi
@yorkshirekoi2246, Your dad may look and act differently right now, but his soul is the same on the inside! Give him all the TLC you can, for he is weak and struggling. When he starts functioning again, encourage HIM to show himself the kind of patience and care he would for you. It will be hard, he will want to get back to "normal" as soon as possible, but what he really needs to do is find a "new normal" and learn to appreciate his second chance at life. Strong spirits are often housed in weak bodies, so don't give up on him, and don't let him give up on himself, no matter how hard the battle! What are his specific complications/side effects/symptoms? Please let me know so I can offer some suggestions. I'm so grateful you found me here. Please check out my other videos, and stay tuned for more hope, inspiration, and courage for navigating the challenge of life. God bless you and your dear dad! Jodi
@@JodiOrgillBrown thanks for the kind words perhaps you can reach out to this guy his last video said to me he might top himself. @bnbbattlesbraincancer
@@JodiOrgillBrown my dad went to the doctor because he was having headaches they managed to do scans very quickly . they found a tumor at the back of his skull just above his neck. they operated though the first doctor was not very understanding. I only found out about what was going on the day of surgery. I drove all the way to hospital and after 2 days drove him home. my parents live about 100 miles from where I live. my mum tells me my dad was very emotional and crying this is not like my dad as he is a very tough guy normally. To be fare the NHS we have in the uk did a very good job well looked after. We are waiting for them to test the tumor to find out what it is so we can not say what may happen I done some reading online and seems very scary if it is cancer estimates I read was only 17% live past 5 years if it is cancer. So my dad is looking to move closer to family. given my mum is also not in good health either. its ok moving to the seaside but if its far from family it can be a problem. Thanks for replying back few youtubers do . hope you can deal with it too, many thanks for reaching out. Update... My mum tells me my dad is getting a little better every day able to walk a little even around the garden. having a dog is a good motivator . But he is in alot of pain over night. He has heart issues that need to be addressed at some point. My grandad was the same. having to have a triple bypass. he also suffered with strokes after which he was never the same. in the end passed away due to having another stroke.
Thank you for the update. It is difficult when doctors are not understanding and don't listen to the patient. I am glad your parents have your help, even though it is not easy living so far away. So grateful that your dad is getting little better everyday. Please keep me posted. All my best to you and your family. Let me know what videos would be helpful! God bless. Stay tuned. Jodi
So glad you are benefitting from my experiences. Keep watching and let me know what questions you have. We can help each other through these experiences! Jodi
So glad you found the video to be helpful. Please stay tuned for more hope, inspiration, and courage to navigate the challenges of life. God bless. Jodi
Thank you, Jodi, for sharing your journey. I began my brain tumor journey in December, and it has been a wild ride! I don't know the specifics of your diagnosis, but mine is grade 2 astrocytoma, IDH1 mutation. I wrote you an email to your address on your website, but I don't know if you got it? Brain tumors are very rare, so finding someone in a similar boat as myself is unbelievable special to me. I am happily back at work, like you, (I work in animation), but would love to talk to you, if that is something that would interest you. Just let me know. My name is Karen, btw. :)
Thank you for your kind comment! I am glad you found the video to be helpful and I'm glad you reached out via email. I am so glad you are doing well, and so glad you found me. Stay tuned for more hope and inspiration!!! God bless you! ;) Jodi
Many thanks for the kind words. You can be as strong -- trust God and trust yourself! I'm so glad you found me here. Stay tuned for more hope and inspiration for navigating the challenges of life! God bless. Jodi
Exactly right we never stay as normal as we like from my benign brain and needed two brain surgeries, it's been over 30 years and had it was located where your was too. I don't take any Rx seizure meds but, do take organic Valerian to keep my brain calm. You might want to try I don't know and my 2 children were still young when I had my two brain surgeries. Be bless and take care of yourself.
@@bellaberri4062 So glad you are doing well post brain tumor! Thank you for the comment and kind words. Life is so good, even when it's hard. So glad you found me here. Stay tuned for more hour and inspiration for navigating the challenges of life. God bless! Jodi
You are so in touch, accepting & never give up, you also have adapted & overcome your new situation. You’re very inspiring! Thank you for sharing & I wish for you much more love , health and happiness ❤✌️🐻
Thank you for your kind comment! I'm so glad you found me here. My goal is to lift, inspire, and give HOPE to all! Stay tuned for more goodness. God bless, my friend! Jodi
Thank you so much! You just made my day. So glad you found me here. Stay tuned for more hope and inspiration for navigating the challenges of life. God bless. Jodi
Dr Sulayman could correct the facial distortion by Scarless surgery, as feathered on RU-vid Shorts. Hot towel massage once or twice per week would heal the tissue and affected nerves. She is speaking very well, after a successful brain operation. Godbless her with the strength to fight and overcome. There is a reason why her case is exceptional, and inspiring to all patients that have encountered both spinal cord and tumor injuries. Italian diets is a good preventative for tumour.
Thank you for the encouragement. I have a wonderful doctor who is helping with facial reanimation. Many thanks for the suggestions. I will add the towel massages to my regime! Jodi
I also like to get my eleven hours of sleep. I appreciate my queen size bed, height of the two mattresses off the ground, the comforting support of the mattresses, quality of my sheet, my wise decision to eliminate a top sheet for greater mobility, such as sideways movement of my legs across the entire width of the Queen size bed, newly added vitamin B-6 with Melatonin, doubling my daily intake of vitamin B-6 to 20 mg., oh forgot to say, I am treating plantar fasciitis for one of my ailments, and after five weeks of experimenting with various treatments, I finally feel relief, including by self massaging from select points on the foot, after weeks of applying Arnica 35% lotion and taking over-the-counter oral analgesic three times per day. I find relaxing helps tremendously and allow myself to relax as much as I feel necessary from day to day, working around my relaxation schedule, instead of the other way around.
Good luck with your continued efforts! I'm so glad you have found some things that give you relief. God bless you, my friend! I'm glad you found me here. Let's stay in touch. Jodi
@laurieottman6905 The diagnosis was complicated -- a brain tumor between the end of my ear canal and wrapping around my brainstem. They couldn't identify the type of tumor it was, as it didn't match anything on record. So, I am a bit of an anomaly. Some of the tumor has grown back, but not enough to require more surgery, so for now, I am ok. Great question! So glad you found me here! Stay tuned for more hope and inspiration for navigating the challenges of life! God bless. Jodi
I am so curious as to what kind of brain tumor you had? I have a meningioma down at the bottom of the two lobes of my brain, at this time it's not a problem unless it grows.
Thanks for asking. My diagnosis is an unidentifiable type of brain tumor at the end of my ear canal and wrapping around my brain stem. Most of the tumor was removed, but there is still a 5x7mm mass that can't be removed. Originally it was thought to be a Glioma or Schwanoma, but the final pathology showed the tumor didn't match anything else on record. I hope you stay stable and don't experience and further issues from your tumor! Please keep me posted. So glad you found me here. I hope you stay tuned for more encouragement, hope, and inspiration. God bless. Jodi
My husband is 82 and through an MRI they have found a meningioma the size of a ping pong ball he said but it is benign, They are going to check him every year, It’s in the front left of his brain, I need to know is this still dangerous and what should I look for as his wife, he is good for his age
Thanks for the comment. Definitely make sure your husband continues to get checked, as a tumor can still do damage if it grows, even if it is benign. Depending on the location, he could experience dizzy spells, eye/sight issues, headaches, mood changes, etc. Keep him going in for regular check ups. So glad he is doing well so far. So glad you found me here -- stay tuned for more hope and inspiration for navigating the challenges of life. God bless. Jodi
My head feels so heavy especially in thee back and i feel very dizzy i couldn't hold my head with my neck,one my eyes have become small and i have double vision because of that eye... It started suddenly after a week of exams for me.. What could be the reason?
@MariaAntonet1307 PLEASE go to a medical provider ASAP. Sudden changes like that are not to be taken lightly. Report back when you find out what is going on. But don't wait -- get some help now. So glad you found me here. God bless. Jodi
Thank you, @Leftalone. I'm glad you found me and can get some inspiration, hope, and courage for navigating the challenges of life!! Stay tuned for more inspiration! God bless. Jodi
