Erika's Story: After the removal of an AVM 

Hows she doing?

So wonderful to hear of your wife's improvement. It is good to know that sharing stories like this helps people!

i have same problem plzz guide me😭

I wish you the best

You too

R u doing alright ?

hiii i have same problem plzz guide me😭

So very, very sorry to hear about your friend and her AVMs. It is so difficult to be so young and facing such health issues. Hoping she has a good a recovery as possible.

Best of luck for everything, sending positive vibes and prayers! Mine ruptured and I had surgery for it last year in March but I’m doing so much better now, I lost movement in the left side of my body but I’m slowly getting it back. It gets so much better!

Hey, I’m 13 too and I’m having avm surgery soon for your friend after surgery was she able to walk and do things properly still in just scared and a bit worried because this was all so sudden and I’m still a bit scared, and I’m glad your friends doing okay!

how’s he doing now?

@@jasontatume1372 he's actually doing much better than everyone thought he would. He turned 61 in September. He's doing good enough to where when my boxer pup got my parents boxer pup pregnant he was the main person to take care of them! That's a lot of hard work

@@michaelmorrison4201 how’s his memory my brother has his rupture 2 months ago and his short term memory is terrible

@@jasontatume1372 I'm really sorry to hear about your brother. Did he need surgery? yea his memory suffered, especially for the first few months. He was in bad shape, like couldn't even brush his teeth, and had to relearn everything. He came around pretty good with the therapy, but it wasn't easy. He had to get determined to work hard, that's where good family support comes in. It's going to be hard on everyone for a little while man. One of the hardest things for me personally to remember is that he did have a severe issue with his brain and there's a good reason why I have to sometimes explain things a couple times. It really can be frustrating but they can't help it. The best thing you can do for him is be patient and offer encouragement. I'll say a prayer for you guys. It WILL get better. Everyday, more of him will come back!

@@michaelmorrison4201 He needed 3 surgery’s due to him having 2 only one ruptured tho he’s doing good right now honestly tho except his memory is terrible like he forgets stuff from 5 min ago but physically he’s doing super good

Hey Ash, hope you're doing better and better, I just learned my diagnosis.. scary times

@@everjust23 hey man doing really good 100% removed never felt better hope all goes well for you good luck with it all🙌😎🙌

i have an AVM near my eye, i dont know what to do, should i do surgury to get it removed or just live me life, its been bothering me

@@AstariahFox I see your comment I just want give you some ideas take look your AVM it deep or not because I have a AVM 2018 and my dr he keeps say if you don't do radiation you will die , and I hear that I scared I do now the radiation after my left side weakness and drop down... so I think you better go for couple options that's it my experience I want share for you

@@vy6289 my avm is behind the eye but I have no symptoms. Only problem is i have double vision and pain my left eye . Pain could be cause of double vision . But doctors say its not cause of avm . But anyways secretary told me people dont do anything on avm and just live with the chance of rupture. So I'm not sure what to do . Is there a chance of it rupturing in my lifetime? So I take a gamble and live with it. Doctor never told me to get it fixed or you will die. He told me the main option to fix it would cut my skull open the radiation wasnt 100% fix but it can slow it down so it wont rupture The doctor just told me each year theres a % of it rupturing

Hope everything goes well . I'm meeting with my family doctor to see what I should do. I'm 41 . Don't like the idea of surgery and sounds like it can cause problems .

@@AstariahFox I totally agree! Many of patients had complications, but also many of them are back to normal now. Our doctor told us surgery is the best one for him. I really hope everything goes well for you and I’m pretty sure your doctor is going to find the right decision. All I want for you is to stay strong no matter what. Thank you very much for commenting.

@@antoald Peace and blessings how did everything go ! Hope all is well !

@@MOLEGGZ74 thank you so much!! It went very well, he is all good now!!

hey Aung, hope you are feeling much better right now, just learned about my diagnosis recently. Hard to swallow

@@everjust23 Dang bro 😔, I wish you the best on your treatments dealing with it. As AVM are inborn in us, and there’s no way to avoid it. But we can avoid it by doing certain activities that doesn’t elevate our blood pressures like excessively lifting, stress, smoking etc. I hope you surpass this AVM when you had your treatments and live a long life, as I was lucky to survive this incidents. With 24 hours of me having to wait while my brain was flowing with blood until a surgeon 👨‍⚕️ found out I had a hemorrhage, and performed on me. Later after the surgery he found out I had an AVM, and had to wait a few months before I can undergo another surgery again. As my right sides of my body is completely unable to move. So I was put in a wheelchair 🦽. May you be well my friend on your treatment with it. 🙏

@@justko2909 thanks man. Don't mean to be insensitive but are you still paralyzed on the right side? And was that a result of the hemorrhaging or side effect of surgery. I'm unsure of what type of treatment options they will present me with.

@@everjust23 Don’t worry bro, I was paralyzed from the right side due to the brain hemorrhages. It took about 1-2 months of therapy to get my body used to moving before. So I had to have a wheelchair 🦽, then they move it up to the walkers, and then the cane. Took it home and used it for several more therapies and lately I been getting better bro. But for the AVM after the surgery, my body seems to be fine. Just needed to eat soft foods as I can still feel my aftereffect of the surgery. But overtime I’m able to eat hard foods now. For treatment options I think they have medications depending on your AVM symptoms causing headaches or seizures. But surgery is the most treatment for individual with brain AVMs. Which includes the surgical removal, endovascular embolization, or stereotactic radio surgery where they use radiation to aim at the AVM. Although this type of treatment is for small AVMs, or people that doesn’t have a brain hemorrhage yet. I don’t know 🤷‍♂️ bro, depending on your doctor and how he sees the AVM as. But whatever treatment it is, I wish you well bro 🙏.

@@justko2909 how long did it take to regain your short term memory?

Choose something safe for you until is too late, please! Wish you the best!

If its small enough bring up Gamma Knife to your doctor

I had the same experience. It has been 7 years since my brain AVM removed. My recovery was very slow. I kept on exercising my left arm and leg. It's not an easy journey living with half body paralysis. But i do believe that God has purpose for my life. Keep trusting Jesus.. our great healer.

So with surgery it can cause problems after?

@@yganoks48 can I have a question after you AVM removed did you have any side effects??? I do have brain AVM removed now I have a stroke!!! That's why I want to ask you, you have any affect from radiation???

@@vy6289 hi, yes i do have paralysis after the operation. I bled a lot during the operation that's why i suffered with hemorrhagic stroke. I'm left hemeplegic. I didn't undergo radiation. I had brain embolisation( coiling). #nevergiveup #wewillimprove

@@yganoks48 so how right now you go back normal yet?? And what you do when you have a stroke you left side ( I do have a same stroke left side that make me very weak) I very stressed I don't know what I do 😢😢😢

Hi Trace, praying that all will go well with your surgeries. Good that this was all found early. Try to take things one step at a time.

matthew ragbir the surgery? Or the rehab?

How did everything go Peace and blessings ! Just found my 16 yr old has Avm were trying to decide a option smh

Hoping you are under good medical care? Take it all one step at at time. You can see from other people's comments that you aren't alone. It is scary but as you can see Erica is doing fine and you will too.

I was just diagnosed in April. I am having surgery on 9/17 to remove a 2cm AVM on the surface of my temporal lobe. I have been terrified.....

@@sadieperkins8231 We hope and pray that all will go well with your surgery.

I was just diagnosed with a 3cm avm. I had a seizer behind the wheel and crashed my car. I have a bunch of test for the next couple months to determine weather to remove it or not.

ya its scary , doctors found my AVM when i was being checked on why i have double vision , my left eye doesnt co operate with my right eye and its annoying, they cant find what the problem is, i told the doctor i wish i can get my eyes working since i use them more than my brain lol

I was told 6-8 months, I recovered much sooner than that though. I must say the severity differs with everyone so recovery times can vary a lot, hope this helps.

@@kishanvarma6647 How long did it take you?

Remember this is just one person's experience and it doesn't mean that yours will be the same.

There's possibility that will happen.. it happens to me, sad to say.. i have had paralysed since my brain AVM operation. but of course not all the same.

Hi? Are you okay now? Please we are all praying for you

@@Edd03 My dr moved the date to 3/8/22. Thank you so much for checking on me. My nerves are so bad. But the pain getting worst.

How did it go, James?

@@realmindnm my talking is better my walking is more stable. I a little ways to go. Thank you so much for asking.

Can you explain a little more about your procedure, side effects and recovery James? Thanks, having AVM removal surgery before the end of the year

ya odd name for a hospital

I do a same like you I have the AVM removed and 2 years later I have a stroke they almost killing my life it very horrible I want to die all the time 😢😢😢

@@vy6289 you had it removed and then later had a stroke ? Did surgery cause that stroke ?

@@AstariahFox Yes I have radiation for AVM removed and after 18 months I have side effects stroke my left hand and legs and I'm only 25 years old 😥😥😥

@@vy6289 doctors told me best option was to cut skull open . The radiation option is not a 100% fix So your side effects is permanent?