GAME-CHANGING treatment for ME/CFS, Long Covid patients? All about Berlin Cures 007

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Both ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) patients & Long Covid patients are excited about the upcoming Berlin Cures 007 treatment. Many believe this could be a game-changing/breakthrough treatment for patients with these conditions and one which could improve quality of life substantially (or better than that). BC007 is an infusion which uses an ‘aptamer’ drug in order to neutralise the specific functional autoantibodies that are causing symptoms in these illnesses. This is an example therefore of precision medicine and a research breakthrough that could help heal/improve patients with these illnesses. In this video, we talk about DNA aptamer drugs, how BC007 works for LC, what we know about it so far, how it cured four Long Covid patients and the phase II trial that is currently ongoing.
Timestamps
1:00 introduction
2:08 BC007
5:07 a cure?
7:20 Four LC patients recover post-drug
8:40 BC Progress
11:25 final thoughts
My name is Patrick Ussher and I am an ME/CFS patient. I have written a book on POTS and also about thirst in ME/CFS, POTS and Long Covid.
Personal website (including details about consultations service): www.patrickussher.com
My (free) book on thirst in ME/CFS, POTS, LC: www.themythofprimarypolydipsia.com
NB: This video is for educational purposes only - please always consult a doctor about any health issues or changes.
Links mentioned in this video:
www.celltrend.de
www.berlincures.com
LC patients experience post BC007 - www.fau.eu/2021/08/27/news/re...
Autoantibodies in ME/CFS correlate with symptom severity - pubmed.ncbi.nlm.nih.gov/34441...
Normalyte (most helpful supplement I've ever found for ME/CFS) - affiliate link: normalyte.com/?ref=ftveadx3

Опубликовано:

20 май 2024

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Комментарии : 30

@davidkohl8962 Месяц назад

A lot of people watching stage 2 clinical trials closely.. results soon. Fingers crossed

@denisebraisby4251 20 дней назад

I would have to have complete trust in this as the last time i took an experimental drug (covid vaccine) i had a huge crash and worsening of my condition that havent resolved

@me-cfs-strategiesforhealing 20 дней назад

I’m sorry to hear that Denise. It seems a common story in the me/cfs community unfortunately. You are right to be cautious

@lessons9745 Месяц назад

I wish I could recover .I wish everyone could recover or get much better . I wonder if this treatment will ever be avail in the USA

@me-cfs-strategiesforhealing Месяц назад

Likewise. And, while life has a habit of being disappointing, I think it highly likely BC will be available in the US

@eternalbattle1438 18 дней назад

Multiple doctors told me that Long Covid and ME/CFS are one and the same thing, and that anyone who says the opposite is basically total BS. In your opinion, as someone who suffers, do you think ME/CFS and Long Covid are the same disease? BTW, do you have a social media account? :)

@johnchase2148 Месяц назад

Better than pretending and treating falsely, which is cruel.

@MyFriendPeter Месяц назад

Thanks for the video, let's cross our fingers. The other problem of distinction between long COVID and ME/CFS is that it creates confusion to the severity of the illness with many people saying they have long COVID that is not as detrimental to health and would not be classed as ME/CFS. This muddies the waters and discredits the illness which further leads to lack of accurate awareness and therefore funding and treatment

@me-cfs-strategiesforhealing Месяц назад

I agree with you. I think post-Covid ME/CFS accounts for less than twenty percent of Long Covid patients according to some studies I read. I remember seeing in the Irish papers someone who ran in a marathon ‘despite his long Covid’!

@maricargarcia3074 17 дней назад

@@me-cfs-strategiesforhealingwhen it's is available I'm from Philippines.

@alias701 Месяц назад

Funcional Autoantibodies can indeed damage the body and organs. They bind for weeks and can burn out the cells. Long term organ damage is inevitable. We need a treatment for that mechanism soon. BC007 takes too long. Very severe patients die from this illness.

@me-cfs-strategiesforhealing Месяц назад

Thank you for bringing that to my attention - I’m always keen to learn if I’ve missed something. Where did you learn that please about FAABS burning out cells and causing long term organ damage? Yes, we badly need conventional treatments which can improve qualities of life. This illness can kill and the most severely affected in particular need treatments that can reduce their physiological burdens.

@hippyju1267 Месяц назад

What kind of antibodies are we speaking about? I mean... is there any blood analysys to detect them in order to confirm this terrible disease?

@me-cfs-strategiesforhealing Месяц назад

Yes, please check out my 'autoimmunity testing' video

@Gina-dn6xm Месяц назад

I have been diagnosed with chronic lyme ( late diagnosed) reactivated Epstein Barr, ME/CFS, and long covid. All I can say is long covid just made me worse and nothing changed with my ME/CFS.

@Vidis88 Месяц назад

Damn shame we still dont have access to this?

@me-cfs-strategiesforhealing Месяц назад

Yes I know. Things move slowly but two years is realistic for it

@Vidis88 Месяц назад

@@me-cfs-strategiesforhealing I found BC007, in phase 1. Another one from Australia Nace2i, also seem promising. But that one I belive will be more useful early on, folding back Ace2 receptors back out. Like, all doctors I,v spoken too in Sweden. No one even want to acknowledge the harm just the S-protein does. Cant say corruption but it shore feel that way at this stage.

@walk0188 Месяц назад

You talked about immunoabsirotion in this video. Is cost the main barrier to one trying such a treatment in the meantime? Do you have any video about that therapy or any thoughts on that option? Great video summary here! Thank you. I’ve been reading about BC007, but this was a great overview to share with others.

@me-cfs-strategiesforhealing Месяц назад

Thank you for the nice words about the video. Yes I have a couple of videos on immunoadsorption (check out ‘autoimmune treatment’ and ‘immunoadsorption patient experience’ videos). Also I have an interview with someone who did it. If cost is not a barrier, then it is worthwhile for anyone to consider it. I’d personally go for smaller filter (Diamed) to make it less taxing

@truemecfsuncensored1022 Месяц назад

My concern with this approach is 007 targets mecfs from the blood side and see’s mecfs as an illness. Rather than targeting mecfs from the cns side and treating it as an injury of the cns. As such a treatment like this will likely not alter the dna genetic mutation/injury with any real lasting result. 007 will likely work in much the same way pure saline works by creating short term neutralizing benefit. PS great video and I personally agree targeted treatments are key and look forward to seeing the test results. And wish this group and yourself much success. Stay safe.

@me-cfs-strategiesforhealing Месяц назад

Thank you for the kind words. I agree with your concerns. BC 007 is targeting a secondary dysfunction. Whether that leads to enough of an improvement for the rest of the body (including brain) to sort itself out is an open question. We'll see. (I really enjoy your channel by the way and enjoy your fresh perspective on all matters ME/CFS related.)