Ileostomy Reversal | 1 Week Post Op 

I would love an update! I am 6 days post-op from my reversal. I was diagnosed with UC and had my colon removed. I’m having good and bad days wondering if this was the right decision.

Yes please

Update video please. I'm 3 weeks out and still having to hang out in bathroom a good bit

@@vicjames2743 got you. Will have something up tomorrow or Saturday - plan for tomorrow evening.

How it all goes well, you’ll be back doing all of those things in no time!

How’ve you been feeling?

You are saying keeping the illestomy is good than reversed?

Just seeing this comment, hopefully everything went well for you. 🙏

Basically same for me. Mine took about 5-6 weeks to completely close and start to scar. Thank you, hope your recovery goes well 🙌🏽

I hope his surgery goes well, and praying it doesn’t return. 🙏 Good support any way you’re able is big. I went through mine alone, definitely would’ve made it easier just having someone to lean on mentally at times.

@@FishingWithGuero Thank you ❤

Which surgery?

I am 25 as well. 24 when I got Ileostomy, 20 when I was diagnosed. Glad you are doing well 🙏🏽 I may be considering some type of medication here soon due to UC symptoms returning.

Still having intense pressure feeling. Was diagnosed with pouchitis a few weeks ago but have since lost medical coverage so I haven’t been able to go back for a follow up since I’m still having pain.

Just starting my journey with same condition. Surgery scheduled for dec 25th

​@@michaelsmith935surgery on Christmas day? Man, that's rough. I hope it all goes well for you. There's quite a lengthy recovery period post op. I was in hospital for 11days and off work for 2months. Just keep your chin up and push through. The stoma reversal was nothing in comparison. 4days in hospital and I was walking about within an hour of the op. It's well worth having it done though. I'm now back to riding my mountain bike XC every evening and doing moderate mat work, all completely pain free. I feel like a new man. As for the scars, I wear them with pride. They show I've been through the wringer and made it through to the other side.

@@forlorndream1400 Christmas day is Mon 25th. However, I get your point. The day after is xmas is not much better. Thanks for the awesome feedback and encouragement. Life is extremely difficult at the moment.

Keep in mind my case of UC was extremely severe, while my issues have followed suite, majority of cases may not be like mine. For the most part I live fairly normal aside from the daily pain and struggles of "flare ups" throughout the day. Hope all works out for you!

So sorry to hear that! Hoping you feel better and are able to get a full reversal!

@@FishingWithGuero thanks just sucked i have to wear the bag longer and im fully connected but gotta trust the dr

Sounds similar to the pain I have. Mine is a sharp shooting pain but also feel like the muscles are spasming intensely. Always constant as well

Toilet breaks depends on what I eat. If I eat bad, I go more. Right now I’m down to about 3-4 times a days with a fairly strict diet. At first, you may be going quite a bit, but it’ll be ok. I was at 9-10 times a day for 7-8 months. Only thing you can really do is try foods and see what works and what doesn’t for you, a lot of the foods on the list if don’t eat, I am able to eat and Vice Versa. Exercise and diet are the main things that helped me. Water intake, adding a little bit of salt to the diet to help retain water, clean/lean low fiber foods (fiber makes you poop, less fiber less poop but not too little of fiber), and some sort of exercise I.e walking around your neighborhood, push ups/sit ups, anything to get the heart rate going and promoting recovery in the body to help the wounds heal.

Hope all goes well for you! My best advice is keep that strong mentality every moment afterwards!

@@FishingWithGuero thank you! 😓nervous. hope you are doing well.

How you doing now?

If you mean rash/burn around your bum I used desitin ointment after every bowl movement. I just put some on some toilet paper and spread it around (sounds kinda weird but it helped me). After my last surgery I didn’t lift weights for about 3 weeks. But I was waking on the treadmill as soon as I was able to walk comfortably. For me it was about a week or so.

Somebody give me something to not be scared about. The big hernia under the stoma, Ive had diarrhea for 10 days because I started drinking wine again. My cat died. My partner abuses me, and after a full year of skin healing from sepsis on my bum they are ready to reverse and mend the hernia. Please tell me what I a supposed to expect? Ive got no family support or friend support.

Are you ok now?

I'm 9 days post reversal. My doctor said absolutely no exercise except walking, for 2.5 months. Please be careful. You can end up needing more surgery to fix a hernia.

My best advice would just trying to stay as active as you can to promote healing in the body! Best wishes.

Oct 16 Shot 11 times Ileostomy reversal Jun 20th Pain Need tips badly Update: if you feel uncontrollable pain for more than 5 days I recommend going to the hospital ; After a few scans it was determined under my previously ostomy incision, my bowels were indeed strictured (nothing could flow through) and after a second laparotomy exploration, on July 1, everything was fixed

@@GTBFred God bless you

@@JulijanaKovacevic-n2j He does so much ! Thank you

At this present moment I’m dealing with minor ulcerative colitis like symptoms, as well as possible pouchitis. I won’t know for sure about the pouchitis until later next week. So far, it hasn’t been too terrible. I personally have great control over my bowels, my rectal muscles are working great. I do go pretty frequently (6-12 times a day depending how bad my flare up decides to be). Other than that it’s been pretty good. One thing I would highly suggest is absolutely staying away from anything even remotely spicy (it burns really really bad). I have a follow up video in the works right now, should be up in a few days. It will explain all the positive and negatives I personally experienced up to this point.

Ohh I didn’t realize you have a j pouch?

Mariah Ali yes I do. Reversal requires jpouch

How are you now @mariahali8121

@@lekshmymoney6970 I experienced incontinence for the first few months or so, but it was only in my sleep. While awake I was ok, just super painful when I needed to use the restroom (still this way), but total loss of control only came about while I was sleeping. As far as recovery, it’s different for everyone unfortunately. There’s no clear cut healing time. For me, I’m still “healing” even though I’m diagnosed chrons disease with pouchitis now. It does get better, my advice would be eat as healthy as you can, rest when you can, and try to pay close attention to when you eat and what causes pain.

There’s pros and cons to either or. Just depends on your perspective of the Ileostomy. I personally didn’t like looking at it, dealing with it, smelling it, waking up in poop, etc. So, for me, I’d rather deal with the pain, inflammation, limited diet, sleepless nights, etc than look at the Ileostomy bag to be completely honest.

Hi Steven, thank you for such a quick response. I would be of the same mind set as yourself regarding getting a J-pouch. I was constantly told by my GI that I'll get my life back if I opted to get an ileostomy/J-Pouch. I've been miserable since I got my ileostomy, I feel like I traded one problem (UC symptoms) for a whole set of different problems that come with an ileostomy, now I'm close to getting J-Pouch formed and to be honest the feedback from ppl with a j-pouch does not sound much better. Thank again for your feedback, take care and God bless.

@@michaelquinn5064 no worries. What I was told leasing up to my decision was “you won’t know until you try it… and you can always go back” I think if your doctor feels comfortable with the risk to reward ratio, give it a shot.

Sure, ask away

Are you in the U.S.? If you were let go strictly due to your health issues, that’s illegal and I’d seek out legal representation if I were you. Aside from that, taking it one day at a time is your best bet. Stay mentally strong, the body follows the mind. You got this 💪

Hi, Anton here. I'm from South Africa.

@@antongouws8664 I’m not familiar with workers rights in South Africa sorry

@@ronnatobin3758 for me yes. The bag was difficult to work around, made work harder, while it did help me feel a lot better my quality of life isn’t bad enough now to want to go back to the bag and it’s allowed me to continue my physically demanding job with minimal issues.

I’m still dealing with cuffitis issues. Lack of blood circulation in the rectal region causes significant pain. Severity changes day to day and even hour to hour for me, but for the most part I’ve just learned to ignore the pain as best as I can since there’s nothing that can be done for circulation problems. Also to clarify circulation issues can come from scar tissue build up, which everyone’s body builds scar tissue differently so my pain may not be someone else’s pain is what I’ve come to realize.

I personally don’t eat onions because they make me feel how you just described. I also don’t eat very much fiber, I have no problems going. I’m down to about 4-5 times a day when I stick to my diet. When I deviate from my diet that number rises to 6-8 times a day. My diet is clean and lean for the most part.

@@FishingWithGuero thanks for replying. My nurse came in today to dress the wound with gauze. In France where I live the nurse will come everyday until the wound has completely closed. We have excellent treatment here. She told me not to eat anything that produce gas , so the onions were a huge mistake. Another’s friend who had a similar operation to me told me to stay completely off fibre and my poop should return to normal in a couple of weeks. Looks like you’re have a far worse time than me I’m so Sorry to hear that

Unfortunately no

@@FishingWithGuero got me worried, mines in 3 weeks

Everyone is different man. From what I’ve been told the post op issues I’ve been having are fairly rare and don’t effect most people.

@@hijeans1103 don’t be nervous keep positive I wouldn’t listen to all these stories they don’t help you I never had pain I was lucky my reversell was 8 months after and I was brilliant Judy keep positive and good luck 🤞

​@@doragibbons29779:55 9:55

Thank tou