In himself, dad is extremely brave and positive, despite his current condition. mum is the same. As well as a full time job she somehow manages to care for my father. They're both extremely strong and amazing. I'm very sorry to hear about your brother... How old was he when he was diagnosed with MND? It's a uphill struggle, but I'm sure your brother will have been extremely proud to have you I hope you are your family are coping okay in such horrible times... Thanks for the kind words :) xxx
how is your dad coping ? and you and your mum ? we have been through this awful monster of disease. my lovely brother lived with mnd for 2 years and 8 months. everyday was precious but a big challange. steve said he was living with mnd not dying from it, that was the only way we could get through... sending lots of love to you and your family xxxxx
he would have been 56 this thursday 20th june his daughter was 9 on fathers day he has a son from a previous marrage he is 27 and steve would be a grandad if he was here his sons girlfriend had a baby boy in february steve knew that he would miss the baby but he was so happy for his son, they gave him steven as a middle name xxxx i am off to work now, i will be in touch with you, your family sounds so lovely xxxxxxx lots of love xxx
its been hard, how bad is your dad ,and how old is he, have you got brothers or sisters. your dad must be very proud of you too. we think of steve as our hero. we like to think of him watching over us, and have had so many signs that he is xxx steve could not talk towards the end, and he used his litewriter every day.,he used his mask all night for a very long time, and then during the day later on in his fight with mnd, you sound amazing for your young age, you are a credit to your parents xx
hi ben wondering how you are all doing ? i am thinking of you all every day. I know that your dad must be very bad now, as you are not putting anything on the u tube,and my husbands g.mail. you will get threw , take care lots of love debbie xxxxxxx
Hey Debbie I hope youre well. Sorry I wasn't able to reply sooner it's been a bit hectic at home recently but I'm aiming to post a new vid in the next couple of days if all goes well :) also thank you for your previous comment that meant a lot :) Steve must have been so proud of all of you, especially considering how strong you all kept through tough times. Dad is 53. We're getting him igaze soon to keep him busy. Did Steve use it? I hope you're all well, wishing you all the best love Ben :) xxx
That must have been so hard on all the family... MND is such a horrible disease. I bet his son and daughter are so proud of him though and think of him every single day, he was taken too soon but he sounds like a lovely guy. Very sorry for your loss, I'm sure he's looking down on you all and smiling every day though. Stay strong and I wish you and your family all the best :) xxx
