My Battle Against My Sickness | Raynaud's Disease

Let's ask Shogo | Your Japanese friend in Kyoto

Подписаться 1,8 млн

Просмотров 272 тыс.

50% 1

I have severe symptoms at the level of only about one in a million people. I have been fighting the disease for about 8 years now but I will never give up. I will try every possible treatment this year and I will certainly be cured. Thank you so much for your support everyone.
●My old video about my sickness:
• Something I Should Hav...
▼Please support me through Ko-fi (a donation platform like Patreon)▼
ko-fi.com/letsaskshogo
▼Let's ask Shogo Merchandise Shop▼
Where you can buy t-shirts, hoodies, mugs, stickers, etc. of cute Ukiyoe animal characters and logos of Let’s ask Shogo:
suzuri.jp/lets_ask_shogo
▼The BEST online katana shop for martial arts (Iaido, Kendo, etc.): Tozando▼
tozandoshop.com/letsaskshogo
Everything I use for my katana training is bought at this shop! I still use the first training katana I bought in 2016, and it is still in good shape!
▼The recommended online katana shop for decorations and cosplay: Mini Katana▼
minikatana.com/SHOGO
*Get 15% OFF off all their products by purchasing through my affiliate link
▼Where you can meet me in Kyoto, Japan | Yushinkan Samurai Experience with Modern-day Musashi▼
A 90-minute experience in Japan where beginners can learn how to wield, draw, sheath, and swing the katana from the modern-day Musashi! I, Shogo, will be your interpreter to lead you into the wonderful world of samurai martial arts!
Make your reservation here: www.airbnb.com/experiences/45...
A video of me visiting this experience: • Chopping Up Mats with ...
▼Who is Shogo? What is this channel about?▼
• Shogo’s Self Introduct...
▼Related videos on this channel▼
-We Decided to Cut the Balloon with a Katana | Is the Third Baby a Boy or a Girl?
• We Decided to Cut the ...
-Something I Should Have Told You A Long Time Ago
• Something I Should Hav...
-I Never Thought I'd Cry
• I Never Thought I'd Cry
▼MY DREAM▼
• The "TRUE REASON" why ...
“To make every Japan lovers’ dream come true, by making Japan a more secure, comfortable, and safer place for everyone to visit, study, and live in”
I will be using the profit I gain from this channel at restaurants, hotels, and cultural facilities in Kyoto to introduce them. The more you watch the videos on this channel, Kyoto and Japan will become a more exciting place, and you can support your own and others’ dreams in the future even more.
▼Join our Membership▼
/ @letsaskshogo
The ticket to the front row seats to Shogo's rapid adventure to make his dream come true! Through the videos, lives, and zoom chats your ideas and opinions will be adopted for Shogo to make the right decisions for his challenges!
●Membership benefits
-Limited behind-the-scene videos
-Weekly Zoom call or live stream
-Priority reply to comments
▼Sub-channel: “Shogo’s Podcast”▼
/ @shogospodcast
▼Instagram▼
/ lets_ask_shogo
*Please ask me questions through the DM here!（⚠️I do not use e-mail）
♪Music♪
おとわび
otowabi.com/category/material...
トーマス大森音楽工房
/ @fm_thomasoomori
ぽるぽるMusic
/ @music-qx3gy
しゃろう Sharou
/ sharou
MOMIZism MUSiC
music.storyinvention.com/
♪Sound effects♪
効果音ラボ
soundeffect-lab.info/
♪Pictures♪
かわいいフリー素材屋いらすとや
www.irasutoya.com/
#raynaudsdisease #raynaud #raynauds #sickness

Развлечения

Опубликовано:

31 май 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 1,1 тыс.

@atomicphilosopher6143 Год назад

I'm not native to Japan, but I've lived here long enough to know something about the medical system. If you need that better medicine, here's my recommendation: don't go to the big hospitals - find a small, private clinic (like one of those places with just one, maybe two doctors) with a doctor who doesn't mind prescribing it. A lot of times, you can find one of these guys who has studied or even practiced in the U.S. and they're more open to giving you the medicine you need. I went to two big hospitals not far from you myself for my own thing and they did practically nothing for me. You know who ended up giving me the medicine that put me into remission? My freaking dentist. One old man who had seen the condition before and knew what was needed. It's all about those connections and the big hospitals just have too many people worried about losing their job by prescribing more than the bare minimum.

@bernhardvonbarret1729 Год назад

I had luck I Landed with a Young Doctor, Female that was more understading of my situation and gave me better medicines and even took my input into account, but yeah as you said Old Doctors arent too cooperative.

@Le-flan Год назад

Thank you so much I have a friend who has raynauds and this really helped

@HAYAOLEONE Год назад

Are you taking 'hormone replacement' drugs?

@Pressplay_Media_EU Год назад

Hey Atomic, I'm interested in how a dentist could have possibly put a condition like this into remission?? And other hospitals are also incompetent still, have the means to help you, but not the knowledge or the will even .. some staff are clueless still

@jekblom123 Год назад

Like Takemi from Persona 5??

@Siseja Год назад

I'm a medical student. I'm so sorry your doctors have failed you like that! You don't just have Raynaud's syndrome but straight up Raynaud's Necrosis, and any form of Necrosis needs to be taken extremely seriously! Here is what insight I have as a medical student: Niacin is also vitamin B3, i don't see why you shouldn't be able to get it in Japan. Rather than using the word 'Cure' i recommend using the word 'treatment'. Cure implies that it will fix you completely, so it is recommended that it is used very carefully in medical context. Since modern medicine rarely works that way, it is most often associated with pseudomedicine and scams, I'm afraid. The benefits of going to the onsen can also be gained by taking a very hot bath at home. Also take great liberty with hand warmers. Oxygen room helps by providing oxygen to deoxygenated tissues in your hands which were otherwise not getting any due to the ischaemia caused by Reynolds. Ideally you should be prescribed a vasodilator

@daarco2 Год назад

Feels as if a vasodialator should be the first "go to" for the doctors, wonders why this have not happend yet (or has it)?

@adiwardana1683 Год назад

@@daarco2 we didn't know his entire medical history, there might be a condition that didn't allow for vasodilator, i.e. hypotension.

@carlfromaccounting1112 Год назад

While I have no experience with medicine, I have read that chicken breast contains a lot of niacin/vitamin b3, twice as much as chicken thigh I believe. Salmon and tuna also have a lot of it, so eating more of those foods could be helpful.

@Ultimate_Kars Год назад

Also if he has snoring problems (by tissue softening) he may buy pressured breather to gain better amounts of oxygen at nights. It also relief heart a little bit and increase pumping power.

@spiwolf6998 Год назад

@@carlfromaccounting1112 Please don't respond unless you have actual medical experience. This isn't Facebook. 🤦‍♀️

@malenalucero6473 Год назад

The worst part of having any kind of disease is not getting proper care and having to struggle to find the right doctor.

@Kingsman4101 Год назад

amen to this

@TheJadeFist Год назад

Doctors aren't magicians and don't always know that much more than average people, and doesn't care as much about you as you would hope. You should always make your own decisions, try to be informed of course and listen to the doctor, but ultimately it's your life and your health that are at stake.

@malenalucero6473 Год назад

@@TheJadeFist Proper medical care is a human right. Doctors are professionals and if they don't know what to do to help you, they should recommend someone who can. And of course they know more than average people, I don't understand why anyone would say otherwise. It's not like anyone can practice medicine.

@TheJadeFist Год назад

@@malenalucero6473 All I'm saying is don't place blind faith in some one who may not have your best interest in mind. You have to make your own choices sometimes because you'll be the one to suffer the consequences.

@Dice-Z Год назад

@@TheJadeFist Even if they don't care, it is not only their job, but their DUTY from a moral, social, economical and legal perspective. That some fail to care when they could and should, is not excusable or acceptable by any mean. No argument. It's something that needs to change regardless of what you have to say about the present. There's a difference between "Doctors aren't perfect", and "doctors are incompetent", and the ratio is not balanced in a way that is excusable. When i see 7 veteran cardiologists seing a patient back to back over the span of a couple months, all giving WILDLY different causes, exam results, diagnoses, dangerous treatments & surgeries, and prognosis, quite a few of each polar opposites and drastically counterindicating the other, there is an issue. Not to mention they are happy to get a couple hundred bucks off of you each time.

@brightonic Год назад

Shogo getting shafted by not getting the right medicine is genuinely heartbreaking.

@Dice-Z Год назад

Yep. As heartbreaking as the fact that it's a worldwide common occurence. I'm sorry some doctors get overworked, but they need to do better, as do the patients, governments, managers, administrative workers, medical schools, and other people/places responsible for their budget, training, staffing, "capital goods" and efficient workflow. They are doctors, not stand up comedians, it's people's livelihood, happiness and ability to function that are at stake. Dead people and sick people don't keep a country prosperous, and eugenics don't work.

@freewithnature Год назад

@@Dice-Z I always tell doctors/nurses/admin people I appreciate them and thank you. I hope it helps them know their hard work is part of a bigger picture, and is appreciated.

@juliebbb6031 Год назад

I have been living with Raynauds for 50 years now. I’m so lucky it is a mild case so I have never lost any skin. The number one rule is keep your torso warm. Number two is control moisture with wicking socks (hiking socks) and full fleece slippers ( I get mine from New Zealand) you might consider silk long underwear under your traditional kimono. Best of luck

@MaDmanex100 Год назад

Excellent tips, i copied it so he can see it easier. Hopefully he sees it as this knowledge served you well.

@ChilledPsycho Год назад

@@MaDmanex100 Happy to see it reached him, he is my favorite youtuber thats off the path from gaming. Literally the only other thing I get on here for.

@CorinnePritchard Год назад

This kind of necrosis (tissue death) is REALLY rare in primary raynauds - that is raynauds without any other associated conditions. This could be a BIG sign that you have an underlying autoimmune condition that needs treating - so your fingers can benefit from that treatment. I hope you have had as many tests as possible for these autoimmune diseases so you can get to the bottom of why the raynauds is so bad. If the hospitals have let you down (I understand medicine in Japan is not as forceful in pursuing diagnoses) then if there are private clinics that are faster and more invested in people's health, use them. I have an autoimmune condition myself so I understand how hard it can be to get them diagnosed and treated, but you really need to explore this avenue if you haven't already.

@ghostratsarah Год назад

A sneaky one is caused by wheat, and its presentation can even be a red flag before other autoimmune diseases show up in tests. Besides celiac, some people have an autoimmune reaction the Amylase-Tripsin Inhibitors, found in the same grains. But it does not show up on tests. It's often brushed off as "gluten intolerance" if you bring it up to people, so it's very difficult to get it taken seriously or get others to consider they may have it. Thing's a f***ng b***ch to deal with, but it isn't deadly. Can cause permanent damage to organs and joints if you don't cut out wheat completely or do it in time, but for the most part it will heal, and won't put your life at risk in the way celiac does. But it absolutely can cause his symptoms, I started having it in my toes. I always have Raynaud's in my feet and hands, because of a different autoimmune condition, but it was starting to actually completely cut off my toes at one point. I stopped being able to feel my right big toe.

@tikusblue Год назад

@@ghostratsarah I also had raynaud's for years, that was caused by gluten. It disappeared unexpectedly when on a strict GF diet. Mine was not severe like Shogo's and was only an issue in chilly weather.

@mayrahemmerechts5867 Год назад

This comment should be pinned!

@WormyLeWorm Год назад

Definitely. It should not be underestimated how even the seemingly small things can cause negative autoimmune responses that can cause much more severe issues. In my experience starting at the very basics of basics, like with diet, saves so many people. Very strict elimination diet with slow reincorporation of other foods to see if those exasperate any symptoms, and doing everything else to minimize inflammation. Even supposedly "healthy" things, that most people can tolerate, can often cause inflammation in certain people which can lead to all sorts of diseases.

@quietstar09silver50 Год назад

Those looks like arterial wounds. My Raynaud's is mild (though I have several other autoimmune diseases). Raynaud's is common in Canada. I wish I could have you assessed here. I really feel our specialists could help you. Medication is necessary when you are chronically ill. We have to manage the side effects. If you are not comfortable with medication, the best thing you can do is follow an anti-inflammatory diet. It's up to you though. I'm very happy the Hyperbaric Oxygen Therapy is working for you. It's a fantastic wound care therapy. Thank you for bringing awareness to this autoimmune condition. Hoping your pain stays manageable and you find a specialist who can help. Chronic pain is awful. I've been dealing with it for 30+ years and it's one of the reasons I had to quit nursing.

@kh1046 Год назад

OH wow! I didn't know it was common here too! Question: Is yours affected more by altitude or humidity? Do you know what parts of the country are more affected by it?

@dimitrischou562 Год назад

100% i got it in remission no flare ups for 2 years with low inflamation diet also helped with my eczema and atopic dermatitis.but i have to be really strict otherwise i relapse the moment i eat anything inflammatory.

@zucchiniboatcaptain709 Год назад

Another Canadian with Reynaud's here. I discovered by accident that magnesium citrate works wonders for me. My fingers and toes are pink and warm to the touch now, unless I'm exposed to real cold, like outdoors in the Autumn. One capsule a day does the job, and no side effects.

@zzBaBzz Год назад

1) no such thing as "autoimmune" diseases. It's gobbledygook for vaxx injury and=or an extremely toxic diet (ex. Lupus). 2) No, the "specialists" will throw toxic "medication" at you, they will never even TRY to find the cause, nor the cure 3) there are plenty of people who, just with the carnivore diet alone, got rid of this very same thing. But in much more severe cases, there are protocols in addition to that that can help. The body can heal most anything :-)

@quietstar09silver50 Год назад

@@zzBaBzz Assuming you aren't a bot but an unwell individual I will reply. A lot of individuals who speak like you are often those who have anxiety, schizoaffective personality disorder or schizophrenia and refuse to take their medication. Please take your medication to treat your paranoia, fear and delusional conspiracy theorist behaviours. Take you medication before you harm yourself or others.

@Alaegalana Год назад

Shogo, I lost a fingertip to Reynaud's, which is what led to my diagnosis. I've found Norphedipine/amlodipine to be a GREAT help. Fingertip damage WILL grow back over time, but I haven't had a knuckle sore or anything that won't heal in years. The only down side is that in the summer, you might have swollen feet. I only take meds during the winter because of this. My Reynauds is actually caused by an autoimmune disorder, and I have lung damage, so I've been told I may have to do the pressure chamber treatments in the future. Without a medicine to resolve it, I really suggest taking a VERY hot bath every night, and making sure you're COMPLETELY warm when you sleep, which will help the damage from the cold day to heal at night. As a few other people mentioned, raising your core temperature when you get that cold/stiff zombie feeling in your fingers (and they turn white or purple) will really help. That said, I know you want to leave Japan in the future, so maybe aim for somewhere where it doesn't get very cold. That will be the biggest help if you can't get a medication to control the symptoms while you're in Japan.

@elainepeters8771 Год назад

Amlodopine in low dose has helped me as well. It has been a game changer. I can even do some outdoor sports in winter without extreme pain.

@lburrsshinyhunts2253 Год назад

Yeah we were always taught calcium channel blockers like nifedipine I believe

@DulceN Год назад

Raynaud’s Syndrome IS an actual autoimmune disorder, not caused by one. Autoimmune disorders are rarely found alone, there are usually several and the causes are still up for debate. Some insist that there is a genetic component that gets triggered, while others say that they can be caused by years of stress, with no familial history of these disorders. I’m proof of the latter.

@Lil-Dragon Год назад

As someone with raynauds, I wish you the best of luck finding a way to manage it. I've had it undiagnosed until recently for years. It's an unpleasant, to put it very mildly, condition, and I hope eventually we can have more effective treatment for it. And it's nice you're sharing your situation as I know so few people open to even mentioning the condition. Especially as I'm trying to figure out how I'm going to live with it for a few decades as I'm only in my 20s.

@LittletriniWeeb Год назад

The oxygen room (hyperbaric oxygen) is used by medical professionals for non-healing wounds and in my experience works MIRACLES. Takes a lots of visits though

@InquisitorAstelon Год назад

I had never heard of this before. As someone that works in IT for a living and paints for a hobby, not being able to use my fingers is a truly a horrifying thought... I'm so sorry you're going through this. All the luck to you, Shogo. I hope you recover.

@abluerdonjuan Год назад

Thank you for sharing, Shogo. As a fellow tea ceremony student it made me realize I have been taking my hands for granted. I will host my guests with your spirit in mind. You are a strong samurai Shogo. I will pray for your recovery 🍵🙏🏻

@Meladjusted Год назад

Niacin is just another name for vitamin B3, which you should be able to get in Japan.

@michiganwannarbor3255 Год назад

My mom had this before she passed away. She spent years and traveled all over the world seeking treatment. She never really found relief. Hopefully you can go get some help. keep you spirit high.

@Miss_Wonderful1 Год назад

I've heard of hyperbaric chambers but only in relation to treatment for decompression illness. After watching your video (yes, it's very informative) I looked it up and it's an excellent treatment for wounds or gangrene. I'm so happy you found ways to feel better and improve your quality of life. Bless you, Shogo.

@bernhardvonbarret1729 Год назад

XD, I read Hyperbolic Chamber and Imagine Shogo Training to beat Someone XD. Kinda like Goku...

@HannaBenana Год назад

In the 90s they used it for a lot of illnesses. My mother had treatments for her Multiple Sclerosis and still talks about how it was one of the most helpful therapies, but for some reason it seems like the excitement behind hyperbaric therapy died off in the early 2000s? My mom was unable to find a new facility or any Dr that would prescribe it.

@Miss_Wonderful1 Год назад

@@HannaBenanaIn my country (Italy) they've always been very underrated. There are only 65 of them all over the country and some are available only in summer, for divers. I don't know why, though...

@fixpacifica Год назад

Michael Jackson used to have an oxygen chamber.

@dnelson483 Год назад

I'm not at all familiar with the health service in Japan, but in Canada it's common for the elderly to require additional oxygen due to some common chronic illnesses, and we can get portable oxygen tanks for travel out of the house, and an oxygen concentrator for at home. If these are available in Japan for a reasonable price, they may be cheaper than the oxygen room since they don't require a special room, but you will probably want to discuss it with your doctor in case there are negative effects.

@vietnamesebeauties Год назад

We Vietnamese university RU-vid team shall continue to pray for Shogo's health & family 🙏🙏 Thank you for sharing Japanese culture always 🌹

@BotanRice Год назад

Of course! We hope he gets super well! 🥰

@unknownentity6275 Год назад

For a sec I thought u said we will pray for shogo's death💀💀

@vietnamesebeauties Год назад

@@BotanRice let's continue to pray hard for Shogo 🙏🙏

@vietnamesebeauties Год назад

@@unknownentity6275 Shogo is not our enemies, why would we do that? 🤔🤔

@tsodergrenbaar Год назад

I am sorry the medicine they gave you caused so many problems, but I am glad you have attempted other things. My mother suffers from psoriatic arthritis which has caused deformation in her fingers and actual bone loss. I have seen her struggling to use her hands and do the things she wishes to do. I pray that things get better and you find further relief. I am rooting for you.

@bernhardvonbarret1729 Год назад

Doing Autophagy or Fasting for 3 to be a bit more empirical since Autophagy is the process the body undergoes when it does not has calorie intake for certain periods of time,anyea it can help in Arthritis since it is a Immune System Disease..

@soonersciencenerd383 Год назад

check for hidden food allergies.

@charaznable2859 Год назад

Hope your mother and shogi do well in their health.

@bernhardvonbarret1729 Год назад

@@charaznable2859 Shogo, Not Shogi. he is no Game XD. I'm Baffled that the the Red Comet Made such Mistake...

@charaznable2859 Год назад

@@bernhardvonbarret1729 this new autotranslate is not red thus meaning its 3x slower

@OurEnemyScalion Год назад

I have Reynauds syndrome in conjunction with SLE. I had NO idea it could get like this though. I’m so sorry you’re going through that and I wish you can find a treatment that works for you! Best of luck

@senatuspopulusqueromanus2082 Год назад

Only thing I fear to loose more than fingers are eyes, I wish you well and to recover as fast as possible

@luas551 Год назад

I would like Shogo to go to Sao Paulo, Brazil, to analyze the difference between the Japanese Culture there and main land Japan. it is said that São Paulo has the largest Japanese community outside Japan. Also the weather is warmer there I think it would help him to recover

@accie. Год назад

on that note san fransisco has a huge japanese population as well as hawaii and are both some warm places

@tikimillie Год назад

Dont send him to brazil He’s not going fo brazil 😭

@weyline2620 Год назад

@@tikimillie if he goes to brazil hes getting berraded 💀💀(im half brazilian)

@HansLemurson Год назад

@@accie. Did you just call San Francisco a "warm place"? "The coldest winter I ever spent was a summer in San Francisco." -- Mark Twain

@synthraofficial5366 Год назад

@@HansLemurson ... Do you have any idea how long it's been since Mark Twain said that and how much the climate has changed. Yes, it's absolutely hot there. San Francisco is cooler than a lot of California, but it's still warm.

@sparten9900 Год назад

The way you handle yourself despite your condition is really inspiring and really respectable

@msaret4384 Год назад

Keep fighting the illness! As a martial artist for almost 50 years, my diagnosis with MS 24 years ago was a blow. I was begin to train in Iado and was doing well with the kata that begin in seiza. Since then, my legs have progressively gotten worse, as is the nature of the disease. Therefore, getting in and out of seize is not happening! I still train daily at my dojo, but my movements are limited. But, it is better than letting the condition own me!

@rolandgdean Год назад

Niacin, a type of Vitamin B commonly found in peanuts naturally, helps with blood flow A LOT...it's actually recommended for treating erectile dysfunction as well because of its effectiveness. Blackberries and cayenne peppers also help in a similar way. I have heart issues so I have cayenne pepper on almost everything I eat now. The "Oxygen Room" you're using is ALSO a VERY effective treatment for MANY things. It's called a "hyperbaric chamber" and many celebrities and wealthy people own personal units and spend a lot of time in them because they are KNOWN to help with MANY issues and sicknesses and are rumored to even prolong life and youth.

@garryferrington811 Год назад

Niacin really helped me with my cholesterol levels.

@rolandgdean Год назад

@@davidsonwaas5745 thanks

@mikehunt2162 Месяц назад

Useful information--thank you!

@robynfuller3988 Год назад

I'd never heard of this condition until now. I really hope you find the right doctor who listens and prescribes something that actually helps you. Prayer and best wishes for you!

@BeneathAcacia Год назад

Much love and respect for being transparent about something you weren’t sure how people were going to react. You deserve proper treatment and attention and I’m sorry it has been difficult.

@sonyalindee8676 Год назад

The Mayo Clinic is the best of the best. If you can go to the website and request an appointment. You might have to request a zoom appointment. If you can’t travel don’t give up talk to the hospital liaison for help with international patients.

@dumpsterDeity Год назад

You're so strong, Shogo.

@brendanmatelan2129 Год назад

I feel so terrible for you Shogo. I can only imagine how this effects your life everyday, as well as Harumi and children. I hope you will be able to find help for your condition and get better. Take care

@JasonX00 Год назад

Shogo, love and prayers, mate 🙏 Hoping you find relief and treatment that works.

@myeramimclerie7869 Год назад

I'm happy you're sharing an illness that is impacted by temperature. I am very sensitive to temperatures as well (so called cold-allergy and skin rashes on my neck from wearing too hot clothes on this particular spot, aka turtle neck outfits and scarfs). Your story helps me as well, especially on my journey of finding the cause to my heat rashes... Nice to know temperature does not only influence me 😅

@Ghoelix Год назад

I am in no way a doctor, but my girlfriend has the same issue, a short walk on too cold a day would give her a painful rash. A friend of hers having the same issue suggested taking over the counter allergy medicine daily, she takes claritin daily now ( since it's non-drowsy ) and hasn't had the problem for a long time. We even got to enjoy some walks in the snow.

@shinytoblerown5008 Год назад

Living with chronic illness really is a full-time job. Whether you "win" or "lose" against your sickness, you're still a valuable person Shogo! We support you!

@ripplemochi Год назад

I have a very mild case of reynauds, i wasn't even aware it could get this bad. i hope youre able to find the treatment you need and can get back to your way of living

@OrochiJr97 Год назад

Sorry to hear about that Shogo. I hope your health gets much better!

@zenith4919 Год назад

small thing, but in english, a cure is something that can be done to permanently remove a condition. the word you are looking for is treatment, which is something that can be done repeatedly to alleviate a condition (can be medicine or an exercise)

@HeShoeTooBig Год назад

When my mom was sick in the hospital (diabetes) they had her go to the oxygen room to recover after a surgery. And the oxygen room did wonders for her. It's like she was healing much much faster and was able to recover and come home sooner. That was over 10 years ago. I believe this will be a key component for your recovery.

@FruitSalad253 Год назад

Thanks so much for sharing! If you ever need to take a break from video making, please let us know how we can support your channel in the meantime. We're gonna stay just as determined as you!

@Kumahachi8 Год назад

If niacin is working for you, definitely try to eat more things with folic acid/folate in them, like green leafy vegetables, eggs, and foods that have been fortified with it. The folic acid/folate will help you to absorb more of the niacin. Also, a friend of mine has this disease and he found that reducing the amount of caffeine he took (so, reducing how much tea, coffee and chocolate, etc. that he consumes) helped him a lot.

@glenndavidtorres Год назад

Raynaud's Disease is a bothering sickness. I once had a staff who always have band aids on her fingers and I asked her why. She said her fingers are always have wounds, without her doing anything. Found out it was Raynaud's disease. I have no news about her now. I hope she gets better and you as well.

@Allthetube01 Год назад

You have the right attitude, so you will find the answers you need to get better. All my best wishes for a healthy 2023 Shogo San!

@deplorablepiratecaptaingunberd Год назад

L-arginine 4000mg daily. It's a vasodilator and totally safe. I take it working out. It's just an amino acid and found in different foods.

@fapui560 Год назад

Dear Shogo keep fighting! Hope your health keeps improving with these new treatments ❤❤❤❤

@HS-lv3is Год назад

That's interesting you are taking a holistic approach to improve your condition. Wishing you the best in maintaining your health

@MossyBear Год назад

I have Reynaud's syndrome too! I think that's why this video was recommended to me. It effects my toes, which also have had those spots of rotting tissue like your hands. I have been taking amlodipine, and thankfully it's worked well for me the past few years. It does make me dizzy, so I have to take it before bed, and be sure to stand up slowly if I need to be up during the night. I also have to manage the cold by wearing extra layers during the winter. I hope you're able to find relief through the cures you're trying!

@AlCloutier Год назад

I have a vascular condition in my right leg as a result of a bad accident. It is not easy, but I try to find ways to work around it. My heart goes out to you. Sending you much ALOHA.

@MrBatman19833 Год назад

I have Raynauds on my fingers, which caused me to loose the tip of one of my fingers. Very painful and horrible. I really hope that you get some relief and comfort soon.

@ludwigtheholyblade8862 Год назад

As a fellow sufferer, you have my explict condolences. I seen you are thinking of moving. They say moving to somewhere that doesn't experience cold winter months is the best thing we can do. For me that would be somewhere like Florida/Texas. I don't know much about Japan's weather patterns, but I'd suggest moving as close the equator as possible (which is an option I'm sure you've already weighed). I hope your condition gets better, and I hope we can both one day be rid of this disease. 🤞

@DembaiVT Год назад

I would recommend California and Nevada too. Politics in the US is changing. It may not be safe for landed immigrants in Texas or Florida.

@Amy_the_Lizard Год назад

I don't have this condition, but I do get cold triggered hives. I'm from Texas originally, and I never even knew I had this condition because it flared up so rarely that I never even made the connection until I moved to Kansas, where the winters are colder for school and had to walk to classes. When I go home for winter break, it goes away, so for my issue a warmer climate does help, though I'm hesitant to make any statements about other conditions.

@ryand.3858 Год назад

@@DembaiVT as a Floridian I can assure you that he would be be perfectly safe. Frankly people are moving to FL/TX more than ever to seek out a better standard of living. CA is a beautiful state but to say their local government is troubled is an understatement.

@sophiesong8937 Год назад

Australia (but north of victoria) has a very mild winter)

@biggiecheez6879 Год назад

@@ryand.3858 Depends on where you live really, some places in Florida are dangerous and Texas does have a higher homicide rate, but overall as long as you do your research all those states are fine

@Leddemo Год назад

A friend posted a link the other day on FB about this, and I realized it actually had a name!!! Thankfully mine isn't that bad, but it's still annoying. Also nice to know it's a legitimate medical condition and I'm not just a wimp like I was called in High School. I hope things get better!

@kisslena Год назад

I’m so sorry that you have to deal with Raynaud Syndrome. Prayers of Healing and Restoration to full health.

@Thatrandomohiouser Год назад

I too have reynauds syndrome that has been passed down to me. Thankfully I live in Florida where the temperature never drops below 32 degrees and is regularly 80 degrees. I hope you get better soon!!!

@dcninja9816 Год назад

Keep fighting shogo

@Khae. Год назад

I wish you the best of luck! I was mortified to hear about the medicine making things worse for you, but very happy to hear that you found something that helps. Very surprised to hear that the doctors seem to not be interested in helping you, I wonder what that's about.

@SeleneMarilyn Год назад

I myself was diagnosed with Raynaud's about three years ago, and though mine is more mild compared to yours, it's unbelievably uncomfortable and even painful. Even touching ice can trigger an episode. I want to study abroad in Japan, but one of my biggest concerns was the cold weather. I truly hope you can find the treatment you need, and I feel your pain. Much luck to you. 頑張ってね！！

@zdog291 Год назад

Shogo, thank you so much for doing this, I appreciate you being so open and honest about your disease and trials and tribulations. I feel sometimes people are either too embarrassed or private in their daily life-struggles to share them with others, being open about things I think really does help as it allows people to support you and other to appreciate what they are taking for granted in life. P. S. You probably already know this but just as a reminder in English the verb we usually use for medicine is "to take" I know in Japanese people usually use the same verb as "to drink" but in English it's different. e.g. Ever since I've been taking this medicine, or I have been taking this medicine for 3 weeks now

@jlastre Год назад

I’ve commented on your Raynauds on other videos. While I don’t have it yet (and hope not too) I have lupus. One in three people with lupus have Raynauds. Some are diagnosed with Raynauds *before* they are diagnosed with Raynauds. Also I was undiagnosed with lupus for a several years. My advice, inasmuch as doctors, is to leave them as soon as you feel they are inadequate. Go find new ones. Don’t even think twice about it.

@ericatinyo01 Год назад

Speedy recovery 🙏

@lukee-af5931 Год назад

Best of luck with your struggle Shogo!!!

@TheMessyDeskxyz Год назад

Maybe heading to somewhere warm during winter (since you did mention you want to move overseas) would be a workaround too!

@enjolireyes643 Год назад

Awesome to see you sharing how you are trying to fight Raynaud’s. I hope the winter is not too harsh on your body! Stay warm and take care of yourself first! We will be here!

@chazrinaldi3472 Год назад

My the bodhisattvas bless you and hopefully u get better ☺️

@SPofSaturnProduction Год назад

My mom has suffered from this since I was a kid and I've started suffering it to in recent years. It really does suck. The way it limits your ability to use your hands can just make you feel so helpless and like you can't take care of yourself sometimes. Sometimes I need help in the kitchen because some of the ingredients that need prepped are to cold for me to handle without pain. I hope the niacin continues to help and it reminded me i need to pick some up for this year. It's starting to get cold were I live and we just had a cold front. Best whishes on continuing to find ways to manage and improve your condition.

@wiikends 4 месяца назад

Great job finding natural remedies. Having a disease isnt easy & can understand having pain

@kymo6343 Год назад

I remember when I was a teen the knuckles on my index and middle fingers got suuuper calloused to the point they were open wounds and almost semi-rotting . I'm so glad that cleared up years ago, but I still have some stiffness and numbness in my knuckles. Praying someone can improve this for you, Shogo!

@W4ZZO Год назад

Wish you all the best Shogo!

@EuphemiaGrubb Год назад

I wish you all the positive vibes to cope with this crap disease. Thank you for shining a light on this,

@Ch3rryT3a Год назад

The modified versions of your craft do not detract from it’s beauty for it’s an expression of the human condition. You have so much strength, so much grace and kindness in sharing. I hope this makes sense.

@jamielandis4606 Год назад

As a sufferer of an autoimmune disease, I sympathize with you. “It’s all in your head.” Come back when you’re dying.” I rejoiced when I found a doctor who takes me seriously.

@na1elias587 Год назад

We love you shogo I’m always praying for u

@carmenm.4091 Год назад

I am so so sorry Shogo! For what ever its worth, I’ll pray 🙏🏻 for you… wishing you all the very best!

@gwillis01 Год назад

Let me remind you as a Christian that the Bible does say that the sincere, energetic prayer of a virtuous person has great power and great effect.

@TheLegendaryUriah09 Год назад

Stay strong Shogo and beat that disease

@Who-en2vo Год назад

I have a connective tissue disorder and I'm trying to get on top of management. I wish you well on your journey and thank you for your videos and sharing your health journey, you're certainly not alone 💜

@KoityO Год назад

Praying for your health my friend

@MetaSynForYourSoul Год назад

I would be interested on a video detailing your struggles with the Japanese health system or just on the system in general. It sounds like it's somewhat simular to our system in the US but also very different.

@kiefrichards Год назад

i love watching your videos and shorts for the information you give, and it absolutely breaks my heart to hear you're dealing with this. I hope your battle with this disease gets better.

@NathanaelTak Год назад

Ganbare Shogo san! The comment section is very supportive, I'm glad to see. The onsen also sounds like such a fantastic treatment, too. Not every place that has hot springs harnesses them for such a pleasant soak. I hope it's also relaxing for you, I read stress is another trigger and Youtubing can be a stressful job.

@Pinkpanini Год назад

Wishing you the best. Stay strong!

@Pikachulova7 Год назад

Agh if anyone does not deserve this it is you Shogo, you are such a kind hearted and determined person, I pray that you get better!

@shirolune Год назад

about a year since you reached 1m and now you're at almost at 1.5m, as your channel keeps progressing, the growth will become exponencial for sure. The small fruits of your labour of love are already showing some flowers

@ann5582K Год назад

Lots of hugs darling, stay strong...love from Kenya 🇰🇪

@sarahfisher5669 Год назад

Hi Shogo, Wishing you the best with your treatments and best wishes for you and your family.

@morriganrenfield8240 Год назад

All the best! Keep up the fight!

@darkbird25126 Год назад

Hearing about your experience with Raynaud's is making me really glad that mine is only a minor form of the syndrome. I sincerely hope that your treatments continue to give you relief in the future.

@davidhurdle9429 Год назад

Hope things get better for you brother. Thanks for sharing your story.

@paecpc Год назад

We feel for you, do stay strong and recover well in years to come.

@mlc9928 Год назад

I’m sorry that you’re going thru this. I hope you can get better.

@squiffybird5166 Год назад

Thankfully because my boss has raynauds too, work bought me a radiator for under my office desk and I'm allowed to plug my heated gloves into the computer, wear thermals and non uniform cardigans at work, even with the normal heating on. My boss had a scare a couple of months ago where she almost lost her index finger due to what was considered a normal flare up. Wishing your hands great improvements for the new year Shogo!

@kerrick7621 Год назад

Praying for your health Shogo, hope you can get well! You are an amazing teacher, really enjoy learning about your culture.

@page8301 Год назад

Best of luck with your treatments Shogo. I hope something will work for you. Greetings from Sweden.

@BubblesChika Год назад

It provides me a small comfort knowing all the love you've received over this frustrating sickness💖 I just want to see you well and healthy

@Dandanfuwonk Год назад

I wish and hope, you will feel better soon shogo and never give up, you can do it.

@S1L3NTG4M3R Год назад

Hope you get well\better soon. Thanks for sharing and the update. Thanks Shogo

@Alex-lk7qy Год назад

Can't imagine what this is like. Thank you for sharing your situation and helping people suffering alone. I hope the best for you and everyone else.

@nopsry9694 Год назад

Best of luck with your treatments, I truly hope there's significant improvement for you as soon as possible. Thank you Shogo for everything you do!

@MrIainNox Год назад

Don’t give up! I have severe eczema so I completely understand the dryness situation. Great to see you have a 3 step plan for new methods! Keep moving foreword!

@capslock956 Год назад

I have pretty bad eczema too. How do you treat it?

@CodeEnthusiast78912 Год назад

i have eczama too, what do you do to treat it ?

@adelak Год назад

Hey everyone, I have eczema as well and I’ve found a really amazing cream that helps a lot, it’s called A-derma Exomega Control. No corticosteroids or fragrance and it helps with the itching and keeps the skin moisturised. You should also make sure your diet or cosmetics aren’t making the eczema worse.