Just a quick little vlog at home chatting about our Nashville trip!
[ AWARENESS + DIAGNOSIS ]
Owen lives with Sanfilippo Syndrome. Also known as MPSIIIA, it is a rare, genetic, degenerative and terminal disease. This means that Owen’s brain will be permanently damaged by cells over time and he will eventually lose all skills, such as walking, talking, eating, etc. It is a childhood disease, also known as childhood Alzheimer’s and most, sadly, don’t make it into their teen years. Each individual is living a different journey in this horrible disease and this is ours. Thank you for being here with us to help support Owen and spread awareness.
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♡ REALTED VIDEOS TO WATCH:
OUR NASHVILLE TRIP HIGHLIGHTS
• NASHVILLE TRIP HIGHLIG...
GET TO KNOW HIM: AN INTERVIEW WITH OWEN!!
• AN INTERVIEW WITH OWEN...
MPS AWARENESS WEEKEND VLOG 2022:
• MPS AWARENESS WEEKEND ...
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[ SOCIAL LINKS ]
Follow us on Instagram! @lifeinthelyonsden
Our website: www.thehouseoncollegeavenue.com
Owen’s Story on Facebook: / owensmpsstory
16 сен 2022
