If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
Oh man. Trust me I get it everytime I see my broter shaking on the floor after hitting something and likely losing blood from a cut. I'm there, I totally get it.
I've had epilepsy since I was 13yrs old. I'm 52. I know when I'm going to get 1 thank God. Now I get about 2 a yr as to yrs ago I was getting several a month. Praying for all of us who suffer from epilepsy 🙏
I am so glad I found this video. I am currently going through a situation where my son might have to go through surgery for seizures related to a lesion on the brain. You explained the treatment and the condition clearly. Thank you!
Wow I have alot to learn since I've just been diagnosed with it last week since I was rushed to the er. I have to talk to my Dr first to delve into what kind of epilepsy I have before making any decisions. But these options are good to know about.
I am down for the vns as after 14 years of trying every med in the book I started having seizures clusters I am in the marvellous care of professor Marcus reuber in Sheffield and got every faith he will make me better or give me some quality of life back !
My daughter has complex epilepsy and drug resistance we have the vns been the best decision iv ever made after teying so many medications that have failed or gave an allergy to and being allergic to one of her rescue meds which has benzos in we have paraldehyde for a rescue med
Hi Dr. Danoun, what are your thoughts on the new remote monitoring devices (watches, patches, etc) that is being developed? Will the data acquired from these devices be beneficial to physicians such as yourself for making diagnostics and treatment plans?
Hi, Excelent information!!! I want to know if I can take Berberine, taking Lamictal ??? I heard is very good for the brain. Thanks and God bless you! (Sorry for my English, l am from Puerto Rico. 🇵🇷)
I have a VNS device and I love it. I’m also taking high doses of a Keppra, Onfi and Vimpat. We’re working on decreasing my Keppra. The VNS makes me feel protected at night time.
I have a rare seizure where I look and act normal and neither I nor anyone else can tell I'm seizing. I'm scared to get off my meds to try this Dr's advice. I also have extra electricity in my heart. I have added MCT oil which support keto
I've been suggested DBS by one Dr. and VNS by another Dr. at two different hospitals. I am now torn between which hospital to trust. I was wondering if you could suggest a Dr in my area.
The world need more good doctors like Dr ogie on RU-vid who have a pure intention of helping the sick you are a God sent sir.. Thanks for helping me get rid of my son epilepsy🙏🙏
I have JME and my VNS was implanted in 2021. I’m on a relatively low frequency but definitely feel like it’s affecting my voice more than expected. Are there ways to test and find out? Thank you for all the education you provide 💜
I have generalized epilepsy with JME & have VNS implant. The impulse sent can affect your vocal chords making your voice change for a few seconds. If it affects you too much you can ask your neurologist about reducing the frequency time in your device. I just got my second battery last year for my implant. My device is set pretty high rt now. As you get used to the setting, your body will accumulate to the frequency. I hope things get better for you. Pls talk to your drs about any concerns with irritation you are having. I have a video about my vns on my channel
My daughter is 15 years & had Encephalopathy with Atrophy lobes frontal & Epilepsy Partielle. Since 14 years she didn’t had any severe fits. From 15 age she started to had severe fits twice times in month April 22/23 & 27/5/23. Why she is getting worse fits then before? She had Epitomax 150 mg BD since increased 50 mg from 22/04/23. Is there any procedures to control fits for her?
My three year old Grandson started the Keto diet yesterday. He has retractive epilepsy. They can't break the cycle and said this was the only option left open to them. I'm so worried 😫
Dr I suffer from zeisure about 25 years. I’m on lamotragine 300 mg , but I get sick only when I’m sleeping. I was told that maybe this was probably stop on my menopause. But didn’t.please help me Dr. I will come to visit you so probably will help thanks. I’m from Virginia
السَّلَامُ عَلَيْكُمْ Dr.I'm epilepsy patient last 10 years and I had seizure 3 or 4 times daily, I regularly used anti epileptic medicines but no result so far, I want to go surgery but i can't afford surgery cost. plz help me thanks
I have epilepsy, I eat very low carb, not quite keto, and it's amazing. I told you in a previous post that I have lost 100 pounds. So from 225 to 125 and now about 133 mostly. I am 5'2, and my epilepsy started last year when I was around 50. Get off the sugars, starches, and the wheat. bread is killing all people. Flour is as bad as sugar!!! Also, I wanted to comment on stomach regularity and bladder competency . My bowels work amazing bow and my bladder. Everything works better. The only thing I norice is lots of gas! That is a little concerning. I am also on limotrigine, which seems to be working. I only get some deja vu now, which makes me feel really odd, but no drops for over 6 months now.
Hi! I am also Epileptic, using Lamictal/Lamotrigine and in Keto diet and IF. 👍👍👍 -Look information for Benfotiamine/ Vitamin B1. I haven't use it yet, but in differents videos talks very good about the important is Benfotiamine for the brain (and many others parts of the body/also helping to digest the foods.👍) Although, I had a blood test of Vitamin B1 (was very low) Benfotiamine, It is a Vitamin, so it doesn't interfere with Lamictal. 👍 God bless you! (Sorry for my English, l am from Puerto Rico. 🇵🇷)
I want to be off my meds so bad but it's almost like since I only have seizures maybe once a year, neurologists just tell me to stay on my meds and come back in 6 months. I would like to find someone who will dig deeper. My first meds were Dilantin and I had to do research to prove my side effects were caused by them - worst feeling ever. Why couldn't they try a little too? Now I'm on Keppra and it's way better, but still taking meds and being reminded I have epilepsy sucks.
Well, asking the neuro doesn't really help since my neuro doesn't know much about the keto diet. She says it was used only with handicapped children who had severe epilepsy, and can only be used with a nutritionist's help...so I started the keto diet by myself, then with some help/a course where I can learn the basics of it and landing on ketosis slowly. 🙃
I have rns since 2020, had significantly bad and very random convulsive seizures. With my neurologist, Dr. Dastjerdi, him and other neurologists and neurosurgeons believed rns would be the best and 2023 I believe I had a total of 4 convulsive seizures but now I’m having focal seizures. These are now mainly nightly seizures but I still have em. Coming up on 6 years with being diagnosed with epilepsy and being drug resistant but through the visits and hospital stays my neurologist has come a long way in getting my seizures to almost 0. My focal seizures my wife says last a total of 10-15 minutes long total and I’d regain full consciousness where before they would last almost 5 minutes then almost an hour before I would regain full consciousness. I’m suppose to talk again and possibly get another implant so we will see. That means more hospital stays since now my seizures are forming/ending on the right side where my rns is on the left side so can’t capture what’s happening on the right side. NeuroPACE needs to come out with the 4lead rns already!!
Thanks for the video my son of 5yrs was check and they got disconnections in brain but was given some drugs and they said it didn't need surgery will he be cured
My son has "double cortex" diagnosis. We are now on Apydan and Briviact. But the seizures do not stop. As my sons condition is very rear, I feel that the doctors have no good experience. I have read that Apydan (oxcarbazepine) can cause seizures. Could you make a video about these weird phenomena. Thanks for your very good channel. I have learnt much in your channel and it helped me in the discussions with the doctors
I did keto for 6 months. I don’t know if it worked because I got covid and had a seizure. And I stopped also because I reached 100 pounds and i was loosing too much weight. 🤷🏼♀️
My daughter has had a sensitive digestive system since birth, with no allergies. Because she feels nauseous often she avoids eating, and will choose junk food to eat when she does eat. She started having seizures at age 17. She was put on meds and has started having seizures again. Her doctor increased her meds, and she is having at least one seizure a day. Her diet is lacking nutrition for sure. And her neurologist charges $205 with insurance for every visit, he will not give refills or order tests without an office visit. Now our health insurance will end this month after my husband lost his job. At this point I think a keto diet couldn't hurt. We may look into CBD oil too.
I was desperate to stop my seizures and tried CBT oil not containing THC but it did nothing for my seizures so I turned to trying cannabis. After inhaling just one puff of a cannabis joint containing the psychoactive ingredient THC it gave me an instant seizure aura that was very strong. I was terrified as I have serial seizures and had to ‘ride out’ the aura until the effects of that one puff had worn off. I was so disappointed as I’d heard such good things about cannabis helping with seizures and also shrinking brain tumours which is what causes my seizures. I also have lesions on my brain from the tumour and my epileptologist keeps telling me I should not be having any seizures while I’m taking anti-seizure medication. He is insistent I should not be having any breakthrough seizures and makes me feel guilty for having them. I’d be very interested in knowing if anyone else came across this attitude of “you shouldn’t be having any seizures!”. I only have one or two a year and have even went two years seizure free but every time I do have one it feels like I’m being chastised for it when I’m the one who’s suffering. Sometimes I wonder if he thinks I’m lying about having them but they’ve been witnessed in hospital and I was also rushed to hospital by paramedics after my mother happened to be there when I had the serial seizure. Please, if anyone else is being ‘guilt tripped’ by their doctor, epileptologist or neurosurgeon can you let me know your story?
For a seizure free life ,Is there any surgery for the child 3.5 years old who is under ketogenic diet and still have seizures sometime in a couple of months.
There are no studies to compare them one on one but they are pretty similar. Comes down if they can spot where the seizures are coming from then RNS might be better or if not spotted then DBS is the way
May I ask what if all my laboratory results was normal but still after 6 or 3 months my seizure come back for once? I already did EEG the result was NORMAL.
Dear #doctorogie Thank you so much for quickly stabilizing my son's epilepsy virus and blood pressure when I was going through a difficult times 💚💚 0:00
Assalamualaikum Sir i had done the live EEG from where seizures come and doctor told us that surgery would not be helpful for us because it was coming from all side of brain kindly reply me
Hi doc. in my case according to MRI results I had mild left messial hippocampal attrophy, that cause seizures in my health... Me I ask, is it due to neuro-surgery, is it my case can heal?
For those reading the comments and who experience auras before a generalized seizure happens, do any of you have popping ears/tinnitus, then totally blocked ears, just before an aura starts, it's as if I get a warning before the aura. Was diagnosed with epilepsy a year and a half ago and I've had a couple seizures since then.. All the doctors I've spoken too have no idea, I just want to find someone who experiences this specific symptom as I feel so alone in this. I have bad tinnitus and I have these small auras throughout the day.
I doctor. Recently i faced seizure. I am 31. My eeg and mri is normal. My doctor put me on medicine and told me to stop my protein supplement (whey protein) and other supplements. But other doctor didn't stop me from taking supplements. Is it necessary to stop my supplements?
You are a bright star that I discovered on RU-vid. In a 32-year-old woman, who had an episode without us seeing exactly what happened, a seizure followed within 5 hours. She was given keppra 2000mg the next day and has been taking it for a month now. we are still looking from the tests what is going on without anything being seen. It is considered that the woman has epilepsy with 2 seizures with a difference of 5 hours between them;
I don't know what happened my son got seizure when he was 4yrs and got medication for 2yrs after that for good 2yrs he never got any sezuire without medication until last year and we put him back on the medication and its not working
Is it safe for planing pregnancy if i take a dizaepam in September October and November and December and January 5 mg TWICE A WEEK before planing a pregnancy IN march CAN THAT LEVEL OF MEDUCACION IN MY BLOOD BEFORE PREGNANCY TO HARM A FETUS . IN FEVRUARI i don take a dizaepam now i am JUST on 500 mg keppra twice a day
What in case seizure is only comes while sleeping and no reason found and medicines is still going on from long around 15yrs and having the same problem and 2-3 yrs once patient get the seizures.
Doc my cousin lived in village she has only her and brother to care for her she is not rich enough to do all tests she gets seizure 2 times a day plz help she is taking medicines daily she is suffering from 2 years and she is 19 year 😢
In your knowledge is epilepsy considered a disability? Have been diagnosed with 3 types since’09. On 4 different medications still have 1-2/mo. My neurologist has been trying me different drugs going up/down on mg. My seizures have caused many life threatening problems too me & even jail time.
I wonder the same. In the States I have seen videos about employment and epilepsy where the employer needs to make reasonable accommodations. However trying to qualify for disability pay seems like it's much more difficult to qualify for. Depending on many things and long wait times
hello am taking the medicine Depakine for epilepsy 500 mg 2 at the morning 2 at night after 4 years i had seizure out of no reason and i had 2 times in 1 day... and now am fine how can i get treated ?... it realy destroying my life... making me depresed just only thinking about it and put limits to my life... sometimes am thinking why the hell i am alive for?...
سلام علیکم mr doc. I have seizure around 6 years and right now i am under treatment just using drugs like levetiracetam 1000mg and oxcarbazepine 600, is is good to use TMS for treatment seizure? Do u offer it? Tnx
There is no evidence that TMS is effective for epilepsy on the long term and we don't use it. If you want we can get a consult and go over the case and let me know what is the best treatment options
Can you please explain the frequency of the seizure? Or stages ?? My son 3.3 years had first 2 seizures with a gap of 14 days. The very next day we started medicine and the month has gone now he has a seizure with low shaking . Please help
I had a VNS last year, and was at the minimum therapeutic level 5 months ago. I am still having seizures, but it is certainly helping. Although it still takes roughly a week, the recovery period is a lot more comfortable, and I feel better as a whole through it. I am pretty sure it has delayed a number of fits, and the magnet swipe has also stopped one recently.
Hello Dr. danoun. My name is Miche Leo. I was having seizure since I was born and I am now 31 years old. I have done many MRI’s and CT Scans and all the doctors say the same thing such as they don’t see where the seizures are coming from. I am seeking an answer so I can be seizure free . I would like to know would I be a good fit for this treatment
@@micheleo5665I'm diagnosed mTLE, but they still say they don't really know and I'm 18 status a bunch of times, one they caused themselves. I don't think docs are as smart as talked up to be
My wife has epilepsy, now she is 4 months pregnant. She has had this disease for 3 times. Sir, what do you do for this? She is already taking medicine (levipil 750).
If her seizures are controlled, stopped, with medication then she is being treated. I became epileptic at age 14. Before deciding to have children, I met with my general doctor, my neurologist and my OB/gyn. We discussed the medication I was on, and modified it to something that hopefully causes fewer birth defects. But still the risk was seven times higher than no medication. But if I quit meds I would have had to quit my job and lose my driver's license. Plus risk having a seizure. And I'd probably need to stay home, need care or something If I had a seizure while pregnant, since I have grand mal with loss of consciousness, I stop breathing during the seizures. The doctors weren't sure how long the baby would be deprived of oxygen during a seizure, and so they recommended that I continue the medication. To prevent brain damage of the baby. They essentially said that having a seizure while pregnant was worse for the baby than the effects of the medicine. It was nerve wracking. But baby appeared to be born healthy. I nursed so there was no need to add medication to baby formula. As the baby was weaned they would naturally be weaned off the medication. There is much to consider for each situation. This was my experience but everyone is different. Long term effects on infants depending on medication for example. Maybe meet with a genetic counselor to see if there is more recent studies At 14 I was put on something supposed to be used for children. And I ended up going back to only that during pregnancy. About halfway through pregnancy we increased the dose some because of weight gain. I still take the same pills even though I'm past menopause. I am concerned about the long term effects. I ended up having 2 children but I was pregnant more than that and also lost babies to miscarriage.
Going through heavy depression after a seizure at night after 3 years. It's been 7 days since the seizure happened and my depression is only increasing? Will the brain recover from it quickly (depression)? Will I feel like normal again?
I have a small scar on the front left of my brain from being ran over. Next month I have to do a sleep study. Then from their my doctor is thinking about laser ablation or RNS. I’m excited but nervous about getting a forced seizure. I’ve have had only 3 seizures. But I’ve failed 5 medications and keep having bad side affects.
Extensively times that step we are afraid to take might just be the right one. I thank you, doctor ogie on RU-vid for your inducement and for not allowing me down throughout the whole revolution. Your medication to regale epilepsy is super tremendous I am delighted I came across your channel 🔥💚💚💚
Eat good fruit and vegetables. Cut down sugar . Do praise of God every daily it will show you right path . Drink lemon ginger olive oil tea some time. Coconut water is good too
So I'm being told I have benign meningioma brain tumor which causes my seizures, which prior till now I've never experienced anything like this ever but they wanna do brain surgery, Is this the absolute best way of dealing with it and it seems to be in a location to where they won't be able to remove all of it. So I'm wondering what are my best options?
Thank you Dr Udaborr on RU-vid. I have finally got off Asthma and seizure exactly 11 days you told me.Thank you very much for your service and care. The world will definitely hear about you Dr Udaborr have cure for different kind of diseases and virus
Many people are already calling you their doctor,I thought it was because of the respect they have for you Dr ogie which was correct because using your herbal medication is the begining of a healthy lifestyle❤thanks for cuing my epilepsy😇😇😇🥰🥰
By definition God created all diseases, all famine, all pain and illness in this world. He will save no-one, it is up to the fallen angels like the good doctor here to save people. The higher powers don't care about us, but we have the power to save ourselves which is what they don't want us to know. Stay strong people.
