Wow, after over 2 years of having my neurologists, spine and neuro surgeons say...not sure what causes that...Dr. Woodward really caught my attention when he mentioned Dejerine numbness, onion skin. That is a very accurate description of what I have been dealing with over the past 2 plus years with increasing numbness and dysesthesia. This is a horrible feeling and alarming and frightening to experience. Now, at least I have more accurate way to talk about this. Thank you so much!
Don’t forget about those with Ehlers-Danlos Syndrome who have instability. Those patients commonly need these fusions. I had a C1-C2 fusion and now they say I also need my occiput fused as well but they cannot find a neurosurgeon in my state (Michigan) to do this. So I’m in constant headache pain and quality of life is greatly reduced. Thanks for making this video. Look into those with EDS. There are so many of us out there. 😢
@Sharon Kay Summerford Gilmer doesn’t do occipital fusions only chiari surgeries. No one in Michigan does. I run the EDS support group and the EDS Neck surgery group. U of M doesn’t do these surgeries on ESDers. They have to travel out east.
Can't believe I found this! This happened to me in 2002. Head on collision. Fusion from occiput to C-3. Eyes went crossed, vocal chords paralyzed, a lot of nerve damage throughout my body, et al... Many other complications creeping in on me as I age. I was ok up til' a few years ago. Doctors came from all over to help in the beginning... I was a Guinea pig. But, being on government "health care"... I'm on my own nowadays. Starting to have a lot of pain.
