Faking Autism?! Unmasked, Unedited, Unwatchable

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Hi! I'm Orion Kelly and I'm Autistic. #actuallyautistic #orionkelly #autism #asd #autismsigns #whatautismfeelslike
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ABOUT ORION:
Orion Kelly is an #ActuallyAutistic vlogger (RU-vidr), podcaster, radio host, actor, keynote speaker and Autistic advocate based in Australia. Orion is all about helping you increase your understanding, acceptance and appreciation of Autistic people.
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Related: autism, autism diagnosis, Orion Kelly, orionkelly, thatautisticguy, tiktok videos, autistic, autism in adults, autism in women, autism in men, autism spectrum condition, asd, autism spectrum disorder, aspergers, aspergers syndrome, autism in boys, autism in girls, dsm, dsm5, autistic adults, autistic kids, autism mom, autism parent, autism family, autism speaks, autism awareness, autism acceptance, autism at work, am I autistic, adult autism test, autism disclosure, autism therapy, autism prevention, autism meltdown, autistic burnout, autistic behavior, autism symptoms, autism traits, autistic signs, what autism feels like, love on the spectrum, stimming, echolalia, anxiety

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30 сен 2024

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Комментарии : 390

@Popper_Drop 10 месяцев назад

I also just want to butt in and say again that it's really comforting to see someone get as heated and loop on certain topics as I do cause I feel like it often annoys others because I'm "repeating myself" all the time but I'm just trying to get all the angry bees out of my head by yelling about the shitty thing

@t1aonation673 10 месяцев назад

The normies know what they do. I tell everyone all an autistic person needs is the truth.

@tims9434 10 месяцев назад

I get told off by people for the way I behave and I've told them I've been diagnosed. I distance myself from these people. I only associate with people who demonstrate some understanding.

@TeddyLovesAxl 10 месяцев назад

It’s crazy how our autistic brain work! 😆🙏🏻❤️🫶🏻

@supersonictumbleweed 10 месяцев назад

Also, it (the issue/problem) doesn't go away, so... so don't the angry bees. What do people expect, really?

@AuditingWithAutism 10 месяцев назад

@Popper 🎉I think that was perfectly explained.🎉

@nancyziegler5724 10 месяцев назад

You are kind to make us aware of this situation. I see & understand your frustration, this is horrific news. Thank You, as always. Its ALL about the money, as usual.

@LaGuera2858 5 месяцев назад

So far ive only heard one side of the argument. What I wonder from the other side is...Are these "helping" organizations legally liable to be financially transparent? I'm curious to know, if it is how you say, how the money would be spent. For example I wonder how much it actually cost to run the operations (pay wages). We all know businesses come with a shit ton of expenses. I don't know much about the running of organizations but it is a business. Therefore the organization will be guided by a business model (which inturn, fails to factor in that their clients are human). So money/financial gain and maintaining ALL current government policies/laws is essential. I keep seeing one main flaw in how businesses, governments, hospitals, etc operate. They all are void of what humans are innately guided by...morals. I theorize that han civilization would be better off if law was guided by morals with a splash of policy and law to complement the societal/cultural morals. I dont know. Just my thoughts with no actual expert experience or education backing it.

@DISKHUNT 6 месяцев назад

I can't argue as it is a if I'm watching myself in a mirror 💙👍🍺

@GodsBelonging 8 месяцев назад

Orion, you usually use the word unwatchable, that's the word I think you forgot which kept making you pause

@jennyferNumberone 10 месяцев назад

So basically... people need help... some people get help... all of a sudden... oh no! People got help, there must be something wrong 🙄🙄 .... ugh!! WTF?!!?!!? Let people get the help they need

@MelissaThompson432 10 месяцев назад

I'm no different than I ever was, but I've started telling people I'm autistic because I want to normalize it. The people in my family who are diagnosed? I found out years after they got their diagnoses because they wanted to keep it a secret. They don't act NT. Who do they think they're protecting by pretending? They're either ND or they're just extremely weird. I'd rather be "weird" with a reason. A reason with an explanation that provides for strategies that make me more capable of coping, planning, and achieving. An explanation that some, not enough, people can relate to and be helpful with.

@TeddyLovesAxl 10 месяцев назад

I’m glad I’m not the only one that’s tells people, “just bear with me. I have autism and sometimes words are hard.” Im 56 and was diagnosed 2yrs ago and the shock value of telling people I’m on the spectrum is quite satisfying because I’m a Navy veteran with a college degree. You would be surprised at how many people think autism is a learning disability or a mental disorder and yes, it helps normalize it. I try to explain autism the best I can, usually from my experience on the spectrum. It’s been 2yrs and I’m still learning about myself. Hope you have a great week my fellow autistic person! ☀️❤️✌🏻😁

@MelissaThompson432 10 месяцев назад

@@TeddyLovesAxl Same to you, fam! ☺👍✨🌟✨💙

@JuliaJames-zx5xy 10 месяцев назад

@@TeddyLovesAxlSpecifying which form of autism may be better to share. I won't throw "autism" out there because it can be a shock factor for people that don't know the spread of "types" & what specific ones entail. It's your golden opportunity to enlighten someone about the differences & that any type doesn't mean you're stupid, illiterate, etc. Hang in there. Aspies may get placed into a different category in the DSM in years to come. It's a unique trait to have. 🧐🥰😍🤩

@supersonictumbleweed 10 месяцев назад

I'm a gay autistic man with ADHD. The extent to which what you say applies to each of those traits of mine is, well, a lot. Pick one, and lots of people with the trait will tell you: - they have no role models - they are shamed and shunned - they find society outright hostile - they are starved of feeling of belonging, they feel alien - they find niches for themselves to protect their minds from potential attacks in ordinary life situations, and miss life changing opportunities

@etcwhatever 10 месяцев назад

@@TeddyLovesAxlit gives visibility definitively. I have a degree and 2 post grads. It fights the stigma that autistic people are "slow" or not intelligent.

@edgelordcutting 10 месяцев назад

as a young Autistic adult a had an extreme amount of rage. Literally screaming fits almost daily because of the inability of my family to understand my perspective. Slowly i realized its not just my family its the entire society. Its incredibly infuriating, to me these problems seem obvious and i understood them intuitively even as a teenager. I'm still un-diagnosed with zero support and zero understanding even within my own family ten years later.

@t1aonation673 10 месяцев назад

Hope you find someone who loves you for you

@tims9434 10 месяцев назад

Have you visited your GP about this? That's going to be your 1st step.

@justins3810 10 месяцев назад

@@tims9434it certainly isn't that easy. I have to give up because these doctors are total idiots and it makes me absolutely furious

@Kirsty178 10 месяцев назад

It often runs in family’s. Not understanding others emotions makes it hard. I didn’t have the help and was told to just get on often failing at it. Upstanding my self has helped me to understand my son so much more but I couldn’t always see it.

@stuartchapman5171 10 месяцев назад

It's a hellish battle getting diagnosed if you're presenting as "high functioning" (ablist bullshit). I paid for my ADHD diagnosis so I could then access meds and support, I was hoping the NHS would transfer it over. No chance because I still have the waiting list for the psychological assessments to make sure the meds aren't damaging me. I'm still waiting for the ASD diagnosis on the NHS. Meanwhile I continue to suffer damage through a lack of meds and recognition.

@witnessofchrist2524 10 месяцев назад

It's sad. Honestly,people not dealing with autism couldn't understand. So they'd rather not help. This is how America handles everything they don't understand and dont want to be bothered with. 😡✌🏾

@AmandaSeacrist 10 месяцев назад

This is how the SSA (Social Security Administration) does things. 😒

@geminiecricket4798 10 месяцев назад

😮not everyone 😮what a generalization😮

@pleaseleavemealoneandgoheal 10 месяцев назад

@@AmandaSeacrist💯

@leilameow9582 7 месяцев назад

Canada isn’t any better..if not for my family i would be homeless because they don’t help autistic people here.

@dinygijsberts704 10 месяцев назад

Hi Orion , i life in the Netherlands and i'm diagnoste at the age of 57 ! I had a autism burnout and finaly they listent to me to test me on autism and Bingo ! Years and years os disbeleave and not taken seriously i'm now getting better with my health and mentaly . Al those years of struggles and pain because i got bulliet a lot for almost my intire life ! I flollow you and finaly i feel like coming home ❤❤❤ so please keep going with you work that i respect very much ❤❤❤ my english is not top but i hope you understand me . Lots of love 🤜🏻🤛🏻

@ernestinegrace4593 10 месяцев назад

I was wondering when you would mention this absolute bulls**t of a report. I mean literally all that facade of the National Autism Strategy which I participated in like you did Orion and it was all a big waste of time and quite frankly an insulting slap in the face to the community. Bloody disgusting 😡😡😡 Your perspectives are always appreciated 👍

@AngieDeAguirre 10 месяцев назад

"We need to cut the NDIS" "Why???" "Well studies shows that it is ACTUALLY helping Autistic kids" "So we are far ahead to Europe and America?" "Yeah... We must be doing something wrong!" Like, who does that????

@lavallur 10 месяцев назад

I think it's more like: "We need to cut the NDIS" "Why???" "Well, it's a scam. People are lying for money! I KNOW because I LIE for money! Can't tell me otherwise."

@srldwg 10 месяцев назад

@@lavallurYes! You got it exactly right!

@Catlily5 10 месяцев назад

@@lavallurJust because some people are scammers doesn't mean most people are. Most people have more pride than that. I don't know about in Australia but in the USA it is not usually easy to get disability. Even people with severe mental illnesses often have to apply several times for disability and hire a lawyer before they are accepted.

@virtuallyme2518 9 месяцев назад

Who does that??? 😂 Politicians, my friend... POLITICIANS! Their job is to save money for the government... to fill their own pockets! rather than help the needy.

@AngieDeAguirre 8 месяцев назад

@@Catlily5 i think you didn't understand Lavallur's point

@BrainHealth- 10 месяцев назад

I begged my kids teachers every year for help and support with my boys. I had no idea what was happening with them. My boys are mid 20’s. I was recently diagnosed with ADHD with mono-tropic thinking. Suddenly the world and my experiences in it began to make sense. My kids were bullied by teachers and principals for most of their lives. I couldn’t stop them. I’m relieved kids are getting the help they need. (I’m still very angry about the education system). 😤

@BrainHealth- 10 месяцев назад

Thankyou Orion for reflecting me.

@tims9434 10 месяцев назад

I hope time is a good healer

@Smurgles 10 месяцев назад

This is one of a number of reasons that we homeschooled from pre-K through 12. We had seen how other disabled kids were treated at school, how the parents had to go to court to get the school to perform for their kids even though the school was already legally obligated to do so. Then there was the whole bullying thing. The sad thing was that whenever our son did have contact with public school kids he was always picked on - once on school grounds at public swimming lessons that everybody had to pay for. When I told the people working at the pool (school employees) that one of the kids had stuffed my child in a locker (and the mother of that child simply ran off with her kid and didn't even tell me what the heck was going on) they did absolutely nothing. Now that our son is in his 20's he has told me that if he had had to go to public school it would have ended tragically for either himself or someone else. Even with all the challenges we faced over the years I am 100% convinced that we did the right thing by our son. Unfortunately with the way the system in general is here, it would be easier to find a four-leaf clover than get help if you have autism.

@DanniBby 10 месяцев назад

@@Smurgleswhere are you located? How is the education system made, I heard there were new changes to the school curriculum for social emotional health whole child?

@Smurgles 10 месяцев назад

@@DanniBby We're in the US. There seems to be in increase in the number of teachers who are actually abusing handicapped/special needs students, nevermind the bullying from other students. If I was faced with the choice of sending my child to school or homeschooling in today's environment there would be no hesitation to homeschool. It only seems to be getting worse.

@gaolen 10 месяцев назад

wow, almost like having more access to diagnosis and knowledge leads to people getting diagnosed 🙃

@kateharrop4905 10 месяцев назад

This happens all the time in the USA. When politicians decide to cut funding for all of the poor people programs, The Veterans, Teen Pregnancy, The Federal Welfare and Food programs like free breakfast and lunch programs. These programs always get cut first.

@MartinBahls 10 месяцев назад

let´s be real for a minute here.....the poor ukranian goverment crooks need that money WAY more than you do.../s

@Catlily5 10 месяцев назад

Both need money.

@simplypositiveme 2 месяца назад

Did you get professionally diagnosed?

@PurpleDragon-e1j 10 месяцев назад

Thankyou so much for everything your doing, you have no idea how much your helping me, I'm an Australian 20yr old woman with undiagnosed autism, the struggle of daily life and trying to get help is literally destroying me. Love your work 👏👏👏❤️

@robynfromcanada 10 месяцев назад

I don't even live in Australia, so is it strange than I feel emotionally validated? Sometimes a good rant feels like a good cry, because it aknowledges the injustice and gaslighting of the autistic person's daily life. (Unsustainable, indeed.) But you help people regardless, Orion! ❤

@justins3810 10 месяцев назад

My experience with ADHD and possible autism has been a complete hell here in the US. They certainly found a way to make everything worse and absolutely nothing better. Disability? Haha! Not a chance. Apparently 4 diagnosis is still not enough. What a horrible joke of a system.

@amandamandamands 10 месяцев назад

ADHD isn't supported under NDIS so if you are AuDHD then you are supposed to separated out which of the things you have trouble with (need supports for) are caused by the autism and which are by the ADHD cause they will only help the autism ones. No I don't know how to make that make sense.

@sammyjo8035 10 месяцев назад

Keep appealing that denial! Please please find a disability lawyer if you don't already have one. They will keep denying you until you play their little game just right, it's fucked up. I wish there was a way to hold the SSA and the U.S. gov accountable for mass negligible homicide, because this shit is literal genocide.

@evangelinepittman1378 Месяц назад

I agree I have over five diagnosis and it's still not enough

@terrigoulding559 10 месяцев назад

Thank you for not editing and showing your true self.😊 Agree with you 100%.

@CuteCatsofIstanbul 10 месяцев назад

This is SOOO frustrating to watch. I have to admit, even more because this is coming from a very well developed, rich, human rights-focused nation (I know I know, no one's perfect). But I live in Turkiye, watching local news here is ... well, I can only handle 10 minutes of it because it is really depressing, infuriating and super confusing. But at least at the end of it, we can say 'oh well, this is Turkiye' and shrug and move on with our day (we have to because the stress would be a killer). When I watch news from developed nations, I become so frustrated because you guys are supposed to have figured it all out, you are supposed to an example to countries like Turkiye and many many more. So this topic is sooo heartbreaking. But your voice will be heard if you are loud, so be loud! Stand up for your rights! Please, stand up for yourself, for you, your loved one, for your nation, but also for the rest of the world that has no voice. ❤

@Catlily5 10 месяцев назад

Developed nations aren't as developed as they think. They are just richer.

@whitneymason406 10 месяцев назад

Can relate! I hate how money is prioritized worldwide over the needs of people.

@buttercxpdraws8101 10 месяцев назад

You hit the nail on the head at 23:00 - the setting of prices so that businesses can essentially skim off the NDIS is a huge problem!

@chrismaxwell1624 10 месяцев назад

It happens with everything government does. Those the get elected have to reward friend with deal that allow profits to be made of tax payer money. Here in Canada they do this by private delivery of healthcare services yet there is no competition. A corporation just magically appears to have exactly the set up that government is looking for to do the private delivery. To me looks like someone in government said to friend, start corporation offering X, Y, and Z services that we need. Then we'll lay off the healthcare staff doing it now and give you a lucrative contract that costs more than what we currently pay doing now.

@pocketwatch6648 10 месяцев назад

Hang in there, Orion. Sometimes it feels like it's o e step forward and two steps back, but that's how progress almost always feels. You do good work 👍

@MykeWinters 10 месяцев назад

Yes exactly, one step forward and ten backwards! I get really frustrated with it all at times and I direct that frustration and anger onto myself. Self loathing. Man it’s a damn struggle at times and those around me just don’t understand now that I’ve let go of some of my masking. They just look at me and I feel they don’t believe me etc…aarrrggghhh!

@glennchugg6015 10 месяцев назад

The fact is us late diagnosed people are so used to being a burden on everybody else that we wouldn't even apply for funding as our quality of life seems so bleak that why would we waste the funding that the next generation could use... So many of us are not even going to waste the doctors time getting formally diagnosed - We are too polite and too understanding of our "lack of" value to others. What I am saying is if we all went to get diagnosed and got the support to improve our lives, the government would be astonished at how many more of us there is - they should be grateful that our condition makes us not feel worthy of others time/help - it's only advocates for us that anything gets asked for. My point is, it's too late for many of us and knowing that those who need it most now will lose funding is even more motivation for me/us to avoid getting the support we need to improve our lives.

@tims9434 10 месяцев назад

Too right. We want to improve our lives not be a charity ❤

@skelenigma 10 месяцев назад

Love seeing you unedited! I really feel seen when I watch your stuff! Self-diagnosed from America 🥲

@MelissaThompson432 10 месяцев назад

I'm not diagnosed because there is nowhere in my area that diagnoses adults. I would have to go to another part of the state. And even if I did get diagnosed, there are no services for adults in this area. I know I am autistic because the people in my family that have the same issues as I have are diagnosed as autistic because they got through the system as children.

@tims9434 10 месяцев назад

Is there a way you can contact your political representative about the issues you've discovered? It's probable you are Autistic so even without a diagnosis you should follow advice on how to deal with the condition. I find getting outside every day helps, trying to get a routine going etc. I'd suggest you do the same. I don't get any support at the moment for my diagnosed autism, its up to me to support myself. I hope that helps you ❤

@MelissaThompson432 10 месяцев назад

@@tims9434 it's not really worth it to me. The closest psychiatrist is 50 miles from me; the closest qualified ASD diagnostician is 85 miles away. Most of the resources for adult ND'ers in this state are 265+ miles from me on the other side of the state. In my county, mental health coverage consists of a clinic with at least a 6 month wait for an intake appointment, and a single social worker. I can do my own research and help myself, as matters stand now. The political climate here right now is not encouraging to mental health efforts. Thanks for caring. 💙🙏🤗

@talena907 10 месяцев назад

100%. 36, no diagnosis, so hard to get a diagnosis and maybe harder to get help. Sooo… we are just drowning 🤷🏻‍♀️

@DaBaSoftware 10 месяцев назад

Hey Orion just wanted to say you are appreciated. I wish I knew a solution but I'm just glad to hear you speak on it. Best wishes for you, family, and friends all NT and ASD alike

@Popper_Drop 10 месяцев назад

I really appreciate your video on this, especially it being unmasked. I'm not used to seeing videos like this by autistic people and I'm glad. I feel like I'm sponging up a lot of anxiety through it but we've gotta be there for each other :( The reason all this is freaking me out is because I've suspected I have ASD (and perhaps ADHD) since 2019 and now I'm less than a week away from a screening that my psychologist suggested and I'm on my way to a potential diagnosis... I remember seeing something else on instagram, I'm not sure if it has to do with this but people in Australia who are diagnosed with ASD might have to retake their drivers' test?? I've had my license for 8 years and I've never been in an accident that wasn't my fault (even then it was only one time) and never been pulled over. I live in the sticks so busses and trains aren't a good substitute for everything and ubers are way too expensive (if they can even come out here cause I can't get food uber'd). The idea that I would need to take that stupid test again while I'm also actively legally able to give my younger brother driving lessons is ridiculous and I really don't want to get caught up in that. I think I saw it effecting QLD the most but it's throughout Australia and I really don't want it to become an issue down in NSW.

@amandamandamands 10 месяцев назад

I found what they were talking about, There is an ABC article titled New national Fitness to Drive standards are 'discriminatory' and 'humiliating' for autistic drivers, psychologists say If you look at that it is that the national Assessing Fitness to Drive standards were updated in 2022 to list autism as a medical condition deemed to have an impact on driving. Apparently in Qld it has been in place since 2012 that autism is on the list of disabilities that need to be reported but it isn't listed on the TMR website. It also doesn't say how often you need to get the medical clearance. Looking at this article Qld has the strictest reporting requirements but they aren't the only state to say that you do need to disclose it. Something that was mentioned in the article was that people that were being late diagnosed weren't being told at diagnosis that this was something that they would need to report to keep their licence so it seems like they haven't been made aware of this requirement either. Currently in NSW you don't have to report it.

@creatrixZBD 10 месяцев назад

That is straight up discrimination and bullying. I’m Aussie, I am not retaking my test for no reason, when I take driving (and motorcycle riding) more seriously than normies. I could teach the damn driving test. Gunna look into this. I’m in Victoria the nanny state so it wouldn’t surprise me if it got up here, along with wearing a safety helmet when behind the wheel. This is fucken disgusting.

@amandamandamands 10 месяцев назад

@@creatrixZBD From the ABC article In Victoria, drivers, including learners and P-platers, are required to self-report any long term health condition or disability that has an impact on their ability to drive safely. Technically you wouldn't be retaking the test. What you would be doing is a functional assessment with an OT.

@bl4nk5y 10 месяцев назад

In Canada, you are only covered for an Autism diagnoses until the age of 18. That means the onslaught of females who were misdiagnosed and underdiagnosed and others who find out way too late, have to pay thousands of dollars to get the official diagnoses. I'm pretty sure my dr knew this for years. I asked him one day why he never told me (found out on my own with the help offriends) he said cus he knew I'd never be able to afford the diagnoses. It's beyond terrible in Canada even whilst dying in the ER from whatever. We wait 3 days in waiting rooms. Only to be treated as drug addicts or mental patients when you try to explain how severe pain can cause and usually causes terrible meltdown even in adults. Canada is lying about it's stats, I'm sure. I'm 41, live alone, misdiagnosed and underdiagnosed my entire life. And I've never felt more suicidal in my life. That's Canada. Love your work keep going never stop. 🤘❤🤘

@igitha..._ 10 месяцев назад

My gp told me that if I had of been diagnosed before age 18 I would have gotten out of a number of fines that I shouldn't have gotten apparently..... (*which I ended up paying for) I also had a driver who was going too slow in front of me (25kms below the speed limit) call the cops on me because apparently I was 'waving my arms too much' which at the time I put down to my heritage but I now know was also my frustrated autism expressions which I shouldn't have the flipping cops called on me for because I wasn't doing anything wrong! Someone who is going much slower than the speed limit shouldn't be surprised if someone trying to go the correct and signified speed limit comes up behind them that's just physics! (Science!)

@tims9434 10 месяцев назад

Sounds terrible. You need to prioritize what's important in your life. You don't choose where you're born. The system is against you. It's not your fault. Stay positive, make changes in your life. A diagnosis isn't guaranteed. It hasn't helped me, I've had to make the changes. Orions videos are really helping me more than the diagnosis.

@malapropia 10 месяцев назад

I really feel for you, and my situation has the same description as yours, here in the US. I end up in the emergency room for EDS and seizures, which they can’t even recognize, and it gets treated as psychiatric. During the times I feel the deepest suffering I remember how many of us there are and just let my compassion for everyone else out there flow, and I feel it come back to me. Holding you with compassion. You deserve better. We all do.

@JonBrase 10 месяцев назад

@@igitha..._Quite frankly, there are a few common mistakes in dealing with slow drivers (mistakes which neurotypicals are just as bad or worse about making) that probably contributed (not knowing the situation or your exact reaction I can't say for sure, but I think the odds are good that the following will be applicable, given how common they are). First of all, tailgating. It increases accident risk, tends to make the driver ahead of you think you're being aggressive, and makes frustrated gestures more visible to the car ahead. And just about *everybody* does it routinely. Make sure that you're passing any given mark on the pavement at least 2 seconds after the car in front. Even a 1 second following distance, which is still too close, would be a significant improvement for many drivers. The second issue is awareness of drivers in adjacent lanes and confidence in passing: many drivers get too tunnel-visioned into their own lane and aren't aware enough about what's going on in the next lane or confident enough about switching lanes to pass a slow driver in their own lane, and this often contributes to the tailgating problem. If you have 25 kph of closure speed on a driver ahead of you, you should be moving left to pass (assuming right-hand traffic) well before you reach him (assuming a multi-lane road, if it's two lane you may not have that option, depending on oncoming traffic). And not tailgating is important if you need to pass: it gives you more acceleration distance before you leave your lane if there's heavy traffic moving significantly faster in the lane you'll be using to pass, making it easier to find an opening, and, if you're dealing with a two lane road, it gives you a better view around the car in front to see what incoming traffic is doing.

@ryanmackenzie6109 9 месяцев назад

I'm in Canada. At 14, I started asking professionals for help because I thought I might be Autistic. Begged for testing. Pleaded with someone to help me get a diagnosis. I was CONSTANTLY brushed off for "making good eye contact." I'm 21 now and sure enough, my psychiatrist says it's highly likely I'm Autistic, but that he can't diagnose me without proper testing.. It's a goddamn scam, I swear. I'm one of the lucky ones, at that. I'm already in social services. I got diagnosed with ADHD when I was younger. And that might be enough for me to apply for disability. I have the option where I am, that if I go back to school, I can request they screen me for learning disabilities and gets diagnosis paid by SS that way. IF I can ever go back to school, that is. Which is unlikely because I need a therapist who specializes in AuDHD.. which I'm having trouble getting without a diagnosis. But not everyone is as "lucky" as me. And it's infuriating. I wish they would do more to help us. I want to participate in society, but I *can't* play by their rules.

@t1aonation673 10 месяцев назад

Who in their mind wants to imitate us?

@yeahokaycoolcool 10 месяцев назад

There are people who want to pretend to be disabled (some even purposely disabling themselves), but they are few and far between. They do not have the disability they claim to have, but instead have another disorder that causes them to fake a disability in the first place. The tricky issue with that is sometimes the layman will think they have enough knowledge about the disorder, and likely end up harming truly disabled people when they falsely claim someone is faking. So I guess the answer is "nobody in their right mind, but not everyone is in their right mind". Not even close to being enough people like that to justify cutting spending though!!!

@AnnePotter-o4o 9 месяцев назад

I am a 67 year old art teacher in the UK (retiring at Christmas) and I have recently had a positive diagnosis of autism. There have been a number of things that prompted my suspicions that I might be autistic. My daughter took her own life 5 years ago; she struggled with social anxiety. My mother attempted suicide several times. I heard on the radio that autism runs in families, I read statistics that 1% of the population is autistic and 11% of suicides are among autistic people! We NEED diagnosis. We need understanding. And in most cases we need assistance beyond diagnosis and understanding. I am only now just starting to get to know myself, starting to understand my struggles as a child, my struggles socially throughout my life and in my failed marriage. After my daughter died my grief and guilt were overwhelming. Knowing that I am autistic and that she was almost certainly as well and starting to understand the ramifications is the only thing that has started to give me some sense of relief and self acceptance again. On a different note....and maybe 'out in left field'?... I wonder... This may be naive but I wonder if the Aussie history relating to UK deportation of prisoners could have resulted in higher percentages of autism? As a teacher I have witnessed first hand how a failure to understand young people can lead to 'bad' and even extreme behaviours and labeling by the system. So if historical UK autistics were ending up more 'badly behaved', undiagnosed (obviously) and were more likely to become criminals and were consequently then shipped off... Just a thought... I know I am ignorant of the numbers and the history.... But just a thought.

@hippiekitten420 7 месяцев назад

My deepest condolences for the loss of your daughter. Congratulations on the retirement!

@markb2084 10 месяцев назад

The money for the research had to come from somewhere where there is a vested interest in the 'research' having a particular outcome.

@Catlily5 10 месяцев назад

Good point! And the vested interest wants to cut costs.

@DrPoly_ 10 месяцев назад

25:13 - This hit me hard in an emotional way that doesnt happen often. I'm really glad you could get back on track with the thought process, but that feeling is extremely relatable.

@AngieDeAguirre 10 месяцев назад

Me being in bed finally getting sleepy (it is 4 am here). RU-vid: hey, Orion uploaded a video! Sounds like sleeping got delayed again! 😅

@brianl.3579 10 месяцев назад

1 am here but same story/reaction. 😂👍

@bluntforcetanya 10 месяцев назад

"oh we should give people assistance bc there are a ton of them who need it!" [lots of people need it] [[[shocked pikachu]]]

@beccy2188 10 месяцев назад

Comes down to politics and the way all politicians ignore the social determinants of health because they do not want to invest taxes back into peoples wellbeing or preventative care. You vote in neoliberals, you get a declining safety net.

@AngieDeAguirre 10 месяцев назад

You tell them, Beccy!!!

@adelarsen9776 10 месяцев назад

Australia is broke. Both sides caused it. Canberra has run out of money.

@Catlily5 10 месяцев назад

In the USA I would say if you vote in conservatives you get a declining safety net.

@tracynottage356 10 месяцев назад

Hi Orion, thankyou for another great video 😊❤XXX ❤😊

@benjaminmcvay9864 10 месяцев назад

The Everest analogy was really good💯

@donovangray4246 10 месяцев назад

In the USA they has a system called Social Security Association which states that I would rather live on 1000$ a month rather than work a full time job that would pay me 2400$ a month but I choose not to because I am lazy and not " really" disabled. I'm looking to be diagnosed as autistic, but I'm Bipolar and have been since 2007. Yet no one can explain to these people that you cannot cure Bipolar. It's with me for the rest of my life. I'm 54 yrs old. Any mental health or developmental problem I have would be significantly worse because of my age. Where do they get this information from? If I was well enough to work like other people, I would. I don't want to be disabled and on a fixed income but others want to save money at my personal expense. Welcome to the Government, wherever you happen to live.

@dinygijsberts704 10 месяцев назад

Our healthcare is in the 13 year getting less and less money for mentaly and fysical healthcare / ore healthcare in totally ! Its all cut down to the most minimum needed , its just stupid and redicouless 😡😡😡😡

@DrPoly_ 10 месяцев назад

It can cost $200+ AUD out of pocket per session going through the autism assessment, and you'll at least need 4-5 sessions. My question is, who would willingly pay this money in an attempt to rought the system? It doesn't make sense to me.

@amandamandamands 10 месяцев назад

If you found a psychologist that is $200 an hour you are doing really well these days and psychiatrists are even more. I guess they look at it as you playing the long game, you are taking the chance with spending approx $2000 to get the diagnosis because of the services that you can then get from NDIS will offset that within a year if you get a plan I'm with Orion though, that they think so many psychologists and psychiatrists are on the take that they are willing to diagnose people just so that they can get some home help, psychologist appointments and if you are lucky exercise or OT. Also if those people are so fine then why would they be wanting psychologist and OT (cause it would flag as suss if those services weren't being asked for), other things I could see people wanting for free though.

@haleys4899 10 месяцев назад

you’re my favorite autism content creator. One of the reasons for that is when I see you express your frustrations, it helps me feel less guilty for all the frustration I feel on a daily basis that people don’t care to hear about. When I’m feeling like I might meltdown sometimes I watch one of your videos and it reminds me I’m not crazy and helps channel that energy into reflection instead of lashing out

@haleys4899 10 месяцев назад

So, thank you Orion for the work that you do. I’m sure you’ve heard this before, but it really does make a difference in autistic people’s lives and probably the lives of their loved ones who care to understand them.

@doctorno3912 10 месяцев назад

Navigating the ndis to get support is so confusing. I don't know how those with a disability get on it without some sort of help from a family member or advocacy group.

@ernestinegrace4593 10 месяцев назад

Sorry also if people go undiagnosed like I did for years I was still in the system being treated for a list of seemingly unrelated problems such as anxiety disorder, depression, gastrointestinal, general body inflammation etc so yeah we are still in the system with Medicare etc just it's not under Autism. Just when we get that answer/diagnosis and help we can start managing a little better.

@tims9434 10 месяцев назад

The pharmaceutical industry in the states makes lots of money. That's the motivation. They'd rather treat you than diagnose you with something untreatable. That's the logic I see.

@amandamandamands 10 месяцев назад

@@tims9434 Here there are set prices under PBS so the government has already negotiated the prices before they hit the shelves so very little difference in price in different pharmacy (also we pay for the meds ourselves, it isn't through insurance). I am on a pension so most scripts for me cost $7.30 (I sometimes have to pay more if I choose brand name instead of generic). If you aren't on a pension then scripts are capped at $30 unless it is being prescribed off label, then they can charge more, it still isn't the prices that I see mentioned in America.

@amandamandamands 10 месяцев назад

I feel you, my take is that it is only people who specialise in autism that still know what they are looking for so they diagnose what fits best within their knowledge base. My first diagnoses were from being inpatient, it took me another 10 years to go no this doesn't fit and search out an autism diagnosis (I did wonder every now and then in the years between but had only a stereotypical knowledgebase to go by and didn't realise I had sensory issues until after I was diagnosed)

@Catlily5 10 месяцев назад

Good points. I got treated for all kinds of issues besides autism.

@ernestinegrace4593 10 месяцев назад

@@Catlily5 yeah but after I was told I have Autism I did full on research to uncover that all my issues are related to people with Autism. Insomnia, gastrointestinal problems, PCOS etc man it's crazy

@holliemiller9504 10 месяцев назад

I appreciate your videos so much, Orion! Especially your unedited ones. They make me feel so normal, and you make such good points!

@rachface9399 10 месяцев назад

I am undiagnosed for the simple fact that i don't want to deal with my family. Who have always been unsupportive of anything I've ever done. And would say, "you're just doing this for attention". I would like some sort of support, a therapist and what not. I'm a stay at home mom as well and am wanting to go back to work but idk if i even should due to all my managers I've ever had telling me... if i knew how you worked I'd never hire you. Idk just a random rant i guess...

@hippiekitten420 7 месяцев назад

I get it. Tried talking to my brother about it and he shut me down without listening to the why I think I'm autistic. He thinks it's all a scam. My husband has been understanding, and my stepdaughter as well-actually she's the one who brought it up that I am probably autistic. I want to get a professional diagnosis but I am honestly afraid to. Everything I've read about the process is daunting. I'm 35, so I've tried to manage these issues for so many years but it's come to a head and falling apart. I can't get or keep a job. I spent 20 years dealing with a spinal injury before I finally had a fusion, so that daily pain is gone now, but im now faced with returning to the workforce and am overwhelmed. I'm rambling. Sorry.

@jtec99 10 месяцев назад

😂 Orion brother, I flippin love ya mate.

@dinygijsberts704 10 месяцев назад

You put the finger on the pain spot 🤜🏻🤛🏻👍🏻👍🏻👍🏻👍🏻its just the same in theNetherlands you know so i know why you getting so angry and stressed ❤❤❤❤

@Tilly850 10 месяцев назад

I suppose the increase in diagnosis has nothing to do with the increase and improvement in knowledge and education of the doctors. (sarcasm) I have very little hope for any diagnosis. At my age there in the US is no help. I'm not self-diagnosing because I f'n WANT to be autistic. However it is the way I AM. It is fortunate that people like you are giving us the access to the information so we CAN sort it out for ourselves. The system certainly isn't even interested in helping us. They want to be able to SAY they support autism, but when the truth is known they do NOT want to actually pay for any actual help. It's all about the money. There is no empathy in the system here. I know how hard you are trying. Keep educating, but don't get your BP up. It's overwhelming. America has plenty, TONS of undiagnosed people. Diagnosis is virtually next to impossible unless you are a non-verbal child. Funding is also impossible right now. We have a sick care system...not a health care one...and even the sick care is iffy.

@kymmhinterberger3856 10 месяцев назад

I live in the US. I do not have an Autism diagnosis because I cannot afford to get an Autism diagnosis. I suspect that it is very. underdiagnosed here in the states.

@GooFly-v3j 9 месяцев назад

im diagnosed as Autistic, but it's not considered a disability in my state unless you require a handler. I'm able to take care of myself but thats not to say each day isn't without it's challenges

@MartinBahls 10 месяцев назад

the "I forgot what I was saying cuz I always start explaining myself" part had me in tears 😂 - literally every conversation in my life

@shuggafoxx917 10 месяцев назад

i like you. thank you so much. your videos help me so much navigating being neurodivergent. i wrote a book on meditation for autistic people. would you like a free copy? Anyways, keep up the great work. We all need you🤩

@fabiana-dep 10 месяцев назад

Oh how I love these videos. It feels so good to feel for once understood, heard, accompanied, seen. Thank you, dear friend, to all of us who are going through this process of self-discovery, readjustment, and exploration that is late diagnosis in adulthood. There are not enough words to thank you for what your videos have been in my life Orion Kelly

@fionashephard4998 10 месяцев назад

We continually have to jump thru hoops just to get slightest bit of help from the government, yet they do not care because we aren't immigrants

@tims9434 10 месяцев назад

So true.

@Catlily5 10 месяцев назад

Without immigrants we won't have enough workers. The USA has a lot of old people and not enough young people. We need more workers.

@phdnb6140 10 месяцев назад

It’s sad to see the negativity 😢 I only came across an article a couple years ago and went “wtf, everyone doesn’t do this”… I was responding to masking. I was severely unwell at the time too. I’ve just got my forms filled for NDIS but only want psych support tbh. I scored a lot higher than I thought and have comorbid ADHD (combined), only diagnosed in May. I’ve got so much trauma caused from my undiagnosed life. Best analogy is imagine being a square shoved into a circle my whole life and not doing to properly, then told “everyone else can, why can’t you”, “you are lying about struggling to do that”, “you’re too smart to not know such a simple task”, and “just try” Honestly, when I found out I was 33, a single mum, had a phd (top of my uni), just taught myself to DJ as I love music, and running events in my city… I realised why I was so sick all the time as I didn’t understand my boundaries and what a meltdown was. My immune conditions have mostly subsided though! The other thing I have asked for is someone to hustle me once a week so I can keep up with normal. Since when I thought things may be this way: I’ve backed away from everything. Moved house twice since I found out. Had 3 jobs. My daughter’s dad has called DCP on me twice when I was just struggling, which is what they said too but I was putting everything into my daughter. Now they want to potentially take our driving license off us too 🙄 after 18yrs, and no insurance incidents; maybe some 5km over speeding fines; but it’s just ridiculous Sorry for my rant 😅 appreciate checking in with this community

@phdnb6140 10 месяцев назад

I’m level 2 btw and can absolutely get some support but my issue has been trying to get things sorted… 3 long GP appointments to fill out a form and I was unemployed for 2 months recently 🙈 it’s just a lot of barriers and people with these disabilities will struggle more to get through them

@doctorno3912 10 месяцев назад

I can relate to this. Lvl 2 myself and my diagnosis this year suggested ndis support. Apparently asd lvl 2 is auto accepted by the ndis guidelines yet you have to jump through all these confusing hoops and gatekeepers. Who can be fucked honestly.

@phdnb6140 10 месяцев назад

@@doctorno3912 I feel that. It’s why it’s taken so many months. I only just got forms sorted but will take many more months 🙈 hopefully both have the support that’s needed soon

@TeddyLovesAxl 10 месяцев назад

Are you an Aussie? I saw another person rant about a drivers license test retake for an Australian driver’s license. Is that what y’all are dealing with? I’m sending good vibes ur way. All the way from the USA 🇺🇸 ❤

@phdnb6140 10 месяцев назад

@@TeddyLovesAxl bless 🫶 thank you and hope you’re well in USA!… yes I’m an Aussie… it just ran threw the media the last week 🙈 apparently fines are in place if we don’t properly report our disability too 😅 which is kind of crazy as I passed my test just after 17 years old… and assuming they remember driving is skilled based, it doesn’t make sense to me… we may lose our license too… it’s a bit up in the air atm 🙈

@louisvizenor2518 10 месяцев назад

Hello Mate! I love your videos I am writing you from Wisconsin USA. I sure would love to see your toilet go the other way some time.

@johnthomas5026 10 месяцев назад

It was NOT a waste of your time!

@timbobshe 10 месяцев назад

Kinda reminds me of PIP here in the uk (personal independence payment). It’s an absolute disgrace

@MykeWinters 10 месяцев назад

I’m in the uk too. The whole of the mental health services etc, are being eroded - funding, staffing. Saying that though there is NO excuse for incompetence or downright abandoning. The local services in my area abandoned me after promising me all the help I needed. Disgusting, you just don’t do that to someone suffering mental health, being on the spectrum etc. I am unemployed and, to put a positive, I get the pip lower limit. But as you say, it’s a bloody disgrace. It took me 3 forms to get it. 3 because they messed up, not me and then I had 2 phone calls off “doctors” having to explain things, which was hard due to the stress I was under

@amandamandamands 10 месяцев назад

That is the DSP (disability support pension), it is its own separate level of hell to get onto with each government tightening the eligibility criteria. The previous government wanted to bring in that if you were deemed capable of working 8 hours per week then you should be kicked off and be on unemployment instead.

@MykeWinters 10 месяцев назад

@@amandamandamands yes you described it very well, lol. I can sort of laugh at my experience now, but then, yes, a bloody nightmare. They even made me feel like they didn’t believe me. I just thought, try and be me for a month and then you’d understand

@michaelz2484 4 месяца назад

Orion,.. you. ALONE, are better than the US Canada and whomever else at autism ING.. in the US it's easier to get on drugs than to get treatment. From experience. It's tough to not just say ***k it.

@michaelz2484 4 месяца назад

Unfortunately I'm going to be forced to show this to family members..

@erynmorgan1717 10 месяцев назад

UK self-diagnosed auDHD, my kids are 18 and 19 also autistic self-diagnosed, we are trying to pay privately to get them diagnosed but even that is proving hard for us to navigate fully. My husband and I look back, we missed the clues from teachers that the kids should have been diagnosed because no one said it outright to us - we didn't pick up on the subtulties of "teacher speak". My son needed private tutor help, he still says to me whenever he leaves our house "see you in the morning" because he wished school was just a dream he could wake up from. My daughter was bullied and continues to get bullied in uni from NT's who don't understand her. All of us, my husband, me and my kids all have anxiety, depression and sensory needs. I am getting funding for my autoimmune disabilities but no one else is getting any support because it is too hard to get.

@tims9434 10 месяцев назад

What happens if your kids aren't diagnosed Autistic? I disagree with self-diagnosis of anything. I didn't want to be Autistic. I've edited my comment. Speak to your GP they're the way to go. I had to wait over 2 years for my assessment. I'm probably older than you. I hope my advice helps.

@erynmorgan1717 10 месяцев назад

@@tims9434 my kids can't wait 2 yrs to get diagnosed and now they are deemed adults it will take that long. They need support now to naviagte college and university as they are both really struggling. The univeristy will not accommodate my daughter without a diagnosis and she is almost ready to come home and do an open uni course instead of her dream. I don't think that is fair or right and she will become another burnout stat. Also just edited my comment - please don't invalidate self-diagnosis, you can have that opinion personally but why would you feel the need to say it is not valid? Self-diagnosis is incredibly life affirming, it helped us feel like we are not broken, it has given us a greater understanding of ourselves, our needs and how to start protecting ourselves.

@winstonoiu6614 10 месяцев назад

My understanding is the NHS wont class private diagnoses as valid, they have us by the balls

@erynmorgan1717 10 месяцев назад

@@winstonoiu6614 I think it dpends on which clinics you go to, some of the clinics also do NHS diagnosies but yes it is a big problem. The main thing is to get support for the kids at college and uni and they do recognise private diagnosis.

@AquaPeet 10 месяцев назад

Howdy Doc, I need you to diagnose me as autistic so I can reap benefits off of it! Doc: ummm...... that's not how it works.... Scammer: Awwwww come on mannnn Just... gimme..... gimme the diagnosis! Doc: mmkay! **STAMP** have fun with the benefits!!

@PurpleDragon-e1j 10 месяцев назад

Exactly!!! I really appreciate your passion and frustration, I feel it too.

@aliceabbott9331 3 месяца назад

Did they only count people with many different types of disabilities as only having autism on this report? Because we are far more likely to have more than one kind of disability. There are all kinds of other conditions that autistic people are more likely to have.

@miravlix 10 месяцев назад

You seem to have narrowly focused on "autism", but you always come off as AuDHD and I think us with AuDHD is not a true representation of people who is mostly ADHD or ASD. The science even show that everyone might be a spectrum of ASD and ADHD, speaking for ASD when you have AuDHD, would be like a "normal" person saying your not all that autistic...

@Vexorgthedestroyer 7 месяцев назад

I think it's important to understand that the term 'self diagnosis' is misleading when it comes to autism. We're not talking about a medical condition that can be easily externally assessed and tested. We're talking about something that is largely, if not almost entirely validated by the perception and experience of the individual. The individuals own experiences are the foundation for 'high functioning' Autism diagnosis, as opposed to guiding the diagnosis process which balances experience with external manifestations. With ASD, there often are no external manifestations of the marked degree exhibited in 'more serious' cases. Those of us who have gone down this road of self discovery, have not done so lightly. It is an existential shift to have to admit that this is who you are, there is no possibility of 'getting better' or 'being normal'. That comes with all the highs and lows of revelation and mourning. On the one hand you're not crazy or stupid, on the other you've wasted a life, and now you have to effectively start over with this new understanding of your limitations. But it's not just starting over, it's the daunting reality of starting over and knowing that there is no support structure for you. There was when you were a defective normal person, but now that you're autistic, you have to keep it to yourself or face a barrage of disbelief, rejection, even disgust that you would use that as an excuse for your problems. Nobody in their right mind would take on this label publicly unless it was the only legitimate way of describing their lifelong experience. So we don't, we go in in secret, and we express ourselves in small, closed community forums like this, where we're safe. The irony is that the people investigating, creating awareness and supporting the autistic community are those who have autism, when it should be the other way around.

@sophiegolden 10 месяцев назад

Unfortunately Orion, there are dishonest people in our world, who want to take advantage of anything they can get from government, associations etc... And because you are honest, you don't see them or think about them. A lack of control is the origin of that. In my country France, it's so commun, that's its unbelievable. Families get money for their disabled kids, and go on holidays with that money, young people with no disabilities don't work, get money and I knew some in more than 10 years, never one control...you know a doctor, you get a disability diagnosis, and you will stop to work and will be pay... Sorry to be rude, but it s the truth...i have health issues, some doctors call me, control if I need help? Never...and you can find worst examples...

@playmusic8056 10 месяцев назад

Lol, America? You have to have money and/or good insurance to get diagnosed, plus find a decent psychiatrist who knows how to tell. Then you have to get yourself to push through your executive function issues to actually look for and find such a psychiatrist, who isn't completely booked, make an appointment, full out the forms, and show up, on time, and open up to this complete stranger about all the things you've been hiding for so long... I know some adhd people who were rejected because the psychiatrist thought they were just trying to get drugs. Umm, well yeah, they were trying to get drugs to see if it would help with their adhd.

@tims9434 10 месяцев назад

There's a prescreen before a formal diagnosis so that should cancel out a lot of time wasters trying to debunk the system. The piece of paper trick works but only temporarily. Thanks for sharing this Orion. Exactly how I'd react. I don't get any funding and I'm diagnosed by the system. It should be automatic funding linked to high functioning and low functioning....keep it simple. I'm very emotional at times watching you, seeing myself in you. I'm working on things myself but it does get annoying at times. I'm lucky and unlucky I have ADHD as well.

@CalliNightmare 10 месяцев назад

I seriously wish more than anything to just be normal and not have to go through addiction struggles and just keep a job. I cry atleast once a week wondering why I was even born because of how defective I am. Being alive is painful..

@joshgarrison7779 10 месяцев назад

"The most terrifying words a person could hear is: ' I'm from the government & I'm here to help.' " -Ronald Regan

@margefoyle6796 10 месяцев назад

Governments just want to government. The American government does this same thing on every single issue. The disabled, the unemployed, the chronically poor. They spend more time overseeing you jumping through the hips to prove that you are still, say, physically disabled from a war year after year than they do helping you. A constant struggle with offering help and then pulling the rug out from under you so you are in a constant state of high anxiety. Ridiculous.

@Catlily5 10 месяцев назад

That sounds like bullshit reasoning by the Australian government.

@erynmorgan1717 10 месяцев назад

Also Orion - woke up to an article on my news feed about the Australian driving dept making autistic people redo driving tests to check their competency??? WTH!!

@doctorno3912 10 месяцев назад

Saw this a couple of days ago and I don't know how I feel about it. From my understanding it's Queensland only but I wouldn't be surprised if other states invoke similar restrictions.

@amandamandamands 10 месяцев назад

@@doctorno3912 Found an ABC article, towards the end they had a breakdown for each state's requirements. Qld isn't the only one, they are the most draconian though Technically it isn't a driving test it is closer to having a medical evaluation and it might have to be a functional assessment with an OT to assess your driving skills (not many OTs that specialise in this so long wait times). The other thing to worry about is that the national Assessing Fitness to Drive standards were updated in 2022 to list autism as a medical condition deemed to have an impact on driving.

@doctorno3912 10 месяцев назад

@@amandamandamands my mistake and thanks for the clarification/correction in regards to the other states. Personally I don't drive because I have terrible spatial awareness. But I understand not everyone on the spectrum is a hazard on the roads. Does seem a bit heavy handed and definitely another barrier for those on jobseeker or holding a job currently.

@amandamandamands 10 месяцев назад

@@doctorno3912 Yeah I don't drive because of my perspective on the road, I ride a motorbike instead because it is the same width as you so don't have that issue. I figure that if I have been riding for more than 15 years and I haven't had an accident I must be doing something right on the road.

@hippiekitten420 7 месяцев назад

That is crazy! I'd be livid if they did that here in the US. I've been driving for nearly 20 years! I have a good awareness of my vehicle's size and driving itself is fine, I'm, objectively, a rather good driver and have zero problems reversing over long distances. But I get anxious on interstates and higher speeds, and in a lot of traffic. Other drivers are a bit insane around here, though I've seen crazy drivers in other countries and I wouldn't be able to drive in those conditions!

@loisrogers9042 10 месяцев назад

It all comes down to money. Someone doesn't think they're getting enough to address their own interests.

@inongezulu5859 10 месяцев назад

The waitlists are nearly over 2 years in the uk and not everyone understands autism. After that it seems to be just paper because most do not take it into account. Then longer waiting lists for what could make school easier (speech therapists, occupational therapists and educational psychologists) just because someone else’s needs are higher. If anything there should be more diagnoses, plus not a lot of time is spent in educating about children with additional needs and neuro-diversities so a lot struggle academically.

@janewarnock8855 10 месяцев назад

How sad. The British Government has recently said that too much funding is required to support children in schools so there should be a rationing scheme to reduce the numbers assessed as needing support 😢 They didn't even bother to quote a report 😭

@Weird_guy79 10 месяцев назад

How the hell does anyone get assessed to begin with? been at this for a while now and still no closer to anything, small town no service tried everywhere nothing, no support form local mental health services either, they pass the buck and ignore like the rest. my head is a mess im low as low gets and I don't know what to do or where to go anymore. I'm at a dead end, I cant figure out how to move forward.

@Weird_guy79 10 месяцев назад

Infrastructure? sure if you live in a city if not you are screwed. Autism or not it doesn't matter because there's no one that will listen, let alone help or even try to understand.

@doctorno3912 10 месяцев назад

I live in a smallish town in regional vic. Thankfully we had a psychologist who could do the assessments. It's not easy and can have a long wait i was waiting about a year and 6 months and it cost me around $1400 aud. You may have to travel and it may pay to put your name down with more than a single psychologist for your assessment. It's a pain in the ass and expensive but worth it in the long run imo.

@Weird_guy79 10 месяцев назад

@@doctorno3912 Don't have the money to go private and I cant keep being like this for anywhere near that long.

@doctorno3912 10 месяцев назад

@@Weird_guy79 that I can relate to. Took me a while to save up the funds required and to get a gp to take my concerns seriously for a referral. It's fucked

@psyedk 10 месяцев назад

fired from an autism summit for being autistic? oh .. sometimes i hate this world 🥲

@Ben7324 10 месяцев назад

To me this says that we aren't just 1% we are probably closer to 5%

@jessicavallee3831 10 месяцев назад

Just wanted to drop a comment of thanks and support before I forget to.

@tachysphex4095 10 месяцев назад

9:32 I love how unhinged this line was. Sometimes you just need to say it like it is.

@AutisticBarbie 7 месяцев назад

i get accused of faking autism online constantly. It kinda hurts my feelers for some reason. Nobody does it in person tho

@chrissimpson1183 10 месяцев назад

Very little that a government does surprises me...

@dinygijsberts704 10 месяцев назад

We pay ourselves poor but getting less and less help for it ! 😡😡😡

@chrissimpson1183 10 месяцев назад

I am sorry that is happing, I wish I had a answer for you... You need to let them know how you feel wt votes, phone calls and emails.

@nadyah8183 10 месяцев назад

Thank you for talking about this… it’s heart breaking when you get rejected and denied access to support.

@BlueRoseHelen252 10 месяцев назад

I think that the report isn't worth the paper it's written on!

@ZSchrink 10 месяцев назад

Absolutely despicable..... "Oh you have needs, but we learned that those cost money, so bye now....." At least that's something that Canada, USA, and Australia have in common; inflated sticker prices just because it goes through a government program.

@Catlily5 10 месяцев назад

The USA has the most inflated health care costs in the world because we don't have a reasonable government program. Insurance companies and pharmaceutical companies are getting very rich.

@MykeWinters 10 месяцев назад

I feel your frustration! You do what I do when I’m frustrated, rub my face with my hands. My key-worker got me to ask my doctor to get me a referral to an ADHD clinic (I feel I’m inattentive adhd and autistic from my own research), but my doctors didn’t want to spend money. So she wrote a strongly worded letter and finally, I got a referral and put on the list…..a VERY long list. I’ve also been abandoned by the local mental health service, they didn’t take me seriously, they didn’t notice my behaviours. They did diagnose me with CPTSD (due to my childhood and other traumas) depression and social anxiety. My key-worker said that I wasn’t the only one abandoned by the services. It’s bloody hard as it is without these people not even trying to help you. Ah yes, the over explaining and people pleasing.

@tims9434 10 месяцев назад

I waited over 2 years for my assessment. You need to be patient as its underfunded. All I have is a diagnosis, I have an ADHD one too. I don't get any support for this but I never self-diagnosed myself with either condition.

@KampfgruppeDirleganger 10 месяцев назад

Not to get into anything too extremist, but Autism/Asperger's is vastly overrepresented amongst White/Caucasian individual and especially men. While almost all other disabilities or unfortunate acts of biodiversity are validated, cared for, or made to be accepted, ASD and Asperger's are widely discriminated against.

@Catlily5 10 месяцев назад

I think people with schizophrenia are treated worse than people with autism and schizophrenia is overdiagnosed in Black people.

@rita.amstlv 10 месяцев назад

Yes, why would they bother tot make the support better, the NDs are not interesting. Let us cut the support down. I am glad that you give a voice tot our community. Please stay unedited and just stay yourself. Your saying this so good.

@Omneyvdwatering 10 месяцев назад

In the Netherlands we have WMO which gives some financial support for disabled people to get help. After struggling for 20 years and finally getting an autism diagnosis at age 48, I also got WMO which pays for help I get once a week. It's been an absolute game changer for me.

@Tdiva-Elly 10 месяцев назад

This just makes me sad 😢

@scottstarkman6321 10 месяцев назад

Orion, I'm wondering if possibly the cost of providing services to autistic people should be provided directly by the Government (that is, the Government directly employs the service workers) rather than through private agencies who charge additional amounts (such as overhead and profit for the agencies) on top of the salaries for the support workers, which likely significantly increases the costs for these services.

@amandamandamands 10 месяцев назад

That is what used to happen, then there was this great initiative that the end users should have a choice in who they see. In between when it was written up and when the start date was we had a change of government, they took away the government option and only left the free market. The NDIA does set the rates that they pay for different services, I don't know how they decide on those numbers though (the price list can be found online). I know that my old OT said that she was paid about 1/4 of the amount that NDIA pays for her service (she works for a company so they get the full amount), so I am sure that a lot of it goes to making a profit for the industry that has popped up to provide the different services.

@r.t.santor3840 5 месяцев назад

Doctors tell people what they want to hear all the time so it’s not implausible. It’s how we got the opioid epidemic

@DrinkYourNailPolish 4 месяца назад

And other things which shall not be mentioned

@klarisakivlin9433 6 месяцев назад

That’s such a cool trick

@juleyray1975 10 месяцев назад

I was only able to get help after a bone fracture which became a disability. Nothing for all those years of suffering and I have gone through a large number of symptoms both mental and physical. I was in such poor health that a small fracture has permanently disabled me. I do understand a bit of the scepticism because there is such a wide horizon from those that don't speak and self soothe by rocking back and forth for hours a day, to those that are able to manage a yt channel, write a book, and maintain a marriage with kids. I mean that's a wide range of ability. It's makes ppl suspicious about the whole thing. I guess its the difference btween autism as a disease or as a divergence. That's what determines whether or not assistance might be needed. Those that do need aid should be provided an income.

@louisvizenor2518 10 месяцев назад

That sounds like my story in the USA I had to fall 100 feet out of a tree and break all the bones in my back to get any help with autism and I still don't know for sure I am just speculating it's been like 3 years of waiting.

@yeahokaycoolcool 10 месяцев назад

I feel terrible having to say this but there is a part of me that feels that those with higher support needs are able to get support faster and easier than those with lower support needs. It's like either you need a lot of support or you don't need any at all, according to the agencies that determine this shit. I'm also in the USA. Sigh.

@amandamandamands 10 месяцев назад

@@yeahokaycoolcool I feel you, I live in Australia and am late diagnosed. 13 years ago I was diagnosed with mental illnesses and was looked after by the public mental health team for a couple of years, they never suggested any services for me and actually had a team meeting to decide if they should fill out disability paperwork for me (ultimately decided that they would and it was up to the government and not them to decide if I qualified) as I had been working up until a year before I asked them to fill in the paperwork and they had the mindset that working is one of the indicators of recovery and I was essentially going the opposite way. They never suggested or offered any other services to me, I found a community mental health program and from then learned about all these different programs that existed, a couple of them would have been really useful to me, and then NDIS came in and most programs were defunded because the assumption was that everyone who needed help would be on NDIS. A couple of years later they started funding some programs again because they realised that there are people who do need help but don't have NDIS for various reasons. Totally agree though that the mindset is that if you are high functioning then there is no possible way that you could need support or would be struggling in any way.

@juleyray1975 10 месяцев назад

I have been trying to think of the ways autism makes life difficult to navigate , the reasons why maybe some are better able to cope than others, and not just focus on things we share so here goes (1) ask or manipulate others into speaking for him (2) avoid leadership roles or competition (I used to cry over board games) (3) have body dysmorphia, fat phobia (4) has an eating disorder and does it get worse with stressful situations (5) if in college has difficulty getting to classes (it was when I learned that student volunteers were walking with autistic students to class that I first wondered if I might be autistic - it was difficult for me to leave my dorm room - I was always there ) (6) is easily startled or some issue with startle reflex, because this can become PTSD with even a mild trauma Just a few things 😅 and some are probably more female than male autistic issues. I was just thinking that anyone suffering like this would have difficulty achieving very much in life. But for some reason there just isn't much sympathy out there even from family. The autistic person doesn't recognize what it all signifies until years later. Those that can stay focused on succeeding and survival I tip my 🧢 to you. The attributes listed (plus any others that are making life difficulty), and their severity should be part of any determination for receiving aid/help /whatever - not only the determination that yes this seems like autism and so what ?