Immunoadsorption (IA) is a blood-washing procedure, predominantly used in dialysis centres in Germany, for a variety of autoimmune disease. In the last six years, IA has been used in Germany for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and has even been studied (see link below). But what is it actually like to experience this treatment? What kind of results do patients reports? In this video, we explore some anecdotal reports of patients who have used this treatment, both positive and negative reports. This video is also relevant for Long Covid and POTS.
Timestamps:
1:10 introduction
4:32 positive patients
13:40 middling results
15:14 negative
20:13 would I do it/final thoughts
My name is Patrick Ussher and I am an ME/CFS patient. I have written a book on POTS and also about thirst in ME/CFS, POTS and Long Covid.
Personal website (including details about consultations service): www.patrickussher.com
My (free) book on thirst in ME/CFS, POTS, LC: www.themythofprimarypolydipsia.com
NB: This video is for educational purposes only - please always consult a doctor about any health issues or changes.
Links mentioned in this video:
Normalyte (most helpful supplement I've ever found for ME/CFS) - affiliate link: normalyte.com/?ref=ftveadx3
German IA group - / 4515672975205914
Reddit IA discussion - / has_anyone_conducted
NB - only patient no 4 is from reddit page, rest from FB
IA study in ME/CFS - journals.plos.org/plosone/art...
16 май 2024
