hi, my name's stephi 🌻 i'm a tattoo artist & vlogger.
i was born with a life-threatening disease called cystic fibrosis, & spent most of my life expecting to die before age 30. a huge part of my life has been spent in the hospital, fighting lung infections & just trying to survive another day. despite this, i've always tried to live my life to the fullest. living fast has led me to traveling the US in my car alone, to then traveling the world with just my backpack full of clothes/medications, with the goal of seeing as much of the world as i could before my time was up. my life completely changed in late 2019, when trikafta, the first ever drug to successfully treat CF came out. it was an absolute miracle that it came out when it did, & i don't think i'd still be here without it. now my life expectancy is much longer, & since then i've converted/traveled in a van, & now i'm living in/renovating my own house (something i never expected to do!) 🥰
My name is kelly and i have lots of different Medical diagnosis that keeps on appearing as I get older I’m 17 going on 18 so I have too take 3 medicine prescribe to me lots of vitamins for different reasons that i have been in the hospital for many different reasons and some i have to stay in the hospital to hello from sugars and all tips of stuff and normal people hospital things too they hade me taking bad tasting medicine in the hospital and out of the hospital but not at the moment i am not so i get it doesn't taste good at home after i left the hospital from days after sugars so i get it you will find the help that you need but you will need to keep on having hope and sharing you storys
How is the van life scene in Asheville these days? I I’ve couple hours from there and have been wanting to start van life for years. Just bought a van.
Watching this video was magical! I loved it all! One of my favorite things was the floor lamp with the mosaic tile globes. Where can I get one like that?
This is the best thing I’ve seen in a long time and really lifted my spirits right now. I just lost an incredible friend who was such a light in this world to an autoimmune disorder at only 35 years old. With a broken heart, I remembered this channel and came over with the intention of hearing a story of hope. I’m blown away by your progress and it makes me so incredibly happy!! Even the way you talk now is full of breath and full of life. Thank god for this medication. I’m so happy for you. I’m on a fitness journey myself, with a chronic illness, and you’ve just inspired me even more to amp it up. Thank you for being such a huge source of inspiration to so many people!! ♥️
I just resubscribed because I forgot about you. I remember your videos with your respiratory system, living in your car by yourself in the ghetto. You are looking good! Keep tattooing and possibly show the artwork in videos on paper or posters
Hey Stephi I love watching your channel , the realjerseyjoe mention something important , also when you cut boards never brace both sides if you ever use a skill saw it will kick back on you and you might get hurt . We want you around ya know . Now as for you coughing up blood here are some natural things please try them , Serapeptase its an enzime from the japanese silk worm works wonders on the lungs, also take 1/3 2 percent low fat cottage cheese , 3 or 4 tablespoons of cold pressed flaxseed oil and 1/2 cup of your favorite fruit blend in a bullet blender drink that atleast 2 times a day amazing healing power you will love it . Also make some rick simpson cannibis oil he has instructions to make online and start a treatment of that . As I said we want you around and thats sounds serious . Lots of lv Stephi !
My sister was getting really bad with her CF a couple years ago but with clinical trials and pharmacal improvements she is now superseded the life expectancy of 2 to now 21 years old since they came out with the pill for her gene type and I love her so much, and so happy and thankful that she is able to live a better quality of life. She now doesn't take as much drugs as she used to, she no longer needs a G-Tube and a port, and she doesn't need to go for nowhere near as many appointments as she used to.
You should hit up bike rallies. Go to Sturgis, Myrtle Beach, Daytona. Daytona and Sturgis are really big ones. Get a booth . You can make a shit ton of money. It's a good way of meeting a lot of good people and get on the road. Love your voice btw. Kinda reminds me of Jennifer Tilly.
