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Ostomystory
Ostomystory
Ostomystory
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I started this channel to honestly show my emotional and physical journey with Ulcerative Colitis and my ileostomy, and eventually J-pouch
Update! I've missed you guys!
9:46
8 лет назад
My New Goal! Team Challenge!
3:46
10 лет назад
Our New Normal
12:09
10 лет назад
To The Newly Diagnosed
7:56
10 лет назад
MEET UP FEBRUARY 19th!
3:20
10 лет назад
All About Blockages!
8:29
10 лет назад
# Ostomy problems
7:08
10 лет назад
I'm sad
7:56
10 лет назад
Flares after Total Colectomy
5:36
10 лет назад
It's Okay to Say No
6:38
11 лет назад
2013 Ostomystory Meet Up
2:16
11 лет назад
Laura After Her Drain Insertion
2:34
11 лет назад
Q & A Part 2
12:58
11 лет назад
Q and A: Part 1
10:10
11 лет назад
Embarrassing Leak
3:31
11 лет назад
Wearing tight clothes with an ostomy
6:46
11 лет назад
What My IBD Has Taken From Me
12:10
11 лет назад
2013-03-22_13-12-28_198.mp4
6:45
11 лет назад
How we approach our struggles
7:42
11 лет назад
Exciting News!
3:10
11 лет назад
What My IBD Has Given Me
14:37
11 лет назад
Комментарии
@user-vs7et8vq4z
@user-vs7et8vq4z 15 часов назад
@stevenpryer5880
@stevenpryer5880 6 дней назад
MRS I STUBBS TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE 25MG 9thAPRIL2024 TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE
@stevenpryer5880
@stevenpryer5880 6 дней назад
MRS I STUBBS TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE 25MG 01159 523008 TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATETOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE TOPIRAMATE
@jdd-d4181
@jdd-d4181 7 дней назад
you are a wonderful woman..thanks for sharing with us..🙏
@kholoudabdel-nasser9323
@kholoudabdel-nasser9323 12 дней назад
الله يشفيكي و يعافيكي و يشفي كل مريض يارب
@scottchaisson6311
@scottchaisson6311 15 дней назад
Just got my ostomy bag, very depressed at first. Thanks for your videos, it's good to see I'm not the only one.
@gianfrancogiovedissanto9078
@gianfrancogiovedissanto9078 26 дней назад
Beata te che la tua stomia non presenta granulomi circostanti...la mia ormai è prolassata devo stare spesso a letto per farla rientrare perché si allunga tanto...
@carlosavila2007
@carlosavila2007 26 дней назад
Your are an amazing young lady. I am 81 years old and a year and half ago I had a Colostomy. It was a life saving surgery. I had lost close to 50 lbs. Now I can eat like before I had problems. The very best to you!
@sodogin3462
@sodogin3462 26 дней назад
As an individual with a tremendous heart who is constantly trying to find inspiration to fix the world, I find you to be quite remarkable. Thank you and your mother for sharing such magnificent content.
@andrewvelonis5940
@andrewvelonis5940 Месяц назад
I just had a tumor removed and I live alone so this video is helpful to me.
@stevewhite2375
@stevewhite2375 Месяц назад
Thankyou.
@Cr7squad
@Cr7squad 2 месяца назад
Thank you my god❤
@Valeri_Glekler
@Valeri_Glekler 2 месяца назад
Добрая и смелая девушка, спасибо тебе!
@takeyla23nc
@takeyla23nc 2 месяца назад
I don’t have one but I’m thinking about asking my doctor for it
@viewerdiscression
@viewerdiscression 2 месяца назад
I hate drs. They are such liars. I have a problem with allergies and I started wheezing and these drs. gave me Predinisone along with corticosteroid inhalers and I became borderline diabetic, plus the were telling me that corticosteroids is not a steroid! I was still wheezing and they still wnted to give me prednisone even after I told them that I am a few points away from being diabetic! The predinisone only stopped the wheezing while I took it, so it really didn't help me because I wheeze whenever I get around an allergen to this day! I too gained weight and I am older so I really don't fee like going to the gym eventhough I just came from working out. It's a necessity now whereas, when I was younger, I was just doing it to maintain. Now, I'm wondering if prednisone causes fibroids because post menopausal women aren't really bothered with that, but I am! I think it's from taking that damn prednisone. I also got a moon face and insomnia from too much cortiso in my body! I would always ask the drs. if I have cushing syndrom and they would say no, okay, well, why in the hell won't my face go down? I stopped Prednisone 2 years ago and I am still bothered with insomnia and this fat face. Now I'm trying to find out if Prednisone has anything to do with the formation of fibroids because according to this dr., she claims I have multiple; not 3 or 4, but multiple. What the hell does not mean! I'm just going to get a 2nd opinion
@anthonyrobertson2210
@anthonyrobertson2210 2 месяца назад
God bless Her, I don't think I could Do that for the rest of my life 😌🙏
@taylorpresley4604
@taylorpresley4604 3 месяца назад
You're a darling! You're so courteous to your mama! You did a fabulous job. Ive had a colostomy for a few years, now
@thealmaherself
@thealmaherself 3 месяца назад
Where are you? Come back!!!!
@khaoulatrabel134tt
@khaoulatrabel134tt 3 месяца назад
Haw many days to change an ostomy???
@jsmythib
@jsmythib 3 месяца назад
Just got out of the hospital. 6 weeks, 3 weeks of icu. All sorts of complications with what started as an absesed appedix. We had terrible troubles with my leaking connections, infected skin and poorley placed ostemi to my new bags at the hospital. All it took was 1 night at home on youtube researching and some 3d printed augments I made to get my seal right with the bags I have atm. I just wanted to thankyou for empowering all of us with your content and others like you. The new age is really amazing, thankyou for helping making it happen.
@OrsineLila
@OrsineLila 3 месяца назад
Thank you Jenny.❤
@annmullard8805
@annmullard8805 3 месяца назад
I had an ileostomy at 21yr old now 62
@patrowe1832
@patrowe1832 4 месяца назад
instead of fanning, I use my hair dryer, no heat setting.
@tsungiMoyo05
@tsungiMoyo05 4 месяца назад
Thank you for sharing
@jillgallop
@jillgallop 4 месяца назад
you are a total star
@therealessy2210
@therealessy2210 4 месяца назад
Thank you so much for such an educative video❤❤❤
@MrSexoda
@MrSexoda 4 месяца назад
My wife is severely disabled and i have been caring for her ileostomy for 10 years. Was never told how to care for it and had to learn as i went. I do things they say you shouldnt do . Like i use cheap baby wipes to clean everything..i use a wafer that is precut to next size bigger than the stoma and use paste to fill . Use adhesive remover wipe then skin prep wipe then while still wet i put the wafer on . Still have the first 1 oz bottle of powder ( very rarely need to use it). Only problem weve ever had is she had an allergic reaction to the glue on some wafers in the very beginning. Takes about 4 minutes to change including emptying the bag before the change. Have never had any problems . she can go up to 7 days before change. Way i see it is, keep it simple , consistent and clean. Change in the morning before eating and never have a leak issue slowing the change .. I shower her without covering it and even used a balloon wheel wheelchair and took her in the ocean without covering it .... She got soaked . Has never afected the ostomy ,skin or stomain any way . Dont use deoderant ...keep it very clean when emptying and it doesnt smell. Keep it simple , consistent and clean.
@benjaminbrown5245
@benjaminbrown5245 4 месяца назад
Can you carry milk in that bag? And does the bag stink if you get turned on?
@alfredobermudez5663
@alfredobermudez5663 4 месяца назад
Im on a carnivore diet. I have a ostomy for 7months. I have Lots of energy. Vegan didn't work out for me. I hope you are doing well.
@richardbadish6990
@richardbadish6990 4 месяца назад
Your positivity is impeccable! Most people would have gotten so frustrated with this especially trying to film a video and having things go wrong. However, I love that u left it as is. Otherwise people may have been very upset with themselves, not being able to do it perfectly every time. So them knowing that these things are common. Is probably very reassuring to them! You seem to have such a great spirit! To have to deal with this at such a young age especially as a beautiful young lady. Had to be stressful and overwhelming at first! I just want to say, even tho idh a stoma. I truly appreciate you making this video! Hopefully u continue to educate those who are new to this type of living with a stoma. You are absolutely gorgeous btw, and you seem like a very bright and vibrant person to be around! Stay strong girl, u are doing great! I'm a 35yr old guy, and this doesn't make me think u are any less beautiful BTW! Just an fyi!
@ddaltonroczombie7655
@ddaltonroczombie7655 5 месяцев назад
WHY DID YOUR SURGEN PUT IT IN THE MIDDLE OF YOUR BELLY!? YOU GOT THE WRONG POUCH HONEY, GO GET CONVETEC ACTIVE LIFE ONE PIECE, FOR SEX JUST REMOVE THE CLIP, ROLL IT UP AND USE SOME 2" PAPER FIRST AID TAPE YOU GOT WAY TO MUCH GOING ON THERE, I CAN CHANGE OUT IN 1-2 MINUTES TOPS,
@YW2324
@YW2324 5 месяцев назад
I didn't know that marshmallows help slow down the digestion 😊. Interesting. Wonder why that is.
@geeg7202
@geeg7202 5 месяцев назад
Nope in the hospital got an advocate for yourself so much
@geeg7202
@geeg7202 5 месяцев назад
I know the old video but my gosh you’re speaking my whole mind. Thank you for letting me know. I’m not alone the battle with food. Yeah I want to eat salads. Yeah I want to eat everything on my pizza. I wanna taste it so spit it out.
@kpenn100
@kpenn100 5 месяцев назад
just changed my first bag at home it feels like a good hold ,thank you
@meeghujohn3290
@meeghujohn3290 5 месяцев назад
Jesus
@Buffykc62
@Buffykc62 5 месяцев назад
Hopefully you have gotten the more modern ostomy supplies
@stealthxmonk
@stealthxmonk 5 месяцев назад
Wow, you are still so very attractive, even with an Ostomy bag. I'm 41 and found out that I may need this procedure done and feel like my life just ended. Thank you for these videos and giving me hope to continue living...
@mukunthannarayanasamy4773
@mukunthannarayanasamy4773 5 месяцев назад
Very brave lady
@noodle-head
@noodle-head 5 месяцев назад
In how much time the change is recommended
@user-mo2ie3qm2u
@user-mo2ie3qm2u 5 месяцев назад
Hello my brave girl i am Charalampos 49 years old from greece last year i had to do ostomy surgery due to cancer to the lower part but it was unfortunately 4 th stage metastatic to liver since then- i do not have your courage to make alone the change- but my mother does it- I congratulate your power and i wish you happiness health and keep up the smile that you have
@pmcate2
@pmcate2 6 месяцев назад
Weird question, how do you pass gas with the bag on?
@user-ec4ec4no3v
@user-ec4ec4no3v 6 месяцев назад
I use that same Hollister pouch in a different size 18112. They leak on the bottom like that all the time and they have for years. I’ve talked to Hollister several times and they finally got me into a bag with more of a urostomy type of end on it. I’m using 18012 drainable ostomy pouch with soft tap. It doesn’t leak at all but it develops an odor after 2-3 days.
@wen6514
@wen6514 6 месяцев назад
Bless you.
@roxannejohnson6027
@roxannejohnson6027 6 месяцев назад
I am also concerned, can you please comment an update?
@roxannejohnson6027
@roxannejohnson6027 6 месяцев назад
You're amazing, thank you for sharing this.
@2ndchancehypnotherapy
@2ndchancehypnotherapy 6 месяцев назад
This video was recommended to watch for my nursing class.
@jessiec4128
@jessiec4128 6 месяцев назад
I noticed my stoma was not normal by the way it was out. So, I pulled slowly and was able to get it out more. Just a little and it worked much better. when I got out of the hospital, I watched this video. It helped me Big Time! Thank you for this video!
@Annedroid_VisorPro
@Annedroid_VisorPro 6 месяцев назад
I have never done any drugs let alone Anavar but I was considering it till I came across your channel. Thank you beautiful soul. This makes me decide to not ever take Anavar or any types of Drugs at all. Thank thank you 🫶 you are a hero and saved me.
@roberthartley7867
@roberthartley7867 6 месяцев назад
Thank you ❤